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Newsystem23
Not posted for a while, hope everyone is managing their lupus symptoms as best they can. I did think that using 50spf sun screen and taking hydroxychloroquine would keep my skin lupus at bay. However, I'm beginning to realise it is not just the sun and artificial light that my skin is sensitive to.
Not posted for a while, hope everyone is managing their lupus symptoms as best they can. I did think that using 50spf sun screen and taking hydroxychloroquine would keep my skin lupus at bay. However, I'm beginning to realise it is not just the sun and artificial light that my skin is sensitive to.
Newsystem23
in
LUPUS UK
5 months ago
Glaucoma and macula degeneration
I've had glaucoma for nearly 30 yrs (I am 75) now diagnosed with macula degeneration in left eye . Anyone have the same ..what are the prospects ? Thank you..
I've had glaucoma for nearly 30 yrs (I am 75) now diagnosed with macula degeneration in left eye . Anyone have the same ..what are the prospects ? Thank you..
jesolo12
in
Glaucoma UK
5 months ago
covid and metratrexate for RA
morning all!! I tested positive for covid on the 24th of February and was told by the Rheumatologist nurses and the consultant to stop the metratrexate and just take painkillers which that is what I’ve been doing!I'm having a massive flur up as I haven’t had any RA meds for over a month as before the
morning all!! I tested positive for covid on the 24th of February and was told by the Rheumatologist nurses and the consultant to stop the metratrexate and just take painkillers which that is what I’ve been doing!I'm having a massive flur up as I haven’t had any RA meds for over a month as before the
Mybirthday1975
in
NRAS
5 months ago
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Pegasys side effects
I was switched from 500 Hydroxyurea/day to 90mg Pegasys every two weeks. The pain in hips and thighs is substantial - headache also, but not as bothersome as the muscle pain. Has anyone else experience this on Pegasys. Also, has anyone tried CoQ10 for muscle pain and has it work? Thanks
I was switched from 500 Hydroxyurea/day to 90mg Pegasys every two weeks. The pain in hips and thighs is substantial - headache also, but not as bothersome as the muscle pain. Has anyone else experience this on Pegasys. Also, has anyone tried CoQ10 for muscle pain and has it work? Thanks
Dusty777
in
MPN Voice
5 months ago
distortion on Amsler grid
Hi, I’m 44 years old and developed eye pain a couple of weeks ago, it was pretty intense and mostly in the outer corner of my left eye though a little in my right eye too. I thought I had an eye infection so booked an eye test with an OCT scan, my eye test was fine, OCT scan was fine too and my prescription
Hi, I’m 44 years old and developed eye pain a couple of weeks ago, it was pretty intense and mostly in the outer corner of my left eye though a little in my right eye too. I thought I had an eye infection so booked an eye test with an OCT scan, my eye test was fine, OCT scan was fine too and my prescription
Phoenix_24
in
Macular Society
5 months ago
eylea injections
Hi everyone. I have the eyelea injections in both eyes, it is often painful for 3-4 days after and i always have bloodshot eyes. My question is, when should i return to work after these injections? I work in an acute mental health unit where there is risk of aggression and violence ?
Hi everyone. I have the eyelea injections in both eyes, it is often painful for 3-4 days after and i always have bloodshot eyes. My question is, when should i return to work after these injections? I work in an acute mental health unit where there is risk of aggression and violence ?
90rach
in
Macular Society
5 months ago
Pain in Left Eye
Hi Kind Friends, I am currently on 12.5 mg prednisone (tapering from 60 in Oct.) and weekly Actemra injections (about 4 months) Double vision from high prednisone has resolved as I have tapered. Occasionally I feel pain in my left eye, in the outer lower corner. It will hurt when I move my eye,
Hi Kind Friends, I am currently on 12.5 mg prednisone (tapering from 60 in Oct.) and weekly Actemra injections (about 4 months) Double vision from high prednisone has resolved as I have tapered. Occasionally I feel pain in my left eye, in the outer lower corner. It will hurt when I move my eye,
Lenore58
in
PMRGCAuk
5 months ago
First Injection of Pegasys
I FINALLY got approved for Pegasys, and am to pick it up at the pharmacy by Wednesday. My question is does the first injection happen in the Drs. office, or at home?? Were you given physical instructions for how to give the injection? I have written instructions that were sent to me with the approval
I FINALLY got approved for Pegasys, and am to pick it up at the pharmacy by Wednesday. My question is does the first injection happen in the Drs. office, or at home?? Were you given physical instructions for how to give the injection? I have written instructions that were sent to me with the approval
dogsandhorses
in
MPN Voice
5 months ago
Laser iridiridotomy
Hi all, I am a glaucoma suspect and on the list for LI. I need to make a decision whether or not to go ahead with this procedure. I was wondering if anyone (suspect) had it and what was the difference you felt post-procedure. I am suffering from dry eye and dull and occasional sharp pain at the
Hi all, I am a glaucoma suspect and on the list for LI. I need to make a decision whether or not to go ahead with this procedure. I was wondering if anyone (suspect) had it and what was the difference you felt post-procedure. I am suffering from dry eye and dull and occasional sharp pain at the
btsg09
in
Glaucoma UK
5 months ago
Coffee-drinker?
I've had glaucoma since 1988, many ops and drops. Have noticed that my eyes get very misty from time to time, which is a pain when you are having tests to get your driving licence back etc. Thought, blood sugar? That's all I need... Nope. Turns out it's COFFEE that's affecting me! No coffee, no
I've had glaucoma since 1988, many ops and drops. Have noticed that my eyes get very misty from time to time, which is a pain when you are having tests to get your driving licence back etc. Thought, blood sugar? That's all I need... Nope. Turns out it's COFFEE that's affecting me! No coffee, no
Hula48
in
Glaucoma UK
5 months ago
Faulty batch of Sperm wash solution - help please worried about FET transfer
Hello ladies, I am a bit worried and would like to speak to anyone else who have received the same message from their clinic as I am really lost and need some help. I had my eggs removed earlier last month and been informed the sperm wash solution used to create embryos was a faulty batch with low
Hello ladies, I am a bit worried and would like to speak to anyone else who have received the same message from their clinic as I am really lost and need some help. I had my eggs removed earlier last month and been informed the sperm wash solution used to create embryos was a faulty batch with low
Clementine2021
in
Fertility Network UK
5 months ago
Thanks for letting me join
I found out today I have to have injections into my right eye for macular, left eye is dry macular. not sure what’s happening on that one, I’m absolutely petrified, I didn’t ask any questions as I was too scared, I just wanted to get out. Can anyone tell me what will happen please. I had both cataracts
I found out today I have to have injections into my right eye for macular, left eye is dry macular. not sure what’s happening on that one, I’m absolutely petrified, I didn’t ask any questions as I was too scared, I just wanted to get out. Can anyone tell me what will happen please. I had both cataracts
marysuds
in
Macular Society
5 months ago
3 years Runniversary
A reminder popped up in my calendar - today is 3 years since those first intrepid steps for C25K Since then I've run more than 1,000 km. Longest run was 10k (if you look at the medal I got from the organisers, but both Garmin and NRC have me slightly less as I was so carried away I forgot to press
A reminder popped up in my calendar - today is 3 years since those first intrepid steps for C25K Since then I've run more than 1,000 km. Longest run was 10k (if you look at the medal I got from the organisers, but both Garmin and NRC have me slightly less as I was so carried away I forgot to press
Yesletsgo
Graduate
in
Couch to 5K
6 months ago
Diabetic Macular Ischemia
hi all just wondering if anyone has had ischemia in their good eye it looks like that is what I have had for a while but now it’s much worse and just wondered if anyone has been told they had it in both eyes and therefore the eye injections are not working. I can’t have steroids as I am a steroid responder
hi all just wondering if anyone has had ischemia in their good eye it looks like that is what I have had for a while but now it’s much worse and just wondered if anyone has been told they had it in both eyes and therefore the eye injections are not working. I can’t have steroids as I am a steroid responder
tallyho
in
Macular Society
6 months ago
Running after Retinal tear surgery
Hi everyone, I've had two retinal tears to my right eye in the space of 10 weeks and have had subsequent laser surgery for both tears. With the first tear, I waited at least 5 weeks, before I went back to running and had experienced my second tear at work and not whilst running. Has anyone had a retinal
Hi everyone, I've had two retinal tears to my right eye in the space of 10 weeks and have had subsequent laser surgery for both tears. With the first tear, I waited at least 5 weeks, before I went back to running and had experienced my second tear at work and not whilst running. Has anyone had a retinal
mcgu
in
Couch to 5K
6 months ago
Weird eyes
I have a mixed bag of symptoms, some classic hypo but others not so like weight loss and weird eyes. Sort of a bit staring and glassy looking. I have dry eyes and got told I had blepharitis but am careful to keep eyes clean and am on top of this. There not bulgy as such but can you have a mixture of
I have a mixed bag of symptoms, some classic hypo but others not so like weight loss and weird eyes. Sort of a bit staring and glassy looking. I have dry eyes and got told I had blepharitis but am careful to keep eyes clean and am on top of this. There not bulgy as such but can you have a mixture of
Fizzwhizz
in
Thyroid UK
6 months ago
Rectal prolapse - Constipation. Laxido
Hello. I have a rectal prolapse - like a tomato which comes outside my body. I get constipated and been given laxido. It was working well, but I am now getting liquid which bypasses my prolapse. I took the last one six days ago. I have soft motions and now this liquid. I also have a leaking bladder so
Hello. I have a rectal prolapse - like a tomato which comes outside my body. I get constipated and been given laxido. It was working well, but I am now getting liquid which bypasses my prolapse. I took the last one six days ago. I have soft motions and now this liquid. I also have a leaking bladder so
briarhillcat
in
IBS Network
6 months ago
Anyone else had this?
Hi everyone I am due my 10 weekly jab next week. Life has been hectic recently so I accept being really exhausted but I have come out in a very itchy rash on my back and arms plus I have really itchy red eyes. Not a pretty sight!!! Anyone else experienced anything similar? Thank you. Xx
Hi everyone I am due my 10 weekly jab next week. Life has been hectic recently so I accept being really exhausted but I have come out in a very itchy rash on my back and arms plus I have really itchy red eyes. Not a pretty sight!!! Anyone else experienced anything similar? Thank you. Xx
Mrsmr
in
Pernicious Anaemia Society
6 months ago
prednisone taper
I finally got an appointment today with the rheumatologist-May 28th. In the meantime, I would like to get off the prednisone, but not sure how to do it. My primary Dr told me to take 10 mg, but I was having some pain, mostly shoulder and upper arms, so I increased it to 12.5 for the past week. I’m gaining
I finally got an appointment today with the rheumatologist-May 28th. In the meantime, I would like to get off the prednisone, but not sure how to do it. My primary Dr told me to take 10 mg, but I was having some pain, mostly shoulder and upper arms, so I increased it to 12.5 for the past week. I’m gaining
Aqua47
in
PMRGCAuk
6 months ago
IOP and Dry Eye Drops
Has anyone experienced side effects from using Brinzolamide and Bimatoprost drops together with dry eye drops?
Has anyone experienced side effects from using Brinzolamide and Bimatoprost drops together with dry eye drops?
Bill_Evans
in
Glaucoma UK
6 months ago
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