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Alone and Surgery 03/01/2024
Hello All, I am 60 on the 1st January 2024 and I am having an upper lobectomy 2 days after. Cancer was picked up by the targeted lung cancer team initiative CT scan and confirmed by PET scan, luckily it seems to have been picked up early and not spread elsewhere I live alone and don't have a support
Hello All, I am 60 on the 1st January 2024 and I am having an upper lobectomy 2 days after. Cancer was picked up by the targeted lung cancer team initiative CT scan and confirmed by PET scan, luckily it seems to have been picked up early and not spread elsewhere I live alone and don't have a support
xinte60
in
The Roy Castle Lung Cancer Foundation
5 months ago
recurrence after lobectomy
Hello, I am 53 and live in the UK and I stop smoking in my late 20’. I had a lobectomy of my right lower lobe in April 2022 to remove a minimally invasive adenocarcinoma staged pT1 N0, M0, PL0, R0 (found by complete accident on an abdomen CT scan.) I begged for adjuvant therapy after the operation
Hello, I am 53 and live in the UK and I stop smoking in my late 20’. I had a lobectomy of my right lower lobe in April 2022 to remove a minimally invasive adenocarcinoma staged pT1 N0, M0, PL0, R0 (found by complete accident on an abdomen CT scan.) I begged for adjuvant therapy after the operation
Bibicata
in
The Roy Castle Lung Cancer Foundation
5 months ago
MPs urged to improve access to epilepsy technology
Epilepsy Action attended the UK parliament this week to talk about the importance of access to epilepsy technology. The Medical Technology Group’s MedTech Awareness Week reception was held on 4 December, at the House of Commons and hosted by Steve Brine MP, chair of the Health and Social Care Select
Epilepsy Action attended the UK parliament this week to talk about the importance of access to epilepsy technology. The Medical Technology Group’s MedTech Awareness Week reception was held on 4 December, at the House of Commons and hosted by Steve Brine MP, chair of the Health and Social Care Select
EpilepsyAction1
Epilepsy Action
in
Epilepsy Action
5 months ago
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70 M Stage 1 Lung cancer & Lobectomy next week and scared and worried
I have smoked for more than 50 of these 70 years. I waited too long to quit and here i am. I am worried about losing part of my lung. I am afraid of the effects of chemo as an alternative. I want to cancel the surgery and just hope for the best. 18mm mass in lower left lobe. I still work, i am fairly
I have smoked for more than 50 of these 70 years. I waited too long to quit and here i am. I am worried about losing part of my lung. I am afraid of the effects of chemo as an alternative. I want to cancel the surgery and just hope for the best. 18mm mass in lower left lobe. I still work, i am fairly
LarryGaryBobTerry
in
Lung Cancer Support
5 months ago
Have found out some info about my medical history
So put in a SAR to see if I could find out anything about my past treatment. My Gp records have Lobectomy listed in my records but surgeon told me he had to remove everything and couldn't save any tissue. This was January 1995. Have got back some records from that time, still sifting through but
So put in a SAR to see if I could find out anything about my past treatment. My Gp records have Lobectomy listed in my records but surgeon told me he had to remove everything and couldn't save any tissue. This was January 1995. Have got back some records from that time, still sifting through but
Polo22
in
Thyroid UK
5 months ago
Seeking advice about starting my Ovarian Cancer journey
Hello Everyone, Let me say thanks in advance for any and all advice or comments. It is very kind of you to share your stories and opinions. I may not be able to respond right away. Sorry for such a long post. I just want to get all of my info and questions out there. I will update with new information
Hello Everyone, Let me say thanks in advance for any and all advice or comments. It is very kind of you to share your stories and opinions. I may not be able to respond right away. Sorry for such a long post. I just want to get all of my info and questions out there. I will update with new information
Texas_Mom
in
My Ovacome
5 months ago
Doctor trying to scare me out of getting a laparoscopy
Hi everyone! I am currently under investigation for endometriosis. I have just turned 18 years old and am quite active despite all the pain I am in as I am a dancer in professional training. I just looking for some advice and reassurance about what I should do. Just a brief back story I have been
Hi everyone! I am currently under investigation for endometriosis. I have just turned 18 years old and am quite active despite all the pain I am in as I am a dancer in professional training. I just looking for some advice and reassurance about what I should do. Just a brief back story I have been
Eve_16
in
Endometriosis UK
5 months ago
Lobectomy for bronchiectasis
Hi,I was wondering if anyone has had a lobectomy for bronchiectasis and were cured or at least felt a lot better? I had an open lobectomy on 1st September but that was because there was a 5cm mass in my right lower lobe and I had been coughing up blood in my sputum since December 25th 2022. From September
Hi,I was wondering if anyone has had a lobectomy for bronchiectasis and were cured or at least felt a lot better? I had an open lobectomy on 1st September but that was because there was a 5cm mass in my right lower lobe and I had been coughing up blood in my sputum since December 25th 2022. From September
Immy_6
in
Lung Conditions Community Forum
6 months ago
Adaura 2 trail
Had a small upper lobe segment removal 10/18 stage 1a (R lower lobectomy and R upper lobe wedge 2018). No treatment at the time and no treatment recommended once again. However, did meet with Thoracic onc last week to discuss how this pathogoly compared to initial one 5 years ago and thoughts on chances
Had a small upper lobe segment removal 10/18 stage 1a (R lower lobectomy and R upper lobe wedge 2018). No treatment at the time and no treatment recommended once again. However, did meet with Thoracic onc last week to discuss how this pathogoly compared to initial one 5 years ago and thoughts on chances
kri312
in
The Roy Castle Lung Cancer Foundation
6 months ago
Help with Medicheck results
I have been on 75mcg for a number of years since having a lobectomy and isthmusectomy in 2015. This was reduced from 100mcg in 2019 following TFT (TSH 0.02) even though I felt well on this dose. I have been feeling very fatigued and achy for a while and had a blood test by the GP in January 2023 for
I have been on 75mcg for a number of years since having a lobectomy and isthmusectomy in 2015. This was reduced from 100mcg in 2019 following TFT (TSH 0.02) even though I felt well on this dose. I have been feeling very fatigued and achy for a while and had a blood test by the GP in January 2023 for
SpringerMom
in
Thyroid UK
6 months ago
Recurrence rate data
I am trying to find some data on recurrence rates specifically after you have had one! 2 Stage 1 adenomocarcoma surgically removed 2018 with no other treatmetn (rll lobectoby and r ul wedge) - stage 1 resection 10/18/23 with r upper lobe partial lobectomy. Once you have a recurrence what are the stats
I am trying to find some data on recurrence rates specifically after you have had one! 2 Stage 1 adenomocarcoma surgically removed 2018 with no other treatmetn (rll lobectoby and r ul wedge) - stage 1 resection 10/18/23 with r upper lobe partial lobectomy. Once you have a recurrence what are the stats
kri312
in
The Roy Castle Lung Cancer Foundation
6 months ago
Recurrence!
Been a bumpy year (5 1/2 years ago R lower lobectomy stage 1 R upper lobe wedge stage 1) .....(see below for recent details) but wondering for those who had recurrences when did they occur and how were they managed? Did you have others since? My surgeon did frozen sample in OR and detected no cancer
Been a bumpy year (5 1/2 years ago R lower lobectomy stage 1 R upper lobe wedge stage 1) .....(see below for recent details) but wondering for those who had recurrences when did they occur and how were they managed? Did you have others since? My surgeon did frozen sample in OR and detected no cancer
kri312
in
The Roy Castle Lung Cancer Foundation
6 months ago
persistent pneumothorax
I finally had my procedure last Wednesday due to uncertain recent pet /ct changes ( had r lower lobe lobectomy and r upper wedge 5 1/2 years ago) at the scar site of upper. Bronch was completed with insignificant findings but Tumor board recommended to go in for surgery. Great news following surgery
I finally had my procedure last Wednesday due to uncertain recent pet /ct changes ( had r lower lobe lobectomy and r upper wedge 5 1/2 years ago) at the scar site of upper. Bronch was completed with insignificant findings but Tumor board recommended to go in for surgery. Great news following surgery
kri312
in
The Roy Castle Lung Cancer Foundation
6 months ago
colostomy
hi Les is suffering really badly with severe back and neck pain when he is put on the commode and says he feels like his going to pass out with the pain, yesterday he said he wanted a colostomy bag so he didn’t have to go through this , has anybody else experienced this ? And are there any MSA sufferers
hi Les is suffering really badly with severe back and neck pain when he is put on the commode and says he feels like his going to pass out with the pain, yesterday he said he wanted a colostomy bag so he didn’t have to go through this , has anybody else experienced this ? And are there any MSA sufferers
DeeMilo25
in
Multiple System Atrophy Trust
7 months ago
I have now been told that I have PTSD! Why?
I have had anxiety and depression since I had a breakdown 16 year's ago when a woman I thought was a friend, stabbed me in the back ( not literally!) because she wanted to be me ! Goodness knows why ! Long story! I fought hard with the help of an OT and I would not be here but for him and people here
I have had anxiety and depression since I had a breakdown 16 year's ago when a woman I thought was a friend, stabbed me in the back ( not literally!) because she wanted to be me ! Goodness knows why ! Long story! I fought hard with the help of an OT and I would not be here but for him and people here
Danni54
in
Anxiety and Depression Support
7 months ago
My father died after spending 2 weeks in a coma due severe sepsis and multi organ failure. I love him so much.
The same scan showed he had a ruptured bowel which was ischaemic, due to a blood clot. 2 days before he died the surgeons did a total
colectomy
- removing his entire large intestine and because he was so poorly they never stitched him back up and put in a stoma- they just put some superficial stitches
The same scan showed he had a ruptured bowel which was ischaemic, due to a blood clot. 2 days before he died the surgeons did a total
colectomy
- removing his entire large intestine and because he was so poorly they never stitched him back up and put in a stoma- they just put some superficial stitches
Pluto8
in
ICUsteps
14 days ago
Excessive weight gain after lower lobectomy
Hi everyone, Since I'd a lower left lobectomy last Nov 2022 I've noticed a gradual increase in my weight. I was 9st 12 Ibs & now I'm 10st 12 Ibs. This notable increase's happened within 6 months. I just can't shift the excess weight. My daily routine hasn't changed & I'm at a loss on how to stop my
Hi everyone, Since I'd a lower left lobectomy last Nov 2022 I've noticed a gradual increase in my weight. I was 9st 12 Ibs & now I'm 10st 12 Ibs. This notable increase's happened within 6 months. I just can't shift the excess weight. My daily routine hasn't changed & I'm at a loss on how to stop my
Eaglewings1
in
The Roy Castle Lung Cancer Foundation
7 months ago
Do I still say I have cancer?
I had the upper left lobe of my lung (that's a mouthful) removed in February. The tumour was crimping a pulmonary artery and when examining the removed bit it was shown to have active cancer cells - they couldn't remove the lobe cleanly enough without nicking the artery so I was told. Consequently
I had the upper left lobe of my lung (that's a mouthful) removed in February. The tumour was crimping a pulmonary artery and when examining the removed bit it was shown to have active cancer cells - they couldn't remove the lobe cleanly enough without nicking the artery so I was told. Consequently
olwman
in
The Roy Castle Lung Cancer Foundation
7 months ago
Hi Everyone, I'm new to this but so glad I found it. Thought I'd introduce myself....no point in holding back!
Hi, This October 2023, will mark the 25th 'Anniversary' of when, at the age of 26, I was wheeled into Theatre for an Operation that lasted 7hrs. I had 8 months previously been told that there was nothing wrong with me when I kept going & phoning the Doctors as my Period (as I thought it was) came
Hi, This October 2023, will mark the 25th 'Anniversary' of when, at the age of 26, I was wheeled into Theatre for an Operation that lasted 7hrs. I had 8 months previously been told that there was nothing wrong with me when I kept going & phoning the Doctors as my Period (as I thought it was) came
maddie_1234
in
Pelvic Radiation Disease Association
8 months ago
Still have shortness of breath from lobectomy in May
I had a left upper lobectomy in May 2023 followd by 4 sessions of chemo. I still have a little shortness of breath left over from my lobectomy. Is this fairly common?
I had a left upper lobectomy in May 2023 followd by 4 sessions of chemo. I still have a little shortness of breath left over from my lobectomy. Is this fairly common?
Babtino
in
The Roy Castle Lung Cancer Foundation
8 months ago
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