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still here
Hi All I like to try and update my journey so you can see that there are some longer term survivors. I am still on 0 PSA with advanced cancer. My journey is on my bio. I was diagnosed at 47 and now I’m 54 with no progression. My primary treatment was Zytiga and it is still working. I take a concoction
Hi All I like to try and update my journey so you can see that there are some longer term survivors. I am still on 0 PSA with advanced cancer. My journey is on my bio. I was diagnosed at 47 and now I’m 54 with no progression. My primary treatment was Zytiga and it is still working. I take a concoction
Apollo123
in
Advanced Prostate Cancer
6 months ago
hypothyroidism
I am trying to make a change in thyroid medication.....I was trying change over to a natural thyroid and stop my Armour thyroid 90 mcg I was doing good until last month ....got very tired, heart palpitations , joint pain ect.... been trying to get thyroid tested but could not get doctors to do ( long
I am trying to make a change in thyroid medication.....I was trying change over to a natural thyroid and stop my Armour thyroid 90 mcg I was doing good until last month ....got very tired, heart palpitations , joint pain ect.... been trying to get thyroid tested but could not get doctors to do ( long
Spencer7
in
Thyroid UK
4 months ago
Very promising trial!
They were given a
combination
of AZD5069, an experimental drug that prevents white blood cells from being dragged inside tumours, and enzalutamide, a hormone therapy commonly used to treat prostate cancer.
They were given a
combination
of AZD5069, an experimental drug that prevents white blood cells from being dragged inside tumours, and enzalutamide, a hormone therapy commonly used to treat prostate cancer.
Maxone73
in
Advanced Prostate Cancer
8 months ago
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Chiropractors
Sometimes I comment on chiropractors and how they can affect health issues. I posted this on another post and thought maybe some people, who do not read that post, could be interested. There is a chance that the condition of the spine could have something to do with AF. Heart doctors generally do not
Sometimes I comment on chiropractors and how they can affect health issues. I posted this on another post and thought maybe some people, who do not read that post, could be interested. There is a chance that the condition of the spine could have something to do with AF. Heart doctors generally do not
EngMac
in
AF Association
8 months ago
Occupational Therapy ‘drop-in’ event
Occupational Therapists play an important role in supporting people living with ataxia! We do occupations from the moment we’re born – they’re essential to living. They give our lives meaning and purpose, they shape who we are, and help us connect with others. This week is Occupational (OT) week!
Occupational Therapists play an important role in supporting people living with ataxia! We do occupations from the moment we’re born – they’re essential to living. They give our lives meaning and purpose, they shape who we are, and help us connect with others. This week is Occupational (OT) week!
wobblybee
in
Ataxia UK
8 months ago
Made a desicion, went private
I was referred to ENT in November about my goitre by an Anaesthetist. I've been on carbimazole coming up to a year and every single 6 weeks i am over medicated. Stopped meds for 2 weeks, or 6 weeks and hey presto I'm back to severely over. Now hairless. I found the name of the Consultant I'd been referred
I was referred to ENT in November about my goitre by an Anaesthetist. I've been on carbimazole coming up to a year and every single 6 weeks i am over medicated. Stopped meds for 2 weeks, or 6 weeks and hey presto I'm back to severely over. Now hairless. I found the name of the Consultant I'd been referred
TwigwithaWig
in
Thyroid UK
4 months ago
Aphasia
My husband is one month out of his tumor being 100% removed. His aphasia seems to be worse then it was 2 weeks out from surgery. He just started speech therapy this week. Is the decline normal?
My husband is one month out of his tumor being 100% removed. His aphasia seems to be worse then it was 2 weeks out from surgery. He just started speech therapy this week. Is the decline normal?
Nylo
in
Glioblastoma Support
8 months ago
Replace or reorganize neurons
Can someone explain :Does the parkinson's glove therapy assume we don't have a loss of Dopa. Neurons but they just need to be reorganized. Via vibration Where gene therapy assume we have a loss of Neurons that need to be replaced ? Which is it, replace or reorganize?
Can someone explain :Does the parkinson's glove therapy assume we don't have a loss of Dopa. Neurons but they just need to be reorganized. Via vibration Where gene therapy assume we have a loss of Neurons that need to be replaced ? Which is it, replace or reorganize?
bigl62
in
Cure Parkinson's
8 months ago
Targeted Gene Therapy for Symptom Relief in Parkinson’s Disease
Very early, still a looooong way out, and results were only in animal models, but something to keep an eye on. https://www.brainpost.co/weekly-brainpost/2023/11/7/targeted-gene-therapy-for-symptom-relief-in-parkinsons-disease
Very early, still a looooong way out, and results were only in animal models, but something to keep an eye on. https://www.brainpost.co/weekly-brainpost/2023/11/7/targeted-gene-therapy-for-symptom-relief-in-parkinsons-disease
Neurosmith
in
Cure Parkinson's
8 months ago
Thyroid video
[i]
Why the Hesitancy in Recommending
T3/T4
Therapy
?
[i]
Why the Hesitancy in Recommending
T3/T4
Therapy
?
Guineapiggy
in
Thyroid UK
11 months ago
Occupational therapy intervention for FND
Would anyone like to share their experiences of occupation therapy intervention for FND, especially in relation to the mitigation of shaking, vocalisations, and hypersensitivity to noise. How helpful did you find it?
Would anyone like to share their experiences of occupation therapy intervention for FND, especially in relation to the mitigation of shaking, vocalisations, and hypersensitivity to noise. How helpful did you find it?
Shimmyaway
in
Functional Neurological Disorder - FND Hope
8 months ago
Online/Meet ups for people with Hypertrophic Cardiomyopathy struggling with Mental Health?
Hi everyone, so my partner was diagnosed with HC when he was 14. Been in great shape and only having medication for his condition up until 2016/2017, then 41, he was advised to have an ICD. Since then he's had 3 occasions where the device has delivered shock therapy and unfortunately the last 2 occasions
Hi everyone, so my partner was diagnosed with HC when he was 14. Been in great shape and only having medication for his condition up until 2016/2017, then 41, he was advised to have an ICD. Since then he's had 3 occasions where the device has delivered shock therapy and unfortunately the last 2 occasions
Chunkiedog
in
British Heart Foundation
4 months ago
Results after T3/T4 trial...is this it?
Hello, Medicheck results after T3/T4 trial since 15/11/23, reduced levo then from 150 to 125, added 5mg T3 23/11/23, red levo to 100mg 06/12/23, added 55mg T3 12/12/23. 30/12/23 not feeling best GP closed added 12.5 levo myself as thought maybe under medicated. Medicheck 08/02/24. T4 16.7
Hello, Medicheck results after T3/T4 trial since 15/11/23, reduced levo then from 150 to 125, added 5mg T3 23/11/23, red levo to 100mg 06/12/23, added 55mg T3 12/12/23. 30/12/23 not feeling best GP closed added 12.5 levo myself as thought maybe under medicated. Medicheck 08/02/24. T4 16.7
Klawd
in
Thyroid UK
5 months ago
Interesting paper summarising state of art (2022) for ADT
In addition, some patients with hormone sensitive prostate cancer and low volume metastatic disease may also benefit from
combination
therapy
.”
In addition, some patients with hormone sensitive prostate cancer and low volume metastatic disease may also benefit from
combination
therapy
.”
Graham49
in
Advanced Prostate Cancer
1 year ago
Is this something that needs investigating/Or Thoughts on cause?
Im 46 F. Mild on/off non bothering pain for 2 year's. If it was a serious problem, would it have got worse by now as it hasnt and just comes and goes since then? It's more the not knowing the cause, than the pain that bothers me. It started in the left breast and armpit. (I've put the breast pain down
Im 46 F. Mild on/off non bothering pain for 2 year's. If it was a serious problem, would it have got worse by now as it hasnt and just comes and goes since then? It's more the not knowing the cause, than the pain that bothers me. It started in the left breast and armpit. (I've put the breast pain down
Milky99
in
Women's Health
5 months ago
Sylvia Plath and B12?
Has anyone else pondered on the links here? Although I can find all sorts of discussion about her early stresses, repeated losses and struggle with depression, even chemical imbalances, possible bipolar, not a jot can I find about the B12 deficiency which she would have had at least at one point, even
Has anyone else pondered on the links here? Although I can find all sorts of discussion about her early stresses, repeated losses and struggle with depression, even chemical imbalances, possible bipolar, not a jot can I find about the B12 deficiency which she would have had at least at one point, even
bookish
in
Pernicious Anaemia Society
5 months ago
Buprenorphine and antidepressants
I have had RLS for 50 years and depression right along with it. Wellbutrin has worked well, but I still get periods of severe depression on it. Since discontinuing the Pramipexole 3 months ago, the depression has been very severe. Not sure if was stopping the Pramipexole or starting the Bup. has anyone
I have had RLS for 50 years and depression right along with it. Wellbutrin has worked well, but I still get periods of severe depression on it. Since discontinuing the Pramipexole 3 months ago, the depression has been very severe. Not sure if was stopping the Pramipexole or starting the Bup. has anyone
teakabeagle
in
Restless Legs Syndrome
5 months ago
Treatment Options
PSA 4.7 (over 2 years it double and then doubled again) This is the Pathology report A: Prostate gland, left lateral posterior, biopsy: Benign prostatic tissue with mild chronic inflammation, no tumor present. B: Prostate gland, left lateral mid, biopsy: Benign prostatic tissue with mild chronic
PSA 4.7 (over 2 years it double and then doubled again) This is the Pathology report A: Prostate gland, left lateral posterior, biopsy: Benign prostatic tissue with mild chronic inflammation, no tumor present. B: Prostate gland, left lateral mid, biopsy: Benign prostatic tissue with mild chronic
Vortex12
in
Prostate Cancer Network
5 months ago
Exercise making it worse?
Hi everyone, I have a question about exercise and endo. So basically I've been pretty much bedbound all of last year with rare weeks of being able to function, but lately I've experience a good couple of months of feeling better and being able to live! (Don't get me wrong still in pain but manageable
Hi everyone, I have a question about exercise and endo. So basically I've been pretty much bedbound all of last year with rare weeks of being able to function, but lately I've experience a good couple of months of feeling better and being able to live! (Don't get me wrong still in pain but manageable
Lavenderpetal
in
Endometriosis UK
5 months ago
Why is this so hard, someone to talk to
Hi everyone. I had treatment resistant depression for my entire adult life, I've been on pretty much every med, hospitalized, ECT tms and ketamine. Nothings helped. I've gone the DBT and cbt route. I've been suicidal. Can anyone out there relate? I'm married with a 13 year old which makes it harder.
Hi everyone. I had treatment resistant depression for my entire adult life, I've been on pretty much every med, hospitalized, ECT tms and ketamine. Nothings helped. I've gone the DBT and cbt route. I've been suicidal. Can anyone out there relate? I'm married with a 13 year old which makes it harder.
Coffeeshop
in
Anxiety and Depression Support
5 months ago
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