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Screening and monitoring of the BTK C481S mutation in a real-world cohort of patients with relapsed/refractory chronic lymphocytic leukaemia
On line abstract report 21 May 2021 The Bruton's tyrosine kinase (BTK) inhibitor ibrutinib has revolutionised the therapeutic landscape of chronic lymphocytic leukaemia (CLL). Acquired mutations emerging at position C481 in the BTK tyrosine kinase domain are the predominant genetic alterations associated
On line abstract report 21 May 2021 The Bruton's tyrosine kinase (BTK) inhibitor ibrutinib has revolutionised the therapeutic landscape of chronic lymphocytic leukaemia (CLL). Acquired mutations emerging at position C481 in the BTK tyrosine kinase domain are the predominant genetic alterations associated
Jm954
Administrator
in
CLL Support
3 years ago
News - Acalabrutinib approved for Restricted use in Scotland
Following an abbreviated and full submissions, the Scottish Medicines Consortium has approved Acalabrutinib for CLL with the following restrictions:
[i]*for the treatment of adult patients with previously untreated CLL without a del(17p) or TP53 mutation and who are [/i]
[i][u]ineligible[/
Following an abbreviated and full submissions, the Scottish Medicines Consortium has approved Acalabrutinib for CLL with the following restrictions:
[i]*for the treatment of adult patients with previously untreated CLL without a del(17p) or TP53 mutation and who are [/i]
[i][u]ineligible[/
Jm954
Administrator
in
CLL Support
3 years ago
Chronic Constipation
I have been on PD since Jan 2016. Recently, my issues with constipation have gotten to a very frustrating level. I have tried: Prunes; more fruits/veggies; OTC softeners; laxatives; yogurt; probiotics; exercise.....and it is to a chronic stage. If I take prescription Linzess or Trulance provided
I have been on PD since Jan 2016. Recently, my issues with constipation have gotten to a very frustrating level. I have tried: Prunes; more fruits/veggies; OTC softeners; laxatives; yogurt; probiotics; exercise.....and it is to a chronic stage. If I take prescription Linzess or Trulance provided
TaffyTwoshoes27
in
Kidney Dialysis
3 years ago
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CLL Research: Phase 2 CAPTIVATE Study Suggests Role for Fixed-Duration Treatment of CLL/SLL
https://cllpharmacist.com/cll-research-phase-2-captivate-study-suggests-role-for-fixed-duration-treatment-of-cll-sll/ The data in the uMRD cohort of this trial suggest that fixed-duration therapy is feasible in patients who achieve undetectable MRD (uMRD) status. The selection of durations for these
https://cllpharmacist.com/cll-research-phase-2-captivate-study-suggests-role-for-fixed-duration-treatment-of-cll-sll/ The data in the uMRD cohort of this trial suggest that fixed-duration therapy is feasible in patients who achieve undetectable MRD (uMRD) status. The selection of durations for these
WinJ3
in
CLL Support
3 years ago
CLL + Trisomy 8?
Was diagnosed with CLL in 2018 at 45yrs old, started treatment in 2019 and just finished my 19th month of Obinituzamab, Venetoclax, and Ibrutinib trial. Had BMB and showed remaining small population of B-cells - dang! Also showed Trisomy 8? Seems very rare for CLL patient to have Trisomy 8. Oncologist
Was diagnosed with CLL in 2018 at 45yrs old, started treatment in 2019 and just finished my 19th month of Obinituzamab, Venetoclax, and Ibrutinib trial. Had BMB and showed remaining small population of B-cells - dang! Also showed Trisomy 8? Seems very rare for CLL patient to have Trisomy 8. Oncologist
RyStock
in
CLL Support
3 years ago
CLL Ireland and CLL Support First Joint Webinar
Our first joint webinar! 31 May 6.30 pm - 8.00 pm London (1.30 pm EST) We are very pleased to announce our first joint webinar with CLL Ireland. We are privileged to have as our keynote speakers Dr Brian Koffman, founder and principal of the CLL Society, and Professor Patrick Thornton, Consultant
Our first joint webinar! 31 May 6.30 pm - 8.00 pm London (1.30 pm EST) We are very pleased to announce our first joint webinar with CLL Ireland. We are privileged to have as our keynote speakers Dr Brian Koffman, founder and principal of the CLL Society, and Professor Patrick Thornton, Consultant
UK-Sparky
in
CLL Support
3 years ago
Travel Insurance with CLL (UK based)
I was diagnosed Stage 1 CLL in February. No treatment at present or planned. Any recommendations on travel insurance before I investigate further and declare to my existing insurer (free though my banking) or look elsewhere. Thanks.
I was diagnosed Stage 1 CLL in February. No treatment at present or planned. Any recommendations on travel insurance before I investigate further and declare to my existing insurer (free though my banking) or look elsewhere. Thanks.
Stretch47
in
CLL Support
3 years ago
Antibody results just said “yes,” not level
Last week I had an antibody test at my dermatologist’s (who has a vested interest in CLL) to see if my January and February Moderna jab produced antibodies. My impression was that this blood test would be “quantitative” rather than “qualitative,” meaning that it would at least give a general idea of
Last week I had an antibody test at my dermatologist’s (who has a vested interest in CLL) to see if my January and February Moderna jab produced antibodies. My impression was that this blood test would be “quantitative” rather than “qualitative,” meaning that it would at least give a general idea of
Myfavoritecat
in
CLL Support
3 years ago
Should you be minimizing your consumption of lipids?
I had my worst blood test on April 15 followed three weeks later (on May 5) by my best blood test in 15 months. The main difference was that my April 15 blood test came after I had been eating lots of fatty foods during the week of Passover. My good test three weeks later came after I cut my fat and
I had my worst blood test on April 15 followed three weeks later (on May 5) by my best blood test in 15 months. The main difference was that my April 15 blood test came after I had been eating lots of fatty foods during the week of Passover. My good test three weeks later came after I cut my fat and
HowardR
in
CLL Support
3 years ago
Statins with ckd4?
I've been advised to take 20mg of statins but I am worried about the effect on my kidneys (CKD 4). Has anyone taken them? I know that my renal team wouldn't let me have them if I was in any danger and I understand that I am more at risk for heart failure or attack but would like your experiences with
I've been advised to take 20mg of statins but I am worried about the effect on my kidneys (CKD 4). Has anyone taken them? I know that my renal team wouldn't let me have them if I was in any danger and I understand that I am more at risk for heart failure or attack but would like your experiences with
googie68
in
Early CKD Support
3 years ago
Should FISH test be repeated?
Does anyone know if the FISH test is repeated for people with stage zero CLL? I had the test when I was first diagnosed in December 2017, and assume it hasn’t been repeated because my office exam with my hematologist this month didn’t reveal swollen lymph nodes or enlarged spleen.
Does anyone know if the FISH test is repeated for people with stage zero CLL? I had the test when I was first diagnosed in December 2017, and assume it hasn’t been repeated because my office exam with my hematologist this month didn’t reveal swollen lymph nodes or enlarged spleen.
Myfavoritecat
in
CLL Support
3 years ago
Suggestions where to find CBC pre-made spreadsheets
I apologize up-front to ask the subject question as this topic previously had great responses. Then trying to find those references buried in posts was ... well a challenge I admit I failed at. So taking the easier route thought I’d ask question in a post. New in the CLL “adventure” and so I’m gonna
I apologize up-front to ask the subject question as this topic previously had great responses. Then trying to find those references buried in posts was ... well a challenge I admit I failed at. So taking the easier route thought I’d ask question in a post. New in the CLL “adventure” and so I’m gonna
Pin57
in
CLL Support
3 years ago
Real-World Study Shows Limited Implementation of Reccomended Biomarker Testing in CLL
Targeted Oncology May 4th 2021 In an interview with Targeted Oncology, Dr Mato , a hematologc oncologist and the director of the CLL Program at Memorial Sloan Kettering Cancer Center, discusssed biomarker testing in CLL, and the future of BTK inhibitors in the CLL paradigm. Data presented at the
Targeted Oncology May 4th 2021 In an interview with Targeted Oncology, Dr Mato , a hematologc oncologist and the director of the CLL Program at Memorial Sloan Kettering Cancer Center, discusssed biomarker testing in CLL, and the future of BTK inhibitors in the CLL paradigm. Data presented at the
Jm954
Administrator
in
CLL Support
3 years ago
Last Call - Places available for today's UK CLL treatments update webinar
Date: Wednesday 5th May 2021 Time: 3:30pm BST Topic: CLL second-line and subsequent treatments Host: Leukaemia Care and Lymphoma Action This webinar will update on CLL second-line treatments today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement
Date: Wednesday 5th May 2021 Time: 3:30pm BST Topic: CLL second-line and subsequent treatments Host: Leukaemia Care and Lymphoma Action This webinar will update on CLL second-line treatments today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement
HAIRBEAR_UK
Founder Admin
in
CLL Support
3 years ago
New York City -- CLL Society Patient Support Group Sunday May 9 , 2021 3pm – 5pm
CLL PATIENT AND CAREGIVER SUPPORT GROUP New York City -- CLL Patient Support Group The CLL Society invites you to our support group sponsored by the CLL Society Support & Education Network. Please join us We will meet by Zoom on May 9 at 3:00pm Date:Sunday May 9 , 2021 (or choose another day & time
CLL PATIENT AND CAREGIVER SUPPORT GROUP New York City -- CLL Patient Support Group The CLL Society invites you to our support group sponsored by the CLL Society Support & Education Network. Please join us We will meet by Zoom on May 9 at 3:00pm Date:Sunday May 9 , 2021 (or choose another day & time
lankisterguy
Volunteer
in
CLL Support
3 years ago
Does this sound like ibs?
I’m 33 year old female. I’ve been having stomach problems now since October 2020. It all started when I got lots of pain in my lower right abdomen, I lay on my tummy which made me be sick 3 times the pain subsided but didn’t go completely, but as well as that I started having diarrhoea and loose stools
I’m 33 year old female. I’ve been having stomach problems now since October 2020. It all started when I got lots of pain in my lower right abdomen, I lay on my tummy which made me be sick 3 times the pain subsided but didn’t go completely, but as well as that I started having diarrhoea and loose stools
Hidden
in
IBS Network
3 years ago
Advice from family members of dialysis He
Hello, I have a question for anyone with a family or is a family member of a dialysis patient. My girlfriend and I are thinking about getting married, and she is a kidney transplant recipient. At the moment, there is good functionality and our lives are fantastic. Before we tie the knot she has advised
Hello, I have a question for anyone with a family or is a family member of a dialysis patient. My girlfriend and I are thinking about getting married, and she is a kidney transplant recipient. At the moment, there is good functionality and our lives are fantastic. Before we tie the knot she has advised
Husbandtobe
in
Dialysis Support
3 years ago
Abdominal rls after a kidney transplant
Has anyone had what feels like abdominal rls and major stress then given yourself a major enema and the rls in the abdomin seems to ease. I am also months from receiving a kidney transplant and take major meds to keep my kidney functioning.
Has anyone had what feels like abdominal rls and major stress then given yourself a major enema and the rls in the abdomin seems to ease. I am also months from receiving a kidney transplant and take major meds to keep my kidney functioning.
ESRDRLS
in
Restless Legs Syndrome
3 years ago
New Study reveals vaccines not very effective for CLL and MM patients
Two new studies published in Blood suggest that the mRNA COVID-19 vaccine may have reduced efficacy in individuals with chronic lymphocytic leukemia (CLL) and multiple myeloma, two types of blood cancer. According to researchers, these studies could help inform the ideal time for vaccination of these
Two new studies published in Blood suggest that the mRNA COVID-19 vaccine may have reduced efficacy in individuals with chronic lymphocytic leukemia (CLL) and multiple myeloma, two types of blood cancer. According to researchers, these studies could help inform the ideal time for vaccination of these
naddude
in
CLL Support
3 years ago
CLL responses to Pfizer’s Covid vaccines.
Just sharing an ASH medical journal study of CLL patient’s responses to the Pfizer Covid vaccine: Among patients with chronic lymphocytic leukemia (CLL, n = 169) who received two doses of the Pfizer-BioNTech vaccine, the antibody response rate was 39.5% as measured by the Elecsys Anti-SARS-CoV-2 assay
Just sharing an ASH medical journal study of CLL patient’s responses to the Pfizer Covid vaccine: Among patients with chronic lymphocytic leukemia (CLL, n = 169) who received two doses of the Pfizer-BioNTech vaccine, the antibody response rate was 39.5% as measured by the Elecsys Anti-SARS-CoV-2 assay
Twin21
in
CLL Support
3 years ago
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