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Ibrutinib and Hepatitis B
Hello, my 72yo dad was recently diagnosed and he’s supposed to start treatment with Ibrutinib today. He had HepB as a child and I know that is a major red flag. The doctor is not very transparent about the risks and we’re freaking out. Does anyone have experience and suggestions with this? Also what
Hello, my 72yo dad was recently diagnosed and he’s supposed to start treatment with Ibrutinib today. He had HepB as a child and I know that is a major red flag. The doctor is not very transparent about the risks and we’re freaking out. Does anyone have experience and suggestions with this? Also what
Dianaaaaaaaa
in
CLL Support
11 months ago
A coarse liver?
I had an ultrasound liver scan - as my liver was damaged by taking azaphoprine that treated my ulcerative colitis. After liver biopsy They had diagnosed liver cirrhosis 4 months ago, but now ‘a coarse liver in keeping with chronic liver disease’ What does this mean? Do I still have liver cirrhosis
I had an ultrasound liver scan - as my liver was damaged by taking azaphoprine that treated my ulcerative colitis. After liver biopsy They had diagnosed liver cirrhosis 4 months ago, but now ‘a coarse liver in keeping with chronic liver disease’ What does this mean? Do I still have liver cirrhosis
Bucket13
in
British Liver Trust
11 months ago
Advice for treatment of liver metastases.
Hi Ladies I finished chemo in February for second recurrence. Unfortunately my CA125 was rising, was 9 the 27 now 55 and it's a good indicator for me that something is happening. Had a CT and it shows one tumor 2.4cms in my liver. All clear otherwise. Lots of emotions. Disappointed but relieved it's
Hi Ladies I finished chemo in February for second recurrence. Unfortunately my CA125 was rising, was 9 the 27 now 55 and it's a good indicator for me that something is happening. Had a CT and it shows one tumor 2.4cms in my liver. All clear otherwise. Lots of emotions. Disappointed but relieved it's
Seedlings
in
My Ovacome
11 months ago
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Quick question re swelling and spirolactone
hi All Hope you all had a good Xmas and new year I see from some posts Santa gave some people a liver so hope your recovering well. Quick question really, I’ve tried coming off Spirolactone a number of times as instructed by my consultant, but every time I do my tummy and ankles start blowing up, so
hi All Hope you all had a good Xmas and new year I see from some posts Santa gave some people a liver so hope your recovering well. Quick question really, I’ve tried coming off Spirolactone a number of times as instructed by my consultant, but every time I do my tummy and ankles start blowing up, so
Harriet-sarah
in
British Liver Trust
5 months ago
Pergoveries success stories please
I start my 3rd cycle now. And im in 2nd stage taking Pergoveries.I start the injection uesterday and got a slight spotting this morning. Hope everything is ok. I have ginapeptyl and pergoveries. J also take vitamins Prenatal and Vitamin D with Calcium. And I add some fish oil, i dont know if its ok,
I start my 3rd cycle now. And im in 2nd stage taking Pergoveries.I start the injection uesterday and got a slight spotting this morning. Hope everything is ok. I have ginapeptyl and pergoveries. J also take vitamins Prenatal and Vitamin D with Calcium. And I add some fish oil, i dont know if its ok,
PrayingforMyBaby
in
Fertility Network UK
1 year ago
On taking Fish Oils Supplements is good or bad?
A regular question on this forum - Taking Fish Oil supplements? I’ve always been interested in this one and prior to taking anticoagulants, I thought they were a good thing for heart health but now I wouldn’t waste my money. (reminder that fish oil supplement enhance the affect of anticoagulants so
A regular question on this forum - Taking Fish Oil supplements? I’ve always been interested in this one and prior to taking anticoagulants, I thought they were a good thing for heart health but now I wouldn’t waste my money. (reminder that fish oil supplement enhance the affect of anticoagulants so
CDreamer
in
AF Association
1 year ago
Involvement Opportunity for those diagnosed with Alcohol Related Liver Disease (ARLD) and fibrosis (UK)
Opportunity for those diagnosed with Alcohol Related Liver Disease and fibrosis to take part in the Boehringer Ingelheim 1366-0021 clinical research study
We know that healthy changes can be extremely difficult to make and maintain even when determined. Liver damage caused by alcohol can lead
Opportunity for those diagnosed with Alcohol Related Liver Disease and fibrosis to take part in the Boehringer Ingelheim 1366-0021 clinical research study
We know that healthy changes can be extremely difficult to make and maintain even when determined. Liver damage caused by alcohol can lead
BritishLiverTrust1
Partner
in
British Liver Trust
11 months ago
FibroScan - how many probe flicks for an accurate reading?
Hello, my lovely friends! I’ve been around here for over a year, but have not posted much - just observing other posts to find answers to my questions… First of all, thank you all for contributing to this forum, your help is much appreciated. My storey in short. I am 43, been misusing alcohol for
Hello, my lovely friends! I’ve been around here for over a year, but have not posted much - just observing other posts to find answers to my questions… First of all, thank you all for contributing to this forum, your help is much appreciated. My storey in short. I am 43, been misusing alcohol for
serhiy19k
in
British Liver Trust
11 months ago
Biopsies and confusion
Here is my wifes Biopsys from Nov of 2020 STEATOHEPATITIS (SEE COMMENT), 'There are 9 portal tracts represented. A trichrome stain shows extensive pericellular fibrosis and bridging fibrosis. A PAS with diastase is negative for alpha-1-antitiypsin inclusions. A reticulin stain shows a maintained architecture
Here is my wifes Biopsys from Nov of 2020 STEATOHEPATITIS (SEE COMMENT), 'There are 9 portal tracts represented. A trichrome stain shows extensive pericellular fibrosis and bridging fibrosis. A PAS with diastase is negative for alpha-1-antitiypsin inclusions. A reticulin stain shows a maintained architecture
ceward204
in
British Liver Trust
5 months ago
Dad has stage 4 cirrhosis
Hi everyone, I have recently found out my dad has stage 4 liver cirrhosis. He isn't eligle for a liver transplant the doctors said he wouldn't be a candidate ( I think this may be because he has COPD) . I'm just so heart broken and so is my Dad. I'm trying to understand what this means for him though.Can
Hi everyone, I have recently found out my dad has stage 4 liver cirrhosis. He isn't eligle for a liver transplant the doctors said he wouldn't be a candidate ( I think this may be because he has COPD) . I'm just so heart broken and so is my Dad. I'm trying to understand what this means for him though.Can
Lplplp14
in
British Liver Trust
11 months ago
More about Dexascan / AA / Adcal
I also take a
Cod
Liver
Oil
capsule for vitamins A & D which the Doc knows about. The Oil capsule bottle warns against exceeding the daily dose - but AD-Cal would seem to do just that? ) Opinions valued - as ever!
I also take a
Cod
Liver
Oil
capsule for vitamins A & D which the Doc knows about. The Oil capsule bottle warns against exceeding the daily dose - but AD-Cal would seem to do just that? ) Opinions valued - as ever!
Hopingsail
in
PMRGCAuk
2 years ago
Christmas/Holiday Anxiety
*Update* Yesterday, I took a friend with me and went for a test drive to see how it affected me. I drove 2 hours, into an especially beautiful part of the country, had a lovely lunch, and drove home again - in total, about 7 hours out and about. Many stops for photo's, brief walks and looking at interesting
*Update* Yesterday, I took a friend with me and went for a test drive to see how it affected me. I drove 2 hours, into an especially beautiful part of the country, had a lovely lunch, and drove home again - in total, about 7 hours out and about. Many stops for photo's, brief walks and looking at interesting
JoysFollyNZ
in
PMRGCAuk
6 months ago
Any alcohol?
hi all I’ve been diagnosed with NAFLD. I had a fibroscan which showed a reading of 20 so possible borderline cirrhosis. However my gastro consultant said he didnt feel this was entirely accurate and it’s maybe not progressed that far yet, please god. My question is, and I think I know the answer
hi all I’ve been diagnosed with NAFLD. I had a fibroscan which showed a reading of 20 so possible borderline cirrhosis. However my gastro consultant said he didnt feel this was entirely accurate and it’s maybe not progressed that far yet, please god. My question is, and I think I know the answer
Honeysuckle123
in
British Liver Trust
11 months ago
Cirrhosis and elevated reticulocytes
Hi, has anyone with Cirrhosis had a blood test showing a high reticulocyte count ?
Hi, has anyone with Cirrhosis had a blood test showing a high reticulocyte count ?
Cat1218
in
British Liver Trust
11 months ago
Liver transplant advice - missing IVC vein.
Hello everyone! It has been some time since I last visited this forum, but I wanted to reach out for some advice. Any reply no matter how small would appreciated. My wife has been experiencing liver pain for almost 8 years. About a year ago, she underwent a fibro scan, which showed a reading of
Hello everyone! It has been some time since I last visited this forum, but I wanted to reach out for some advice. Any reply no matter how small would appreciated. My wife has been experiencing liver pain for almost 8 years. About a year ago, she underwent a fibro scan, which showed a reading of
RAAN88
in
British Liver Trust
11 months ago
Defenestration or detouring of cysts in PLD
Recently went to King’s London for possible liver transplant tests due to a large polycystic liver and they feel it is the wrong time. That enough good parts of my liver remain. However it is very large and they are considering draining the cysts. Anyone out there had similar experience ? Jo
Recently went to King’s London for possible liver transplant tests due to a large polycystic liver and they feel it is the wrong time. That enough good parts of my liver remain. However it is very large and they are considering draining the cysts. Anyone out there had similar experience ? Jo
PostivelyJo
in
British Liver Trust
11 months ago
Liver Transplant Kings College
Hi This is my first post here so I’m a bit nervous…I was just wondering if anyone had encountered any problems with the transplant assessment process at Kings College Hospital in London or problems with the care they received while there. I have had huge issues and oversights with them and I was
Hi This is my first post here so I’m a bit nervous…I was just wondering if anyone had encountered any problems with the transplant assessment process at Kings College Hospital in London or problems with the care they received while there. I have had huge issues and oversights with them and I was
Missrogerson1
in
British Liver Trust
11 months ago
LFT with High Billi
I mentioned before my wife passed away in Jan 2023 due to renal failure. The One Doctor continues to argue she had decompensated cirrhosis. Her last LFTs were really good, actually beyond AST that bounced around when she got sepsis. They remained within a few points of the levels below. Her INR fluctuated
I mentioned before my wife passed away in Jan 2023 due to renal failure. The One Doctor continues to argue she had decompensated cirrhosis. Her last LFTs were really good, actually beyond AST that bounced around when she got sepsis. They remained within a few points of the levels below. Her INR fluctuated
ceward204
in
British Liver Trust
11 months ago
Found this interesting about CBD, helps sleep, pain and even hair loss!
https://foodrevolution.org/blog/is-cbd-good-for-you/?utm_source=sfmc&utm_medium=email&utm_campaign=blo-2023&utm_content=cbd-article&j=251551&sfmc_sub=64995145&l=137_HTML&u=3744229&mid=514008241&jb=121 I think I may try it every night for a bit. Anyone already doing that?
https://foodrevolution.org/blog/is-cbd-good-for-you/?utm_source=sfmc&utm_medium=email&utm_campaign=blo-2023&utm_content=cbd-article&j=251551&sfmc_sub=64995145&l=137_HTML&u=3744229&mid=514008241&jb=121 I think I may try it every night for a bit. Anyone already doing that?
gomelgo
in
Cure Parkinson's
6 months ago
2nd Ablation woes
Hi I had a second ablation 2 weeks ago today. Everything went well and I felt happy and optimistic. Then a few days ago I went back into Af with an erractic heartbeat that is still continuing. Spoke to Arrythmia nurse and she advised this is quite common and I might need a cardioversion in 6 weeks after
Hi I had a second ablation 2 weeks ago today. Everything went well and I felt happy and optimistic. Then a few days ago I went back into Af with an erractic heartbeat that is still continuing. Spoke to Arrythmia nurse and she advised this is quite common and I might need a cardioversion in 6 weeks after
Twizzle1962
in
Atrial Fibrillation Support
13 hours ago
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