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Naked Scientist Podcast: COVID- 19 mutations - 25 min -
https://podcasts.apple.com/us/podcast/naked-genetics-from-the-naked-scientists/id527187069?i=1000471544600 From Naked Scientist series - the Naked Geneticist April15,2020. Several discussions w international scientist working w the virus using different approaches. (January 9,2020 is one of the dates
https://podcasts.apple.com/us/podcast/naked-genetics-from-the-naked-scientists/id527187069?i=1000471544600 From Naked Scientist series - the Naked Geneticist April15,2020. Several discussions w international scientist working w the virus using different approaches. (January 9,2020 is one of the dates
db601
in
CLL Support
4 years ago
CLL Medications and Corona Virus
I read a fascinating transcript of a moderated meeting between a Patient Power host and three very talented CLL Specialists. It had to do with the latest CLL Medications being considered at possible treatments for non CLL Corona Virus victims. In essence they were saying that the medical community is
I read a fascinating transcript of a moderated meeting between a Patient Power host and three very talented CLL Specialists. It had to do with the latest CLL Medications being considered at possible treatments for non CLL Corona Virus victims. In essence they were saying that the medical community is
wizzard166
in
CLL Support
4 years ago
Marginal Zone Lymphoma (MZL) or Aggressive/Transformed CLL?
Hi everyone, What are the key markers for MZL? So far I have CD23-, CD43-, CD5-. Are these accurate, and what are other key markers, including genetic phenotype? Pathologists (both are highly respected institutions--CLL society approved) are conflicted about my dad's diagnosis--whether it is aggressive
Hi everyone, What are the key markers for MZL? So far I have CD23-, CD43-, CD5-. Are these accurate, and what are other key markers, including genetic phenotype? Pathologists (both are highly respected institutions--CLL society approved) are conflicted about my dad's diagnosis--whether it is aggressive
Phs2385
in
CLL Support
4 years ago
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Could this be FND?
In August last year I had to have 2
colonic
polyps
removed. Obviously waiting for the histology on those was very stressful. It was during this time I developed very scary neurological symptoms. Tinnitus started in my left ear and my eyesight changed, only slightly but noticable.
In August last year I had to have 2
colonic
polyps
removed. Obviously waiting for the histology on those was very stressful. It was during this time I developed very scary neurological symptoms. Tinnitus started in my left ear and my eyesight changed, only slightly but noticable.
Giop
in
Functional Neurological Disorder - FND Hope
4 years ago
Anybody tried 'the Breather' device?
Hi all, anybody tried the 'Breather' (https://www.pnmedical.com/product/the-breather/)? I bought it like 11 days ago and have been trying to use it at least 2-3 times a day since. I'm actually struggling to use it the specified amount of times, but am finding it easier to blow into after using setting
Hi all, anybody tried the 'Breather' (https://www.pnmedical.com/product/the-breather/)? I bought it like 11 days ago and have been trying to use it at least 2-3 times a day since. I'm actually struggling to use it the specified amount of times, but am finding it easier to blow into after using setting
DaveT81
in
Lung Conditions Community Forum
4 years ago
Polyp removal causing scarring?
Had a hysteroscopy to remove some polyps before egg transfer. Then when I went for my scan after down regulation the clinic have said they may have caused scar tissue we might not be able to proceed. Has anyone else had this. Feel like it was supposed to help but might have made me permanently infertile
Had a hysteroscopy to remove some polyps before egg transfer. Then when I went for my scan after down regulation the clinic have said they may have caused scar tissue we might not be able to proceed. Has anyone else had this. Feel like it was supposed to help but might have made me permanently infertile
Hidden
in
Fertility Network UK
4 years ago
B-PLL: Ibrutrinib Monotherapy or Obinutuzumab (aka Gazyva) & Venetoclax Combination as first-line treatment for transformed CLL
Hi Everyone, I'm new to this group. My Dad has CLL with a B-PLL transformation in his lymph nodes. He has good genetic markers (TP53 unmutated, 17P undeleted) but is IGHV unmutated. We have two CLL experts who propose different treatment plans for first-line therapy: 1) Monotherapy Ibrutinib or Acalabrutinib
Hi Everyone, I'm new to this group. My Dad has CLL with a B-PLL transformation in his lymph nodes. He has good genetic markers (TP53 unmutated, 17P undeleted) but is IGHV unmutated. We have two CLL experts who propose different treatment plans for first-line therapy: 1) Monotherapy Ibrutinib or Acalabrutinib
Phs2385
in
CLL Support
4 years ago
CLL Society's Expert Access Online Free 2nd Opinion/ No office visit involved
These days, when home is safer than the CLL doctor's office, an online HIPPA-compliant Expert 2nd Opinion from CLL Society's Access Program is just what you need! Those with a CLL expert as part of their team, live longer than those without this advantage. Apply now! https://cllsociety.org/cll-society-expert-access
These days, when home is safer than the CLL doctor's office, an online HIPPA-compliant Expert 2nd Opinion from CLL Society's Access Program is just what you need! Those with a CLL expert as part of their team, live longer than those without this advantage. Apply now! https://cllsociety.org/cll-society-expert-access
bkoffman
CLL CURE Hero
in
CLL Support
4 years ago
If you want to learn about CLL text or video
The following is a long list of links and resources, too many to read and understand without dedicated effort. So please treat it like a smorgasbord buffet or a large box of chocolates- choose some that look good and try a sample. If the sample is satisfying go back for more, if not move on to others
The following is a long list of links and resources, too many to read and understand without dedicated effort. So please treat it like a smorgasbord buffet or a large box of chocolates- choose some that look good and try a sample. If the sample is satisfying go back for more, if not move on to others
lankisterguy
Volunteer
in
CLL Support
4 years ago
Richter syndrome. Ganglion below the neck
Hello friends A month ago I wrote, because a small node had grown out from under my jaw. I did an ultrasound and they found a 4X3 millimeter node. Do not call my hematologist because I have a consultation in two weeks. I took antibiotics and I have not left. I had fungus in my mouth that I'm treating
Hello friends A month ago I wrote, because a small node had grown out from under my jaw. I did an ultrasound and they found a 4X3 millimeter node. Do not call my hematologist because I have a consultation in two weeks. I took antibiotics and I have not left. I had fungus in my mouth that I'm treating
Priss69
in
CLL Support
4 years ago
The impact of dose modification and temporary interruption of ibrutinib on outcomes of CLL patients in routine clinical practice
This paper in Cancer Medicine (18/03/2020) reports on a retrospective study of 209 consecutive CLL patients treated with Ibrutinib outside the context of a clinical trial at the Mayo Clinic. Results from the study show that among CLL patients treated outside the context of a clinical trial, approximately
This paper in Cancer Medicine (18/03/2020) reports on a retrospective study of 209 consecutive CLL patients treated with Ibrutinib outside the context of a clinical trial at the Mayo Clinic. Results from the study show that among CLL patients treated outside the context of a clinical trial, approximately
Jm954
Administrator
in
CLL Support
4 years ago
ACCEPTED INTO LOXO-305 CLINICAL TRIAL
LOXO-305 TRIAL UPDATE TWO MONTHS IN Hey everyone, I started this trial on 2/02/2020 at Memorial Sloan Kettering in NJ. After being diagnosed in 2009 with CLL, I have been through 3 prior treatments, FCR, Ibrutinib and Venclaxta. I had a 5 1/2 year remission with FCR, 3 with Ibrutinib,and about 18
LOXO-305 TRIAL UPDATE TWO MONTHS IN Hey everyone, I started this trial on 2/02/2020 at Memorial Sloan Kettering in NJ. After being diagnosed in 2009 with CLL, I have been through 3 prior treatments, FCR, Ibrutinib and Venclaxta. I had a 5 1/2 year remission with FCR, 3 with Ibrutinib,and about 18
steve5441
in
CLL Support
4 years ago
CLL/SLL and bone pain was in both arms
Hello and hope everyone is doing well amongst this pandemic. I recently underwent a bone marrow biopsy. My doctor who is Dept Chair for LIVESTRONG with UT Mefical School Austin stated my cancer is Stage 0. Yeah! I do have questions regarding ongoing bone pain. He stated that he didn’t feel it was related
Hello and hope everyone is doing well amongst this pandemic. I recently underwent a bone marrow biopsy. My doctor who is Dept Chair for LIVESTRONG with UT Mefical School Austin stated my cancer is Stage 0. Yeah! I do have questions regarding ongoing bone pain. He stated that he didn’t feel it was related
annetxfan
in
CLL Support
4 years ago
CAR-NK Cells Make Their Debut in Hematologic Cancers with Promising results
In this study, 11 patients with CD19-positive chronic lymphocytic leukemia (CLL) or non-Hodgkin lymphoma received the modified cells, known as chimeric antigen receptor-NK (CAR-NK) cells. Seven of the patients experienced complete remission, while in 1 other patient, treatment reduced the aggressiveness
In this study, 11 patients with CD19-positive chronic lymphocytic leukemia (CLL) or non-Hodgkin lymphoma received the modified cells, known as chimeric antigen receptor-NK (CAR-NK) cells. Seven of the patients experienced complete remission, while in 1 other patient, treatment reduced the aggressiveness
Jm954
Administrator
in
CLL Support
4 years ago
Just a quick question
Hello all. I’m asking this on behalf of my mum. She has Alzheimer’s and around 10 years ago she was diagnosed with CLL, up till now she hasn’t had to have any treatment for her CLL. We are in the U.K. We are being told that if you fall under the very vulnerable group you must stay in isolation for 12
Hello all. I’m asking this on behalf of my mum. She has Alzheimer’s and around 10 years ago she was diagnosed with CLL, up till now she hasn’t had to have any treatment for her CLL. We are in the U.K. We are being told that if you fall under the very vulnerable group you must stay in isolation for 12
rustydog
in
CLL Support
4 years ago
Impaired Immune System???
Diagnosed CLL a little less than 2 years ago, stage 0. I have no symptoms other than my blood work and slightly anemic. So my question is, does the CLL automatically make me at risk for "impaired immune system"? I keep seeing information about COVID-19 and people with impaired immune systems.
Diagnosed CLL a little less than 2 years ago, stage 0. I have no symptoms other than my blood work and slightly anemic. So my question is, does the CLL automatically make me at risk for "impaired immune system"? I keep seeing information about COVID-19 and people with impaired immune systems.
Faith50
in
CLL Support
4 years ago
Blood test or Not?
Blood test or Not??? Due for another blood work up in the next week already have contacted Dr waiting for response! I’ve been on imbrutinib 420mg 1x daily for 11 months and wbc is down to 11,400 feeling great but truly concerned about contracting covid 19 @ the local quest office. I’m a very hard stick
Blood test or Not??? Due for another blood work up in the next week already have contacted Dr waiting for response! I’ve been on imbrutinib 420mg 1x daily for 11 months and wbc is down to 11,400 feeling great but truly concerned about contracting covid 19 @ the local quest office. I’m a very hard stick
haposwald
in
CLL Support
4 years ago
hysteroscopy and removal of a polyp painful
Issues with polyp removal - painful experience I was asked to take paracetamol (only 1 tablet perhaps my error) 1 hour before the removal but i was seen over 2 hours after taking the paracetamol. During the procedure (lasering the polyp off) I was in severe pain and my blood pressure had dropped, i was
Issues with polyp removal - painful experience I was asked to take paracetamol (only 1 tablet perhaps my error) 1 hour before the removal but i was seen over 2 hours after taking the paracetamol. During the procedure (lasering the polyp off) I was in severe pain and my blood pressure had dropped, i was
Rummer1
in
Endometriosis UK
4 years ago
Which fish have the best Vitamin D to Mercury Ratio?
About half of the world's population is deficient in Vitamin D, and fish and sun (without sunscreen) are the best natural sources. So if you don't get much sun, you might want to regularly eat fish because Vitamin D deficiencies have been correlated with at least one kind of cancer and with other health
About half of the world's population is deficient in Vitamin D, and fish and sun (without sunscreen) are the best natural sources. So if you don't get much sun, you might want to regularly eat fish because Vitamin D deficiencies have been correlated with at least one kind of cancer and with other health
HowardR
in
CLL Support
4 years ago
A HUGE THANK YOU 🤗 TO ALL !!! ADMINISTRATION, DOCTORS AND ALIKE. THANK YOU TO ALL OUR WONDERFUL CLL COMMUNITY🤗❤!!!
Thank You!!! For keeping myself informed, as to the latest information, and research with this devastating Corona Virus!😷. Aside from TV, Radio, Newspaper !!! The CLL Support Community is " The Bomb" 😇 as they say.!!! Unfortunately, I had to inform my two clients( an elderly lady with Lymphedema and
Thank You!!! For keeping myself informed, as to the latest information, and research with this devastating Corona Virus!😷. Aside from TV, Radio, Newspaper !!! The CLL Support Community is " The Bomb" 😇 as they say.!!! Unfortunately, I had to inform my two clients( an elderly lady with Lymphedema and
debdetermine58
in
CLL Support
4 years ago
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