Search
Search
About
Log in
Join
Experiences with
Combination therapy
Posts
Communities
16,099 public posts
Filter results
Losing so much weight
My husband who has had his prostate removed, radiation, chemo, hormone therapy and 5 treatments of pluvicto (this is during 8 years) is now about to either get more radiation or chemo. He is just not eating and losing so much weight! I'm giving hime Ensure and whatever else he might eat but it's just
My husband who has had his prostate removed, radiation, chemo, hormone therapy and 5 treatments of pluvicto (this is during 8 years) is now about to either get more radiation or chemo. He is just not eating and losing so much weight! I'm giving hime Ensure and whatever else he might eat but it's just
LaRue44
in
Advanced Prostate Cancer
12 days ago
Prostate cancer radiotherapy side effects.
I’m a seventy seven year old who had a radical prostatectomy eight years ago. Following one of my regular PSA tests the result showed, after scans in September 2023, a return in the prostate bed and adjacent lymph nodes. Began hormone implants straight away followed by twenty doses of targeted radiotherapy
I’m a seventy seven year old who had a radical prostatectomy eight years ago. Following one of my regular PSA tests the result showed, after scans in September 2023, a return in the prostate bed and adjacent lymph nodes. Began hormone implants straight away followed by twenty doses of targeted radiotherapy
Gingerurgent
in
Pelvic Radiation Disease Association
12 days ago
Zoladex - pre-fibroid removal
I've got a fibroid removal date through for just over 4 weeks' time. It'll be under GA (last local procedure wasn't so effective, not all fibroid was removed, and it's since continued to grow). I'm on 2 x daily mini-pill, but have had almost daily bleeding since last September. Periods of very heavy
I've got a fibroid removal date through for just over 4 weeks' time. It'll be under GA (last local procedure wasn't so effective, not all fibroid was removed, and it's since continued to grow). I'm on 2 x daily mini-pill, but have had almost daily bleeding since last September. Periods of very heavy
Fueofvodn
in
Women's Health
13 days ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
When is PARP introduced?
Hi My husband is currently on triple therapy ( Docetaxel chemo , Zoladex every 3 months and nubeqa) he has one more chemo round left next week. He is responding well so far as PSA is declining ( see profile for PSA) . I have seen some men are talking a PARP inhibitor and nubeqa and zoladex ( or ADT
Hi My husband is currently on triple therapy ( Docetaxel chemo , Zoladex every 3 months and nubeqa) he has one more chemo round left next week. He is responding well so far as PSA is declining ( see profile for PSA) . I have seen some men are talking a PARP inhibitor and nubeqa and zoladex ( or ADT
positive-thinking
in
Advanced Prostate Cancer
13 days ago
Why do MO's continue to prescribe Lupron ADT for Castrate-Resistant men?
I've never understood why MO's continue to prescribe Lupron ADT (or equivalent ) for men who are
castrate-resistant (CRPC
). Isn't that the definition of CRPC, namely, that ADT is no longer working for those men? Why continue to prescribe a drug that no longer works and that causes such suffering
I've never understood why MO's continue to prescribe Lupron ADT (or equivalent ) for men who are
castrate-resistant (CRPC
). Isn't that the definition of CRPC, namely, that ADT is no longer working for those men? Why continue to prescribe a drug that no longer works and that causes such suffering
janebob99
in
Advanced Prostate Cancer
13 days ago
Losing my pubic hair
Recently I noticed that the skin on my inner legs in the crotch area under my scrotum turned brown and then started to peel like a sunburn. The exposed skin is a healthly pink hue and no longer brown but I lost my pubic hair from this area. Surprisingly the size and shape on the brown spots was very
Recently I noticed that the skin on my inner legs in the crotch area under my scrotum turned brown and then started to peel like a sunburn. The exposed skin is a healthly pink hue and no longer brown but I lost my pubic hair from this area. Surprisingly the size and shape on the brown spots was very
skiingfiend
in
Advanced Prostate Cancer
13 days ago
length of zoladex and tobelone- side effects felt?
I have been having zoladex injections since November once a month. They advised HRT in Jan due to me experiencing headaches/hot flushes and brain fog (which at the time was the worst) . Since then the mood changes have been a lot to deal with feeling unhappy and down. My sleep pattern is interrupted
I have been having zoladex injections since November once a month. They advised HRT in Jan due to me experiencing headaches/hot flushes and brain fog (which at the time was the worst) . Since then the mood changes have been a lot to deal with feeling unhappy and down. My sleep pattern is interrupted
Homelove
in
Endometriosis UK
14 days ago
question for those who have stopped Lupron after many years of ADT
I have been on Lupron for 8 years with the short-term exception of a high/T clinical trial,( but even during the trial I stayed on Lupron). Anyway I’m undetectable and decided to stop Lupron. 3 months after not getting my shot my T is now a whopping 37. I am curious to hear from some of you who
I have been on Lupron for 8 years with the short-term exception of a high/T clinical trial,( but even during the trial I stayed on Lupron). Anyway I’m undetectable and decided to stop Lupron. 3 months after not getting my shot my T is now a whopping 37. I am curious to hear from some of you who
Chugach
in
Advanced Prostate Cancer
14 days ago
A cause for concern or?
For the past couple of months i started getting notifications via my Samsung 6 watch that my HR was anything from 44 to 52,for more than 10 minutes, numerous times a day or night . I am taking various medications, Bu trans patch, HRT co-codamol 30/500 Pregabalin tramadol & citalopram 40mg. They are
For the past couple of months i started getting notifications via my Samsung 6 watch that my HR was anything from 44 to 52,for more than 10 minutes, numerous times a day or night . I am taking various medications, Bu trans patch, HRT co-codamol 30/500 Pregabalin tramadol & citalopram 40mg. They are
caz1967
in
British Heart Foundation
14 days ago
Stopping meds before operation. 😏
Hi Peeps, I hope this UK sunshine has reached you over the last few days and that you are as well as you can be today. I have been told to stop my meds because I have to have a lumpectomy on 8th May 🙄 I had to stop my Tocilizumab and Sulfasalazine 4 weeks before and my Metoject 2 weeks before. I also
Hi Peeps, I hope this UK sunshine has reached you over the last few days and that you are as well as you can be today. I have been told to stop my meds because I have to have a lumpectomy on 8th May 🙄 I had to stop my Tocilizumab and Sulfasalazine 4 weeks before and my Metoject 2 weeks before. I also
Moomin8
in
NRAS
15 days ago
Letrozole
I saw the oncologist yesterday to discuss radiotherapy and hormone therapy.The plan for radiotherapy is on hold ATM because I have an ongoing issue with a seroma on the breast and underarm. During the meeting she said she would give me a prescription for Letrozole, I told her I wasn't happy to start
I saw the oncologist yesterday to discuss radiotherapy and hormone therapy.The plan for radiotherapy is on hold ATM because I have an ongoing issue with a seroma on the breast and underarm. During the meeting she said she would give me a prescription for Letrozole, I told her I wasn't happy to start
LindaLittleBear
in
My Breast Cancer Community
15 days ago
Treatment
My dears, after RP (Gleason 7, 4+3, infected 3 lymph nodes) and lymphadetectomy, radiation and hormone therapy for 39 months, my oncologist took me off hormone therapy with the recommendation of PSA control every 3 months. The last three PSA readings (every three months) were 0.01 / 0.00 / 0.00, I expect
My dears, after RP (Gleason 7, 4+3, infected 3 lymph nodes) and lymphadetectomy, radiation and hormone therapy for 39 months, my oncologist took me off hormone therapy with the recommendation of PSA control every 3 months. The last three PSA readings (every three months) were 0.01 / 0.00 / 0.00, I expect
adam1967adam
in
Advanced Prostate Cancer
15 days ago
Expectations
I have undergone 45 radiation treatments and am on my last month of Eligard. PSA is undetectable and my T is barely existent. No mets detected on prior pet scans. My Urologist and Oncologist are giving me congrats. I understand this is probably a temporary remission (g 4+3 - stage 2/3) but I wonder
I have undergone 45 radiation treatments and am on my last month of Eligard. PSA is undetectable and my T is barely existent. No mets detected on prior pet scans. My Urologist and Oncologist are giving me congrats. I understand this is probably a temporary remission (g 4+3 - stage 2/3) but I wonder
Eadgbe
in
Advanced Prostate Cancer
15 days ago
Timing and reasons for Thyroid blood tests
Recommended by numerous research papers that thyroid testing should be in the morning and [u]before[/u] taking daily levothyroxine TSH has a circadian rhythm and is highest in early morning and lowest in afternoon Links to a few research papers and articles https://www.ncbi.nlm.nih.gov/pmc
Recommended by numerous research papers that thyroid testing should be in the morning and [u]before[/u] taking daily levothyroxine TSH has a circadian rhythm and is highest in early morning and lowest in afternoon Links to a few research papers and articles https://www.ncbi.nlm.nih.gov/pmc
SlowDragon
Administrator
in
Thyroid UK
15 days ago
picantaChicken
Hi I’m new, been following the treads of other people’s issues for some time and realise I too need help to as the Gps don’t give much help or advise. Makes me feel like I’m wasting their time . Still that aside I have just read a thread about HRT and Levothyroxine. I’ve been on Kevo thyroxine for
Hi I’m new, been following the treads of other people’s issues for some time and realise I too need help to as the Gps don’t give much help or advise. Makes me feel like I’m wasting their time . Still that aside I have just read a thread about HRT and Levothyroxine. I’ve been on Kevo thyroxine for
PicantaChicken
in
Thyroid UK
15 days ago
Could Psychedelics help in Parkinsons Disease treatment?
Long read. Promises hope for stroke victims. https://www.wired.com/story/the-psychedelic-scientist-who-sends-brains-back-to-childhood/ ----------------- Here is the responses from AI when fed this article. I asked Claude to summarize the article and hypothetically project possible treatment options
Long read. Promises hope for stroke victims. https://www.wired.com/story/the-psychedelic-scientist-who-sends-brains-back-to-childhood/ ----------------- Here is the responses from AI when fed this article. I asked Claude to summarize the article and hypothetically project possible treatment options
pdpatient
in
Cure Parkinson's
8 months ago
What does it mean?
I'm slightly embarrassed to be asking strangers on the internet, but I'm a little frustrated by the lack of information given by the doctors. My dad (63) just got diagnosed - Gleason score 8 - and after a new scan they've concluded there's two mets - one in the pelvic lymph node and one in the seminal
I'm slightly embarrassed to be asking strangers on the internet, but I'm a little frustrated by the lack of information given by the doctors. My dad (63) just got diagnosed - Gleason score 8 - and after a new scan they've concluded there's two mets - one in the pelvic lymph node and one in the seminal
TerribleAtInternet
in
Advanced Prostate Cancer
16 days ago
Pain post SBRT
I'm 59 w/ aPC (4+5) and 7 mets - all bone mets. Started on ADT (Firmagon and Nubeqa) in October 2023. Completed 6 cycles of docetaxel 4 wks ago. Started SBRT yesterday. My side effects thus far were all expected and I was prepared for them. Last night had severe back pain (8 out of 10) which lasted
I'm 59 w/ aPC (4+5) and 7 mets - all bone mets. Started on ADT (Firmagon and Nubeqa) in October 2023. Completed 6 cycles of docetaxel 4 wks ago. Started SBRT yesterday. My side effects thus far were all expected and I was prepared for them. Last night had severe back pain (8 out of 10) which lasted
Eggdoc
in
Advanced Prostate Cancer
16 days ago
Levo and hrt
hello has anyone experienced problems by taking hrt gel patches with Levo , I’ve been feeling ill for ages now light headed , weak legs tired and very down , just trying to rule things out to feel normal again as I can’t go or do anything without feeling like I’m going to pass out Doctors don’t know
hello has anyone experienced problems by taking hrt gel patches with Levo , I’ve been feeling ill for ages now light headed , weak legs tired and very down , just trying to rule things out to feel normal again as I can’t go or do anything without feeling like I’m going to pass out Doctors don’t know
Prosecco1997
in
Thyroid UK
16 days ago
ADT IS DONE. NEXT?
Lupron and Zytiga will have completed 2 years of each in June. I've read some continue Lupron for 3 years or longer. How do you know how long to take? Monitor testosterone and PSA how often? 2 or 3 months?
Lupron and Zytiga will have completed 2 years of each in June. I've read some continue Lupron for 3 years or longer. How do you know how long to take? Monitor testosterone and PSA how often? 2 or 3 months?
rfgh20
in
Advanced Prostate Cancer
17 days ago
1
...
19
20
21
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
4320 results
Thyroid UK
2363 results
Endometriosis UK
1834 results
View top 10 communities
Sort by
Most Relevant
Newest