Search
Search
About
Log in
Join
Experiences with
Colonic polyps
Posts
Communities
2,345 public posts
Filter results
ALC is still going up
Well, today I had another CBC. My ALC continues to go up consistently at each 2 week check and I will be seeing my onco at the beginning of Feb. In addition to the rising alc, test shows a few other little changes that i don't fully understand -- my MCV is now reading high (99.50) and my MCHC is low
Well, today I had another CBC. My ALC continues to go up consistently at each 2 week check and I will be seeing my onco at the beginning of Feb. In addition to the rising alc, test shows a few other little changes that i don't fully understand -- my MCV is now reading high (99.50) and my MCHC is low
Moonmyst
in
CLL Support
1 year ago
Exercise is the fountain of youth
I always loved the natural high that exercise brings but I never really knew how totally therapeutic it is. I was always the Captain in Team Sports growing up & just generally active. Things slowed down during college & never got added to my ‘adult’ life of creating a career & family. Anyway, after
I always loved the natural high that exercise brings but I never really knew how totally therapeutic it is. I was always the Captain in Team Sports growing up & just generally active. Things slowed down during college & never got added to my ‘adult’ life of creating a career & family. Anyway, after
CoachVera55
in
CLL Support
1 year ago
Having to start treatment
CLL with no mutations. Numbers are very high and I have no visible symptoms. I'm going to need to start treatment. The two options I am being told are Ibrutinib or Venetoclax. I am a healthy person not overweight I'm on no medication I'm 60 years old are there any thoughts on which medication. And has
CLL with no mutations. Numbers are very high and I have no visible symptoms. I'm going to need to start treatment. The two options I am being told are Ibrutinib or Venetoclax. I am a healthy person not overweight I'm on no medication I'm 60 years old are there any thoughts on which medication. And has
Mog811
in
CLL Support
1 year ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Some good Clonoseq results
I just wanted to share that I received some positive news from Clonoseq blood test. This is a blood test for MRD. It did not detect any CLL. So, my doctor has scheduled a bone marrow biopsy to do further testing. If that too comes back negative, I will be able to go off treatment. I started my
I just wanted to share that I received some positive news from Clonoseq blood test. This is a blood test for MRD. It did not detect any CLL. So, my doctor has scheduled a bone marrow biopsy to do further testing. If that too comes back negative, I will be able to go off treatment. I started my
Kvb-texas
in
CLL Support
1 year ago
WBC rising
After 2 years in remission post B+R my white count is starting to go up. In Aug. it was 7.925, Dec 8 was 11.78, and last week was 15.05. I have to go for another CBC next week. I am also noticing periods of feeling a little out of breath with little exertion. I'm scared that this might be heading
After 2 years in remission post B+R my white count is starting to go up. In Aug. it was 7.925, Dec 8 was 11.78, and last week was 15.05. I have to go for another CBC next week. I am also noticing periods of feeling a little out of breath with little exertion. I'm scared that this might be heading
Moonmyst
in
CLL Support
1 year ago
CLL Staging
Hello. My husband, Simon, was diagnosed with CLL several years ago and has been closely monitored. On his last visit to his consultant he was told that he needs to start treatment. Either Rituximab or Venetoclax. My husband is always dismissive of his condition and does not want to discuss with me
Hello. My husband, Simon, was diagnosed with CLL several years ago and has been closely monitored. On his last visit to his consultant he was told that he needs to start treatment. Either Rituximab or Venetoclax. My husband is always dismissive of his condition and does not want to discuss with me
Rocky0181
in
CLL Support
1 year ago
A tip for Australians with Chronic Lymphocytic Leukemia trying to access pneumococcal vaccination through the National Immunisation Program
What a morning I've had to get my third pneumococcal vaccine. I'll share the details here as the solution I found could help others with CLL in Australia who are having difficulty accessing these vaccines through the National Immunisation Program (NIP). In Australia, since 1 July 2020, it's standard
What a morning I've had to get my third pneumococcal vaccine. I'll share the details here as the solution I found could help others with CLL in Australia who are having difficulty accessing these vaccines through the National Immunisation Program (NIP). In Australia, since 1 July 2020, it's standard
CLLerinOz
Administrator
in
CLL Support
1 year ago
Effect of thyroid dysfunction on N-terminal pro-B-type natriuretic peptide levels: A systematic review and meta-analysis
Papers regarding the impact of inappropriate thyroid hormone levels keep coming out. It would be a miracle if endocrinologists showed any evidence of having read them. And incorporated the lessons into their practices. [i]
Effect of thyroid dysfunction on N-terminal pro-B-type natriuretic peptide
Papers regarding the impact of inappropriate thyroid hormone levels keep coming out. It would be a miracle if endocrinologists showed any evidence of having read them. And incorporated the lessons into their practices. [i]
Effect of thyroid dysfunction on N-terminal pro-B-type natriuretic peptide
helvella
Thyroid UK
in
Thyroid UK
1 year ago
The Leukemia & Lymphoma Society - - COVID Updates: Where We Are and Where We Go From Here
COVID Updates: Where We Are and Where We Go From Here https://youtu.be/0aUhKTfOVUI We invite you to learn more about: How COVID-19 has evolved Safety tips for immunocompromised patients Current treatment advances Living with COVID through the end of 2022 and beyond https://youtu.be/0aUhKTfOVUI
COVID Updates: Where We Are and Where We Go From Here https://youtu.be/0aUhKTfOVUI We invite you to learn more about: How COVID-19 has evolved Safety tips for immunocompromised patients Current treatment advances Living with COVID through the end of 2022 and beyond https://youtu.be/0aUhKTfOVUI
lankisterguy
Volunteer
in
CLL Support
2 years ago
CLL relapse
Hello to everyone.My mother has CLL. She is 66 now (diagnozed at the age of 62). She is taking Bendamustine monotherapy and was in remission about 3 years after treatment. Now she has one enlarged lymphnode in her armpit, her hematologist said that CLL is slowly coming back. Leukocites 7.7 Lymphocites
Hello to everyone.My mother has CLL. She is 66 now (diagnozed at the age of 62). She is taking Bendamustine monotherapy and was in remission about 3 years after treatment. Now she has one enlarged lymphnode in her armpit, her hematologist said that CLL is slowly coming back. Leukocites 7.7 Lymphocites
Taupe7
in
CLL Support
2 years ago
People's lived experience of complete remission after long illness?
Hello. Just joined, first post. Quick background: dx in 2008 when I was 43 yo; FCR 2011 → MRD (minimal residual disease); lenolidamide 2011-14; zanibrutrinib 2014-2019; BCl2 inhibitor 2019-now; adenocarcinoma lung removed 2018. Current tx is a trial BCl2 inhibitor (Beigene). I entered the trial at
Hello. Just joined, first post. Quick background: dx in 2008 when I was 43 yo; FCR 2011 → MRD (minimal residual disease); lenolidamide 2011-14; zanibrutrinib 2014-2019; BCl2 inhibitor 2019-now; adenocarcinoma lung removed 2018. Current tx is a trial BCl2 inhibitor (Beigene). I entered the trial at
Greyhound23
in
CLL Support
2 years ago
First COVID Antibody Test
I just got the results back from my first COVID antibody test. It said that my antibody level is 150. Is this a decent level? It is difficult to find much information on this. I am trying to see if I can feel a little secure if we have family over for Christmas. I will probably wear a mask and
I just got the results back from my first COVID antibody test. It said that my antibody level is 150. Is this a decent level? It is difficult to find much information on this. I am trying to see if I can feel a little secure if we have family over for Christmas. I will probably wear a mask and
noeagaman
in
CLL Support
2 years ago
Patient Power's MOST-READ ARTICLEs for 2022
MOST-READ ARTICLE What Does My Lymphocyte Count Mean? If you’ve had a complete blood count blood test and are wondering what the results for the white blood cells — or lymphocytes — mean, you’re not alone. LEARN MORE https://www.patientpower.info/navigating-cancer/what-does-my-lymphocyte-count-mean
MOST-READ ARTICLE What Does My Lymphocyte Count Mean? If you’ve had a complete blood count blood test and are wondering what the results for the white blood cells — or lymphocytes — mean, you’re not alone. LEARN MORE https://www.patientpower.info/navigating-cancer/what-does-my-lymphocyte-count-mean
lankisterguy
Volunteer
in
CLL Support
2 years ago
Latest Consultation/Bloods
Hi I am in UK. I have just had, in November, my consultation with haematologist to check bloods. I am on watch and wait. All looks stable. The key markers were: Hb 136, white cells 14.9, platelets 253, neutrophils 3, lymphocytes 11.3, creatine 59, CRP less than 1, LDH 215, immunoglobulins normal.
Hi I am in UK. I have just had, in November, my consultation with haematologist to check bloods. I am on watch and wait. All looks stable. The key markers were: Hb 136, white cells 14.9, platelets 253, neutrophils 3, lymphocytes 11.3, creatine 59, CRP less than 1, LDH 215, immunoglobulins normal.
Divisidero
in
CLL Support
2 years ago
Optimal Treatment Combinations in the Management of CLL/SLL Jeff Sharman, MD Provided by Clinical Care Options, LLC
Optimal Treatment Combinations in the Management of CLL/SLL Jeff Sharman, MD An installment of the educational program: Advances in Chronic Lymphocytic Leukemia Care: A Master Class for the Community Multidisciplinary Team
Key Takeaways
• Obinutuzumab is the preferred anti-CD20
Optimal Treatment Combinations in the Management of CLL/SLL Jeff Sharman, MD An installment of the educational program: Advances in Chronic Lymphocytic Leukemia Care: A Master Class for the Community Multidisciplinary Team
Key Takeaways
• Obinutuzumab is the preferred anti-CD20
lankisterguy
Volunteer
in
CLL Support
2 years ago
Polyp removal
Hello ladies, I want to have a small polyp in my uterus removed before further IVF treatment. Any recommendation for a reputable specialist at reasonable price? I'm living in Basingstoke. Best wishes for you all!
Hello ladies, I want to have a small polyp in my uterus removed before further IVF treatment. Any recommendation for a reputable specialist at reasonable price? I'm living in Basingstoke. Best wishes for you all!
Goldenfeather123
in
Fertility Network UK
2 years ago
"Three-drug combination highly effective in patients with high-risk forms of chronic lymphocytic leukemia"
Three-drug combination highly effective in patients with high-risk forms of chronic lymphocytic leukemia - https://www.news-medical.net/news/20221212/Three-drug-combination-highly-effective-in-patients-with-high-risk-forms-of-chronic-lymphocytic-leukemia.aspx - small USA trial (68) with acalabrutinib
Three-drug combination highly effective in patients with high-risk forms of chronic lymphocytic leukemia - https://www.news-medical.net/news/20221212/Three-drug-combination-highly-effective-in-patients-with-high-risk-forms-of-chronic-lymphocytic-leukemia.aspx - small USA trial (68) with acalabrutinib
JIDD
in
CLL Support
2 years ago
Treatment of Richter's syndrome - ASH 2022 Education Program
This year's American Society of Hematology (ASH) annual conference is now underway and the ASH Education Program, Volume 2022, Issue 1 booklet that was published on 9 December 2022 is now available at: https://ashpublications.org/hematology/issue/2022/1 It contains three review articles from sessions
This year's American Society of Hematology (ASH) annual conference is now underway and the ASH Education Program, Volume 2022, Issue 1 booklet that was published on 9 December 2022 is now available at: https://ashpublications.org/hematology/issue/2022/1 It contains three review articles from sessions
CLLerinOz
Administrator
in
CLL Support
2 years ago
Chronic lymphocytic leukemia treatment algorithm 2022
This 29 November 2022 review article published in the [i]Blood Cancer Journal[/i] presents an up-to-date treatment algorithm for CLL. https://www.nature.com/articles/s41408-022-00756-9 [i]"The treatment landscape for patients with chronic lymphocytic leukemia (CLL) has changed considerably with the
This 29 November 2022 review article published in the [i]Blood Cancer Journal[/i] presents an up-to-date treatment algorithm for CLL. https://www.nature.com/articles/s41408-022-00756-9 [i]"The treatment landscape for patients with chronic lymphocytic leukemia (CLL) has changed considerably with the
CLLerinOz
Administrator
in
CLL Support
2 years ago
Stopped using Evusheld
I received this message from UCSF. I believe, soon they will stop using it everywhere else too. In recent weeks, California has seen a rapid increase and dominance in circulation of COVID-19 Omicron subvariants which are resistant to our current monoclonal antibody treatment (bebtelovimab) and prophylaxis
I received this message from UCSF. I believe, soon they will stop using it everywhere else too. In recent weeks, California has seen a rapid increase and dominance in circulation of COVID-19 Omicron subvariants which are resistant to our current monoclonal antibody treatment (bebtelovimab) and prophylaxis
shazie
in
CLL Support
2 years ago
1
...
10
11
12
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
1437 results
Lung Conditions Community Forum
216 results
Diabetes India
81 results
View top 10 communities
Sort by
Most Relevant
Newest