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HU & breathlessness
I’ve been on HU for 7!years and I noticed after about 9 months I was getting very slightly breathless. However, 7 years down the line I am extremely breathless . Walking from room to room I am slightly breathing heavy. Going upstairs I am very breathless and also just plain walking I get breathless.
I’ve been on HU for 7!years and I noticed after about 9 months I was getting very slightly breathless. However, 7 years down the line I am extremely breathless . Walking from room to room I am slightly breathing heavy. Going upstairs I am very breathless and also just plain walking I get breathless.
130396
in
MPN Voice
3 years ago
Worries over new drug treatment : Infliximab
Experience requests please. Due to continuing inflammation, my RA has suggested that I stay on low dose Prednisolone (5mg) and MTX injections (15mg) but also start receiving infusions every 8weeks of Infliximab. The side effects I read on this drug seem worse than my regular aches and pains and I’m
Experience requests please. Due to continuing inflammation, my RA has suggested that I stay on low dose Prednisolone (5mg) and MTX injections (15mg) but also start receiving infusions every 8weeks of Infliximab. The side effects I read on this drug seem worse than my regular aches and pains and I’m
K9910
in
NRAS
3 years ago
Advice on Bronchiectasis diagnosis please
Hi everyone I’ve been lurking in the background for a while but havnt introduced myself properly. Please bear with me as it’s a bit long winded & confusing. Basically I don’t know what to do & need some advice please. I have RA diagnosed over 20 years ago & in November 2017 on screening for new Biologics
Hi everyone I’ve been lurking in the background for a while but havnt introduced myself properly. Please bear with me as it’s a bit long winded & confusing. Basically I don’t know what to do & need some advice please. I have RA diagnosed over 20 years ago & in November 2017 on screening for new Biologics
Otto11
in
Lung Conditions Community Forum
3 years ago
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What monitoring is required after treatment for vitamin B12 deficiency has started?
The NICE Guidelines are as follows: "What monitoring is required after treatment for vitamin B12 deficiency has started? Perform a full blood count and reticulocyte count: Within 7–10 days of starting treatment. A rise in the haemoglobin level and an increase in the reticulocyte count to above the
The NICE Guidelines are as follows: "What monitoring is required after treatment for vitamin B12 deficiency has started? Perform a full blood count and reticulocyte count: Within 7–10 days of starting treatment. A rise in the haemoglobin level and an increase in the reticulocyte count to above the
Springblossom13
in
Pernicious Anaemia Society
3 years ago
Question on Heart Size
Hello I know I have a generous heart or so I am told !!! Just looking at a very recent Chest X ray and it says " Lungs appear Clear " " Heart Size is at the Upper Limit of Normal " I wonder what that means and why was it on the report, anyone know the answer to this ??? Regards
Hello I know I have a generous heart or so I am told !!! Just looking at a very recent Chest X ray and it says " Lungs appear Clear " " Heart Size is at the Upper Limit of Normal " I wonder what that means and why was it on the report, anyone know the answer to this ??? Regards
Prada47
in
British Heart Foundation
3 years ago
Update ... flare has nicely abated...not on methotrexate YET! what do I do when medical insurance stops my cover for PMR?
Sorry for long post ... I took jinasc's advice and went up to 15mg Pred (rather than 12.5 for 2 weeks suggested by rheumie) for 5 days, then dropped by 10% to 13.5 for 5 days and now on 13 which has stopped the pain. Told rheumie about my decision as 12.5mg didn't do the trick. He was keen for me
Sorry for long post ... I took jinasc's advice and went up to 15mg Pred (rather than 12.5 for 2 weeks suggested by rheumie) for 5 days, then dropped by 10% to 13.5 for 5 days and now on 13 which has stopped the pain. Told rheumie about my decision as 12.5mg didn't do the trick. He was keen for me
Sufferinginsilence
in
PMRGCAuk
3 years ago
Vaccine induced myocarditis
Hi! I’m new here and wanted to share my daughter’s story, get support, and see what’s helping everyone. My 20 year old daughter started having chest pain 24 hours after her second Moderna. She had it on September 10th. She woke the morning after with fever, body aches, and headache. She told me that
Hi! I’m new here and wanted to share my daughter’s story, get support, and see what’s helping everyone. My 20 year old daughter started having chest pain 24 hours after her second Moderna. She had it on September 10th. She woke the morning after with fever, body aches, and headache. She told me that
Ellis0796
in
British Heart Foundation
3 years ago
Mysterious chest pain
Hoping for someone experiencing similar issues. I have had excruciating upper left chest pain for over 5 weeks. My Gp has sent me to a and e twice because the symptoms match a heart attack. ECG bloods and chest X-ray all normal. Diagnosed first with Costochondritis and then Bornholm disease. No painkillers
Hoping for someone experiencing similar issues. I have had excruciating upper left chest pain for over 5 weeks. My Gp has sent me to a and e twice because the symptoms match a heart attack. ECG bloods and chest X-ray all normal. Diagnosed first with Costochondritis and then Bornholm disease. No painkillers
Ponkysue
in
Thyroid UK
3 years ago
POTs?
I was wondering if anyone has experience with this? I was ill with a virus back at the start of October. I have been off work sick since then with really bad fatigue that I can’t shift and also a fast heart rate and lightheadedness whenever I stand up or do any physical exertion. I saw my doctor in person
I was wondering if anyone has experience with this? I was ill with a virus back at the start of October. I have been off work sick since then with really bad fatigue that I can’t shift and also a fast heart rate and lightheadedness whenever I stand up or do any physical exertion. I saw my doctor in person
Poppy96
in
Fibromyalgia Action UK
3 years ago
Blood in phlegm
Hi just a question my anxiety is going through the roof. Was in hospital yesterday I was clearing my nose/throat and brought up blood in my phlegm but when I cough it’s just green, had a chest X-ray all was clear bloods was clear they said I had a viral infection would it off been coming from my lungs
Hi just a question my anxiety is going through the roof. Was in hospital yesterday I was clearing my nose/throat and brought up blood in my phlegm but when I cough it’s just green, had a chest X-ray all was clear bloods was clear they said I had a viral infection would it off been coming from my lungs
Hypo20061
in
Anxiety Support
3 years ago
Natural remedies and food supplements
This is mainly a personal view of the usefulness of these for RLS, but is based on some reading. I hope it is a balanced view. Hopefully it offers some guidance for when you're choosing remedies. The 3 main things you should find out about when choosing a remedy. 1) EFFECTIVENESS : does it actually
This is mainly a personal view of the usefulness of these for RLS, but is based on some reading. I hope it is a balanced view. Hopefully it offers some guidance for when you're choosing remedies. The 3 main things you should find out about when choosing a remedy. 1) EFFECTIVENESS : does it actually
Elffindoe
in
Restless Legs Syndrome
3 years ago
Interesting summary of PA on nhs website
I read the following paragraph to a nutritionist and I think they didnt believe it. I have PA but also suspected chronic pancreatitis in spite of healthy pancreas in scans, no pain, bloating or weight change. I want to supplement with acid in a healthy way with their advice. They've said - do not take
I read the following paragraph to a nutritionist and I think they didnt believe it. I have PA but also suspected chronic pancreatitis in spite of healthy pancreas in scans, no pain, bloating or weight change. I want to supplement with acid in a healthy way with their advice. They've said - do not take
Luac
in
Pernicious Anaemia Society
3 years ago
Updates/Questions
Just had my 6 month check- anxious for scan in a few weeks! I have taken a low dose Actos for the last 6 months and am anxious to see if my Nash score comes down. My doctor mentioned a new diabetic drug that is out that is supposed to work better on fatty liver than the Actos, but I can’t remember
Just had my 6 month check- anxious for scan in a few weeks! I have taken a low dose Actos for the last 6 months and am anxious to see if my Nash score comes down. My doctor mentioned a new diabetic drug that is out that is supposed to work better on fatty liver than the Actos, but I can’t remember
Newdeck
in
Living with Fatty Liver and NASH
3 years ago
Given all clear but still unsure of something pending
Hi so I was taken to hospital the other day with the following symptoms: Heavy uncomfortable feeling in the central upper chest, breathless , aching in the upper back more central than anything. I am a 53 year old lady generally in good health and I just don't feel "right". I still have the heavy uncomfortable
Hi so I was taken to hospital the other day with the following symptoms: Heavy uncomfortable feeling in the central upper chest, breathless , aching in the upper back more central than anything. I am a 53 year old lady generally in good health and I just don't feel "right". I still have the heavy uncomfortable
blue01by
in
British Heart Foundation
3 years ago
✨Recent Update ✨
Evening all you wonderful bunch 💕 Just a little update, my mum is now home & recovering well, she’s been home now a going on a month & is doing amazing, not needing any physio, she’s doing so well! It’s so lovely to have her home back where she belongs! It’s been a crazy tough few months for me if
Evening all you wonderful bunch 💕 Just a little update, my mum is now home & recovering well, she’s been home now a going on a month & is doing amazing, not needing any physio, she’s doing so well! It’s so lovely to have her home back where she belongs! It’s been a crazy tough few months for me if
KeiraMarie
in
Action on Postpartum Psychosis
3 years ago
Total thyroidectomy
Hi After suffering from breathlessness for a few months, I underwent various tests in April 2021 to try and find the cause. During a lung CT to see if I had any blood clots, I was advised that my thyroid was very large, not in the right location, and multi-nodular and could be the cause of the breathing
Hi After suffering from breathlessness for a few months, I underwent various tests in April 2021 to try and find the cause. During a lung CT to see if I had any blood clots, I was advised that my thyroid was very large, not in the right location, and multi-nodular and could be the cause of the breathing
FeelingBluey
in
Thyroid UK
3 years ago
Rotablation
Hi all. Well 4 1/2 years after my bypass surgery I found myself with similar angina pains although things went slightly differently this time. At first I think I was in denial about the pain 'was it imagined' 'was it indigestion'? In the end I could ignore it no longer so last Monday (18th) I phoned
Hi all. Well 4 1/2 years after my bypass surgery I found myself with similar angina pains although things went slightly differently this time. At first I think I was in denial about the pain 'was it imagined' 'was it indigestion'? In the end I could ignore it no longer so last Monday (18th) I phoned
Heather1957
in
British Heart Foundation
3 years ago
Ouch !!!!!
Good morning all ! First time posting on here …. But need some advice if poss . Will attempt to post pic of my hand , but this is the 5 th time it has happened in exactly the same place . I have no diagnosis , but have had positive ANA , and rheumatoid factor high . I do have pernicious anaemia and folate
Good morning all ! First time posting on here …. But need some advice if poss . Will attempt to post pic of my hand , but this is the 5 th time it has happened in exactly the same place . I have no diagnosis , but have had positive ANA , and rheumatoid factor high . I do have pernicious anaemia and folate
SarahLou2
in
LUPUS UK
3 years ago
Heart palpitations since vaccine. Myocarditis?
Myocarditis? I had my second moderna vaccine 21/9/21. I was flu like a couple of days, then heart palpitations started. I wake a few times in the night gasping for breath or with my heart one pound like it's missed a beat. I can't run, workout or yoga anymore. I have to walk slowly or stop on poor dog
Myocarditis? I had my second moderna vaccine 21/9/21. I was flu like a couple of days, then heart palpitations started. I wake a few times in the night gasping for breath or with my heart one pound like it's missed a beat. I can't run, workout or yoga anymore. I have to walk slowly or stop on poor dog
Heidi00
in
British Heart Foundation
3 years ago
Possible explanation for lack of hepatic B12 storage
I've seen a few posts on this forum regarding the seemingly inexplicable variations in B12 dosing schedules needed to keep different individuals from experiencing signs of deficiency. Furthermore, it seems that every MD believes one should store enough B12 in the liver for lengthy periods of time without
I've seen a few posts on this forum regarding the seemingly inexplicable variations in B12 dosing schedules needed to keep different individuals from experiencing signs of deficiency. Furthermore, it seems that every MD believes one should store enough B12 in the liver for lengthy periods of time without
USmedsyssucks
in
Pernicious Anaemia Society
3 years ago
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