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Colchicine / Probenecid
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Fast heart rate(tachycardia) advice
Hello everyone I am having problems with tachycardia giving me dizziness, shortness of breath ,palpitations, nausea, chest pain and tightness and feeling faint!. They are worse on exercise and improve with rest. I do have a seven year history with chest pain, had a lot of the tests to rule out the
Hello everyone I am having problems with tachycardia giving me dizziness, shortness of breath ,palpitations, nausea, chest pain and tightness and feeling faint!. They are worse on exercise and improve with rest. I do have a seven year history with chest pain, had a lot of the tests to rule out the
misty14
in
LUPUS UK
6 years ago
Colchicine- is it safe to take it if you have post PV Myelofibrosis?
My husband’s gout has been well controlled by Allopurinol for three years but he’s had a flare up for three days. ( He has post Ploycythaemia Myelofibrosis treated with Ruxolitinib) . He’s been prescribed Colchicine 500mg ( one to be taken four times a day for three days) . The consultation was done
My husband’s gout has been well controlled by Allopurinol for three years but he’s had a flare up for three days. ( He has post Ploycythaemia Myelofibrosis treated with Ruxolitinib) . He’s been prescribed Colchicine 500mg ( one to be taken four times a day for three days) . The consultation was done
Fika500
in
MPN Voice
6 years ago
Pericarditis
Feeling very frustrated after having Pericarditis 7 times (Oct 2014, Dec 2014, Feb 2015, Aug 2015, Dec 2015, Jan 2018, Feb 2018) Recommended taking Colchicine for long term use to stop the recurring Pericarditis. I'm a middle distance athlete 800m/1550m training hard for the 1500m World Masters Championship
Feeling very frustrated after having Pericarditis 7 times (Oct 2014, Dec 2014, Feb 2015, Aug 2015, Dec 2015, Jan 2018, Feb 2018) Recommended taking Colchicine for long term use to stop the recurring Pericarditis. I'm a middle distance athlete 800m/1550m training hard for the 1500m World Masters Championship
Andy800m
in
British Heart Foundation
6 years ago
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Pericarditis
36 year old female diagnosed with pericarditis after 4 months of chest pain. More so right sided pain in ribs. A&e had said i was suffering anxiety as all tests came back negative until my gp arranged an echocardiogram. I have been told I have pericarditis and also fluid present. I’ve been prescribed
36 year old female diagnosed with pericarditis after 4 months of chest pain. More so right sided pain in ribs. A&e had said i was suffering anxiety as all tests came back negative until my gp arranged an echocardiogram. I have been told I have pericarditis and also fluid present. I’ve been prescribed
Kiernan81
in
British Heart Foundation
6 years ago
Heart issues - Pacemaker ? endocarditis
I was diagnosed with Behcet's last year. The most significant features has been the ulcers, red rashes in the mouth and a sore tongue and lips which did not improve with colchicine or steroids but is improving with Plaquenil. I have HLA B5. I also get little red sores on my arms, legs, scalp and neck
I was diagnosed with Behcet's last year. The most significant features has been the ulcers, red rashes in the mouth and a sore tongue and lips which did not improve with colchicine or steroids but is improving with Plaquenil. I have HLA B5. I also get little red sores on my arms, legs, scalp and neck
Asteroid
in
Behçet's UK
6 years ago
My daughter was diagnosed at 10 years old she is now 14, need advice please
Hello everyone I am looking for some advice. My daughter was diagnosed with bechets disease at 10 years old she has a variety of symptoms that we've tried to treat with many medications. 2 years ago she ended up with the flu and a 13 years old she was 63 lb, she had lost 15% of her body weight in 9 days
Hello everyone I am looking for some advice. My daughter was diagnosed with bechets disease at 10 years old she has a variety of symptoms that we've tried to treat with many medications. 2 years ago she ended up with the flu and a 13 years old she was 63 lb, she had lost 15% of her body weight in 9 days
Lweiner
in
Behçet's UK
6 years ago
Vasculitis colchicine
I'm new to all this been diagnosed with l v and given colchicine bit apprehensive about taking it has anybody got advice
I'm new to all this been diagnosed with l v and given colchicine bit apprehensive about taking it has anybody got advice
Mullany
in
Vasculitis UK
6 years ago
High Uric Acid
Doctor has told me I have Sky high Uric Acid, having read about Gout, the attacks I’m getting don’t seem like same thing? I get an intense itching in Feet, so intense the more I try to itch the more intense it becomes it’s so bad I’m actually screaming as nothing helps, and intensifies to such a degree
Doctor has told me I have Sky high Uric Acid, having read about Gout, the attacks I’m getting don’t seem like same thing? I get an intense itching in Feet, so intense the more I try to itch the more intense it becomes it’s so bad I’m actually screaming as nothing helps, and intensifies to such a degree
Romany
in
Thyroid UK
6 years ago
A-fib after ablation
After procedure had upper back and chest pain which MD diagnosed as pericarditis. Started on colchicine. Pain went away but back pain and shortness of breath returned. MD wants me to take colchicine for 2 more weeks (causing diarrhea) but no definitive EKG changes shows pericarditis. A-fib returned
After procedure had upper back and chest pain which MD diagnosed as pericarditis. Started on colchicine. Pain went away but back pain and shortness of breath returned. MD wants me to take colchicine for 2 more weeks (causing diarrhea) but no definitive EKG changes shows pericarditis. A-fib returned
Ciscokid
in
AF Association
7 years ago
Drugs to Avoid with CMT
Stumbled upon this and thought people might find it useful. It was in a published paper called Medication-induced exacerbation of neuropathy in Charcot Marie Tooth Disease link http://cmt.org.uk/wp-content/uploads/2015/04/NeuroMeds.pdf Proposed list of medications of concern to patients with CMT Definite
Stumbled upon this and thought people might find it useful. It was in a published paper called Medication-induced exacerbation of neuropathy in Charcot Marie Tooth Disease link http://cmt.org.uk/wp-content/uploads/2015/04/NeuroMeds.pdf Proposed list of medications of concern to patients with CMT Definite
Hidden
in
Charcot-Marie-Tooth UK
7 years ago
To
I feel a measure of relief finding this group. I was diagnosed 1year ago and it's been a very rough journey. One which im thankful for. And finding ways to get through. There is little or no support group and i am yet to meet anyone from my country with Behcet's Disease, thusmaking it twice as hard to
I feel a measure of relief finding this group. I was diagnosed 1year ago and it's been a very rough journey. One which im thankful for. And finding ways to get through. There is little or no support group and i am yet to meet anyone from my country with Behcet's Disease, thusmaking it twice as hard to
Umeti
in
Behçet's UK
7 years ago
Need advice please...
I had my major flare out for a year now. I already had recurrent mouth ulcers and bumps on my legs since I was young. Last year, genital ulcers started as well as the worst flares on my chest and back area (acne-like bumps). I was in misery and so lost as to what is happening to me. So I started researching
I had my major flare out for a year now. I already had recurrent mouth ulcers and bumps on my legs since I was young. Last year, genital ulcers started as well as the worst flares on my chest and back area (acne-like bumps). I was in misery and so lost as to what is happening to me. So I started researching
Ellaine_Grace
in
Behçet's UK
7 years ago
Omega 3 oils having good results !
Hi there , My son has Behcets and was prescribed colchicine . He was diagnosed finally about 14 months ago at age 25 having had symptoms all his life. Just to share our experience ( which we started somewhere further back on here) - we are having astonishingly good results with omega 3 oils. We are
Hi there , My son has Behcets and was prescribed colchicine . He was diagnosed finally about 14 months ago at age 25 having had symptoms all his life. Just to share our experience ( which we started somewhere further back on here) - we are having astonishingly good results with omega 3 oils. We are
lizcook
in
Behçet's UK
7 years ago
Azathioprine
Hi guys I was officially diagnosed with Behcets just over a month ago after 4 years of various problems. I'm currently on a 5 week course of steroids as the colchicine they thought would work didn't. Today they've decided to start me on 50mg of azathioprine daily then upping to 100mg after 2 weeks.
Hi guys I was officially diagnosed with Behcets just over a month ago after 4 years of various problems. I'm currently on a 5 week course of steroids as the colchicine they thought would work didn't. Today they've decided to start me on 50mg of azathioprine daily then upping to 100mg after 2 weeks.
sineadx
in
Behçet's UK
7 years ago
Recurrent Pericarditis
Hi, Im hoping there are people out there who could offer a bit of support. I've had chest pain on and off for at least 8 years and was finally diagnosed with Pericarditis after being hospitalised with chest pain nearly 3 years ago. I've had a CT , MRI, several echos and lots of ECGs and bloods and basically
Hi, Im hoping there are people out there who could offer a bit of support. I've had chest pain on and off for at least 8 years and was finally diagnosed with Pericarditis after being hospitalised with chest pain nearly 3 years ago. I've had a CT , MRI, several echos and lots of ECGs and bloods and basically
Frannie74
in
British Heart Foundation
7 years ago
Urticaria and BD
Is there any connection between BD and urticaria? I've been suffering from hives for the past six months. It's a sort of persisting nettle rash mainly on my face, head, and chest and I can't even sleep at night. I'm in therapy with colchicine, prednisone 5mg and cetirizine. This is giving me a significant
Is there any connection between BD and urticaria? I've been suffering from hives for the past six months. It's a sort of persisting nettle rash mainly on my face, head, and chest and I can't even sleep at night. I'm in therapy with colchicine, prednisone 5mg and cetirizine. This is giving me a significant
alfredo884
in
Behçet's UK
7 years ago
Just joined!
Hi I'm a new member with 9 months diagnosis of Behcet's, symptoms mouth ulcers, joint pain and erythema nodusom. Taking colchicine daily and prednisolon on flares. Hope to find out alternative or additional remission methods and help where I can.
Hi I'm a new member with 9 months diagnosis of Behcet's, symptoms mouth ulcers, joint pain and erythema nodusom. Taking colchicine daily and prednisolon on flares. Hope to find out alternative or additional remission methods and help where I can.
hoda_16
in
Behçet's UK
7 years ago
Suffering
Hi everyone, This isn't my first time on this forum but I've not visited for sometime. I'm 28 years old and have been suffering for the past 10 years with my health without any diagnosis. When I was about 17 I started to suffer frequently with tonsilitus. I would get bouts of it every few months. At
Hi everyone, This isn't my first time on this forum but I've not visited for sometime. I'm 28 years old and have been suffering for the past 10 years with my health without any diagnosis. When I was about 17 I started to suffer frequently with tonsilitus. I would get bouts of it every few months. At
Sammie_88
in
Behçet's UK
7 years ago
Medication and menstrual cycle
Hello Ladies, I was recently put on Azathioprine and colchicine for my BD and my cycle seems to have stopped completely. I also have the mirena coil and am definitely not pregnant. Just wondered if anyone else had the same thing happen? I know the mirena coil can stop periods altogether but I've had
Hello Ladies, I was recently put on Azathioprine and colchicine for my BD and my cycle seems to have stopped completely. I also have the mirena coil and am definitely not pregnant. Just wondered if anyone else had the same thing happen? I know the mirena coil can stop periods altogether but I've had
ch1982
in
Behçet's UK
7 years ago
possible recurrent pericarditis or coronary artery spasm
I have been suffering moderate to bad chest pains for quite awhile. one hospital has diagnosed recurrent pericarditis another now has said it might be CAS. my angiogram shows moderate diffuse artery problems which I was told are not bad enough to worry about. a jelly scan does not show any problems either
I have been suffering moderate to bad chest pains for quite awhile. one hospital has diagnosed recurrent pericarditis another now has said it might be CAS. my angiogram shows moderate diffuse artery problems which I was told are not bad enough to worry about. a jelly scan does not show any problems either
Hidden
in
British Heart Foundation
7 years ago
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