Most of us have heard conflicting comments about Clinical Trials, the good, the bad and the just plain ugly. But where can you find expert help and information before you sign on (often a 30 to 60 page document that few can understand - see fda.gov/patients/clinical-t....
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There are two resources I have found, and if you know of others please add them to the reply to this unlocked posting (open to Google searches and anyone on the internet, so be careful of adding any personal information)
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The first is right here on HealthUnlocked- healthunlocked.com/programs...
About this program
Understanding Clinical Trials is an 8-part program that aims to help you understand what happens in a clinical trial and why they are an important part in developing new therapies. The program has been created with the help of patients, their loved ones and patient groups.
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For USA patients, the Leukemia and Lymphoma Society offers
view.e.lls.org/?qs=be7181d7...
Let us help you explore clinical trials as a treatment option: Get personalized support from a Clinical Trial Nurse Navigator.
Finding a clinical trial can be overwhelming. Patients are often left to search on their own, leaving them with more questions than answers. Fortunately, The Leukemia & Lymphoma Society (LLS) provides a free service to take this burden off patients and their families.
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LLS Clinical Trial Nurse Navigators will work with you one-on-one to find clinical trials and personally assist you throughout the entire clinical trial process.
The is a free service offered to both adult and pediatric patients.
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Len
Clinical trials for Richter's transformation
CLL INFORMATION - A developing reliable and current international list of CLL Information & Resources.
