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What if?
I mentioned to you that one of the main premises of the Summit was to think about "what ifs" that we could change about how PBC is perceived and/or treated. One of these suggestions was "
what if
" we could totally eliminate the use of placebos in all clinical trials. Some of you may have participated
I mentioned to you that one of the main premises of the Summit was to think about "what ifs" that we could change about how PBC is perceived and/or treated. One of these suggestions was "
what if
" we could totally eliminate the use of placebos in all clinical trials. Some of you may have participated
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
feeling silly
i have been struggling with hypervigilant mind ever since childhood and i am still struggling to express my emotional needs until now. my parents came to my house just a day ago, they visited me because i got into a hospital and they still accompany me post hospitalization, but i somehow still chocked
i have been struggling with hypervigilant mind ever since childhood and i am still struggling to express my emotional needs until now. my parents came to my house just a day ago, they visited me because i got into a hospital and they still accompany me post hospitalization, but i somehow still chocked
apr06
in
Anxiety and Depression Support
3 months ago
wrestless legs syndrome help!!!
so my dad has had wrestless legs syndrome for as long as I can remember. Life has gotten really really bad. He’s been addicted to vyvanse for awhile now and those are the only things that help him sleep he says but that hasn’t been helping lately and I honestly don’t believe it ever actually was. Who
so my dad has had wrestless legs syndrome for as long as I can remember. Life has gotten really really bad. He’s been addicted to vyvanse for awhile now and those are the only things that help him sleep he says but that hasn’t been helping lately and I honestly don’t believe it ever actually was. Who
233abcdfg
in
Restless Legs Syndrome
3 months ago
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Update on painful buttocks and thighs
My rheumatologist requested a CRP test for me yesterday, and it was below 3, low normal range. As I think back, I may have over done it four days in a row, and this may just be very sore muscles. My mother would have called it being “lame.” I have been taking it very easy the last couple days and
My rheumatologist requested a CRP test for me yesterday, and it was below 3, low normal range. As I think back, I may have over done it four days in a row, and this may just be very sore muscles. My mother would have called it being “lame.” I have been taking it very easy the last couple days and
PUMC
in
PMRGCAuk
10 months ago
Is it the Medication or am I Losing it?
Do you do daft things? This morning I picked up my toothbrush and instead of putting toothpaste on it picked up a tube of face wash cream and spread that on my toothbrush, as soon as the brush went in my mouth I knew what I'd done. Last week I took a carton of orange juice out of the fridge and poured
Do you do daft things? This morning I picked up my toothbrush and instead of putting toothpaste on it picked up a tube of face wash cream and spread that on my toothbrush, as soon as the brush went in my mouth I knew what I'd done. Last week I took a carton of orange juice out of the fridge and poured
jeanjeannie50
in
Atrial Fibrillation Support
10 months ago
anybody used buspirone with heart meds
hello me again , I’ve been prescribed buspirone for anxiety , but very anxious to use it has anyone used this before ? Also trying to figure out still what meds are making me feel so ill I’m on levothyroxine am bisoprolol flecinide am and pm , spoke to at nurse this morning said don’t take heart meds
hello me again , I’ve been prescribed buspirone for anxiety , but very anxious to use it has anyone used this before ? Also trying to figure out still what meds are making me feel so ill I’m on levothyroxine am bisoprolol flecinide am and pm , spoke to at nurse this morning said don’t take heart meds
Prosecco1997
in
Atrial Fibrillation Support
3 months ago
I'm a mess
I suffered emotional trauma recently and I am having severe anxiety and depression. I am being treated with medication and therapy but I need someone to talk to. When its gets real bad I call the crisis line but they only try to keep you alive. [u]
If there is anyone who can talk, please respond
I suffered emotional trauma recently and I am having severe anxiety and depression. I am being treated with medication and therapy but I need someone to talk to. When its gets real bad I call the crisis line but they only try to keep you alive. [u]
If there is anyone who can talk, please respond
Hidden
in
Anxiety and Depression Support
3 months ago
extremely weird feeling(from meds maybe?)
so ive been taking buspirone for about 3 weeks now, i started at 5 for the first week, 10 for the second week and now 15 milligrams for the third and going on fourth week. all was good and i was feeling pretty decent until i accidentally missed my morning 7.5 dose. i slept through it and wokeup and took
so ive been taking buspirone for about 3 weeks now, i started at 5 for the first week, 10 for the second week and now 15 milligrams for the third and going on fourth week. all was good and i was feeling pretty decent until i accidentally missed my morning 7.5 dose. i slept through it and wokeup and took
thegoat123
in
Anxiety and Depression Support
3 months ago
question for those who have stopped Lupron after many years of ADT
I have been on Lupron for 8 years with the short-term exception of a high/T clinical trial,( but even during the trial I stayed on Lupron). Anyway I’m undetectable and decided to stop Lupron. 3 months after not getting my shot my T is now a whopping 37. I am curious to hear from some of you who
I have been on Lupron for 8 years with the short-term exception of a high/T clinical trial,( but even during the trial I stayed on Lupron). Anyway I’m undetectable and decided to stop Lupron. 3 months after not getting my shot my T is now a whopping 37. I am curious to hear from some of you who
Chugach
in
Advanced Prostate Cancer
3 months ago
Homeward bound...soon
Four amazing days have come to an end. Attending The International PBC Foundation Summit was nothing short of amazing ! Patients, patient advocates, nurses, and clinicians all together to make our lives better while educating others about our rare disease. There were several topics of "what if " that
Four amazing days have come to an end. Attending The International PBC Foundation Summit was nothing short of amazing ! Patients, patient advocates, nurses, and clinicians all together to make our lives better while educating others about our rare disease. There were several topics of "what if " that
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Generalized anxiety depression
I am diagnosed with GAD, its not that I am having this everyday; if somethings triggered me then its like a rocket and suddenly it show up. The worst part is that I feel so lonely, cannot breath, cant control my tears and even my anger. What I did normally on my case if this things happened, I used to
I am diagnosed with GAD, its not that I am having this everyday; if somethings triggered me then its like a rocket and suddenly it show up. The worst part is that I feel so lonely, cannot breath, cant control my tears and even my anger. What I did normally on my case if this things happened, I used to
goodhabbits
in
Anxiety and Depression Support
3 months ago
Have taken the plunge full Thyroid test!
Hi After reading many posts on here regarding Thyroid testing I have just received a full Thyroid Function test from Blue Horizon. My Thyroid has not been medicated correctly since I started taking 100mg Levothyroxine 4 yrs ago. Everytime I have a test the parameters seem to change from one test to
Hi After reading many posts on here regarding Thyroid testing I have just received a full Thyroid Function test from Blue Horizon. My Thyroid has not been medicated correctly since I started taking 100mg Levothyroxine 4 yrs ago. Everytime I have a test the parameters seem to change from one test to
Ontherun81
in
Thyroid UK
3 months ago
follow up post laparoscopy?
hello all, I hope you’re having a comfortable day. Can I ask what others have had experience of post lap with regards to appointments to discuss findings/treatment/recovery etc? (UK/NHS) I had my first laparoscopy last Tuesday. Confirmed endo and merina replaced. I am in a clinical trial so I
hello all, I hope you’re having a comfortable day. Can I ask what others have had experience of post lap with regards to appointments to discuss findings/treatment/recovery etc? (UK/NHS) I had my first laparoscopy last Tuesday. Confirmed endo and merina replaced. I am in a clinical trial so I
JEWM
in
Endometriosis UK
3 months ago
difficult feelings
just another vent really….. Does anyone else have those days when they just feel really angry and resentful. Having a bad case of the ‘why me’ right now. Lots of regret and frustration at the situation I find myself in. Tbh I think I’m pretty depressed and have been ever since the fertility consultation
just another vent really….. Does anyone else have those days when they just feel really angry and resentful. Having a bad case of the ‘why me’ right now. Lots of regret and frustration at the situation I find myself in. Tbh I think I’m pretty depressed and have been ever since the fertility consultation
Dormus01
in
Fertility Network UK
3 months ago
New to anxiety and depression
Hi I'm Steve ,I'm 51 and and have been on this site for a while now(even though it's been through the changing faces section) quite recently I've been diagnosed with major anxiety and depression and am currently working towards attending my first DWP heath assessment (Which in its self is making me quite
Hi I'm Steve ,I'm 51 and and have been on this site for a while now(even though it's been through the changing faces section) quite recently I've been diagnosed with major anxiety and depression and am currently working towards attending my first DWP heath assessment (Which in its self is making me quite
Shysteve
in
Anxiety and Depression Support
3 months ago
Cancer takes another brave man
My wonderful husband passed away yesterday after fighting the beast for 15 years. Gleason 8 all but one core positive. He was so strong tried so hard, 2 clinical trials radiation, Zytiga, Xofigo, lupron for the entire time. Finally at age 65 his body could take no more, he lost over 40 pounds, no energy
My wonderful husband passed away yesterday after fighting the beast for 15 years. Gleason 8 all but one core positive. He was so strong tried so hard, 2 clinical trials radiation, Zytiga, Xofigo, lupron for the entire time. Finally at age 65 his body could take no more, he lost over 40 pounds, no energy
Judymin
in
Advanced Prostate Cancer
3 months ago
Autovaccination seems a hot topic lately: Mt. Sinai autovaccination technique to turn cold prostate cancer hot (Phase 1)
ok, I am exposing myself to j-o-h-n in more than one way with that title... This is for regional leagues (locally advanced PCa), while we are the NFL of prostate cancer here, but the fact that a cold cancer was turned hot is very promising as it has always been the main limit of immuno therapies applied
ok, I am exposing myself to j-o-h-n in more than one way with that title... This is for regional leagues (locally advanced PCa), while we are the NFL of prostate cancer here, but the fact that a cold cancer was turned hot is very promising as it has always been the main limit of immuno therapies applied
Maxone73
in
Advanced Prostate Cancer
3 months ago
i am a dentist with anxiety and depression
hello friends, i am tired of seeking help from people. i have been fighting my anxiety since 2012, and now i have been diagnosed with depression. I had some family traumas long back, but now there is nothing wrong in my life. still i feel sad most of the times, i feel very helpless... and keep wanting
hello friends, i am tired of seeking help from people. i have been fighting my anxiety since 2012, and now i have been diagnosed with depression. I had some family traumas long back, but now there is nothing wrong in my life. still i feel sad most of the times, i feel very helpless... and keep wanting
bulletwali
in
Anxiety and Depression Support
3 months ago
methotrexate
Sunday will be my 40th week of Actemra and about 14 months of Prednisone....I was diagnosed both with PMR and GCA back around July 2022 and started on 60 mg prednisone....have been up and down but can't seem to stay below 20 mg prednisone without recurring headache and eye pain. My rheummy suggested
Sunday will be my 40th week of Actemra and about 14 months of Prednisone....I was diagnosed both with PMR and GCA back around July 2022 and started on 60 mg prednisone....have been up and down but can't seem to stay below 20 mg prednisone without recurring headache and eye pain. My rheummy suggested
Joseph14612
in
PMRGCAuk
10 months ago
Thyroid nodules surgery survey (BTF)
Posting this because helping with research is often a good idea. However, there are only three days to go! I've only just noticed it and have not gone through what they are asking for. [i]
Thyroid nodules surgery survey
[/i] [i]Complete a survey sharing your experiences of thyroid nodule surgery
Posting this because helping with research is often a good idea. However, there are only three days to go! I've only just noticed it and have not gone through what they are asking for. [i]
Thyroid nodules surgery survey
[/i] [i]Complete a survey sharing your experiences of thyroid nodule surgery
helvella
Thyroid UK
in
Thyroid UK
3 months ago
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