Search
Search
About
Log in
Join
Experiences with
Colchicine / Probenecid
Posts
Communities
365 public posts
Filter results
Colchicine to treat IgA Vasculitis
Hello, My daughter has recently been diagnosed with IgA Vasculitis, with Gastro-intestinal involvement. She is currently living in France and being treated with Colchine, to which she is responding well, with no flare-ups (pre-diagnosis she was having a flare, with severe stomach pain every few weeks
Hello, My daughter has recently been diagnosed with IgA Vasculitis, with Gastro-intestinal involvement. She is currently living in France and being treated with Colchine, to which she is responding well, with no flare-ups (pre-diagnosis she was having a flare, with severe stomach pain every few weeks
RedPoppy2
in
Vasculitis UK
4 days ago
Persistent gout in renal transplant.
Hi, As I understand it many of us will have had gout, I have for 30 years since my transplant. The last 3 years it has been relentless and the past few months: constant. I have been given colchicine and allupurinol but it's not seeming to help any longer. The situation is quite serious as I'm unable
Hi, As I understand it many of us will have had gout, I have for 30 years since my transplant. The last 3 years it has been relentless and the past few months: constant. I have been given colchicine and allupurinol but it's not seeming to help any longer. The situation is quite serious as I'm unable
lkni
in
Kidney Transplant
13 days ago
Otezla
I have had Behcets disease my whole life but they couldn't figure it out until I was 17. That's when I was officially diagnosed. I'm on Plaquenil which helps A LOT with ulcers. I also just started Colchicine for flares and Imuran daily. I've also been on Otezla since August of 2023. I guess my question
I have had Behcets disease my whole life but they couldn't figure it out until I was 17. That's when I was officially diagnosed. I'm on Plaquenil which helps A LOT with ulcers. I also just started Colchicine for flares and Imuran daily. I've also been on Otezla since August of 2023. I guess my question
PankieGirl
in
ABDA
1 month ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Myocarditis chest pain
Hi all, I’m approaching the 3 month mark with myocarditis. Chest pains were slowly easing off but have increased slightly over the past few weeks. I’m continuing to rest and listen to my body. Anyone that has recovered from myocarditis, I’m interested to know if you also experienced a rocky recovery
Hi all, I’m approaching the 3 month mark with myocarditis. Chest pains were slowly easing off but have increased slightly over the past few weeks. I’m continuing to rest and listen to my body. Anyone that has recovered from myocarditis, I’m interested to know if you also experienced a rocky recovery
Beachboy1
in
British Heart Foundation
1 month ago
Pain at it's highest level.
I've had arthritis for about 20 and it has been very painful at times, though I have managed to get get to the bathroom in my bedroom with the use one or two crutches. A few days ago I woke up to my right foot not being able to move without yelling, it was impossible even to get off the bed to use the
I've had arthritis for about 20 and it has been very painful at times, though I have managed to get get to the bathroom in my bedroom with the use one or two crutches. A few days ago I woke up to my right foot not being able to move without yelling, it was impossible even to get off the bed to use the
Nottobad123
in
NRAS
2 months ago
VEXAS and Sweet's Syndrome
Sweet's syndrome can be a symptom of VEXAS syndrome in men. VEXAS, DermNet NZ https://dermnetnz.org/topics/vexas-syndrome "VEXAS syndrome typically responds poorly to treatment, with high dose systemic corticosteroids (> 20mg/d) showing the most consistent benefit for the inflammatory features. Other
Sweet's syndrome can be a symptom of VEXAS syndrome in men. VEXAS, DermNet NZ https://dermnetnz.org/topics/vexas-syndrome "VEXAS syndrome typically responds poorly to treatment, with high dose systemic corticosteroids (> 20mg/d) showing the most consistent benefit for the inflammatory features. Other
Shell567
Sweet's Syndrome UK
in
Sweet's Syndrome UK
2 months ago
Help me! behcet syndrome with tuberculosis
Hello, I have had Behcet's disease for 10 years, which does not respond to treatment, and after treatment with infliximab and mycophenolate mofetil, I have perianal fistula, skin abscesses, severe heartburn, cystitis, prostatitis, night sweats, inguinal lymphadenopathy, and weight loss. ... I have become
Hello, I have had Behcet's disease for 10 years, which does not respond to treatment, and after treatment with infliximab and mycophenolate mofetil, I have perianal fistula, skin abscesses, severe heartburn, cystitis, prostatitis, night sweats, inguinal lymphadenopathy, and weight loss. ... I have become
Hulusi
in
Behçet's UK
2 months ago
Does myocarditis have poor prognosis
26yo female. admitted to hospital for 4 days with elevated troponin of 360 and chest tightness. Ecg, holter monitor and echocardiogram all normal, with the exception of very small pericardial effusion. I was diagnosed with acute myopericarditis and was discharged with x2 colchicine for 2 week s,
26yo female. admitted to hospital for 4 days with elevated troponin of 360 and chest tightness. Ecg, holter monitor and echocardiogram all normal, with the exception of very small pericardial effusion. I was diagnosed with acute myopericarditis and was discharged with x2 colchicine for 2 week s,
JS1001
in
British Heart Foundation
2 months ago
Acute Pericarditis
In September I had an NSTEMI and after Angiogram was told I didn't need Stents as there was no signifacat blockage, Ejecvtion Fraction as good and had preserved left ventrical function. During my time in Hospital (a week) I felt fine and was actively encouraged to wander the corridors. First week home
In September I had an NSTEMI and after Angiogram was told I didn't need Stents as there was no signifacat blockage, Ejecvtion Fraction as good and had preserved left ventrical function. During my time in Hospital (a week) I felt fine and was actively encouraged to wander the corridors. First week home
EdtheDead
in
British Heart Foundation
2 months ago
Multaq?
Well, I am still dealing with post-procedure Pericarditis and taking Colchicine, but my Atrial Tachycardia and PACs are steadily increasing, happening during the say when they are just at night. My EP has recommended Multaq as a new one to try. The list has been long of what we have tried and failed.
Well, I am still dealing with post-procedure Pericarditis and taking Colchicine, but my Atrial Tachycardia and PACs are steadily increasing, happening during the say when they are just at night. My EP has recommended Multaq as a new one to try. The list has been long of what we have tried and failed.
MeganMN
in
AF Association
3 months ago
Anyone with behcet's taking rinvoq?
I've been on it for the last 4/5 months. 30mg daily. It's been pretty effective so far but a bit worried about the safety of it long term. I've always been a bit of worrier when it comes to these more potent immunosuppressants. Basically nothing else was controlling the flares, tried aza, colchicine,
I've been on it for the last 4/5 months. 30mg daily. It's been pretty effective so far but a bit worried about the safety of it long term. I've always been a bit of worrier when it comes to these more potent immunosuppressants. Basically nothing else was controlling the flares, tried aza, colchicine,
FrancisB
in
Behçet's UK
3 months ago
latest results & pericaridal effusion
currently on 75mcg of tirosint 6 days a week and 1 day 100mcg, also on NDT 1 1/4 grain. I do feel awful at the moment most days with extreme fatigue, hair loss, muscle weakness and spasms, pain. I have had terrible heart problems I already have PoTs but for the past year I have had pericardial
currently on 75mcg of tirosint 6 days a week and 1 day 100mcg, also on NDT 1 1/4 grain. I do feel awful at the moment most days with extreme fatigue, hair loss, muscle weakness and spasms, pain. I have had terrible heart problems I already have PoTs but for the past year I have had pericardial
Ajva
in
Thyroid UK
3 months ago
ablation
Hi I’m new to site. I had my ablation 2 weeks ago been having lots of pain and palpitations since. saw Eurythmic nurse Monday and she says I’ve got pericarditis started me on colchicine tablets as anyone else experienced this I read lots of positive outcomes but my whole experience wasnt good.
Hi I’m new to site. I had my ablation 2 weeks ago been having lots of pain and palpitations since. saw Eurythmic nurse Monday and she says I’ve got pericarditis started me on colchicine tablets as anyone else experienced this I read lots of positive outcomes but my whole experience wasnt good.
Sidney115
in
AF Association
3 months ago
vestibular Disorder
SORRY, I DO NOT KNOW HOW TO POSITION PHOTOS PROPERLY !🧐 😁hello to everyone MY QUESTIONS 1.Do you/have you experienced vertigo? 2. What treatment did your doctor advise? 3. Have you taken TEVA BETAHISTINE? 4. Do you know of a support group/community for Vestibular Disorder? MY VERTIGO
SORRY, I DO NOT KNOW HOW TO POSITION PHOTOS PROPERLY !🧐 😁hello to everyone MY QUESTIONS 1.Do you/have you experienced vertigo? 2. What treatment did your doctor advise? 3. Have you taken TEVA BETAHISTINE? 4. Do you know of a support group/community for Vestibular Disorder? MY VERTIGO
magician
in
Behçet's UK
3 months ago
Ivabradine
is there any body on here put on ivbradine to control heart rate found it pushing up there bp,I’m on colchicine also for peri at the moment,been on ivbradine since October and seeing bp going up
is there any body on here put on ivbradine to control heart rate found it pushing up there bp,I’m on colchicine also for peri at the moment,been on ivbradine since October and seeing bp going up
Golf1985
in
British Heart Foundation
3 months ago
Inflammation and Arrhythmias
So I have had Atrial Tachycardia with several unsuccessful ablation attempts. This last one caused Pericarditis and I subsequently had to take Colchicine. Oddly, since being on the Colchicine, my daily episodes of SVT have tapered off. I am super curious to see if the episodes ramp up again when I am
So I have had Atrial Tachycardia with several unsuccessful ablation attempts. This last one caused Pericarditis and I subsequently had to take Colchicine. Oddly, since being on the Colchicine, my daily episodes of SVT have tapered off. I am super curious to see if the episodes ramp up again when I am
MeganMN
in
AF Association
3 months ago
Update on severe skin lesions
Hi everyone. Just wanted to give an update with regard to the severe skin rash/lesions I experienced in November My GP diagnosed it as urticarial vasculitis but my rheumatologist thought it might be an adverse drug reaction (belated) to actemra. She stopped the infusions and had me on an increased dose
Hi everyone. Just wanted to give an update with regard to the severe skin rash/lesions I experienced in November My GP diagnosed it as urticarial vasculitis but my rheumatologist thought it might be an adverse drug reaction (belated) to actemra. She stopped the infusions and had me on an increased dose
Charkha
in
PMRGCAuk
3 months ago
Acute pericarditis following 1 high steroid dose.
hello I experienced pericarditis about 17 years ago following a cold. I had one mild relapse about 6 months later which is when I was diagnosed with pericarditis by GP . Since then nothing until now. 2 days ago I was prescribed a high dose of prednisone steroids (60mg per day) for an unrelated ear
hello I experienced pericarditis about 17 years ago following a cold. I had one mild relapse about 6 months later which is when I was diagnosed with pericarditis by GP . Since then nothing until now. 2 days ago I was prescribed a high dose of prednisone steroids (60mg per day) for an unrelated ear
bournville
in
British Heart Foundation
4 months ago
pericarditis
hello everybody after surgery in October,blood clot on the lung now I have pericarditis feels like never ending for me,another 3 days in hospital after junior doctors said it wasn’t and turned me away 2 weeks ago ,I knew it was so asked for cardio to confirmed with ecg changes and rub,just started colchicine
hello everybody after surgery in October,blood clot on the lung now I have pericarditis feels like never ending for me,another 3 days in hospital after junior doctors said it wasn’t and turned me away 2 weeks ago ,I knew it was so asked for cardio to confirmed with ecg changes and rub,just started colchicine
Golf1985
in
British Heart Foundation
4 months ago
acute pericarditis
Just had the most horrendous chest pain, to the emergency room, overnight stay. Swift, great workup, no coronary disease, no pulmonary embolism, no Aortic dissection. Pericardial effusion, CRP of 22, turns out I have Pericarditis. Not fun. No vigorous exercise for 3 months/ Colchicine, Naproxyn.
Just had the most horrendous chest pain, to the emergency room, overnight stay. Swift, great workup, no coronary disease, no pulmonary embolism, no Aortic dissection. Pericardial effusion, CRP of 22, turns out I have Pericarditis. Not fun. No vigorous exercise for 3 months/ Colchicine, Naproxyn.
Roll0verRover1
in
CLL Support
4 months ago
1
2
...
19
Next page
10
Filter results
Clear filters
Posted in
All communities
Behçet's UK
152 results
British Heart Foundation
86 results
AF Association
25 results
View top 10 communities
Sort by
Most Relevant
Newest