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Experiences with
Cinchocaine / Prednisolone hexanoate
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Anti viral?
Does anyone know if they're still giving anti viral medication for a positive covid patient? I'm on rituximab and azathioprine aswell as prednisolone. I've not yet done a test but have been feeling breathless and coughing more than normal. I'm not allowed to have my covid or flu vaccinations due to
Does anyone know if they're still giving anti viral medication for a positive covid patient? I'm on rituximab and azathioprine aswell as prednisolone. I've not yet done a test but have been feeling breathless and coughing more than normal. I'm not allowed to have my covid or flu vaccinations due to
Vqueen
in
Vasculitis UK
9 months ago
Helpful forum
Last week I posted about receiving a PMR diagnosis in December and had ongoing low level headaches and fevers along with my rheumatologist recommending a drop of Pred from 20 mg to ten over two weeks. Last weekend I developed increased scalp tenderness, and increased neck and shoulder pain, so increased
Last week I posted about receiving a PMR diagnosis in December and had ongoing low level headaches and fevers along with my rheumatologist recommending a drop of Pred from 20 mg to ten over two weeks. Last weekend I developed increased scalp tenderness, and increased neck and shoulder pain, so increased
Bummed24
in
PMRGCAuk
7 months ago
PMR after GCA
Hi I’m in need of some advice. I’ve been diagnosed with PMR after being off Prednisone for one year. I started on 15mg of Pred but symptoms not covered. My GP advised to go up to 20mg but two days and I am in pain. Not sure how long it takes to kick in or should I be thinking of increasing the dose.
Hi I’m in need of some advice. I’ve been diagnosed with PMR after being off Prednisone for one year. I started on 15mg of Pred but symptoms not covered. My GP advised to go up to 20mg but two days and I am in pain. Not sure how long it takes to kick in or should I be thinking of increasing the dose.
GCAVictim
in
PMRGCAuk
7 months ago
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Advice on medication
Over the last couple of weeks I have had pains in my stomach and for longer than that regular bladder problems. Always feeling I need to go to the toilet. I am on 3.5 mg of prednisolone and am wondering if it has anything to do with the other pills I am taking each day. 1 -20 mg omeprazole, 1 - 1000
Over the last couple of weeks I have had pains in my stomach and for longer than that regular bladder problems. Always feeling I need to go to the toilet. I am on 3.5 mg of prednisolone and am wondering if it has anything to do with the other pills I am taking each day. 1 -20 mg omeprazole, 1 - 1000
Callymac
in
PMRGCAuk
9 months ago
1mg Enteric Coated Prednisolone tablets
Does anybody get Enteric coated Pred in 1mg tablets prescribed?...My doctor just prescribed them to be gentler on my stomach and sent the prescription to the chemist and he said he's never known them in a 1mg tablet and he doubts they even do them ..he's given me the prescription to try somewhere else
Does anybody get Enteric coated Pred in 1mg tablets prescribed?...My doctor just prescribed them to be gentler on my stomach and sent the prescription to the chemist and he said he's never known them in a 1mg tablet and he doubts they even do them ..he's given me the prescription to try somewhere else
pammy_hyland
in
PMRGCAuk
9 months ago
PMR back after yoyoing from 3mg to 8mg for 12 days, then back to 4mg.
I just don't know what to do any more! Just over 26months on Prednisone. Tapered down to 0 and had to jump to 5. Tapered Dead Slow to less than 1mg and had to jump again to 5. Tapered to 3mg. and jumped to 8 for 14 days and felt wonderful, then settled to 5mg. Have done the temporary jump twice.
I just don't know what to do any more! Just over 26months on Prednisone. Tapered down to 0 and had to jump to 5. Tapered Dead Slow to less than 1mg and had to jump again to 5. Tapered to 3mg. and jumped to 8 for 14 days and felt wonderful, then settled to 5mg. Have done the temporary jump twice.
RaisinBran
in
PMRGCAuk
7 months ago
Failing ADT
Hi- I thought I would seek some advice before I meet with my MO tomorrow morning. I have responded well to treatment of metPC since my dx 11+ years ago. About 2+ years ago my PSA became measurable and was rising. After about a year or so I think it reached .37. Following a PSMA scan, my MO saw only
Hi- I thought I would seek some advice before I meet with my MO tomorrow morning. I have responded well to treatment of metPC since my dx 11+ years ago. About 2+ years ago my PSA became measurable and was rising. After about a year or so I think it reached .37. Following a PSMA scan, my MO saw only
jfoesq
in
Advanced Prostate Cancer
7 months ago
AIHdx
Hi! New here. I had been experiencing vague, debilitating symptoms occasionally for a few years, fatigue, nausea, chronic back pain, itchy skin, brain fog, etc. November’23 symptoms became acute, as well as dark urine and jaundice and I was basically incapacitated. Hospitalized December’23 with ALT
Hi! New here. I had been experiencing vague, debilitating symptoms occasionally for a few years, fatigue, nausea, chronic back pain, itchy skin, brain fog, etc. November’23 symptoms became acute, as well as dark urine and jaundice and I was basically incapacitated. Hospitalized December’23 with ALT
AIGal73
in
British Liver Trust
7 months ago
biceps pain
Hi, I am currently at 4.75 mg of prednisone and I am pain free in shoulder , neck , thighs but have developed severe pain in bicep area. I thought it might be PMR returning so upped my dosage by 5 mg for a week which didn’t seem to change anything. Wondering if anyone has any experience or insights
Hi, I am currently at 4.75 mg of prednisone and I am pain free in shoulder , neck , thighs but have developed severe pain in bicep area. I thought it might be PMR returning so upped my dosage by 5 mg for a week which didn’t seem to change anything. Wondering if anyone has any experience or insights
Fishtacoqueen
in
PMRGCAuk
7 months ago
Another update on potential meds intolerance
Hey everyone,I have trouble tolerating thyroid meds despite trying different combos, even different NDT med types etc, while it hasn't been a problem before, it was smooth sailing on Armour and great increasing, until I crashed mid 2017. Currently on 2.375 gr Armour and 5 mcg Thybon t3. My salivary cortisol
Hey everyone,I have trouble tolerating thyroid meds despite trying different combos, even different NDT med types etc, while it hasn't been a problem before, it was smooth sailing on Armour and great increasing, until I crashed mid 2017. Currently on 2.375 gr Armour and 5 mcg Thybon t3. My salivary cortisol
Incoguto
in
Thyroid UK
7 months ago
IBS amd painful spasms in colon daily especially mornings, 76 yrs old, many other health issues, on prednisone for 7 yrs re PMR,
painful spasms daily especially mornings 76 yr s old, IBS since in my early 30 s , spasms on colon diagnosed few yrs ago, many back issues, cant take anti inflammatory meds, on pred for 7 yrs re PMR , tapering currently to 5 mgs pred, but thesemorning spasms and every few days constipation getting me
painful spasms daily especially mornings 76 yr s old, IBS since in my early 30 s , spasms on colon diagnosed few yrs ago, many back issues, cant take anti inflammatory meds, on pred for 7 yrs re PMR , tapering currently to 5 mgs pred, but thesemorning spasms and every few days constipation getting me
arvine
in
IBS Network
7 months ago
prednisone and side effects/ dosage related
hi I am presently on 8 mg for PMR. I’ve been on 8 mg for a couple of weeks. I’m wondering do people have food cravings and weight gain issues on 8 mg. I find I have to completely watch every morsel of food I put in my mouth and I must stay low-carb just to maintain, I lose very very very slowly but
hi I am presently on 8 mg for PMR. I’ve been on 8 mg for a couple of weeks. I’m wondering do people have food cravings and weight gain issues on 8 mg. I find I have to completely watch every morsel of food I put in my mouth and I must stay low-carb just to maintain, I lose very very very slowly but
Bikergirl68
in
PMRGCAuk
7 months ago
Irritable bowel and painful colon spasms
along with several other issues, limiting my mobility for long time now, at 76 , been diagnosed yr or so ago with spastic colon, so every morning for 2-3,hrs am in pain because of spasms, until able to go to bathroom 3-4 times, it s realy getting me down, recently muscle tears in gluteus and hamstring
along with several other issues, limiting my mobility for long time now, at 76 , been diagnosed yr or so ago with spastic colon, so every morning for 2-3,hrs am in pain because of spasms, until able to go to bathroom 3-4 times, it s realy getting me down, recently muscle tears in gluteus and hamstring
arvine
in
NRAS
7 months ago
GCA Ear pressure and stiff neck
I have GCA/PMR for the second time. For the past 6 weeks I’ve been taking 3mg prednisone and Actemra injections every other week. Since then, I have had ear pressure, and a throat that feels swollen. I’ve read that GCA can cause ear problems. Has anyone else experienced this? There are no visual
I have GCA/PMR for the second time. For the past 6 weeks I’ve been taking 3mg prednisone and Actemra injections every other week. Since then, I have had ear pressure, and a throat that feels swollen. I’ve read that GCA can cause ear problems. Has anyone else experienced this? There are no visual
Pamk1949
in
PMRGCAuk
7 months ago
Should I care Pred?
As a PMR sufferer, I’m wondering if it is a good idea to carry, say, 20mg of Prednisolone when out and about. I understand that a sudden flare or, worse, development of GCA symptoms, would make this a prudent course of action. Thx
As a PMR sufferer, I’m wondering if it is a good idea to carry, say, 20mg of Prednisolone when out and about. I understand that a sudden flare or, worse, development of GCA symptoms, would make this a prudent course of action. Thx
Mervetheswerve
in
PMRGCAuk
9 months ago
Enhertu side effect: pneumonitis (lung inflammation)
Hi all, After 3 years on oral meds I had to switch to IV chemo in December and started with Enhertu. After my 2nd infusion I developed pneumonitis (lung inflammation), which is a known risk with Enhertu and can be dangerous if left untreated. The main intial symptom is a persistent dry cough, indicating
Hi all, After 3 years on oral meds I had to switch to IV chemo in December and started with Enhertu. After my 2nd infusion I developed pneumonitis (lung inflammation), which is a known risk with Enhertu and can be dangerous if left untreated. The main intial symptom is a persistent dry cough, indicating
LDR1
in
SHARE Metastatic Breast Cancer
7 months ago
Radiation?
just got my psa results after my first round of 4 months leuprolide and 3 months Zytiga and prednisone…..initially 18 now 0.04. Nurse told me that my MO would like to see me early to discuss more radiation( recent psma found areas of avidity only in prostate bed……initial tx was 48 grey imrt back in
just got my psa results after my first round of 4 months leuprolide and 3 months Zytiga and prednisone…..initially 18 now 0.04. Nurse told me that my MO would like to see me early to discuss more radiation( recent psma found areas of avidity only in prostate bed……initial tx was 48 grey imrt back in
Tommyj2
in
Advanced Prostate Cancer
7 months ago
Leflunomide
I was diagnosed with PMR in 2019 …started on 15 mgs of prednisone with great effect . I have been tapering down since .. getting down to 3/4 mgs over the years but still in pain . I saw my rheumatologist today and he has prescribed me Leflunomide to take with prednisone. I have been on a really slow
I was diagnosed with PMR in 2019 …started on 15 mgs of prednisone with great effect . I have been tapering down since .. getting down to 3/4 mgs over the years but still in pain . I saw my rheumatologist today and he has prescribed me Leflunomide to take with prednisone. I have been on a really slow
Magictherabbit
in
PMRGCAuk
7 months ago
Do I have PMR?
I did some research on my own after having these pains in my shoulders, upper arms, hips and lower back. Getting out of bed, turning over in bed, getting up from a chair, or reaching for something was very painful. I’ve been having back issues with a slipped vertebrae for about 2 years. I’ve had 3 epidural
I did some research on my own after having these pains in my shoulders, upper arms, hips and lower back. Getting out of bed, turning over in bed, getting up from a chair, or reaching for something was very painful. I’ve been having back issues with a slipped vertebrae for about 2 years. I’ve had 3 epidural
Aqua47
in
PMRGCAuk
7 months ago
Coming Off Calquence (
I was put on Calquence (acalabrutinibam) 2 years ago due to Hemolytic Anemia. We tried prednisone for 3 years but every time they took me off my hemoglobin would drop and eventually it was determined I needed treatment. As of now my numbers are looking really good and I'm considering going off of it
I was put on Calquence (acalabrutinibam) 2 years ago due to Hemolytic Anemia. We tried prednisone for 3 years but every time they took me off my hemoglobin would drop and eventually it was determined I needed treatment. As of now my numbers are looking really good and I'm considering going off of it
susq9948
in
CLL Support
7 months ago
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