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I need to apologize to so many of our newer members. Beginning in this role February 1st, I am still learning. I just found out, being new as the facilitator of this amazing group, how to find the names of the 'new' members..... let me introduce myself to all of you. Hi - and welcome! My name is
I need to apologize to so many of our newer members. Beginning in this role February 1st, I am still learning. I just found out, being new as the facilitator of this amazing group, how to find the names of the 'new' members..... let me introduce myself to all of you. Hi - and welcome! My name is
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
Struggle after transplant
Hi all,My partner had a liver transplant on 25/02/2024. The surgery was a bit more complex from an anurysm but went well. Unfortunately he was taken back into surgery less than 24 hours later due to a leaking artery which was thankfully treated. He was out of ITU two days later. Four days later he experienced
Hi all,My partner had a liver transplant on 25/02/2024. The surgery was a bit more complex from an anurysm but went well. Unfortunately he was taken back into surgery less than 24 hours later due to a leaking artery which was thankfully treated. He was out of ITU two days later. Four days later he experienced
Gemmax
in
British Liver Trust
6 months ago
A medical professionals responsibility
Last year before Christmas I had a routine blood test that showed a reduced platelet count. Went from 160 18 months ago to 139. I had been going though a period of very heavy drinking (day and night) in the two months prior to the test. I went to see the Doctor as he called and asked me to come in that
Last year before Christmas I had a routine blood test that showed a reduced platelet count. Went from 160 18 months ago to 139. I had been going though a period of very heavy drinking (day and night) in the two months prior to the test. I went to see the Doctor as he called and asked me to come in that
PeterSmith1998
in
British Liver Trust
6 months ago
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MELD and UKELD score
Hello everyone, I have Autoimmune hepatitis and have progressed to cirrhosis. I have a MELD score of 23 but i’m not sure how to get my UKELD score. I googled a calculator for UKELD score but it took me to a MELD calculator. My hepatologist is seeing me in 3 minths and I just want to find out where I
Hello everyone, I have Autoimmune hepatitis and have progressed to cirrhosis. I have a MELD score of 23 but i’m not sure how to get my UKELD score. I googled a calculator for UKELD score but it took me to a MELD calculator. My hepatologist is seeing me in 3 minths and I just want to find out where I
Trish02
in
British Liver Trust
6 months ago
The whites of your eyes?
Sorry to bother but these last several days the whites of my eyes are grayish and bloodshot when I wake. Not yellow though. They get better as the day goes on but its curious to me and slightly worrisome. Will be weeks before I can see my liver dr. Has anyone else had this? Is it a common side effect
Sorry to bother but these last several days the whites of my eyes are grayish and bloodshot when I wake. Not yellow though. They get better as the day goes on but its curious to me and slightly worrisome. Will be weeks before I can see my liver dr. Has anyone else had this? Is it a common side effect
CuriousFish
in
British Liver Trust
6 months ago
confused?
Just want to say that although I am confused I am also thankful with the results I received following an US. Making this short I have been diagnosed with Cryptogenic cirrhosis following abnormal bloods and Fibroscan. As per NICE guidelines I have bloods taken every 6 months and US. I have also had
Just want to say that although I am confused I am also thankful with the results I received following an US. Making this short I have been diagnosed with Cryptogenic cirrhosis following abnormal bloods and Fibroscan. As per NICE guidelines I have bloods taken every 6 months and US. I have also had
0range5520
in
British Liver Trust
6 months ago
High Cholesterol and Hyperthyroidism
I have been diagnosed with high cholesterol 7.04 with my LDL being 5.2 My HDL and Triglyercerides are within range. My diet is very good except I eat good quality dairy and some red meat. I also exercise daily. I take Berberine and a fish oil daily. Diet only contributes about 10% of cholesterol
I have been diagnosed with high cholesterol 7.04 with my LDL being 5.2 My HDL and Triglyercerides are within range. My diet is very good except I eat good quality dairy and some red meat. I also exercise daily. I take Berberine and a fish oil daily. Diet only contributes about 10% of cholesterol
TennisUK
in
Thyroid UK
9 months ago
Bang for your buck
Supplements, medication, procedures Can someone tell me what supplements should be used with Parkinsons Among the various therapies that have shown at least some effect in the animal and/or human model are Carbadopa/Levadopa Actylcholine Actigal/Ursolic acid Adderil (amphetamine) Alcohol Alpha
Supplements, medication, procedures Can someone tell me what supplements should be used with Parkinsons Among the various therapies that have shown at least some effect in the animal and/or human model are Carbadopa/Levadopa Actylcholine Actigal/Ursolic acid Adderil (amphetamine) Alcohol Alpha
heartinmotion
in
Cure Parkinson's
4 months ago
AST/ALT Ratio
I've just joined as I've been worrying myself sick with online data regarding AST/ALT ratio. My liver function test results came back within range but when I use the ratio calculator it says I have liver cerrhosis or chronic hepatitis. Thanks for any help.
I've just joined as I've been worrying myself sick with online data regarding AST/ALT ratio. My liver function test results came back within range but when I use the ratio calculator it says I have liver cerrhosis or chronic hepatitis. Thanks for any help.
Mack89
in
British Liver Trust
6 months ago
Child Pugh A5 UKELD 46
hi I received ultrasound results although not sure what they mean and no follow up arranged. . Can anyone advise? Cirrhosis - cryptogenic/Azathioprine-induced Ultrasound shows features in keeping with stable cirrhosis; with a splenomegaly (15cm), but no focal lesions and no ascites. Your most recent
hi I received ultrasound results although not sure what they mean and no follow up arranged. . Can anyone advise? Cirrhosis - cryptogenic/Azathioprine-induced Ultrasound shows features in keeping with stable cirrhosis; with a splenomegaly (15cm), but no focal lesions and no ascites. Your most recent
Bucket13
in
British Liver Trust
6 months ago
Decompensated liver
good morning everyone.looking for information on what to expect.my brother has been diagnosed with Decompensated liver disease after many years of heavy drinking, he’s now a severe alcoholic, He was admitted into hospital 6 weeks ago with all the symptoms of liver disease, he was kept in for Five weeks
good morning everyone.looking for information on what to expect.my brother has been diagnosed with Decompensated liver disease after many years of heavy drinking, he’s now a severe alcoholic, He was admitted into hospital 6 weeks ago with all the symptoms of liver disease, he was kept in for Five weeks
tomgill
in
British Liver Trust
6 months ago
A Celebration of Life
Good morning or afternoon! I've mentioned in some other posts that almost 19 years ago I had a liver transplant. I have done well and feel these 19 years added to my life are such a gift. Shortly after I retired from nursing I began volunteering my time at MidAmerica Transplant. This is a local (St
Good morning or afternoon! I've mentioned in some other posts that almost 19 years ago I had a liver transplant. I have done well and feel these 19 years added to my life are such a gift. Shortly after I retired from nursing I began volunteering my time at MidAmerica Transplant. This is a local (St
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
Effects of medications
I was diagnosed with PD about a year ago. I am of course interested in anything that is neuroprotective. I was told that only exercise is so I do that. Some believe that nicotine is so I have been on nicotine gum for several months. So far I have not noticed progression. My primary symptom is weakness
I was diagnosed with PD about a year ago. I am of course interested in anything that is neuroprotective. I was told that only exercise is so I do that. Some believe that nicotine is so I have been on nicotine gum for several months. So far I have not noticed progression. My primary symptom is weakness
lovelabretrievers
in
Cure Parkinson's
6 months ago
NMN supplement help cirrhosis?
Hi, I have been diagnosed with decompensated cirrhosis in June 23, now in a compensated state with bloods improving every time. I have been abstinent since diagnosis. I do a lot of physical exercise and have been told it’s safe for me to take whey protein. I am very conscious of what I take and have
Hi, I have been diagnosed with decompensated cirrhosis in June 23, now in a compensated state with bloods improving every time. I have been abstinent since diagnosis. I do a lot of physical exercise and have been told it’s safe for me to take whey protein. I am very conscious of what I take and have
DaveQ67
in
British Liver Trust
6 months ago
Reintroduce myself for new members
Hello everyone! Let me introduce myself. My name is Donna Boll. I have been given the wonderful opportunity from The PBC Foundation to facilitate your online support group, Health Unlocked. For the last 6 years I have facilitated an amazing online PBC support group for The American Liver Foundation
Hello everyone! Let me introduce myself. My name is Donna Boll. I have been given the wonderful opportunity from The PBC Foundation to facilitate your online support group, Health Unlocked. For the last 6 years I have facilitated an amazing online PBC support group for The American Liver Foundation
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
Hope for the future
New research into autoimmune liver condition suggests unique cell movements may be driving disease A Birmingham study reveals a novel cellular phenomenon could be responsible for the onset of primary biliary cholangitis (PBC). Research suggests that a recent understanding of cell movements may
New research into autoimmune liver condition suggests unique cell movements may be driving disease A Birmingham study reveals a novel cellular phenomenon could be responsible for the onset of primary biliary cholangitis (PBC). Research suggests that a recent understanding of cell movements may
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
all aspects of liver research
In the article that was posted below, I know this is not something many of us want to face at anytime in our PBC journey. This is, however, a reality for some of us who did progress to this point in our disease. I have to find some real hope that researchers are working on all aspects of PBC. There are
In the article that was posted below, I know this is not something many of us want to face at anytime in our PBC journey. This is, however, a reality for some of us who did progress to this point in our disease. I have to find some real hope that researchers are working on all aspects of PBC. There are
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
Travel
My husband has decompensated alcohol related liver disease with ascites, abstinent for 7 months. We would like to get to Germany to see his family for a month in our motorhome and wondered if a) anyone has travelled abroad with this condition and b) if anyone has experience of the insurance companies
My husband has decompensated alcohol related liver disease with ascites, abstinent for 7 months. We would like to get to Germany to see his family for a month in our motorhome and wondered if a) anyone has travelled abroad with this condition and b) if anyone has experience of the insurance companies
Breakfastbabe
in
British Liver Trust
6 months ago
Imuran Side Effects
Taking Imuran for about 5 weeks, started been experiencing many of the initial symptoms I felt before diagnosis at about 2 weeks. At first thought treatment not working, but labs still heading towards normal range. Still titrating down on prednisone . Skipped Imuran a couple days and the nausea, fever
Taking Imuran for about 5 weeks, started been experiencing many of the initial symptoms I felt before diagnosis at about 2 weeks. At first thought treatment not working, but labs still heading towards normal range. Still titrating down on prednisone . Skipped Imuran a couple days and the nausea, fever
AIGal73
in
British Liver Trust
6 months ago
Please check!
Earlier today I posted the link to the PBC Foundaton's Urso calculator. There are so many posts and questions relating to Urso that I thought it was important for everyone to make sure they are on the right dose. This 'calculator' is also available on the PBC app. Knowing you are taking the right dose
Earlier today I posted the link to the PBC Foundaton's Urso calculator. There are so many posts and questions relating to Urso that I thought it was important for everyone to make sure they are on the right dose. This 'calculator' is also available on the PBC app. Knowing you are taking the right dose
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
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