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Endo or not
Approx April 2021 I took a dull pain my lower left hip. Didn’t think much of it until it became the hip and buttock area sometimes coming up the lower back and down the leg and wouldn’t go away no matter what. Over the past two years this pain has never gone away and with it I get flare ups of extreme
Approx April 2021 I took a dull pain my lower left hip. Didn’t think much of it until it became the hip and buttock area sometimes coming up the lower back and down the leg and wouldn’t go away no matter what. Over the past two years this pain has never gone away and with it I get flare ups of extreme
WanderingFox
in
Endometriosis UK
1 year ago
Advice please so confused
I was on longterm PPI for 14 years.In 2016 I had course of antibiotics for a sinus infection. A few days later I couldn't walk in straight line,terrible headaches,burning sensation in skin.Thought I was going to collapse.My GP ordered blood tests and my B12 was 50!!! I had 6 loading injections then
I was on longterm PPI for 14 years.In 2016 I had course of antibiotics for a sinus infection. A few days later I couldn't walk in straight line,terrible headaches,burning sensation in skin.Thought I was going to collapse.My GP ordered blood tests and my B12 was 50!!! I had 6 loading injections then
Paula1710
in
Pernicious Anaemia Society
1 year ago
Spirometry results
Sorry I am very new to this not even sure if I should be on here not been told if i have asthma waiting test results. I'll give you a bit of a background after several chest infection and loads of antibiotics and inhalers. I had a chest xray which show atelectasis which i believe is pneumonia this is
Sorry I am very new to this not even sure if I should be on here not been told if i have asthma waiting test results. I'll give you a bit of a background after several chest infection and loads of antibiotics and inhalers. I had a chest xray which show atelectasis which i believe is pneumonia this is
Whin1963
in
Asthma Community Forum
1 year ago
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RA or LUPUS Lab Results
RDW
16.0 H
(11.5-15.0 %) SEDIMENTATION RATE:
35 H
(0-20 MM/HOUR) RHEUMATOID FACTOR, QUANT
181 H
(<14 IU/ML) ANA POSITIVE - SPECKLED - TITER 1:160 SJOGREN'S SS-A ANTIBODY
>8.0 H
(<1.0 AI) dsDNA ANTIBODY
15.0 H
(POSITIVE >=3.0 U/ML) HEMOGLOBIN /
RDW
16.0 H
(11.5-15.0 %) SEDIMENTATION RATE:
35 H
(0-20 MM/HOUR) RHEUMATOID FACTOR, QUANT
181 H
(<14 IU/ML) ANA POSITIVE - SPECKLED - TITER 1:160 SJOGREN'S SS-A ANTIBODY
>8.0 H
(<1.0 AI) dsDNA ANTIBODY
15.0 H
(POSITIVE >=3.0 U/ML) HEMOGLOBIN /
Hypocon1
in
NRAS
1 year ago
Heart failure
I had a P and A in 2021 to stabilise my fast heart rate in Permanent AF. Although still in AF, I thought that was my heart sorted. Last year I had pneumonia and then at Christmas another chest infection, that has taken until now to sort out. As I am still breathless and very fatigued, I had a chest
I had a P and A in 2021 to stabilise my fast heart rate in Permanent AF. Although still in AF, I thought that was my heart sorted. Last year I had pneumonia and then at Christmas another chest infection, that has taken until now to sort out. As I am still breathless and very fatigued, I had a chest
Barb1
in
AF Association
1 year ago
repeated upper respiratory viral infections
my daughter (12) has asthma and also dysfunctional breathing so it can be hard to know which one is causing her breathing difficulties at any point. When well she has breathing episodes/ difficulties approx 3 times a week brought on by exercise or changes in the air eg smoke, dust, temperature. Sometimes
my daughter (12) has asthma and also dysfunctional breathing so it can be hard to know which one is causing her breathing difficulties at any point. When well she has breathing episodes/ difficulties approx 3 times a week brought on by exercise or changes in the air eg smoke, dust, temperature. Sometimes
R2D2starwars
in
Asthma Community Forum
1 year ago
Doctor put my b12 schedule on my records.
this week after a visit to the ED and changed symptoms related to my spine degenerative disease, I saw a different doctor at the practice, as she was going through my history, she asked about my B12 and It’s diagnosis, including the hospital discharge saying I did it EOD. I explained I had been diagnosed
this week after a visit to the ED and changed symptoms related to my spine degenerative disease, I saw a different doctor at the practice, as she was going through my history, she asked about my B12 and It’s diagnosis, including the hospital discharge saying I did it EOD. I explained I had been diagnosed
Scott-rock
in
Pernicious Anaemia Society
1 year ago
Daughter’s lung biopsy
hello, I hope someone can help me. My daughter has had mild asthma since age 6 and she is now 18. Always seemed well controlled. However over the last few years she’s had recurring chest infections and in 2021 had a chest X-ray and ct scan, just showing 2 v small lung nodules told normal and some small
hello, I hope someone can help me. My daughter has had mild asthma since age 6 and she is now 18. Always seemed well controlled. However over the last few years she’s had recurring chest infections and in 2021 had a chest X-ray and ct scan, just showing 2 v small lung nodules told normal and some small
Worried49
in
Lung Conditions Community Forum
1 year ago
Myocarditis aged 18 with troponin levels of 15000
Hello. my 18 year old daughter started with what we thought was Strep (sore throat and raised temperature) on the 2nd of Jan. Two days later we had to take her to A and E as she was suffering from chest pains and her heart was racing. In A and E she tested positive for flu and her Troponin levels were
Hello. my 18 year old daughter started with what we thought was Strep (sore throat and raised temperature) on the 2nd of Jan. Two days later we had to take her to A and E as she was suffering from chest pains and her heart was racing. In A and E she tested positive for flu and her Troponin levels were
Sadheart69
in
British Heart Foundation
1 year ago
chest xray
I have mild Bronchiectasis confirmed by ct . I had chest X-ray after attending BX clinic and received a report saying X-ray satisfactory. What does that mean -!
I have mild Bronchiectasis confirmed by ct . I had chest X-ray after attending BX clinic and received a report saying X-ray satisfactory. What does that mean -!
Pitt12345
in
Lung Conditions Community Forum
1 year ago
Suspected B12 deficiency and about to start SI
Hi everyone, I’ve had ID anaemia (microcytic hypochromic) for over 20 years and was told by a GP many years ago that this was due to malabsorption. I’ve had hypothyroidism since 2014, long covid for the past 2 years, and a vax injury from March 2021 that is only just being investigated by rheumatology
Hi everyone, I’ve had ID anaemia (microcytic hypochromic) for over 20 years and was told by a GP many years ago that this was due to malabsorption. I’ve had hypothyroidism since 2014, long covid for the past 2 years, and a vax injury from March 2021 that is only just being investigated by rheumatology
Gecko22
in
Pernicious Anaemia Society
2 years ago
concern over chest infections after chemo, should I be worried?
Hi all, I am really concerned about my husband who has Stage 4, Gleason 9 PC. He had his last chemotherapy round at the beginning of December and will start radiotherapy beginning of February but I am really concerned about his chest. He has had 4 courses of antibiotics and a course of steroids, prednisolone
Hi all, I am really concerned about my husband who has Stage 4, Gleason 9 PC. He had his last chemotherapy round at the beginning of December and will start radiotherapy beginning of February but I am really concerned about his chest. He has had 4 courses of antibiotics and a course of steroids, prednisolone
Ktm990jan
in
Advanced Prostate Cancer
1 year ago
Webinar - Biosimilars
Professor of Ophthalmology Richard Gale from the Hull York Medical School, will be joining us for our next My Macular and Me webinar, to discuss the introduction of biosimilars on the NHS. A biosimilar is a medicine that is developed to be highly similar to an existing biological medicine. They might
Professor of Ophthalmology Richard Gale from the Hull York Medical School, will be joining us for our next My Macular and Me webinar, to discuss the introduction of biosimilars on the NHS. A biosimilar is a medicine that is developed to be highly similar to an existing biological medicine. They might
Carol_MacularSociety
Partner
in
Macular Society
1 year ago
Update on breathlessness
Having ruled out any immediate issues with my heart, lung function tests have been done now. The results were sent to Aberdeen and I have had a chest x-ray and am waiting for the feedback. The Chest Clinic in Aberdeen want to see me for more detailed tests and have referred me for a CT scan. There is
Having ruled out any immediate issues with my heart, lung function tests have been done now. The results were sent to Aberdeen and I have had a chest x-ray and am waiting for the feedback. The Chest Clinic in Aberdeen want to see me for more detailed tests and have referred me for a CT scan. There is
Scottishlad
in
NRAS
2 years ago
How food additives can perhaps affect us: a chocolate story.
I can eat Galaxy chocolate. No problem, and it doesn't trigger my IBS. The other day I ate a Galaxy Ripple bar instead of the ordinary block chocolate. I thought nothing of it, just thought it would be the same as the block chocolate. But it affected my bowel movements the next day, and there
I can eat Galaxy chocolate. No problem, and it doesn't trigger my IBS. The other day I ate a Galaxy Ripple bar instead of the ordinary block chocolate. I thought nothing of it, just thought it would be the same as the block chocolate. But it affected my bowel movements the next day, and there
Luisa22
in
IBS Network
1 year ago
How long does a diagnosis take ? Help in Limbo
Hi, I have been feeling unwell for ages lots of different symptoms,eventually a nurse practioner ordered blood test and they came back positive for antinuclear antibodies centromere >8 in July 2022. I was referred to Rheumatologist who as in turn referred me for several test, Ultrasound hands- no
Hi, I have been feeling unwell for ages lots of different symptoms,eventually a nurse practioner ordered blood test and they came back positive for antinuclear antibodies centromere >8 in July 2022. I was referred to Rheumatologist who as in turn referred me for several test, Ultrasound hands- no
Buttsy
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
Update on progress with MF and the FEDORA clinical trial
So to recap, I was diagnosed with primary MF in October 2022 and asked to join a new clinical trial called FEDORA. After many tests including a BMB, ultrasound on my abdomen, chest X-ray etc. I started on the pre medication of 400mg/day (in one dose) of Fedratinib in capsule form. This was the first
So to recap, I was diagnosed with primary MF in October 2022 and asked to join a new clinical trial called FEDORA. After many tests including a BMB, ultrasound on my abdomen, chest X-ray etc. I started on the pre medication of 400mg/day (in one dose) of Fedratinib in capsule form. This was the first
Flyingsteamer
in
MPN Voice
2 years ago
Protein deficiency and B12?
I was diagnosed with B12 deficiency with neural symptoms in the spring of 2021. After bouncing around in treatment that I later learned was appropriate for hematologic symptoms, in August of 2021 I began injecting cyanocobalamin daily, and have continued since. Some symptoms improved, others did not,
I was diagnosed with B12 deficiency with neural symptoms in the spring of 2021. After bouncing around in treatment that I later learned was appropriate for hematologic symptoms, in August of 2021 I began injecting cyanocobalamin daily, and have continued since. Some symptoms improved, others did not,
WiscGuy
in
Pernicious Anaemia Society
2 years ago
Continuous never ending onslaught - still trying to be happy happy positive but 🤷♀️
Been sick this time for 9 months, 2cardioversions, 3rd ablation 5wks ago. Had a few complications and still have the asthma I left hospital with. Until yesterday I’d been NSR but the asthma is not letting up. The inhalers, steroids etc have put the heart rate up to continuous 100-117 which is now exhausting
Been sick this time for 9 months, 2cardioversions, 3rd ablation 5wks ago. Had a few complications and still have the asthma I left hospital with. Until yesterday I’d been NSR but the asthma is not letting up. The inhalers, steroids etc have put the heart rate up to continuous 100-117 which is now exhausting
Afibflipper
in
AF Association
2 years ago
Below range Active B12, Increasing serum B12, Low folate
Hi My health board (in Scotland) doesn’t use the Active B12 test so they are unwilling to accept the Medichecks test I had done which showed a slightly below range result - 36pmol (37.5 - 188) They have retested my serum B12 and folate: Serum B12 315ng/L (187-883) Folate 2.7 (3-20) My serum
Hi My health board (in Scotland) doesn’t use the Active B12 test so they are unwilling to accept the Medichecks test I had done which showed a slightly below range result - 36pmol (37.5 - 188) They have retested my serum B12 and folate: Serum B12 315ng/L (187-883) Folate 2.7 (3-20) My serum
GW1000
in
Pernicious Anaemia Society
2 years ago
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