Search
Search
About
Log in
Join
Experiences with
Colonic polyps
Posts
Communities
2,349 public posts
Filter results
walter49
I was diagnosed with CLL in 2013 and have been on W &W since then, with no intervention. I have half-yearly blood checks and my blood results have, apart from a blip a couple of years ago when I had a bone marrow specimen taken, been, according to my consultant, nearly as good as ‘a normal’ person’s
I was diagnosed with CLL in 2013 and have been on W &W since then, with no intervention. I have half-yearly blood checks and my blood results have, apart from a blip a couple of years ago when I had a bone marrow specimen taken, been, according to my consultant, nearly as good as ‘a normal’ person’s
Walter49
in
CLL Support
4 years ago
Cll UK conflicting advice
Ok as I understand it the UK government has asked us with cll on chemo or inhibitors or stem cell ,BMT to self isolate for 12:weeks and have seen this as advice given in bloodwise . But thought I would phone my own hospital James Paget and my consultant secretary to see what there advice is and they
Ok as I understand it the UK government has asked us with cll on chemo or inhibitors or stem cell ,BMT to self isolate for 12:weeks and have seen this as advice given in bloodwise . But thought I would phone my own hospital James Paget and my consultant secretary to see what there advice is and they
cartwheels
in
CLL Support
4 years ago
Horrible nausea but 3 weeks post op
Hi all! My excision and polypectomy were done on the 15th of Jan. Recovery was fairly straight forward, bleeding for 2 weeks which i believe included my period, bit of pain in my left leg (see previous post), but nothing of any great concern really. I returned to work last week. But since Sunday I have
Hi all! My excision and polypectomy were done on the 15th of Jan. Recovery was fairly straight forward, bleeding for 2 weeks which i believe included my period, bit of pain in my left leg (see previous post), but nothing of any great concern really. I returned to work last week. But since Sunday I have
Carebear92
in
Endometriosis UK
4 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Trapped wind & bloating
Does anyone suffer with this... IBS or whatever it is, I haven’t had an NBC attack like this for years. Bloating pain and rolling rock feeling, from the top of my stomach round to the right side and round. I’ve taken Colofac but it’s says don’t take over 40 yrs old with out doctors advice 🤦🏼♀️
Does anyone suffer with this... IBS or whatever it is, I haven’t had an NBC attack like this for years. Bloating pain and rolling rock feeling, from the top of my stomach round to the right side and round. I’ve taken Colofac but it’s says don’t take over 40 yrs old with out doctors advice 🤦🏼♀️
MrsSAcky
in
Thyroid UK
4 years ago
An Early Look at When CAR-T Therapy Fails Patients With CLL
Not exactly an optimistic report. Dr James Gerson, MD, - "Not a lot is known as to what happens in the patients for whom CAR-T therapy does not work,” “Anecdotally, we say that patients often progress rapidly and aren’t able to get further therapies, but it’s not something there’s a lot of data for.
Not exactly an optimistic report. Dr James Gerson, MD, - "Not a lot is known as to what happens in the patients for whom CAR-T therapy does not work,” “Anecdotally, we say that patients often progress rapidly and aren’t able to get further therapies, but it’s not something there’s a lot of data for.
Jm954
Administrator
in
CLL Support
4 years ago
COVID-19 Particularly Risky for CLL Patients
I must say, this article from Fred Hutch did nothing to brighten my day. But, it did make me wash my hands (yet again). According to Dr. Steve Pergam, clinical and infectious disease researcher at Fred Hutch, patients with hematologic malignancies are at greatest risk from COVID-19. Of course, CLL is
I must say, this article from Fred Hutch did nothing to brighten my day. But, it did make me wash my hands (yet again). According to Dr. Steve Pergam, clinical and infectious disease researcher at Fred Hutch, patients with hematologic malignancies are at greatest risk from COVID-19. Of course, CLL is
Lily_Pad_Master
in
CLL Support
4 years ago
Acalabrutinib three weeks appointment
I don’t know where my previous post went. Very likely, I did something wrong, so here it goes. The only side effect was bad headache for one week after which it became dull and I don’t even need to take Tylenol. Some fatigue and less energy and that is all. 👍🏻 My results are: WBC low at 3.9,
I don’t know where my previous post went. Very likely, I did something wrong, so here it goes. The only side effect was bad headache for one week after which it became dull and I don’t even need to take Tylenol. Some fatigue and less energy and that is all. 👍🏻 My results are: WBC low at 3.9,
studebaker
in
CLL Support
4 years ago
Analysing and Resequencing Gene Panels from the UK CLL4 trial (1999-2004) is helping patients today.
The CLL4 study compared conventional chlorambucil therapy versus fludarabine - alone or in combination with cyclophosphamide - note there was no Rituximab in those days. End points were: survival, response to therapy, duration of response, toxicity and quality of life. For patients who required further
The CLL4 study compared conventional chlorambucil therapy versus fludarabine - alone or in combination with cyclophosphamide - note there was no Rituximab in those days. End points were: survival, response to therapy, duration of response, toxicity and quality of life. For patients who required further
Jm954
Administrator
in
CLL Support
4 years ago
Acalabrutinib plus Obinutuzumab in Treatment-Naïve and Relapsed/Refractory CLL
Overall response rates were 95% (treatment-naïve) and 92% (relapsed/refractory). Thirty-two percent of treatment-naïve and 8% of relapsed/refractory patients achieved complete remission. At 36 months, 94% (treatment-naïve) and 88% (relapsed/refractory) were progression free. Acalabrutinib plus obinutuzumab
Overall response rates were 95% (treatment-naïve) and 92% (relapsed/refractory). Thirty-two percent of treatment-naïve and 8% of relapsed/refractory patients achieved complete remission. At 36 months, 94% (treatment-naïve) and 88% (relapsed/refractory) were progression free. Acalabrutinib plus obinutuzumab
Jm954
Administrator
in
CLL Support
4 years ago
Corona risk after successful treatment?
I am wondering about the state of the immune system after successful treatment for CLL. My husband's bone marrow was MRD-negative 6 months ago, all blood tests good apart from slightly low lymphocytes. He has been told to expect long term remission. Is he now as likely as the average person to contract
I am wondering about the state of the immune system after successful treatment for CLL. My husband's bone marrow was MRD-negative 6 months ago, all blood tests good apart from slightly low lymphocytes. He has been told to expect long term remission. Is he now as likely as the average person to contract
photohound
in
CLL Support
4 years ago
Other NKF Communities
Do you know about our other communities? Check them out! Kidney Disease: https://healthunlocked.com/nkf-ckd Kidney Donation: https://healthunlocked.com/nkf-donors Kidney Transplant: https://healthunlocked.com/nkf-kidn... Parents of Children with Kidney Disease: https://healthunlocked.com/nkf-parents
Do you know about our other communities? Check them out! Kidney Disease: https://healthunlocked.com/nkf-ckd Kidney Donation: https://healthunlocked.com/nkf-donors Kidney Transplant: https://healthunlocked.com/nkf-kidn... Parents of Children with Kidney Disease: https://healthunlocked.com/nkf-parents
KristiS_NKF
Administrator
in
Kidney Dialysis
4 years ago
Medication Query
Hi Can anyone on here tell me if they've been diagnosed with Arterial Scelrosis or Calcinem Toxicity Inhibitor due to taking prograf long term for a kidney transplant? Thanks in advance...
Hi Can anyone on here tell me if they've been diagnosed with Arterial Scelrosis or Calcinem Toxicity Inhibitor due to taking prograf long term for a kidney transplant? Thanks in advance...
Santaponsa1
in
Kidney Transplant Patient Support
4 years ago
Information from several 'think out of the box' doctors/specialists re the Thyroid Gland
I came across this a few minutes ago: Many on the forum will be familiar with some of these doctors named. "Pure T3 Thyroid and Stories of Recovery from Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia: An Overview." https://www.healthrising.org/blog/2019/03/07/thyroid-t3-chronic-fatigue-fibromyalgia-recovery-stories
I came across this a few minutes ago: Many on the forum will be familiar with some of these doctors named. "Pure T3 Thyroid and Stories of Recovery from Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia: An Overview." https://www.healthrising.org/blog/2019/03/07/thyroid-t3-chronic-fatigue-fibromyalgia-recovery-stories
shaws
Administrator
in
Thyroid UK
4 years ago
Bloodwork on imbruvica
Hi all!! Just got my bloodwork back My WBC WAS 230,000 On imbruvica for three months My WBC IS 21,000 Lymphocytes were 51,000 now 20,000 in one month... Beside the side affects imbruvica is truly a miracle pill!! I am so happy 😀 Thanks for taking the time out reading this great news!! 🧡💪🏻 kicking
Hi all!! Just got my bloodwork back My WBC WAS 230,000 On imbruvica for three months My WBC IS 21,000 Lymphocytes were 51,000 now 20,000 in one month... Beside the side affects imbruvica is truly a miracle pill!! I am so happy 😀 Thanks for taking the time out reading this great news!! 🧡💪🏻 kicking
littledab
in
CLL Support
4 years ago
Questions about Richter Syndrome
Hi. I would like to ask you some important questions. 1-Before being diagnosed with chronic lymphocytic leukemia, did you constantly have herpes? 2- Have you received treatment for chronic lymphocytic leukemia with chemotherapy? 3- When he was diagnosed with Ricther transformation, had he been previously
Hi. I would like to ask you some important questions. 1-Before being diagnosed with chronic lymphocytic leukemia, did you constantly have herpes? 2- Have you received treatment for chronic lymphocytic leukemia with chemotherapy? 3- When he was diagnosed with Ricther transformation, had he been previously
Priss69
in
CLL Support
4 years ago
Richter Transformation Survival in CLL Appears Better Among Treatment-Naive
A new nationwide study showed that the 5-year cumulative incidence of Richter transformation (RT) among patients with chronic lymphocytic leukemia (CLL) was 2.8%. Of those patients whose disease transformed, about half (49%) were treatment-naive prior to transformation. The researchers identified 3
A new nationwide study showed that the 5-year cumulative incidence of Richter transformation (RT) among patients with chronic lymphocytic leukemia (CLL) was 2.8%. Of those patients whose disease transformed, about half (49%) were treatment-naive prior to transformation. The researchers identified 3
Jm954
Administrator
in
CLL Support
4 years ago
Anoushica shares her journey of lupus to kidney failure
Hi All, Here I chat to a fellow kidney person - it was filmed over 2 years ago so there is of course an ongoing story for Anoushica's next chapter and indeed mine! (hint: it's all good!). Especially for younger people going through this journey, I hope it inspires you and you feel comforted to know we
Hi All, Here I chat to a fellow kidney person - it was filmed over 2 years ago so there is of course an ongoing story for Anoushica's next chapter and indeed mine! (hint: it's all good!). Especially for younger people going through this journey, I hope it inspires you and you feel comforted to know we
WhollyAligned
in
Dialysis Support
4 years ago
Panasol 2 Light therapy?
ok, I have one of these 8 ft lights! It is for use by Doctors. I used it for a friends leg, for only 20 seconds at a time..with goggles and black cape over her body. Now it says these are good to destroy this virus! anyone know how I use it to be safe with my COPD, Heart Damage, Lung Damage, Diafram
ok, I have one of these 8 ft lights! It is for use by Doctors. I used it for a friends leg, for only 20 seconds at a time..with goggles and black cape over her body. Now it says these are good to destroy this virus! anyone know how I use it to be safe with my COPD, Heart Damage, Lung Damage, Diafram
JANET127
in
Lung Conditions Community Forum
4 years ago
CLL Treatment Advice/Recommendations/Etc For Newbie
After monitoring for 1 year, my doc has recommended that I participate in Trial #EA9161, a 19-month program using ibrutinib, obinutuzumab, & venetoclax. I am a 52-yr-old male with no experience in this arena and am seeking all the advice/info I can get (especially first-hand, or very close to it).
After monitoring for 1 year, my doc has recommended that I participate in Trial #EA9161, a 19-month program using ibrutinib, obinutuzumab, & venetoclax. I am a 52-yr-old male with no experience in this arena and am seeking all the advice/info I can get (especially first-hand, or very close to it).
username-the-dude
in
CLL Support
4 years ago
Mutated and unmutated cll for dummies
When told I had chronic lymphocytic leukemia (cll) four years ago, all I heard was "leukemia". Google soon became my best friend and worst enemy. I just wanted to find out how long I had to live. My travels on the learning curve of cll were slow with many wrong turns. I figured out chronic leukemia
When told I had chronic lymphocytic leukemia (cll) four years ago, all I heard was "leukemia". Google soon became my best friend and worst enemy. I just wanted to find out how long I had to live. My travels on the learning curve of cll were slow with many wrong turns. I figured out chronic leukemia
cajunjeff
in
CLL Support
4 years ago
1
...
36
37
38
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
1439 results
Lung Conditions Community Forum
217 results
Diabetes India
81 results
View top 10 communities
Sort by
Most Relevant
Newest