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Colchicine / Probenecid
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frustrated
Update from my appointment; So my consultant says he may be being over cautious regarding a diagnosis and won’t diagnose me yet as he wants to wait for Gastro to say it isn’t crohns, he wants ophthalmology to see me first (1 year wait) in the meantime I’ve showed him photos which he said confirm the
Update from my appointment; So my consultant says he may be being over cautious regarding a diagnosis and won’t diagnose me yet as he wants to wait for Gastro to say it isn’t crohns, he wants ophthalmology to see me first (1 year wait) in the meantime I’ve showed him photos which he said confirm the
Welsh92
in
Behçet's UK
10 days ago
Pericarditis and high inflammatory markers
Does anyone have experience of pericarditis and very high inflammatory markers? After having a 'small heart attack' I have now developed pericarditis and am finding it almost impossible to tolerate the colchicine that they want me to take for 3 months. Any advice/thoughts?
Does anyone have experience of pericarditis and very high inflammatory markers? After having a 'small heart attack' I have now developed pericarditis and am finding it almost impossible to tolerate the colchicine that they want me to take for 3 months. Any advice/thoughts?
Odosmum
in
PMRGCAuk
12 days ago
Myopericarditis with a two week old baby & 18 month old
Looking for honest opinions please- ideally from a woman who’s had a baby and experienced Myopericarditis… My husband kept saying he felt like he was having a heart attack every time he tried to calm our two week old baby. I of course explained it was just a panic attack and to breath deeply- anyway
Looking for honest opinions please- ideally from a woman who’s had a baby and experienced Myopericarditis… My husband kept saying he felt like he was having a heart attack every time he tried to calm our two week old baby. I of course explained it was just a panic attack and to breath deeply- anyway
StillTrying1000
in
British Heart Foundation
17 days ago
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Cardiomyopathy after myocarditis?
I was diagnosed with myocarditis 6 weeks ago after blood test showed elevated troponin levels, infection and angiogram showed my arteries were clear. Had echo showing inflammation. Stayed in hospital for 5 nights and began taking colchicine, which I'm still taking. Felt well upon leaving hospital, but
I was diagnosed with myocarditis 6 weeks ago after blood test showed elevated troponin levels, infection and angiogram showed my arteries were clear. Had echo showing inflammation. Stayed in hospital for 5 nights and began taking colchicine, which I'm still taking. Felt well upon leaving hospital, but
Myoanx
in
British Heart Foundation
18 days ago
Incomplete Behcets?!
So, my question is, has anyone on here been diagnosed with incomplete Behcets?! At my 2nd CoE appointment at Liverpool in July, I was! They are saying that as I don't fulfill the ISG 1990 criteria (I have 2 out of three symptoms), that they cannot diagnose me properly. However, under the ICBD criteria
So, my question is, has anyone on here been diagnosed with incomplete Behcets?! At my 2nd CoE appointment at Liverpool in July, I was! They are saying that as I don't fulfill the ISG 1990 criteria (I have 2 out of three symptoms), that they cannot diagnose me properly. However, under the ICBD criteria
TigerLily42
in
Behçet's UK
23 days ago
gout and colchicine
Hi, I woke up last Sunday with swollen big toe and instep just below big toe. Had a phone doctors appointment and sent the doctor photos of foot. Said it was gout and prescribed 3 days of colchicine. I’ve now finished the colchicine, it’s barely improved, I still cant walk without being in agony.
Hi, I woke up last Sunday with swollen big toe and instep just below big toe. Had a phone doctors appointment and sent the doctor photos of foot. Said it was gout and prescribed 3 days of colchicine. I’ve now finished the colchicine, it’s barely improved, I still cant walk without being in agony.
Muswellblu
in
My Ovacome
27 days ago
colchicine with DMARDS?
Hi everyone, I have been sent a prescription by my Rheumatologist for six weeks Steroids and to start Azathioprine. I have no instructions just to get a set of bloods taken. My question is, do you keep taking the Colchiccine with the Azathioprine? Thank you
Hi everyone, I have been sent a prescription by my Rheumatologist for six weeks Steroids and to start Azathioprine. I have no instructions just to get a set of bloods taken. My question is, do you keep taking the Colchiccine with the Azathioprine? Thank you
CecilyParsley
in
Behçet's UK
1 month ago
medication question
Hello, I have had Behcet's for the past 18 years and usually respond to steroids, colchicine and Otezla. Having inner ear issues, antibodies and heart problems along with my major debilitating headaches. We can't seem to get them under control and doctor wants to try Humira. Is anyone using this medication
Hello, I have had Behcet's for the past 18 years and usually respond to steroids, colchicine and Otezla. Having inner ear issues, antibodies and heart problems along with my major debilitating headaches. We can't seem to get them under control and doctor wants to try Humira. Is anyone using this medication
FLFarm
in
Behçet's UK
1 month ago
pericarditis
hi guys, Well week 11 after ablation things goung well and whooooooosh! I thought I was having heart attack so painful. Left it as I really didn’t want Thonon A n E. But ended up there. 16 hours later sent him no heart attack ho see cardio. I was in terrible pain chest and my shoulder and neck, beung
hi guys, Well week 11 after ablation things goung well and whooooooosh! I thought I was having heart attack so painful. Left it as I really didn’t want Thonon A n E. But ended up there. 16 hours later sent him no heart attack ho see cardio. I was in terrible pain chest and my shoulder and neck, beung
Morzine
in
Atrial Fibrillation Support
2 months ago
Sharing update my myocarditis
Hi all, This 16 August will be 3 months of having myocarditis. Last month on July I went for medical checkup, everything okay but my troponin still the same as my first day admitted due to myocarditis. Almost 3 months, this journey like rollercoaster ride because sometimes I am having chest pain, neck
Hi all, This 16 August will be 3 months of having myocarditis. Last month on July I went for medical checkup, everything okay but my troponin still the same as my first day admitted due to myocarditis. Almost 3 months, this journey like rollercoaster ride because sometimes I am having chest pain, neck
Khal1
in
British Heart Foundation
2 months ago
Skin Cancer, Azathioprine and Colchicine
Hi All I rather recently had my official DX of BD and they have recommended a reverse taper of Azathioprine starting low and increasing dramatically to dampen symptoms alongside Colchicine to aid with muscular issues. All that sounded well aside from the obvious immunosuppressant questions I had as
Hi All I rather recently had my official DX of BD and they have recommended a reverse taper of Azathioprine starting low and increasing dramatically to dampen symptoms alongside Colchicine to aid with muscular issues. All that sounded well aside from the obvious immunosuppressant questions I had as
CrochetGiraffe
in
Behçet's UK
2 months ago
Natural Medicine and the Heart
I am not going to get too excited about anything at this point, but after my last mess with drug induced vascilitis, I met with my Integrative Medicine doc on Monday. I have made a few changes and added some supplements and the short term results are a little bit crazy. She had me add some major antiinflammatories
I am not going to get too excited about anything at this point, but after my last mess with drug induced vascilitis, I met with my Integrative Medicine doc on Monday. I have made a few changes and added some supplements and the short term results are a little bit crazy. She had me add some major antiinflammatories
MeganMN
in
Atrial Fibrillation Support
2 months ago
Be your own case manager
I was diagnosed with Behcets in 2018 followed by breast cancer in 2022. (Interesting to note inflammation in biopsy even for that). It was all fairly well controlled but I was not thriving as such and Nov 23 showed a new symptom - eye inflammation. Basically I read about a study in Birmingham where a
I was diagnosed with Behcets in 2018 followed by breast cancer in 2022. (Interesting to note inflammation in biopsy even for that). It was all fairly well controlled but I was not thriving as such and Nov 23 showed a new symptom - eye inflammation. Basically I read about a study in Birmingham where a
SCMW
in
Behçet's UK
3 months ago
Afraid to start Colchicine and Azathioprine for Behcet's
My son has just been diagnosed with Behcet's and prescribed colchicine and azathioprine. He is afraid to start taking them, fearing that the side effects will make him miss work (he is a roadside mechanic for the AA working 12 hour shifts and 58 hour weeks). He has already been off ill 6 weeks this year
My son has just been diagnosed with Behcet's and prescribed colchicine and azathioprine. He is afraid to start taking them, fearing that the side effects will make him miss work (he is a roadside mechanic for the AA working 12 hour shifts and 58 hour weeks). He has already been off ill 6 weeks this year
Ryokan
in
Behçet's UK
3 months ago
Opinions please
Hi all, Hope you're all as well as can be 💕 I'm back again, if you've seen my previous posts you'll know this last month or so have been really difficult. In the end I had to go to a and e because the pain was so severe in my hips, back and legs and no one could help aside from rheumatology and there
Hi all, Hope you're all as well as can be 💕 I'm back again, if you've seen my previous posts you'll know this last month or so have been really difficult. In the end I had to go to a and e because the pain was so severe in my hips, back and legs and no one could help aside from rheumatology and there
Haylz2109
in
LUPUS UK
3 months ago
swelling around eyes/eyelids
has anyone experienced redness, swelling, burning and itching of the eyelids. This is a new symptom I have been experiencing since March and had a small flare last year. My eyelids are very red swollen and generally driving me crazy. I feel like I have burns from it. My actual eyes are completely
has anyone experienced redness, swelling, burning and itching of the eyelids. This is a new symptom I have been experiencing since March and had a small flare last year. My eyelids are very red swollen and generally driving me crazy. I feel like I have burns from it. My actual eyes are completely
Lmurri23
in
Behçet's UK
3 months ago
That was the week that was +5th ablation
The week started last Wed with me flipping into fast AF and needing yet another DCCV( no 28) just 4 days before my rescheduled ablation. I arrived at Sussex Cardiac Centre at 7.30am yesterday for the morning slot for Endo- Epicardial ablation . This involved going in through both groins ( endocardial
The week started last Wed with me flipping into fast AF and needing yet another DCCV( no 28) just 4 days before my rescheduled ablation. I arrived at Sussex Cardiac Centre at 7.30am yesterday for the morning slot for Endo- Epicardial ablation . This involved going in through both groins ( endocardial
Jalia
in
Atrial Fibrillation Support
4 months ago
Taken too much by mistake
This morning, I grabbed what I thought was colchicine for gout and took 3....then returned to look at container and it was my metoprolol! Called the poison hot line after trying to bring them back up (along with my other morning meds) and was suggested to contact my doctor or got to ER for monitoring
This morning, I grabbed what I thought was colchicine for gout and took 3....then returned to look at container and it was my metoprolol! Called the poison hot line after trying to bring them back up (along with my other morning meds) and was suggested to contact my doctor or got to ER for monitoring
lwm1198
in
Atrial Fibrillation Support
4 months ago
Cervical ulcers and joint pain- any advice?
Hello, I am currently undiagnosed with Behcets disease and under the care of the Liverpool CoE. I have my next appointment on 3rd July, so not too much longer to wait and see if I have any answers! In the mean time, I was just wondering if many of you suffer with cervical ulcers as part of your symptoms
Hello, I am currently undiagnosed with Behcets disease and under the care of the Liverpool CoE. I have my next appointment on 3rd July, so not too much longer to wait and see if I have any answers! In the mean time, I was just wondering if many of you suffer with cervical ulcers as part of your symptoms
TigerLily42
in
Behçet's UK
4 months ago
pericarditis
Hi everyone, I'm just looking for a little bit of advice from any fellow sufferers... I was diagnosed with pericarditis in January on the 10th day of a Covid-19 infection, after ending up in A&E due to chest pain and difficulty breathing. That acute pericarditis went away around a month later, but
Hi everyone, I'm just looking for a little bit of advice from any fellow sufferers... I was diagnosed with pericarditis in January on the 10th day of a Covid-19 infection, after ending up in A&E due to chest pain and difficulty breathing. That acute pericarditis went away around a month later, but
HawthornHeart
in
British Heart Foundation
4 months ago
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