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To those newly diagnosed! There is hope!
I was diagnosed with Parkinson’s in Dec 2018. My form of Parkinson’s has a huge psychological element that many of you can relate to. It’s obvious because of how quickly I progressed while I was getting diagnosed . My Dad who was my best friend and business partner died unexpectedly in 2013, which destroyed
I was diagnosed with Parkinson’s in Dec 2018. My form of Parkinson’s has a huge psychological element that many of you can relate to. It’s obvious because of how quickly I progressed while I was getting diagnosed . My Dad who was my best friend and business partner died unexpectedly in 2013, which destroyed
38yroldmale
in
Cure Parkinson's
8 months ago
CBD - my Mum's journey so far
Hello - I am so grateful to have found this group as I have felt alone given this disease is rare and even the health care professionals are not aware of it. I've detailed her journey which may help others trying to get a diagnosis. In 2019 my Mum's speech became slurred (only the family at this
Hello - I am so grateful to have found this group as I have felt alone given this disease is rare and even the health care professionals are not aware of it. I've detailed her journey which may help others trying to get a diagnosis. In 2019 my Mum's speech became slurred (only the family at this
Lalamccoy
in
PSP Association
8 months ago
Red Light Therapy
I have been using Wellreds Coronet for two years. I sleep extremely well since I started using it ( I had terrible sleep problems for years ). Worth every penny ! I use their preset program 2 x/day
I have been using Wellreds Coronet for two years. I sleep extremely well since I started using it ( I had terrible sleep problems for years ). Worth every penny ! I use their preset program 2 x/day
Defiance
in
Cure Parkinson's
8 months ago
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Seasonal Affective Disorder and photosensitive retinal ganglion cells
I think I suffer from Seasonal Affective Disorder (SAD) and it has got much worse since I lost most. of trhe vision in my left eye and some peripheral vision in both eyes in 2021. I've seen some interesting reports into the recently discovered third set of photoreceptive cells in teh retina "photosensitive
I think I suffer from Seasonal Affective Disorder (SAD) and it has got much worse since I lost most. of trhe vision in my left eye and some peripheral vision in both eyes in 2021. I've seen some interesting reports into the recently discovered third set of photoreceptive cells in teh retina "photosensitive
Tarsius
in
Anxiety and Depression Support
8 months ago
Msa 7 months on
The symptoms still kicking on 7 months in. Still out of wheelchair (I'd say just)I've bought a mobility scooter. The council have been really helpful and speech therapy have been excellent. Old friends have been good to catch up with for an hour or so but I don't know if it's common but insomnia and
The symptoms still kicking on 7 months in. Still out of wheelchair (I'd say just)I've bought a mobility scooter. The council have been really helpful and speech therapy have been excellent. Old friends have been good to catch up with for an hour or so but I don't know if it's common but insomnia and
thedjsupreme
in
Multiple System Atrophy Trust
8 months ago
Self Anthem - Music therapy
So, I was remembering when I had a major breakdown when my life was falling apart everywhere I turned - after I realized that the life/relationship that I had invested so much of everything into was a big fat lie ... And I started to pick myself up and I heard this song and kept playing it over and over
So, I was remembering when I had a major breakdown when my life was falling apart everywhere I turned - after I realized that the life/relationship that I had invested so much of everything into was a big fat lie ... And I started to pick myself up and I heard this song and kept playing it over and over
HopeforMiami
in
Anxiety and Depression Support
8 months ago
update
Well the acupunture doesn't seem to be helping at this stage, have stopped it and trying reflexology and Low level laser therapy. The GP put me on 20mg Norspan patch from 15....it didn't seem to change the effect on my legs at the higher dose but it made me quite nauseated and sweaty and tired on higher
Well the acupunture doesn't seem to be helping at this stage, have stopped it and trying reflexology and Low level laser therapy. The GP put me on 20mg Norspan patch from 15....it didn't seem to change the effect on my legs at the higher dose but it made me quite nauseated and sweaty and tired on higher
Hidden
in
Neuropathy Support
8 months ago
update
Well the acupunture doesn't seem to be helping at this stage, have stopped it and trying reflexology and Low level laser therapy. The GP put me on 20mg Norspan patch from 15....it didn't seem to change the effect on my legs at the higher dose but it made me quite nauseated and sweaty and tired on higher
Well the acupunture doesn't seem to be helping at this stage, have stopped it and trying reflexology and Low level laser therapy. The GP put me on 20mg Norspan patch from 15....it didn't seem to change the effect on my legs at the higher dose but it made me quite nauseated and sweaty and tired on higher
Hidden
in
Restless Legs Syndrome
8 months ago
Struggling with impact on older children
When I was in hospital after PP last summer, I had amazing counselling on offer for me, for my partner, for my bonding with my baby. But, nothing for how my PP episode had impacted my older child. my son, who is now six, started to become very anxious about being left alone. This started when I was
When I was in hospital after PP last summer, I had amazing counselling on offer for me, for my partner, for my bonding with my baby. But, nothing for how my PP episode had impacted my older child. my son, who is now six, started to become very anxious about being left alone. This started when I was
MotherOfBears
in
Action on Postpartum Psychosis
8 months ago
medication
hi guys,on amlodipine,aspirin,ramipril,and bisop to treat, moderate leaky aorta valve with thoracic aneurysm, can anyone explain why they won’t repair it yet,ever time I meet with my cardiologist they don’t say much and i often get different doctors, and kinda being on the quiet side …. Still feeling
hi guys,on amlodipine,aspirin,ramipril,and bisop to treat, moderate leaky aorta valve with thoracic aneurysm, can anyone explain why they won’t repair it yet,ever time I meet with my cardiologist they don’t say much and i often get different doctors, and kinda being on the quiet side …. Still feeling
Hidden
in
British Heart Foundation
5 months ago
Estrogen Replacement therapy after surgical menopause
Hi everyone! I would like to chat with somebody who may have or is going through a similar experience. I had a full hysterectomy- removal of everything, over 20 years ago. I am on 2mg of Estrogen once per day. The docs used to do the implant yearly but it is no longer available. I am now 51
Hi everyone! I would like to chat with somebody who may have or is going through a similar experience. I had a full hysterectomy- removal of everything, over 20 years ago. I am on 2mg of Estrogen once per day. The docs used to do the implant yearly but it is no longer available. I am now 51
JenniferBut
in
Menopause and Perimenopause Support
5 months ago
Negative self-esteem and trying on self-respect for size.. I don't know what to do please Help me!! 🤞
This is a very long story. And it would be so very helpful if you could stick it out but I understand if you don't. I tried to edit and I keep re reading, it's rambling kind of but I'm that distressed.I have clinical diagnosis of major depressive disorder, anxiety, PTSD, for over 40 years. I have been
This is a very long story. And it would be so very helpful if you could stick it out but I understand if you don't. I tried to edit and I keep re reading, it's rambling kind of but I'm that distressed.I have clinical diagnosis of major depressive disorder, anxiety, PTSD, for over 40 years. I have been
Montana136
in
Major Depressive Disorder (MDD) Support
8 months ago
RED LIGHT THERAPY also known as Photobiomodulation (PBM), Phototherapy, show of hands please
Could we get some idea of how many people are using Red Light Therapy for Parkinson's or other ailments . What are you treating What benefits you have received Any negative aspects How long you have been using it What type of devise , hat, belt, stand up or wall mount panel How powerful device
Could we get some idea of how many people are using Red Light Therapy for Parkinson's or other ailments . What are you treating What benefits you have received Any negative aspects How long you have been using it What type of devise , hat, belt, stand up or wall mount panel How powerful device
Gymsack
in
Cure Parkinson's
8 months ago
Red Light Therapy Pad
Dear Friends, I have ordered a red light therapy pad which I am using since yesterday, on the back of my head in the morning and top of my head in the evening for 10 mins 660nm and 10 mins 850nm, both pulsing at 10 Hz. I feel groggy after using it with a worsening of symptoms. Is this normal?
Dear Friends, I have ordered a red light therapy pad which I am using since yesterday, on the back of my head in the morning and top of my head in the evening for 10 mins 660nm and 10 mins 850nm, both pulsing at 10 Hz. I feel groggy after using it with a worsening of symptoms. Is this normal?
JayPwP
in
Cure Parkinson's
8 months ago
Cortisol - Dr Berg you tube video on a 26 step natural treatment plan
I really got interested in cortisol when I met 6 months back a super fit young chap who was a national standard rower who was part of the Olympic team and had to give everything up due to a nasty auto-immune disease that he has subsequently cured. As part of that he has to limit any intense exercise
I really got interested in cortisol when I met 6 months back a super fit young chap who was a national standard rower who was part of the Olympic team and had to give everything up due to a nasty auto-immune disease that he has subsequently cured. As part of that he has to limit any intense exercise
Danielj1
in
Thyroid UK
8 months ago
Covid
Hi all I have a dilemma facing me . As you know , I have had covid in the last few weeks and still getting over it . My sons girlfriend is having a party with about 90 people ! . My son is going to propose, which we couldn't be more happier. She had no idea . I have not said for sure I will go, they
Hi all I have a dilemma facing me . As you know , I have had covid in the last few weeks and still getting over it . My sons girlfriend is having a party with about 90 people ! . My son is going to propose, which we couldn't be more happier. She had no idea . I have not said for sure I will go, they
Stavrou1
in
CLL Support
5 months ago
ADHD-PI dad + ADHD-PH 4yo boy = Chaos
I’ll try to be brief. We both have ADHD with different classifications. All family goes to therapy. He takes Methylphenidate since 3 months ago and goes to occupational therapy. Also 1mg melatonin for sleep since he started those meds. He showed issues at school since over a year ago. Been kicked out
I’ll try to be brief. We both have ADHD with different classifications. All family goes to therapy. He takes Methylphenidate since 3 months ago and goes to occupational therapy. Also 1mg melatonin for sleep since he started those meds. He showed issues at school since over a year ago. Been kicked out
ADHDLatino
in
CHADD's ADHD Parents Together
8 months ago
Wake up please and you will understand.
Last year I was a mess, my ocd hit high levels but alot of that was because I came off valium cold turkey and it gave me a massive physical and psychological major major battle, that breakdown taught me alot my friends and I hope this will serve you well. I suffered and still do at times when stressed
Last year I was a mess, my ocd hit high levels but alot of that was because I came off valium cold turkey and it gave me a massive physical and psychological major major battle, that breakdown taught me alot my friends and I hope this will serve you well. I suffered and still do at times when stressed
Dempsey1919
in
My OCD Community
5 months ago
CBT-I (Cognitive Behavioral Therapy Insomnia) for Parkinson's Insomnia
I have read in multiple places that Cognitive Behavioral Therapy for Insomnia works for people with Parkinson's. I can't seem to find anyone who has tried it. Has anyone here tried it? Did it work?
I have read in multiple places that Cognitive Behavioral Therapy for Insomnia works for people with Parkinson's. I can't seem to find anyone who has tried it. Has anyone here tried it? Did it work?
staceysack
in
Cure Parkinson's
6 months ago
Latest blood test results
I did a private blood test with monitor my health on Tuesday 2nd January 2024, It was done at 9.30am, no levo that morning, no B complex for a week before.The test for folate, B12, ect had clotted in the phial so they are sending me another one. The results I have are: VITAMIN D
I did a private blood test with monitor my health on Tuesday 2nd January 2024, It was done at 9.30am, no levo that morning, no B complex for a week before.The test for folate, B12, ect had clotted in the phial so they are sending me another one. The results I have are: VITAMIN D
Dawney63
in
Thyroid UK
5 months ago
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