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Update on breathlessness
Having ruled out any immediate issues with my heart, lung function tests have been done now. The results were sent to Aberdeen and I have had a chest x-ray and am waiting for the feedback. The Chest Clinic in Aberdeen want to see me for more detailed tests and have referred me for a CT scan. There is
Having ruled out any immediate issues with my heart, lung function tests have been done now. The results were sent to Aberdeen and I have had a chest x-ray and am waiting for the feedback. The Chest Clinic in Aberdeen want to see me for more detailed tests and have referred me for a CT scan. There is
Scottishlad
in
NRAS
1 year ago
How long does a diagnosis take ? Help in Limbo
Hi, I have been feeling unwell for ages lots of different symptoms,eventually a nurse practioner ordered blood test and they came back positive for antinuclear antibodies centromere >8 in July 2022. I was referred to Rheumatologist who as in turn referred me for several test, Ultrasound hands- no
Hi, I have been feeling unwell for ages lots of different symptoms,eventually a nurse practioner ordered blood test and they came back positive for antinuclear antibodies centromere >8 in July 2022. I was referred to Rheumatologist who as in turn referred me for several test, Ultrasound hands- no
Buttsy
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
How food additives can perhaps affect us: a chocolate story.
I can eat Galaxy chocolate. No problem, and it doesn't trigger my IBS. The other day I ate a Galaxy Ripple bar instead of the ordinary block chocolate. I thought nothing of it, just thought it would be the same as the block chocolate. But it affected my bowel movements the next day, and there
I can eat Galaxy chocolate. No problem, and it doesn't trigger my IBS. The other day I ate a Galaxy Ripple bar instead of the ordinary block chocolate. I thought nothing of it, just thought it would be the same as the block chocolate. But it affected my bowel movements the next day, and there
Luisa22
in
IBS Network
1 year ago
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Protein deficiency and B12?
I was diagnosed with B12 deficiency with neural symptoms in the spring of 2021. After bouncing around in treatment that I later learned was appropriate for hematologic symptoms, in August of 2021 I began injecting cyanocobalamin daily, and have continued since. Some symptoms improved, others did not,
I was diagnosed with B12 deficiency with neural symptoms in the spring of 2021. After bouncing around in treatment that I later learned was appropriate for hematologic symptoms, in August of 2021 I began injecting cyanocobalamin daily, and have continued since. Some symptoms improved, others did not,
WiscGuy
in
Pernicious Anaemia Society
1 year ago
Webinar - Biosimilars
Professor of Ophthalmology Richard Gale from the Hull York Medical School, will be joining us for our next My Macular and Me webinar, to discuss the introduction of biosimilars on the NHS. A biosimilar is a medicine that is developed to be highly similar to an existing biological medicine. They might
Professor of Ophthalmology Richard Gale from the Hull York Medical School, will be joining us for our next My Macular and Me webinar, to discuss the introduction of biosimilars on the NHS. A biosimilar is a medicine that is developed to be highly similar to an existing biological medicine. They might
Carol_MacularSociety
Partner
in
Macular Society
1 year ago
Update on progress with MF and the FEDORA clinical trial
So to recap, I was diagnosed with primary MF in October 2022 and asked to join a new clinical trial called FEDORA. After many tests including a BMB, ultrasound on my abdomen, chest X-ray etc. I started on the pre medication of 400mg/day (in one dose) of Fedratinib in capsule form. This was the first
So to recap, I was diagnosed with primary MF in October 2022 and asked to join a new clinical trial called FEDORA. After many tests including a BMB, ultrasound on my abdomen, chest X-ray etc. I started on the pre medication of 400mg/day (in one dose) of Fedratinib in capsule form. This was the first
Flyingsteamer
in
MPN Voice
1 year ago
Continuous never ending onslaught - still trying to be happy happy positive but 🤷‍♀️
Been sick this time for 9 months, 2cardioversions, 3rd ablation 5wks ago. Had a few complications and still have the asthma I left hospital with. Until yesterday I’d been NSR but the asthma is not letting up. The inhalers, steroids etc have put the heart rate up to continuous 100-117 which is now exhausting
Been sick this time for 9 months, 2cardioversions, 3rd ablation 5wks ago. Had a few complications and still have the asthma I left hospital with. Until yesterday I’d been NSR but the asthma is not letting up. The inhalers, steroids etc have put the heart rate up to continuous 100-117 which is now exhausting
Afibflipper
in
AF Association
1 year ago
Below range Active B12, Increasing serum B12, Low folate
Hi My health board (in Scotland) doesn’t use the Active B12 test so they are unwilling to accept the Medichecks test I had done which showed a slightly below range result - 36pmol (37.5 - 188) They have retested my serum B12 and folate: Serum B12 315ng/L (187-883) Folate 2.7 (3-20) My serum
Hi My health board (in Scotland) doesn’t use the Active B12 test so they are unwilling to accept the Medichecks test I had done which showed a slightly below range result - 36pmol (37.5 - 188) They have retested my serum B12 and folate: Serum B12 315ng/L (187-883) Folate 2.7 (3-20) My serum
GW1000
in
Pernicious Anaemia Society
1 year ago
50yr old smoker just quit have some questions
hi everyone and Merry Christmas/Happy Holidays. I’m a 50yr 1/2 a pack a day smoker (smoked more when I was in my 20’s) and now former smoker for a week still finding it difficult to not smoke but trying. I’ve been diagnosed with Gerd, Barrett’s Esophagus and a 5cm. Hiatal Hernia. About 6 months ago
hi everyone and Merry Christmas/Happy Holidays. I’m a 50yr 1/2 a pack a day smoker (smoked more when I was in my 20’s) and now former smoker for a week still finding it difficult to not smoke but trying. I’ve been diagnosed with Gerd, Barrett’s Esophagus and a 5cm. Hiatal Hernia. About 6 months ago
B0ugatsa
in
Lung Conditions Community Forum
1 year ago
Coughing up blood and CT scan results
Hello, I'm new here. I'm wondering if anyone can advise me if possible. I've been coughing up some blood and bloody mucus over the last couple of months. Went to the GP and they referred me on the 2 week pathway. I had a chest x-ray last week which came back clear. I had a chest CT scan yesterday and
Hello, I'm new here. I'm wondering if anyone can advise me if possible. I've been coughing up some blood and bloody mucus over the last couple of months. Went to the GP and they referred me on the 2 week pathway. I had a chest x-ray last week which came back clear. I had a chest CT scan yesterday and
Col178
in
The Roy Castle Lung Cancer Foundation
1 year ago
Pneumonia update
So have been on antibiotics for two weeks and have been resting...as best I can. At weekend I felt worse again. Had a routine rheumy appointment Monday morning. (New consultant, not been seen by any consultant in 18mths ish). He obviously knew I'd had problems, first he says you don't look very well
So have been on antibiotics for two weeks and have been resting...as best I can. At weekend I felt worse again. Had a routine rheumy appointment Monday morning. (New consultant, not been seen by any consultant in 18mths ish). He obviously knew I'd had problems, first he says you don't look very well
wilbertjellyfish
in
NRAS
1 year ago
Can anyone recommend a good private pernicious anemia doctor anywhere in Scotland? Two NHS GPs ignored my symptoms they don't listen
Hello, I am desperately looking for a doctor who is competent about vitamin B12 deficiency and/or pernicious anemia. I am positive to gastric parietal cell antibodies, my B12 levels are 444 (should be between 200-883) so nobody takes me seriously because it's not low. GPs won't even consider injections
Hello, I am desperately looking for a doctor who is competent about vitamin B12 deficiency and/or pernicious anemia. I am positive to gastric parietal cell antibodies, my B12 levels are 444 (should be between 200-883) so nobody takes me seriously because it's not low. GPs won't even consider injections
Patient300
in
Pernicious Anaemia Society
1 year ago
B-12 is Low (398), Folate is High, HCY is 55.6, uMMA is 1.7 , vitamin D and C and Magnesium are Low, all B vitamins are low.
Why is the GP not taking my labs seriously, I've been taking methylcobalamin tablets for a year and just began 5-MTHF because of Folate Deficiency found in my DNA, GP declined to do a MMA Blood serum test, I have been allergic to milk and beef since birth, peanuts followed with life threatening allergies
Why is the GP not taking my labs seriously, I've been taking methylcobalamin tablets for a year and just began 5-MTHF because of Folate Deficiency found in my DNA, GP declined to do a MMA Blood serum test, I have been allergic to milk and beef since birth, peanuts followed with life threatening allergies
Hoyle
in
Pernicious Anaemia Society
1 year ago
It Never Rains
What an absolute few months I've had. Have been on a constant heavy period, where I'm losing blood clots for the past 5 months, plus having really bad issues with breathing, which added to all my comorbidities is an absolute bugger. Due for a chest x-ray and an ultrasound this week. Then to top it all
What an absolute few months I've had. Have been on a constant heavy period, where I'm losing blood clots for the past 5 months, plus having really bad issues with breathing, which added to all my comorbidities is an absolute bugger. Due for a chest x-ray and an ultrasound this week. Then to top it all
Sher78
in
Hughes Syndrome APS Forum
1 year ago
Newbie here, tests/symptoms suggest PA or AAG
Hi everyone. My medical adventures have been ongoing for years but, like many others, I have struggled to find a definitive diagnosis for my symptoms. My spouse is the only person I've shared all this with. He's been by my side and supportive throughout numerous doctors shrugging their shoulders — and
Hi everyone. My medical adventures have been ongoing for years but, like many others, I have struggled to find a definitive diagnosis for my symptoms. My spouse is the only person I've shared all this with. He's been by my side and supportive throughout numerous doctors shrugging their shoulders — and
Pante
in
Pernicious Anaemia Society
1 year ago
day 2 after bypass surgery
hi all, my hubby had his triple bypass yesterday)finally after 3 cancellations in 6 weeks!) thr op went well the surgeon said snd he was recovering well. This morning just before they were moving him from ICU to high dependency his oxygen levels dropped and so they kept him in icu and gave him extra
hi all, my hubby had his triple bypass yesterday)finally after 3 cancellations in 6 weeks!) thr op went well the surgeon said snd he was recovering well. This morning just before they were moving him from ICU to high dependency his oxygen levels dropped and so they kept him in icu and gave him extra
Finmum
in
British Heart Foundation
1 year ago
How to prepare for the Radiation Therapy? Your advise/help are appreciated.
My husband will receive 20 session of radiation therapy which started on 11/3/22. He is drinking 64 oz water every day therefore he is very hydrated. He is doing everything by the “book”, but Today they weren’t able to administer the radiation because he was gassy (took 2 gas x tablet 1 hour before
My husband will receive 20 session of radiation therapy which started on 11/3/22. He is drinking 64 oz water every day therefore he is very hydrated. He is doing everything by the “book”, but Today they weren’t able to administer the radiation because he was gassy (took 2 gas x tablet 1 hour before
Wifey68
in
Advanced Prostate Cancer
2 years ago
pramipexole (containing Dopamine), can it contribute to heart regurgitation?
I recently had an echocardiogram after chest x-ray for breathlessness and it was thought to show an enlarged heart , but later found it wasn’t, hence the ecg. It has shown that I have some regurgitation which GP said nothing to worry about but I have read that Dopamine can be a cause of this. Can anyone
I recently had an echocardiogram after chest x-ray for breathlessness and it was thought to show an enlarged heart , but later found it wasn’t, hence the ecg. It has shown that I have some regurgitation which GP said nothing to worry about but I have read that Dopamine can be a cause of this. Can anyone
Sunny70
in
Restless Legs Syndrome
1 year ago
Ferritin that will not raise - what to investigate?
Hi everyone, I've had huge issues with ferritin since diagnosis in 2019 and I cannot get it to raise higher than the early 20s and the doctors are absolutely no help with trying to find the cause. My ferritin is currently 23 range 30-250 and I have been taking iron medicine and eating liver consistently
Hi everyone, I've had huge issues with ferritin since diagnosis in 2019 and I cannot get it to raise higher than the early 20s and the doctors are absolutely no help with trying to find the cause. My ferritin is currently 23 range 30-250 and I have been taking iron medicine and eating liver consistently
liaratsoni
in
Thyroid UK
1 year ago
Etoricoxib?
Finally got to see rheumatologist on 8 Dec for the urgent appointment requested by my GP in June (!) He took a detailed history and did a thorough examination (I didn’t realize how much everything was hurting until he prodded all the muscles round my joints - been quite sore since.) His conclusion
Finally got to see rheumatologist on 8 Dec for the urgent appointment requested by my GP in June (!) He took a detailed history and did a thorough examination (I didn’t realize how much everything was hurting until he prodded all the muscles round my joints - been quite sore since.) His conclusion
Lyra42
in
PMRGCAuk
1 year ago
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