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An unusual, potent antibody to SARS-CoV-2 variants is isolated from a recovered patient
Given time, ongoing mutation of the SARS-COV2 virus is likely to produce a super-lineage, at least as transmissible as the Delta variant and more resistant to current vaccines and monoclonal antibodies aimed at different targets in the receptor binding domain of the spike protein. A variety of candidate
Given time, ongoing mutation of the SARS-COV2 virus is likely to produce a super-lineage, at least as transmissible as the Delta variant and more resistant to current vaccines and monoclonal antibodies aimed at different targets in the receptor binding domain of the spike protein. A variety of candidate
bennevisplace
in
CLL Support
3 years ago
I’m new here…
My husband (66) newly diagnosed with full blown CLL, otherwise good health. Just started on Imbruvica this week.. just trying to learn everything about the journey we are on. Waiting to get the results of the FISH test done a week ago.
My husband (66) newly diagnosed with full blown CLL, otherwise good health. Just started on Imbruvica this week.. just trying to learn everything about the journey we are on. Waiting to get the results of the FISH test done a week ago.
GrannyMyers
in
CLL Support
3 years ago
Some CLL clinical trials insist that patients have multiple CT scans. Every test should have a reason.
Special Article: The Cumulative Risk of Multiple CT Scans on Blood Cancer Patients Enrolled in Clinical Trials by Board member Bob Levis. Some CLL clinical trials insist that patients have multiple CT scans. Every test should have a reason. Patients should ask questions! https://cllsociety.org/2021/09
Special Article: The Cumulative Risk of Multiple CT Scans on Blood Cancer Patients Enrolled in Clinical Trials by Board member Bob Levis. Some CLL clinical trials insist that patients have multiple CT scans. Every test should have a reason. Patients should ask questions! https://cllsociety.org/2021/09
bkoffman
CLL CURE Hero
in
CLL Support
3 years ago
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CLL Society Webinar The Right Tests at the Right Time for CLL. Tests to guide treatment in all phases of CLL have never been better!
Coming this Friday October 15th: The Right Tests at the Right Time! Testing to guide treatment in all phases of CLL has never been better! Hear the stunning first-hand accounts of CLL patients Tammi Garrett and David Klausmeyer, whose treatment regimens were radically changed by critical testing, echoing
Coming this Friday October 15th: The Right Tests at the Right Time! Testing to guide treatment in all phases of CLL has never been better! Hear the stunning first-hand accounts of CLL patients Tammi Garrett and David Klausmeyer, whose treatment regimens were radically changed by critical testing, echoing
bkoffman
CLL CURE Hero
in
CLL Support
3 years ago
Has anyone tried oxymorphone?
Hi, has anyone here tried oxymorphone for RLS? oxymorphone is similar to oxycodone but with much less sleeping difficulties in comparison with oxycodone. I have been doing extensive research for an opioid which exerts less sleeping difficulties because the oxycodone I am taking gives me severe insomnia
Hi, has anyone here tried oxymorphone for RLS? oxymorphone is similar to oxycodone but with much less sleeping difficulties in comparison with oxycodone. I have been doing extensive research for an opioid which exerts less sleeping difficulties because the oxycodone I am taking gives me severe insomnia
halperinchen
in
Restless Legs Syndrome
3 years ago
Richter transformation of CLL: a British Society for Haematology Good Practice Paper
This best practice paper, written by some of the best and most respected CLL experts in the UK and published on 4th October 2021 following a review of all the evidence and clinical trials available, should form the basis for the treatment of Richter's Syndrome in hospitals in the UK. Details here:
This best practice paper, written by some of the best and most respected CLL experts in the UK and published on 4th October 2021 following a review of all the evidence and clinical trials available, should form the basis for the treatment of Richter's Syndrome in hospitals in the UK. Details here:
Jm954
Administrator
in
CLL Support
3 years ago
Lymph node biopsy results
Hello everyone, just a quick update- my husband finally went for results of lymph node biopsy and thank goodness no mutations. We’re now trying to decide whether to have ibrutinab or ventoclax treatment. Best wishes to everyone Lesley 😊
Hello everyone, just a quick update- my husband finally went for results of lymph node biopsy and thank goodness no mutations. We’re now trying to decide whether to have ibrutinab or ventoclax treatment. Best wishes to everyone Lesley 😊
Lesley3
in
CLL Support
3 years ago
Bispecific Antibodies and CLL
Last year Dr Brian Koffman https://healthunlocked.com/user/bkoffman wrote a succinct piece Bispecific Antibodies: what are they and are they the future of treatment for CLL (chronic lymphocytic leukemia)? https://cllsociety.org/2020/06/bispecific-antibodies-what-are-they-and-are-they-the-future-of-treatment-for-cll-chronic-lymphocytic-leukemia
Last year Dr Brian Koffman https://healthunlocked.com/user/bkoffman wrote a succinct piece Bispecific Antibodies: what are they and are they the future of treatment for CLL (chronic lymphocytic leukemia)? https://cllsociety.org/2020/06/bispecific-antibodies-what-are-they-and-are-they-the-future-of-treatment-for-cll-chronic-lymphocytic-leukemia
bennevisplace
in
CLL Support
3 years ago
Expert Perspective on Key Trial Updates in Treatment of CLL: What You Need to Know From ASCO/EHA/ICML 2021
17th Sept 21 [i]"George Follows, a UK CLL expert, provides his thoughts on updated data from key studies in chronic lymphocytic leukemia (CLL) that were presented at the 2021 meetings of the American Society of Clinical Oncology (ASCO), European Hematology Association (EHA), and International Conference
17th Sept 21 [i]"George Follows, a UK CLL expert, provides his thoughts on updated data from key studies in chronic lymphocytic leukemia (CLL) that were presented at the 2021 meetings of the American Society of Clinical Oncology (ASCO), European Hematology Association (EHA), and International Conference
Jm954
Administrator
in
CLL Support
3 years ago
Horizant for RLS
Does anyone here have experience of taking Horizant for RLS? After taking oxycodone 5 mg for many years, I have developed serious insomnia, therefore I'd like to switch to non-opioid to relieve my RLS symptoms. I'd like to know if anyone here have tried Horizant and if it is effective to relieve RLS
Does anyone here have experience of taking Horizant for RLS? After taking oxycodone 5 mg for many years, I have developed serious insomnia, therefore I'd like to switch to non-opioid to relieve my RLS symptoms. I'd like to know if anyone here have tried Horizant and if it is effective to relieve RLS
halperinchen
in
Restless Legs Syndrome
3 years ago
Harvoni and CLL
Has anyone heard of the Hepatitis C medication Harvoni causing CLL? I was treated with it in 2015. I have CBC tests from 2014 and 2015 showing normal lymphocytes. The first elevated CBC panel I can find is 2016. I see my numbers still elevated in 2018. I was diagnosed in 2021. When I was I was told
Has anyone heard of the Hepatitis C medication Harvoni causing CLL? I was treated with it in 2015. I have CBC tests from 2014 and 2015 showing normal lymphocytes. The first elevated CBC panel I can find is 2016. I see my numbers still elevated in 2018. I was diagnosed in 2021. When I was I was told
Rando21
in
CLL Support
3 years ago
Fatigue
Hi I have been suffering from depression, mood disorder and chronic fatigue. I did blood tests lately but all is fine so Dr confirmed that its fibro. I sleep 8 to 9 hours but I wake up tired like I want to sleep again. This happens on a daily basis and is affecting my routine because I don't have the
Hi I have been suffering from depression, mood disorder and chronic fatigue. I did blood tests lately but all is fine so Dr confirmed that its fibro. I sleep 8 to 9 hours but I wake up tired like I want to sleep again. This happens on a daily basis and is affecting my routine because I don't have the
Annalisea
in
Fibromyalgia Action UK
3 years ago
T-cell /Cellular Immune Responses in Patients with CLL from the Pfizer-BioNTech COVID-19 Vaccine (BNT162b mRNA Covid19 Vaccine)
From Dr Tamar Tadmor, Head of the Israeli CLL study group at iwCLL. Patients with CLL suffer from varying degrees of immune deficiency, either due to their treatment or due to the the primary disease These include: 1. functional defects of B and T lymphocytes, NK cells, neutrophils and macrophages, 2
From Dr Tamar Tadmor, Head of the Israeli CLL study group at iwCLL. Patients with CLL suffer from varying degrees of immune deficiency, either due to their treatment or due to the the primary disease These include: 1. functional defects of B and T lymphocytes, NK cells, neutrophils and macrophages, 2
Jm954
Administrator
in
CLL Support
3 years ago
Clinical Trials explained
Most of us have heard conflicting comments about Clinical Trials, the good, the bad and the just plain ugly. But where can you find expert help and information before you sign on (often a 30 to 60 page document that few can understand - see https://www.fda.gov/patients/clinical-trials-what-patients-need-know
Most of us have heard conflicting comments about Clinical Trials, the good, the bad and the just plain ugly. But where can you find expert help and information before you sign on (often a 30 to 60 page document that few can understand - see https://www.fda.gov/patients/clinical-trials-what-patients-need-know
lankisterguy
Volunteer
in
CLL Support
3 years ago
Richter’s Transformation - updated
Hi everyone. I would like to update all the data that we all provide and summarize it. Last week I had a meeting with a CLL teacher and we discussed Ricther's behavior. That is what my doctor thinks but I am not satisfied. It is only his hypothesis and without any study. He thinks that as long as
Hi everyone. I would like to update all the data that we all provide and summarize it. Last week I had a meeting with a CLL teacher and we discussed Ricther's behavior. That is what my doctor thinks but I am not satisfied. It is only his hypothesis and without any study. He thinks that as long as
Priss69
in
CLL Support
3 years ago
Different IGHV mutation tests?
Are there different tests for IGHV mutation? PCR? Sanger? NGS? My PCR test report says no mutations detected. Should I retest with other methods? Also, is IGHV mutation status innate or developed during the lifetime? If it’s innate and genetic, since I’m unmutated, should I get my children tested for
Are there different tests for IGHV mutation? PCR? Sanger? NGS? My PCR test report says no mutations detected. Should I retest with other methods? Also, is IGHV mutation status innate or developed during the lifetime? If it’s innate and genetic, since I’m unmutated, should I get my children tested for
nuji
in
CLL Support
3 years ago
Any Knowledge of CLL in the eyes?
A biopsy confirmed a diagnosis of CLL in both lower eyelids. This is a rare event. Neither my hematologist-oncologist or CLL Specialist have ever had a patient with it. They tell me that acalabrutinib, which I'll start next week, is sufficient treatment. From what I've read, I'm still uncomfortable
A biopsy confirmed a diagnosis of CLL in both lower eyelids. This is a rare event. Neither my hematologist-oncologist or CLL Specialist have ever had a patient with it. They tell me that acalabrutinib, which I'll start next week, is sufficient treatment. From what I've read, I'm still uncomfortable
cll2013
in
CLL Support
3 years ago
Side Effects of Bendamustine?
I am asking for a friend who has follicular lymphoma and has been W&W for nine years. They start Rituxan and Bendamustine next week. With all the treatment I have had, I have never had this one, so I am wondering if you could share what your experiences were. Thanks much.
I am asking for a friend who has follicular lymphoma and has been W&W for nine years. They start Rituxan and Bendamustine next week. With all the treatment I have had, I have never had this one, so I am wondering if you could share what your experiences were. Thanks much.
KevinCLLITP
in
CLL Support
3 years ago
immunohistochemistry need help understanding
I am seeing my doctor on Tuesday but was able to get some results online from my bone marrow biopsy - Additional tests ordered: Cytogenetics and FISH (CLL panel) Can someone help me understand the findings below - thank you Marker Result Description CD20 Positive Pan B Cell Antigen (L26) CD3 T-cells
I am seeing my doctor on Tuesday but was able to get some results online from my bone marrow biopsy - Additional tests ordered: Cytogenetics and FISH (CLL panel) Can someone help me understand the findings below - thank you Marker Result Description CD20 Positive Pan B Cell Antigen (L26) CD3 T-cells
kp58ny
in
CLL Support
3 years ago
Cost for treatment
Hi everyone, i am hoping you can help. My dad was diagnosed with CLL about a month ago. He just received his information package in the mail from the specialist which indicated that he requires insurance to cover any medical expenses. We are from Ontario Canada so wondering what the cost is for the
Hi everyone, i am hoping you can help. My dad was diagnosed with CLL about a month ago. He just received his information package in the mail from the specialist which indicated that he requires insurance to cover any medical expenses. We are from Ontario Canada so wondering what the cost is for the
Rubymom
in
CLL Support
3 years ago
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