Clinical Trials explained: Most of us have heard... - CLL Support

CLL Support

22,532 members38,709 posts

Clinical Trials explained

lankisterguy profile image
lankisterguyVolunteer
3 Replies

Most of us have heard conflicting comments about Clinical Trials, the good, the bad and the just plain ugly. But where can you find expert help and information before you sign on (often a 30 to 60 page document that few can understand - see fda.gov/patients/clinical-t....

-

There are two resources I have found, and if you know of others please add them to the reply to this unlocked posting (open to Google searches and anyone on the internet, so be careful of adding any personal information)

-

The first is right here on HealthUnlocked- healthunlocked.com/programs...

About this program

Understanding Clinical Trials is an 8-part program that aims to help you understand what happens in a clinical trial and why they are an important part in developing new therapies. The program has been created with the help of patients, their loved ones and patient groups.

-

For USA patients, the Leukemia and Lymphoma Society offers

view.e.lls.org/?qs=be7181d7...

youtu.be/Hf9RuQwycaQ

Let us help you explore clinical trials as a treatment option: Get personalized support from a Clinical Trial Nurse Navigator.

Finding a clinical trial can be overwhelming. Patients are often left to search on their own, leaving them with more questions than answers. Fortunately, The Leukemia & Lymphoma Society (LLS) provides a free service to take this burden off patients and their families.

-

LLS Clinical Trial Nurse Navigators will work with you one-on-one to find clinical trials and personally assist you throughout the entire clinical trial process.

The is a free service offered to both adult and pediatric patients.

-

Len

Written by
lankisterguy profile image
lankisterguy
Volunteer
To view profiles and participate in discussions please or .
Read more about...
3 Replies
ViPOR profile image
ViPOR

clinicaltrials.gov

Many international trials are also registered on this site - admin

Teddo profile image
Teddo

Thank you, Len I am sure there are many of us on this forum who appreciate your time and contributions to the group.

jacjar1 profile image
jacjar1

Clinical Trials program was excellent thanks for the post and links to all the helps

You may also like...

Clinical trials for Richter's transformation

palliative care. If you know of any clinical trial please inform me. A hug....

Is a Clinical Trial Right for You?

Register at https://cllsociety.org/is-a-clinical-trial-right-for-you/ Hope to see you on Monday....

Dr. Wierda on the Importance of Clinical Trials

value of clinical trials and how he approaches the discussion with patients about joining a...

Clinical Trials studying COVID-19 vaccines in CLL: Some have begun/ others are coming!

CLL Society inquiring as to whether there are clinical trials studying CLL patients' response to the

Clinical Trial with BGB-11417

has knowledge of the NCT trial 04277637 - the Non-Randomized, Open-Label trial investigating the...