Search
Search
About
Log in
Join
Experiences with
Colchicine / Probenecid
Posts
Communities
383 public posts
Filter results
To go sick or not to go sick ...that is the question ?
Hi everybody , well here goes - I will try not to moan ... Too much :-). I'm currently under prof Moots in Liverpool at the university hospital in Aintree for treatment with Behcets , I've had to stop the Azathioprine 3 to 4 weeks ago due to getting 3 high liver function tests ( LFT ) ... So im
Hi everybody , well here goes - I will try not to moan ... Too much :-). I'm currently under prof Moots in Liverpool at the university hospital in Aintree for treatment with Behcets , I've had to stop the Azathioprine 3 to 4 weeks ago due to getting 3 high liver function tests ( LFT ) ... So im
SignalBoxer
in
Behçet's UK
12 years ago
My Story So Far
I was recently asked what my behcets story was.... and it got me thinking it could be helpful to share it with others.... hmmm. I dnt really know where to begin with this one tbh. I have had a lot of symptoms since birth, however they would come and go, prob lasting no more than two weeks, with
I was recently asked what my behcets story was.... and it got me thinking it could be helpful to share it with others.... hmmm. I dnt really know where to begin with this one tbh. I have had a lot of symptoms since birth, however they would come and go, prob lasting no more than two weeks, with
lizzykarma
in
Behçet's UK
12 years ago
Tummy problems?
My daughter is struggling with tummy problems and is going to be referred to a specialist. Her main problem is constant tummy pain, swelling, diarrhoea and lack of appetite. She currently takes mebeverine which does nothing, she also takes 2 colchicine a day which may have to be increased in Feb. Is
My daughter is struggling with tummy problems and is going to be referred to a specialist. Her main problem is constant tummy pain, swelling, diarrhoea and lack of appetite. She currently takes mebeverine which does nothing, she also takes 2 colchicine a day which may have to be increased in Feb. Is
elaineyoung15
in
Behçet's UK
12 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Azathioprine and pancreasitis
I have been on Aza for at least 6 months where it has been increased slowly upto 150mg a day. Have been getting a lot of nasty chest infections while on it but got very ill over Xmas with pancreasitis caused by Aza. Just wondered if this has happened to anyone else. Feel slightly fed up because I was
I have been on Aza for at least 6 months where it has been increased slowly upto 150mg a day. Have been getting a lot of nasty chest infections while on it but got very ill over Xmas with pancreasitis caused by Aza. Just wondered if this has happened to anyone else. Feel slightly fed up because I was
Wellington
in
Behçet's UK
12 years ago
Side affects of Azathioprine
Ive had BD on/off for about two years now and im under the Liverpool University Hospital for treatment with various symptoms ie... re -occuring mouth and genital ulcers and the aches / pains that come with it , including recently severe joint pain in fingers /knuckles /wrists and elbow joints. Im on
Ive had BD on/off for about two years now and im under the Liverpool University Hospital for treatment with various symptoms ie... re -occuring mouth and genital ulcers and the aches / pains that come with it , including recently severe joint pain in fingers /knuckles /wrists and elbow joints. Im on
SignalBoxer
in
Behçet's UK
12 years ago
Going mad with pain
Cor Blimey I really am going nuts with pain in my joints, the colchicine, dicalfenac, and co-codomaol are just not hitting it at all. I am finding it so flippin hard to function. The heated underblanket is helping a bit in the mornings and am still doing the swimming 3 times a week. Any advice? My GP
Cor Blimey I really am going nuts with pain in my joints, the colchicine, dicalfenac, and co-codomaol are just not hitting it at all. I am finding it so flippin hard to function. The heated underblanket is helping a bit in the mornings and am still doing the swimming 3 times a week. Any advice? My GP
goodlife
in
Behçet's UK
12 years ago
Any Help Appreciated AZATHIOPRINE (New Kid on The Block)
I have lurking on here reading a few posts, I have been told for the last few years that I had Behcets but didnt want to accept it and had a run of emergency eye admissions with Uveitis, always in the same eye (right eye). symptoms were mouth ulcers, extreme exhaustion, which really hacked me off as
I have lurking on here reading a few posts, I have been told for the last few years that I had Behcets but didnt want to accept it and had a run of emergency eye admissions with Uveitis, always in the same eye (right eye). symptoms were mouth ulcers, extreme exhaustion, which really hacked me off as
fleagle
in
Behçet's UK
12 years ago
Piercing Joint pain
The weather has definitely warmed up the last couple of days which is great and I have felt the benefit in my joints and dropped the colchicine back down. I can be standing still and I get a sharp piercing pain in a joint enough to make me squeal....am I going potty?
The weather has definitely warmed up the last couple of days which is great and I have felt the benefit in my joints and dropped the colchicine back down. I can be standing still and I get a sharp piercing pain in a joint enough to make me squeal....am I going potty?
goodlife
in
Behçet's UK
12 years ago
Birth Control and Behcets
I just wanted to share this with the ladies of the group. As I am newly diagnosed I have been devoting a lot of my time to reading and researching everything I can get my hands on. After reading that there is a correlation between the Pill and inflammation as well as auto-immune disorders, I stopped
I just wanted to share this with the ladies of the group. As I am newly diagnosed I have been devoting a lot of my time to reading and researching everything I can get my hands on. After reading that there is a correlation between the Pill and inflammation as well as auto-immune disorders, I stopped
Hidden
in
Behçet's UK
12 years ago
Newby
Hi. I have been very unwell for two years. After many different hospitals and doctors i have been diagnosed with Behcets. I have all the symptoms that i have read on here. I also get a very stiff painful neck, does anyone else have this also? I am under Addenbrooke hospital who seem very good. I am
Hi. I have been very unwell for two years. After many different hospitals and doctors i have been diagnosed with Behcets. I have all the symptoms that i have read on here. I also get a very stiff painful neck, does anyone else have this also? I am under Addenbrooke hospital who seem very good. I am
joannebond360
in
Behçet's UK
12 years ago
Ahh when will this thing give me a break?
I went back to the hospital last week after a bad bout of mouth ulcers. The consultant stepped up my meds by giving me a high dose injection of steroids and started me on Azathioprine along side the Colchicine I was already taking. All was ok until Sunday............... I kept breaking out in sweats
I went back to the hospital last week after a bad bout of mouth ulcers. The consultant stepped up my meds by giving me a high dose injection of steroids and started me on Azathioprine along side the Colchicine I was already taking. All was ok until Sunday............... I kept breaking out in sweats
Hidden
in
Behçet's UK
12 years ago
Snakes and ladders and cats
Hello. I haven't posted for a while so I thought I'd give you all a quick update. After changing GPs, I finally managed to get referred to rheumatology but the rheumatologist refused the referral because my blood tests showed slightly raised urate levels. Although my GP agreed with me that I didn't have
Hello. I haven't posted for a while so I thought I'd give you all a quick update. After changing GPs, I finally managed to get referred to rheumatology but the rheumatologist refused the referral because my blood tests showed slightly raised urate levels. Although my GP agreed with me that I didn't have
GreenFlower
in
NRAS
12 years ago
'Big Girl' medications
Do you have to ASK for them? I have an appointment with a new Rheumatologist this November...thus far have been treated sporadically with steroids and colchicine. I still have many issues despite current treatment. I am so tired and would love to have a med (or meds) that would give better quality
Do you have to ASK for them? I have an appointment with a new Rheumatologist this November...thus far have been treated sporadically with steroids and colchicine. I still have many issues despite current treatment. I am so tired and would love to have a med (or meds) that would give better quality
supernova
in
Behçet's UK
12 years ago
Went back to hospital yesterday
Following advice from you guys, I contacted my hospitals helpline and explained my situation of symptoms coming back in force. The nurse I spoke to e-mailed the my consultant and then the consultant arranged an appointment for me the following Tuesday(Yesterday). My appointment went really well and
Following advice from you guys, I contacted my hospitals helpline and explained my situation of symptoms coming back in force. The nurse I spoke to e-mailed the my consultant and then the consultant arranged an appointment for me the following Tuesday(Yesterday). My appointment went really well and
Hidden
in
Behçet's UK
12 years ago
really fed up !
am being seen at maidstone hospital every six months (when the app not cancelled) and they say as i cant take colchicine they wont give me anything else as i am not ill enough despite severe tiredness .genital ulcers and joint pain ! apparently its my age ime 52 not 72 ........ so its probably me
am being seen at maidstone hospital every six months (when the app not cancelled) and they say as i cant take colchicine they wont give me anything else as i am not ill enough despite severe tiredness .genital ulcers and joint pain ! apparently its my age ime 52 not 72 ........ so its probably me
chocalatedog
in
Behçet's UK
12 years ago
Numbness of the extremities
Behçet's disease of the hands and feet, numbness, using Colchicine friends, if you notice. In the long term, you should consult your doctor whether the side effect of the drug use
Behçet's disease of the hands and feet, numbness, using Colchicine friends, if you notice. In the long term, you should consult your doctor whether the side effect of the drug use
Sunset
in
Behçet's UK
12 years ago
Australian sufferer
Hi my name is Lesley, I'm very pleased to have found your group. After over 10 years of being told there is nothing wrong with me I was finally diagnosed at RPA in Sydney Australia 2 years ago. Have tried Infliximab, Colchicine, Cyclosporine.and Thalidomide. I'm not tolerating the Thalidomide
Hi my name is Lesley, I'm very pleased to have found your group. After over 10 years of being told there is nothing wrong with me I was finally diagnosed at RPA in Sydney Australia 2 years ago. Have tried Infliximab, Colchicine, Cyclosporine.and Thalidomide. I'm not tolerating the Thalidomide
lesleyg
in
Behçet's UK
12 years ago
Is it possible to be symptom free?
Hi everyone I have a rhuemy appointment tomorrow and im hoping I get some medication which will help...been hoping for past year though! Just wondering am I been naive in thinking its possible to be totally symptom free? I was given Colchicine to try at the beginning of April when I finally
Hi everyone I have a rhuemy appointment tomorrow and im hoping I get some medication which will help...been hoping for past year though! Just wondering am I been naive in thinking its possible to be totally symptom free? I was given Colchicine to try at the beginning of April when I finally
LULU85
in
Behçet's UK
12 years ago
IM NEW TO THE SIGHT and need to know,how is the type diagnosed? what treatment is best ?
I was diagnosed with Vasculitis 2 years ago after lots of tests and eventually a biopsy, I had never heard of it before so after being prescribed Prednisolone for the condition started looking into it a bit and found there are lots of different types! When I next seen my consultant (a dermatologist)
I was diagnosed with Vasculitis 2 years ago after lots of tests and eventually a biopsy, I had never heard of it before so after being prescribed Prednisolone for the condition started looking into it a bit and found there are lots of different types! When I next seen my consultant (a dermatologist)
debbie123
in
Vasculitis UK
12 years ago
Hi I'm new to this site BUT NOT the disease. I have been dealing with PBC for 10 years now.Anyone live in Sydney Australia out there?
I am just starting a new drug trial ,Colchicine and Methotrexate plus Folate to settle side effects (has anyone tried these?)This is sort of a last ditch effort as i am not responding to all other tried and tested drugs. I also take Urso. Prednisone is for a lung disease i cant shake called B.O.O.P,
I am just starting a new drug trial ,Colchicine and Methotrexate plus Folate to settle side effects (has anyone tried these?)This is sort of a last ditch effort as i am not responding to all other tried and tested drugs. I also take Urso. Prednisone is for a lung disease i cant shake called B.O.O.P,
SNOOZY
in
PBC Foundation
12 years ago
1
...
18
19
20
Next page
10
20
Filter results
Clear filters
Posted in
All communities
Behçet's UK
159 results
British Heart Foundation
90 results
Atrial Fibrillation Support
30 results
View top 10 communities
Sort by
Most Relevant
Newest