My father died after spending 2 weeks in a coma d... - ICUsteps

ICUsteps

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My father died after spending 2 weeks in a coma due severe sepsis and multi organ failure. I love him so much.

Pluto8 profile image
12 Replies

He spent a week in ICU at his local hospital where he was extremely poorly and he briefly stopped breathing during a routine nursing manoeuvre, but recovered by himself without any resuscitation it was then when they put him into coma (intubated and given propofol and fentanyl) and moved him to an ICU in a hospital with a specialist hepatobiliary unit that could do liver surgeries. The doctors found a mass on his liver which they believed to be metastatic cancer which explained why he was so poorly in the first place and not responding to routine treatments. The same scan showed he had a ruptured bowel which was ischaemic, due to a blood clot. 2 days before he died the surgeons did a total colectomy- removing his entire large intestine and because he was so poorly they never stitched him back up and put in a stoma- they just put some superficial stitches and special pressure control dressings. At one point his heart rate jumped to over 200 and they shocked and the doctors discussed it with us that any future CPR attempts would not help and the entire family gathered, although only 2 are allowed in the room. We had a priest do last rights. They increased the painkillers and other medications to increase his sedation in the final hours dads heart rate kept rising and falling, eventually it fell so low he flatlined and died. I am still in shock and cannot believe he is gone. I keep thinking to ring him to ask for help, but he is gone. He qualified for a post mortem so the funeral is delayed. I am angry with the second hospital they did look after in ICU (although I cleaned, shaved and got them to do his teeth) but they didn't focus on the diagnosis side which was done to late. May he rest in peace eternally in the kingdom of heaven. I will always love him. He said his last words to me and I was the last person to say goodbye. I am struggling dealing with the stress of wills, family disputes and funerals.

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Pluto8
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12 Replies
Lux95 profile image
Lux95

I am so very sorry for your loss. May God grant him eternal rest, and through His grace, peace for you and your family.

Pluto8 profile image
Pluto8 in reply to Lux95

Thank you, we are Russian Orthodox Christians and planning an Orthodox funeral. His parents came from Russia after the war. I feel terrible as my father was a doctor, and he saved my life and from severe brain damage when I had an out of hospital cardiac arrest in our living room. I was surrounded by my mother and brother who started CPR rang 999 and they called him while he was at work. He did a 20 minute drive in 7 minutes, and took over chest compressions for 15 minutes and gave me oxygen with no breaks even after the paramedics arrived. His first reaction when he saw me was that I was dead. The paramedics struggled to get in a line, they couldn't shock me as there was no pulse to be shocked but they eventually did get a line in and gave adrenaline and other heart medications. After what was agreed to be the final dose, a faint line came up and he came with me in the ambulance were I went into something called ventricular fibrillation, which the shock machine could work on. In total the cardiac lasted over 25 minutes and I was expected to have severe brain damage but due to his oxygenation , all I developed was epilepsy. I spent 1 month in CICU (cardiac intensive care unit) and had to be intubated and sedated on several occasions during my stay in our local hospital with a cardiac unit and then St Thomas's London. They put in a pacing wire, eventually an implanted pacemaker and ICD- implantable cardioverter defibrillator. My cardiac arrest was due to a genetic cardiomyopathy from my mothers side which has taken two of my second cousins, before the age of 30. I feel like I was save by a miracle through my dad and the quick acting of my mum and brother, and a part me feels like it should have been me, not him. That incident is going through my head a lot at the moment. I am getting very jumpy at loud noises at the moment and afraid every phone call I get somebody is going to tell me a loved one has died. I am desperately worried for his parents who are in their late 90's and they are in shock.

Sepsur profile image
Sepsur in reply to Pluto8

he sounds like a brilliant man.

Pluto8 profile image
Pluto8 in reply to Sepsur

He was staying with his sister who was in India, looking after his parents when this happened. He cared for everyone in his life so deeply.

Glen-ICU-SentMe-Nutz profile image
Glen-ICU-SentMe-Nutz in reply to Pluto8

Your love for this incredible human is in every one of your words.

Sorry for your loss P8.

Sepsur profile image
Sepsur

I am so sorry for your loss

I am so sorry for your profound loss

Lellynelly1 profile image
Lellynelly1

oh my. That just sounds so terribly awful.

Firstly I am so sorry for your loss and offer my deepest sympathies.

Secondly It makes me wonder whether you have a right to a complaint? I suggest you write everything down, every detail that you can remember, and then, in a few months, when the funeral is over and you have had time to process everything, decide whether you still feel his treatment was poor. Then if you feel it necessary, contact the hospital to discuss your feelings.

Pluto8 profile image
Pluto8 in reply to Lellynelly1

They said speak to PALS, but I am not sure whether to wait for the autopsy result. He died within 48 hours of having his entire colon removed which the surgeons left open which they did after a scan- I want to know why the scan took so long. He had dirt on his feet (he never wore socks indoors), he did not shower the week before admission he was that poorly and spent the most of it in bed (he was staying with his sister who was away in India). When in hospital I cleaned his feet, I cleaned the dirt from his hands next to the cannula sites. When he was awake and first admitted he was gesturing his mouth was sore and dry, I would get him water to sip from, I could see his mouth was sore and I asked the nurse for something to clean and soothe his mouth which she said they would, and the only time I saw antiseptic mouthwash and dry mouth spray was the day he died. The staff where lovely to him in terms of keeping him comfortable and out of pain, I believe they ensured he didn't suffer and were nice to the family, but there are hygiene and diagnosis concerns.

BigH63 profile image
BigH63

So sorry to hear you’re very sad news. It’s hard loosing someone close but so much more when it’s a parent, the sense of suddenly being the head of the family and nowone to ask advice is hard.

Look after yourself

🙏

Copse77 profile image
Copse77

your Dad was an amazing man and Doctor. It is very difficult for you and your family.

I lost my Dad almost 2 years ago and it’s been a difficult few years for our family. As somebody suggested here if you feel his care was poor you can take action.

I helped a friend of mine whose husband died and received poor care. The PALS service was not a help and she is taking this to ombudsman so it is useful to be aware there are options for the future to take this forward. Thinking of you and your family.

Fatherless1 profile image
Fatherless1

Im soo soory for your loss , last year I had a similar situation with my dad and he past 6/5. I’ve been lost everyday since, still feel like I’m standing next to him in the hospital wondering what the hell happened. Without sounding crazy, you must while it’s fresh in your grief stricken head write down every minute you remember and what went on, grief and time distorts something’s while leaving you acutely aware of others. If you can find someone to discuss what happened do this to see if it was normal protocol so to say. It took me 8;months of suffering through trauma but getting three doh and filing a complaint validated somewhat and now I’m waiting to hear from a lawyer. My father was elderly and it’s a lot harder to get someone to persue as tout doesn’t result in financial gain vs lawyers time spent , but I’m hopeful. This country is so backwards, my dad fought for us to be free and after doing all he could and work hard at 87 I feel and know he was valued less, and nothing more could be further from the truth. Things need to change and get our heads legit

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