Information from several 'think out of the box' doctors/specialists re the Thyroid Gland

[shaws]

I came across this a few minutes ago:

Many on the forum will be familiar with some of these doctors named.

"Pure T3 Thyroid and Stories of Recovery from Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia: An Overview."

healthrising.org/blog/2019/...

[nightingale-56]

Have started reading this very useful post shaws , but will have to find a bit more time. What little I have so far read is very interesting.

[shaws Administrator in reply to nightingale-56]

One of TUK's Advisers (now deceased) also stated that Fibro etc is caused by 'thyroid hormone resistant' and it would be resolved byT3 alone.

[nightingale-56 in reply to shaws]

I quite believe him shaws . They could hardly say that was what I had when they had taken 9/10ths of my thyroid away, could they! Anyway, I only have pain where I know I have damage, mostly knees.

[Alanna012]

Very interesting thanks!

[BadHare]

Thanks Shaws!

That’s a really useful resource that I’ll be able to share. I keep bringing up thyroid hormone deficiency & the importance of micronutrients on the HU pain forum, but seem to waste my time. So many people seem to want drugs to mask the symptoms rather than address the cause.

I gave T3 to someone I know from pain clinic who also has an FM diagnosis, & worse still has CRPS. Even the symptoms of the latter cleared up but I’ve not seen her since to find out if she got more or continued to moan. 😣

[Mamapea1 in reply to BadHare]

It's bizarre, isn't it? Why would they not be interested in the root cause, or grab any possible chance of a solution to the misery? Even if they were initially sceptical, they're such awful conditions...surely it's worth investigating, even if purely out of desperation. All I found was that the drugs don't work...in fact they only served to exacerbate symptoms...or create new ones...a vicious circle of pharma madness and pain. I will be ever grateful for all that I've learnt on here that has allowed me to make such great improvements to my health, but as you say, passing the knowledge on often meets a brick wall😳 x

[BadHare in reply to Mamapea1]

Absolutely none!

There’s a woman at my pain club who runs a local FM group. She knows every drug, but hadn’t even heard of taking magnesium for chronic pain which was my first breakthrough, my last being B12. My conversations have been a tad like talking to a brick that moans, & I despair after being in a room with them. Their GPS just push drugs, then more drugs to counteract the first ones, rather than give people dietary advice, micronutrients & hormones.

[Mamapea1 in reply to BadHare]

Your first and last breakthroughs were exactly the same as mine! Mg first... that brought amazing results, and then getting my B12 [and a number of other B's] optimal worked wonders. For me, underlying all my problems and the initial cause of all of it was the lack of T3, which I was never allowed to even try, as it was so 'dangerous'😡

Nothing dangerous it seems about having 300mcg of Levo and severe deficiencies though ...vit D 4, deforming my bones...B12/folate so low I had neurological damage causing tremors...and nothing dangerous about the carrier bag of meds I came away with, despite the fact that according to the pil's inside many of them were NOT meant to be taken together! When you point it out, you're told 'no, it's fine'. I had just as many meds to quell the side effects of the others...absolute madness!😳

It's also bizarre how you get shouted down [or restricted/banned] on other forums too, for having the sheer audacity to suggest a few vitamins and minerals, [surely everyone has at least an inkling that they're essential for the body to function properly?] and even the vaguest mention in passing of a thyroid test sends them into a spin...what the hell is that about? Whatever it is, it's keeping people very ill, and worse. You're not allowed to mention or pass on your health success story unless it's pharma based? Methinks they protest too much😏 x

[BadHare in reply to Mamapea1]

I took Mg for neurological issues too, & B complex & iron for years as I’m veggie. I wasn’t taking D which was horribly low as I relied on fortified soy with D2. 🤢Very foolish now I know better.

I’ve had three very bad reactions pain, antidepressant, & neuro meds. I was too ill each time to flag this up with a yellow card, & doubt my GP, osteo consultant or pain clinic bothered. I wasn’t warned, & don’t trust doctors at all now.

I had to self diagnose my hypo symptoms to the scorn of endo’s & GP, though went straight to NDT then T3. It’s expensive but I can do what’s best for me. It’s shocking that they ignore the basics.

I have a lovely friend who has screamingly obvious signs of hypothyroidism, PA, & type ii diabetes. Her pain meds will knock decades from her life but she continues to believe her symptoms are subclinical & therefore she doesn’t have these issues, or eating properly & supplementing will help. I’m so sad at not being able to get through to her. I left the FM forum for the reasons you state as the members use it as a moaning drug swap group rather than this one for lifesaving life enhancing help. I’m on another pain group & repeat myself from time to time re this condition, but I may as well ignore the posts altogether. 🥺

[Mamapea1]

An excellent link shaws....thank you for posting ~ I hope it helps people to understand the connection. x

[Confused01]

Yes, yes, yes! .....this report sums up what I have felt about my medical situation and exactly what Endocrinologist and GP’s have no clue about, meaning I am in a vicious circle.Do we have any of these Consultants in the U.K.? I’d be seeing one like a shot! Anyone know?

X