Does anyone know: Most know my Story... - British Liver Trust

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Does anyone know

Wolivere profile image
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Most know my Story about my wife, how she went from a Fatty liver diagnosis in Oct of 2020 to dead from Renal Failure in Jan of 2023.

One thing, that is still being argued. And drives me nuts since the Biopsies showed NASH F1. She did have a compression of her IVC and Portal. Which cleared on its own in the same month.

Dopplers of Her liver done in Sept of 2021 and November of 2022 showed her Portal Vein as being normal with Peak flows of 21-56 cm/s which is perfectly normal.

GI scans showed no Varicies. But a friable mucosal lining.

On one scan the says Friable Gastral Mucoscal lining due to Portal Hypertension. But the portal test showed a normal Portal Vein with normal Portal pressure.

Is anyone aware of what else can cause a Friable Mucosal Lining. I have been googling around with out much luck. She did have bad acid one was from her Sliding Hital Hernia, but she also had bile reflux? Could that be the cause of the friable mucosal lining in the absense of portal hypertension?

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Wolivere
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redpoint72 profile image
redpoint72

Hello fella....Not sure i can answer your questions...

But I have portal hypertensive gastropathy....

At my last endoscopy, report stated,my stomach lining was friable......

Classed as Watermelon stomach....

That caused a big bleed 2 years ago...

This is all linked to cirrhosis....

I'm on highish dose of lansoprazole, to cut down on stomach acid.

I do have varices, and some large one's were banded, and also portal hypertension, and on a beta blocker to help with that.

Sorry if that's no help.

My best.

Chris

Hi,I am so sorry for your loss.

I do not know the answer to your question.

You sound in pain and shock which I would be too if I lost my spouse that quickly.

I can totally understand your need to find answers. I'm sure you must be somewhat angry at potential things being missed.

I wanted to reach out to you and say, I get it. Please make sure you take care of yourself and allow yourself to grieve. All the answers in the world won't bring her back to you. I'm sure she'd want you to be minding yourself. I would if you were my husband.

Was there a post-mortem? Can you request a review/inquest?

Sending sincere thoughts.

T

redpoint72 profile image
redpoint72

Hi blue.The only discomfort I've had in my esophagus, has been for 2-3 days after banding has been done,otherwise nothing.

Chris.

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