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looking for advice.
My husband Martin was diagnosed in 2019 with prostate cancer. Gleason score 7 (3+4) Biopsy showed 12 out of 16 cores. In June 2019 he had Robotic surgery. We were told everything went very well. His PSA dropped to <0.05. This lasted until September 2020 when his PSA started to increase 0.46. And continued
My husband Martin was diagnosed in 2019 with prostate cancer. Gleason score 7 (3+4) Biopsy showed 12 out of 16 cores. In June 2019 he had Robotic surgery. We were told everything went very well. His PSA dropped to <0.05. This lasted until September 2020 when his PSA started to increase 0.46. And continued
Believeit
in
Advanced Prostate Cancer
1 year ago
ADT "vacation" terminology questions
I see a lot of posters here who say they do ADT "vacations." Are there any circumstances when NCCN SoC indicate cessation or interruption of ADT and abi? The term "vacation" implies an inevitable return to ADT. Do you wait for rising PSA or a fixed time to go by? What about when one has oligometastatic
I see a lot of posters here who say they do ADT "vacations." Are there any circumstances when NCCN SoC indicate cessation or interruption of ADT and abi? The term "vacation" implies an inevitable return to ADT. Do you wait for rising PSA or a fixed time to go by? What about when one has oligometastatic
Derf4223
in
Advanced Prostate Cancer
1 year ago
Are we Survivors Or Warriors?
When signing up for a local 5K walk/run that benefits PC, I had the option of a regular runner or to sign up as a Survivor. I guess I got caught up with word Survivor - having stage 4 cancer and after 9 weeks of IMRT last year and now entering my second year of ADT, I feel like a Warrior, yes I've
When signing up for a local 5K walk/run that benefits PC, I had the option of a regular runner or to sign up as a Survivor. I guess I got caught up with word Survivor - having stage 4 cancer and after 9 weeks of IMRT last year and now entering my second year of ADT, I feel like a Warrior, yes I've
Huzzah1
in
Advanced Prostate Cancer
11 months ago
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Dry Mouth & the Advanced PC Patient (for those on Pluvicto or meds or ICI, where a side effect is dry mouth) - A Guide
Xerostomia (dry mouth) is associated with an increased incidence of dental decay (cavities), oral fungal infections (candidiasis), halitosis, burning mouth, gingivitis and periodontal disease. Dry mouth may also cause dysphagia (difficulty in swallowing), dysgeusia (altered or loss of taste), and difficulty
Xerostomia (dry mouth) is associated with an increased incidence of dental decay (cavities), oral fungal infections (candidiasis), halitosis, burning mouth, gingivitis and periodontal disease. Dry mouth may also cause dysphagia (difficulty in swallowing), dysgeusia (altered or loss of taste), and difficulty
rsgdmd
in
Advanced Prostate Cancer
1 year ago
Need More Energy
I'm on ADT for life and I'm a retired professional golfer. I play three days a week. I feel so weak and tired when I play but I put up with it. Does anyone have any ideas how I can have more energy during my rounds of golf? My PSA and scans are undetectable and I don't want to take anything that would
I'm on ADT for life and I'm a retired professional golfer. I play three days a week. I feel so weak and tired when I play but I put up with it. Does anyone have any ideas how I can have more energy during my rounds of golf? My PSA and scans are undetectable and I don't want to take anything that would
epfj3333
in
Advanced Prostate Cancer
1 year ago
What the Germans do
Of responding members, 98.6% used levothyroxine (LT4) as the treatment of choice, and 45.4% also prescribed
combination
therapy
with liothyronine (LT4+LT3) in their clinical practice (p<0.001).
Of responding members, 98.6% used levothyroxine (LT4) as the treatment of choice, and 45.4% also prescribed
combination
therapy
with liothyronine (LT4+LT3) in their clinical practice (p<0.001).
diogenes
in
Thyroid UK
2 years ago
Here I go.
So the beast has returned - In summary, after a 2 year ADT vaca, my PSA started to climb so i was tracking it monthly. I also got to Mayo and they did a PSMA/CAT in october (PSA=0.2)- that they "said" was clean. In March PSA went to 1.5 so we did another scan at the end of April- and I have two mets
So the beast has returned - In summary, after a 2 year ADT vaca, my PSA started to climb so i was tracking it monthly. I also got to Mayo and they did a PSMA/CAT in october (PSA=0.2)- that they "said" was clean. In March PSA went to 1.5 so we did another scan at the end of April- and I have two mets
PabloK
in
Advanced Prostate Cancer
1 year ago
SBRT without ADT
Hello All….hope you all are doing well. I decided to have radiation rather than surgery. My Gleason score is 7 with PSA 8.1. PMSA revealed no spread. Two lessons on prostate one positive and other negative. I will start 5 day radiation in about 10 days. I opt for 5 days over the 20 day option.
Hello All….hope you all are doing well. I decided to have radiation rather than surgery. My Gleason score is 7 with PSA 8.1. PMSA revealed no spread. Two lessons on prostate one positive and other negative. I will start 5 day radiation in about 10 days. I opt for 5 days over the 20 day option.
ArmyCW5Retired
in
Advanced Prostate Cancer
1 year ago
Timing of Dexamethasone
I've been on ADT since 2017 and approximately 3 years ago I switched from prednisone to .5mg dexamethasone daily with morning meal. I have been having periods of infrequent lightheadedness. I have been through a series of tests and my pcp cannot determine the source. Can I switch my dose of dexa from
I've been on ADT since 2017 and approximately 3 years ago I switched from prednisone to .5mg dexamethasone daily with morning meal. I have been having periods of infrequent lightheadedness. I have been through a series of tests and my pcp cannot determine the source. Can I switch my dose of dexa from
ctflatlander
in
Advanced Prostate Cancer
1 year ago
Joining here on Mother’s Day
I’m Lakshmi from Bangalore, india. I work as a consultant with NGOs. Im a member of the Diabetes community too. I’m 72 and the mother of a lovely young woman, a breast cancer survivor who got the big C at age 36. Now 7 years on, she’s experiencing painful side effects of the Tamoxifen hormone treatment
I’m Lakshmi from Bangalore, india. I work as a consultant with NGOs. Im a member of the Diabetes community too. I’m 72 and the mother of a lovely young woman, a breast cancer survivor who got the big C at age 36. Now 7 years on, she’s experiencing painful side effects of the Tamoxifen hormone treatment
suryakaizen
in
SHARE Breast Cancer Support
1 year ago
Numbness, hrt
Sorry this post is 2 questions. I have an underactive thyriod. Been on 100mg of levo for 8 years now. But over past 2 years been feeling much worse. 6 months ago went on to hrt but think this is making me worse although initially felt better. Does anyone else suffer problems with menopause, hrt
Sorry this post is 2 questions. I have an underactive thyriod. Been on 100mg of levo for 8 years now. But over past 2 years been feeling much worse. 6 months ago went on to hrt but think this is making me worse although initially felt better. Does anyone else suffer problems with menopause, hrt
Billy2023
in
Thyroid UK
1 year ago
side effects of Tamoxifen
I joined Health Unlocked in 2016 when my daughter was diagnosed with both breast cancer and diabetes. She was 36 at the time so it was the full works in terms of treatment. She underwent a lumpectomy in her left breast, chemo, radiation and has been on hormone therapy - 1 tab of Tamoxifen a day since
I joined Health Unlocked in 2016 when my daughter was diagnosed with both breast cancer and diabetes. She was 36 at the time so it was the full works in terms of treatment. She underwent a lumpectomy in her left breast, chemo, radiation and has been on hormone therapy - 1 tab of Tamoxifen a day since
suryakaizen
in
SHARE Breast Cancer Support
1 year ago
Declining psa #4
Good afternoon ladies n gentlemen, I’m stating my results for a fourth time after stopping adt ( orgavix, prednisone zytiga) n solely using 12 mg ivermectin 4 days on 3 days weekly n testing every two weeks. Psa was 1.92, 1.83, 1.52 respectively and now 1.49 after the 8th week, didn’t drop as much as
Good afternoon ladies n gentlemen, I’m stating my results for a fourth time after stopping adt ( orgavix, prednisone zytiga) n solely using 12 mg ivermectin 4 days on 3 days weekly n testing every two weeks. Psa was 1.92, 1.83, 1.52 respectively and now 1.49 after the 8th week, didn’t drop as much as
Nfler
in
Advanced Prostate Cancer
1 year ago
Ovarian cyst
In 2020 I had my left ovary removed.July 2022 scan revealed a cyst but to check i had another scan in Dec 2022 scan results said I have cyst on left ovary!!!! When I questioned this as I don't have a left ovary I was told not to have HRT for my menopause and rescan in 6 months. I'm now getting strange
In 2020 I had my left ovary removed.July 2022 scan revealed a cyst but to check i had another scan in Dec 2022 scan results said I have cyst on left ovary!!!! When I questioned this as I don't have a left ovary I was told not to have HRT for my menopause and rescan in 6 months. I'm now getting strange
Purple_Cavalier
in
Endometriosis UK
1 year ago
Afib medications
HiI've been reading all the posts for 5 years but never asked anything until today. I was diagnosed with lone perm afib 6 years ago, i was 64. I was totally asymtomatic but advised to take a anticoagulant and beta blocker. I tried a couple of anticoags before settling on eliquis. I could not tolerate
HiI've been reading all the posts for 5 years but never asked anything until today. I was diagnosed with lone perm afib 6 years ago, i was 64. I was totally asymtomatic but advised to take a anticoagulant and beta blocker. I tried a couple of anticoags before settling on eliquis. I could not tolerate
fodgreen
in
AF Association
1 year ago
New hot flash drug approved
The FDA today approved Veozah (fezolinetant) for women's hot flashes during menopause. It acts on the thermoregulatory mechanism in the brain. I would expect it to work on men taking ADT too, although it has not been proven. I hope that Medicare/Insurance will cover it in men. https://www.fda.gov/news-events
The FDA today approved Veozah (fezolinetant) for women's hot flashes during menopause. It acts on the thermoregulatory mechanism in the brain. I would expect it to work on men taking ADT too, although it has not been proven. I hope that Medicare/Insurance will cover it in men. https://www.fda.gov/news-events
Tall_Allen
in
Advanced Prostate Cancer
1 year ago
when will I get energy
I have been so tired I have to push myself to do things . I know probably cause I don’t get much sleep doing dialysis but I thought it was suppose to give me energy I know I’m kind of new but been on the Machince at least a month . When did any if you start getting more energy in pd diaylis ? I heard
I have been so tired I have to push myself to do things . I know probably cause I don’t get much sleep doing dialysis but I thought it was suppose to give me energy I know I’m kind of new but been on the Machince at least a month . When did any if you start getting more energy in pd diaylis ? I heard
Beachgirl32
in
Kidney Dialysis
1 year ago
My brother has advanced prostate cancer
Hi everyone, Hope all of you are doing well. My brother diagnosed with stage 4 prostate cancer in August 2022 with PSA of 43. He is 54 years old.He had some spots in bones and mild spots in a lung. He started hormone therapy in October and Chemotherapy for 6 cycles in November and started to use
Hi everyone, Hope all of you are doing well. My brother diagnosed with stage 4 prostate cancer in August 2022 with PSA of 43. He is 54 years old.He had some spots in bones and mild spots in a lung. He started hormone therapy in October and Chemotherapy for 6 cycles in November and started to use
rasher1
in
Advanced Prostate Cancer
1 year ago
ART UCSF Recurrent Prostate Cancer Case Histories, 2021 Prostate Cancer Conference
Summary; this is an excellent vehicle with which to learn wherein 3 case studies are revealed to a panel of doctors from different backgrounds. The cases are exposed over their respective timeframes revealing initial diagnosis, then proceeding to how each patient was treated. Meanwhile the panel makes
Summary; this is an excellent vehicle with which to learn wherein 3 case studies are revealed to a panel of doctors from different backgrounds. The cases are exposed over their respective timeframes revealing initial diagnosis, then proceeding to how each patient was treated. Meanwhile the panel makes
RMontana
in
Active Surveillance - Prostate Cancer
1 year ago
Initial AF advice please
Hi All Just had tests done - ECG, blood tests, chest Xray and waiting to see g.p. Wondering what I should expect to come out of consultation and do I expect referral (have work private healthcare so should be available if needed). Background is Hypothyroid on T3 Haemochromatosis (carrier only) On HRT
Hi All Just had tests done - ECG, blood tests, chest Xray and waiting to see g.p. Wondering what I should expect to come out of consultation and do I expect referral (have work private healthcare so should be available if needed). Background is Hypothyroid on T3 Haemochromatosis (carrier only) On HRT
AKatieD
in
AF Association
1 year ago
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