Experiences with

Colchicine / Probenecid

My doctor has me on Colchicine and Otezla. My symptoms have eased, but I still get the ulcers. I just assume the medicine is helping somewhat. When I got my first ulcer on my tongue, the pain was so bad. Now, it still hurts, but not nearly as bad as it did. I also have the joint pain, and recently started

I was at A & E, 3 weeks ago thinking I was having a heart attack due to chest pain. They did all the usual tests, bloods, ECG, ultra sound etc. Been diagnosed with pericarditis. And Benen prescribed colchicine for it. I’m getting all kinds of issues now such as reflux in my throat, stomach pain,

I’ve just been put on Mycophenolate 500mg once daily - increasing to 1000mg twice a day over a 4 week period. Bloods booked for every two weeks for the next 6 weeks. I’m on colchicine, triple mouthwash and prednisone- weaned down to 10mg but flaring up, so back up to 15 and 20 if needed daily.

Hi all. I went to my Liverpool appointment last week and they have now officially diagnosed with Behcets (it was incomplete/likely Behcets last time I went) and started me on azathioprine. I was just wondering how people have got on with this and if it helps at all? I know it is different for everyone

I'm 41. Never had health issues before. I don't smoke, I used to, about 7 years ago. I don't drink. Haven't drank for ten years. I have been going to the gym weekly for 12 years, doing cross fit for the last 2/3. I woke up on May the 11th this year with a sore arm and shoulder and a bruised feeling

Heart Ablation 5weeks ago still feel rubbish. Apparently have peritonitis im tired breathless. I’m in colchicine. How long does it take to recover.

Sweet’s Syndrome Unveiling a Primary Cervical Malignancy: A Case Report, Sept 2024. https://www.cureus.com/articles/294734-sweets-syndrome-unveiling-a-primary-cervical-malignancy-a-case-report#!/ Sweet's syndrome secondary to cervical cancer. 52 yr. old woman with a 5 month history of fever; fatigue

I've just taken my first tablet of colchicine after being diagnosed on Monday. Obviously I took to Google to find out other side effects, hair loss has been mentioned a few times which is a worry as I already have hair loss due to all the stress of being ill. Has anyone experienced this? What are other

I was diagnosed yesterday finally after 5 years of suffering. I've had genital ulcers for the past 9 weeks, the worst it's ever been, they start to heal, then pop up somewhere else, It's making me miserable. Any advice to help them heal faster? I am picking up my prescription for colchicine Friday and

At the end of Sept 23 I was rushed to hospital with chest pain and diagnosed with an NSTEMI with preserved LV function. After an Angiogram it was found I didn't need stents as there was no blockage. One month later, a week after my covid booster, I was rushed back to A n E with more crushing chest pain

Update from my appointment; So my consultant says he may be being over cautious regarding a diagnosis and won’t diagnose me yet as he wants to wait for Gastro to say it isn’t crohns, he wants ophthalmology to see me first (1 year wait) in the meantime I’ve showed him photos which he said confirm the

Does anyone have experience of pericarditis and very high inflammatory markers? After having a 'small heart attack' I have now developed pericarditis and am finding it almost impossible to tolerate the colchicine that they want me to take for 3 months. Any advice/thoughts?

Looking for honest opinions please- ideally from a woman who’s had a baby and experienced Myopericarditis… My husband kept saying he felt like he was having a heart attack every time he tried to calm our two week old baby. I of course explained it was just a panic attack and to breath deeply- anyway

I was diagnosed with myocarditis 6 weeks ago after blood test showed elevated troponin levels, infection and angiogram showed my arteries were clear. Had echo showing inflammation. Stayed in hospital for 5 nights and began taking colchicine, which I'm still taking. Felt well upon leaving hospital, but

So, my question is, has anyone on here been diagnosed with incomplete Behcets?! At my 2nd CoE appointment at Liverpool in July, I was! They are saying that as I don't fulfill the ISG 1990 criteria (I have 2 out of three symptoms), that they cannot diagnose me properly. However, under the ICBD criteria

Hi, I woke up last Sunday with swollen big toe and instep just below big toe. Had a phone doctors appointment and sent the doctor photos of foot. Said it was gout and prescribed 3 days of colchicine. I’ve now finished the colchicine, it’s barely improved, I still cant walk without being in agony.

Hi everyone, I have been sent a prescription by my Rheumatologist for six weeks Steroids and to start Azathioprine. I have no instructions just to get a set of bloods taken. My question is, do you keep taking the Colchiccine with the Azathioprine? Thank you

Hello, I have had Behcet's for the past 18 years and usually respond to steroids, colchicine and Otezla. Having inner ear issues, antibodies and heart problems along with my major debilitating headaches. We can't seem to get them under control and doctor wants to try Humira. Is anyone using this medication

hi guys, Well week 11 after ablation things goung well and whooooooosh! I thought I was having heart attack so painful. Left it as I really didn’t want Thonon A n E. But ended up there. 16 hours later sent him no heart attack ho see cardio. I was in terrible pain chest and my shoulder and neck, beung

Hi all, This 16 August will be 3 months of having myocarditis. Last month on July I went for medical checkup, everything okay but my troponin still the same as my first day admitted due to myocarditis. Almost 3 months, this journey like rollercoaster ride because sometimes I am having chest pain, neck