Aphasia

[Nylo]

My husband is one month out of his tumor being 100% removed. His aphasia seems to be worse then it was 2 weeks out from surgery. He just started speech therapy this week. Is the decline normal?

[SophieDilger]

Hi there,

First of all, how incredible that the tumour was able to be removed at that percentage, that is amazing.

We have found with my mum’s aphasia that it does get more intense with tiredness and sometimes with treatment too.

One thing I have learnt is always to keep in contact with the specialists if you notice a definite difference for an extended period - they will likely tell you it’s tiredness, treatment etc but it gives you peace of mind to check in.

Wishing you both well.

[Nylo in reply to SophieDilger]

Thank you!

[Tansi75]

Nylo,

It's excellent news that 100% of his tumour was removed. One thing to be aware of is that it does take time for the brain and body to recover from the surgery and treatment. Take every day, one at a time and allow him to rest when his body tells him to.

The Brain Tumour Charity has a free counselling service available should you and your husband require advice and support at any time. The BRIAN APP has a challenges section which might help him to test and improve some of his skills, such as speech.

Since I had my first surgery in May 2010, I have always believed that the brain is capable of 're-wiring' itself, it might not work as well as it did before, but good enough to maintain a good quality of life. Despite the difficulties I sometimes have which my speech, balance, spatial skills, etc., I believe it is important to see some situations as a new challenge and learn to do things in a different way than before.

Wishing you both the very best for a good quality of life together for a long time to come.

[RMDF]

That's fantastic the tumor was completely removed!After My husband's first tumor removal, his aphasia was somewhat there, but did improve. 13 months later he had a 2nd reoccurring tumor removed, that surgery left his aphasia more intense. He's 18 months along with his diagnosis. I thank the great lord above for everyday we have together! His speech, and thought process has been compromised, I do notice more so with extreme tiredness. I wish your husband and you the best recovery, stay positive and strong!