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Cinchocaine / Prednisolone hexanoate
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PMR symptoms trumps all other indicators
Following a comprehensive discussion with my GP re my PMR, in which I used advice provided on this forum, I was delighted to obtain considerable understanding and support going forward on my PMR journey. With regular monitoring, especially my diabetes type 2 and BP and regular blood tests etc. I was
Following a comprehensive discussion with my GP re my PMR, in which I used advice provided on this forum, I was delighted to obtain considerable understanding and support going forward on my PMR journey. With regular monitoring, especially my diabetes type 2 and BP and regular blood tests etc. I was
Thiago1396
in
PMRGCAuk
9 months ago
Papules on Face and Forehead
I was DX with C-Anca GPA in 2017. My treatment was Azathioprine, Prednisone and Rituxan. I went through about 4 months of pain and suffering before I was DX as doctors could not figure out what was wrong with me. I can't remember if it was before my DX or after when I started on medicine that I began
I was DX with C-Anca GPA in 2017. My treatment was Azathioprine, Prednisone and Rituxan. I went through about 4 months of pain and suffering before I was DX as doctors could not figure out what was wrong with me. I can't remember if it was before my DX or after when I started on medicine that I began
Hidden
in
Vasculitis UK
5 months ago
Exhausted now that I’m down to 7mg
Well I’m finally down to 7 mg Prednisone and I’m feeling exhausted. Doing ok as far as pain is concerned but feel as if I’ve run 10 miles. Diagnosed with PMR in 2016 and have slowly reduced to get to this point. My Doc leaves it up to me how I reduce and I’ve mostly followed the guidance given here
Well I’m finally down to 7 mg Prednisone and I’m feeling exhausted. Doing ok as far as pain is concerned but feel as if I’ve run 10 miles. Diagnosed with PMR in 2016 and have slowly reduced to get to this point. My Doc leaves it up to me how I reduce and I’ve mostly followed the guidance given here
rocketman42
in
PMRGCAuk
5 months ago
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Can you describe a flare?
I know this may seem like a daft question to some of you experienced PMR sufferers but when you say flare, does this mean returning to the days of chronic pain in the shoulders, groin and wherever or is it just some pain has returned and if this is the case, to what degree? For example. I no longer
I know this may seem like a daft question to some of you experienced PMR sufferers but when you say flare, does this mean returning to the days of chronic pain in the shoulders, groin and wherever or is it just some pain has returned and if this is the case, to what degree? For example. I no longer
Markandevie
in
PMRGCAuk
5 months ago
Question about muscle weakness
Hi all, I've been suffering from GCA for about 16 months now, and I've been wondering about a few things relating to muscle weakness, breathlessness, and the like. Here goes: My understanding is that muscle weakness is caused by a lack of 02 to the muscles due to the inflammation of the blood vessels
Hi all, I've been suffering from GCA for about 16 months now, and I've been wondering about a few things relating to muscle weakness, breathlessness, and the like. Here goes: My understanding is that muscle weakness is caused by a lack of 02 to the muscles due to the inflammation of the blood vessels
montebello
in
PMRGCAuk
5 months ago
Side Effects at 1 year
Approaching my 1 year date of treatment. Followed the Peace-1 trial Lupron (3 month injection) + 250mg Abiraterone/ 10mg Prednisone + 6 cycles Docetaxel + Xgeva 28 days/ adjusted to 90 days I adopte the Mediterranean diet and have used Pickleball (4.5 player) to exercise 6 days per week. Used dumbbells
Approaching my 1 year date of treatment. Followed the Peace-1 trial Lupron (3 month injection) + 250mg Abiraterone/ 10mg Prednisone + 6 cycles Docetaxel + Xgeva 28 days/ adjusted to 90 days I adopte the Mediterranean diet and have used Pickleball (4.5 player) to exercise 6 days per week. Used dumbbells
TMcgee
in
Advanced Prostate Cancer
5 months ago
Tapering
Might be a silly question, so apologies if it is, when slowly reducing prednisolone,are the adrenals being asked “to join the party” and if they aren’t, is that when you can get some feelings of fatigue etc while you wait for them to wake up. Is that why we taper slowly to give them time?
Might be a silly question, so apologies if it is, when slowly reducing prednisolone,are the adrenals being asked “to join the party” and if they aren’t, is that when you can get some feelings of fatigue etc while you wait for them to wake up. Is that why we taper slowly to give them time?
Nanatoo
in
PMRGCAuk
9 months ago
Prednisolone and Surgery
Hi, I have been taking steroids now for at least 6 years. I am currently taking 20mg daily. I have read several articles on this site regarding the need for extra doses when undergoing surgery. Is this correct and if so what are the likely consequences of extra not given.Your expert knowledge would be
Hi, I have been taking steroids now for at least 6 years. I am currently taking 20mg daily. I have read several articles on this site regarding the need for extra doses when undergoing surgery. Is this correct and if so what are the likely consequences of extra not given.Your expert knowledge would be
maxxgarry
in
PMRGCAuk
9 months ago
flu shot reaction with PMR
I had a flu shot a month ago and I am on 5mg of prednisone for PMR. My arm has been hurting since then. Has anyone else had this problem.
I had a flu shot a month ago and I am on 5mg of prednisone for PMR. My arm has been hurting since then. Has anyone else had this problem.
Joanecindy
in
PMRGCAuk
5 months ago
Several Peeing Wake Ups Nightly
Hi all - hoping for some breakthrough I haven't read yet ;) Recall I am 50yr old - PCA, Gleason 9 - casodex to start, now triplet (2nd session of 6) I am not getting the rest needed to fight this beast nor to function properly. I am waking several times each and every night to pee. I am on Flomax
Hi all - hoping for some breakthrough I haven't read yet ;) Recall I am 50yr old - PCA, Gleason 9 - casodex to start, now triplet (2nd session of 6) I am not getting the rest needed to fight this beast nor to function properly. I am waking several times each and every night to pee. I am on Flomax
Yzinger
in
Advanced Prostate Cancer
5 months ago
Abiraterone edema management
One of the fun things I am getting as an SE while on lupron/abiraterone/prednisone is fluid retention. Edema and getting up to pee 3-4 times nightly (losing 3-4 lbs of weight during the night.) What if anything can be done about this?
One of the fun things I am getting as an SE while on lupron/abiraterone/prednisone is fluid retention. Edema and getting up to pee 3-4 times nightly (losing 3-4 lbs of weight during the night.) What if anything can be done about this?
Derf4223
in
Advanced Prostate Cancer
5 months ago
Fed up with the PMR pain!
Hello, I've had PMR for about 2.5 years. And apart from the beginning, when the Doctor put me on 15mg of Prednisolone, I've had (varying degrees of) pain every day. I keep going up and down the steroid dosage scale and am currently on 2mg....but not managing very well. I would love to get off these
Hello, I've had PMR for about 2.5 years. And apart from the beginning, when the Doctor put me on 15mg of Prednisolone, I've had (varying degrees of) pain every day. I keep going up and down the steroid dosage scale and am currently on 2mg....but not managing very well. I would love to get off these
Hidden
in
PMRGCAuk
9 months ago
tapering prednisone to fast
I was diagnosed with PMR in June 2023. I was treated with high dose prednisone as I had queried GCA but negative on biopsy. I have been tapering and every time I get to15 mgs I get symptoms . Last time I developed aching ankles ,fatigue and myCRP went up . Rheumy put me back to 20 mgs and added
I was diagnosed with PMR in June 2023. I was treated with high dose prednisone as I had queried GCA but negative on biopsy. I have been tapering and every time I get to15 mgs I get symptoms . Last time I developed aching ankles ,fatigue and myCRP went up . Rheumy put me back to 20 mgs and added
Elvied
in
PMRGCAuk
5 months ago
skin lesions that are not typical bruising from prednisone
Hi everyone, has anyone experienced skin lesions that begin by appearing to be some kind of an insect bite with tremendous itching and irritation and a lot of redness and then develop dark patches that look almost like scabs but aren’t. One of these had redness going all around my arm and another goes
Hi everyone, has anyone experienced skin lesions that begin by appearing to be some kind of an insect bite with tremendous itching and irritation and a lot of redness and then develop dark patches that look almost like scabs but aren’t. One of these had redness going all around my arm and another goes
Kt1943
in
PMRGCAuk
5 months ago
gca/pmr
further to recent chat. Have had blood tests & result from rheumatology is that my CRP is 1 so absolutely no signs of gca or PMR any different. I am now on 7 mg Prednisolone from 50 last august. They will not up my dose. Have had both knees & hips xrayed but no results back yet. The pain in my
further to recent chat. Have had blood tests & result from rheumatology is that my CRP is 1 so absolutely no signs of gca or PMR any different. I am now on 7 mg Prednisolone from 50 last august. They will not up my dose. Have had both knees & hips xrayed but no results back yet. The pain in my
CavalierKC3
in
PMRGCAuk
9 months ago
PSA increase nearly one year after triplet therapy (mHSPC), what's next?
Hello everyone, thank you for all your help for a year. My dad went from a high of 3103 PSA to a nadir of 44. He unfortunately couldn't reach a <1 result but it had stabilized for a few months after his docetaxel + zytiga + prednisone. Unfortunately his new result is 67 PSA exactly a year since diagnosis
Hello everyone, thank you for all your help for a year. My dad went from a high of 3103 PSA to a nadir of 44. He unfortunately couldn't reach a <1 result but it had stabilized for a few months after his docetaxel + zytiga + prednisone. Unfortunately his new result is 67 PSA exactly a year since diagnosis
Sissel25
in
Advanced Prostate Cancer
5 months ago
GCA or TMJ
Started with PMR in September 2022 and now tapered to 4.5 and no symptoms. Using the slow taper, I’m to go to 4 tomorrow. In the last 3 days I’ve had a little niggle in the right side of my jaw. No headaches. The niggles go away within an hour of taking my prednisone. If it is GCA, do I need to up the
Started with PMR in September 2022 and now tapered to 4.5 and no symptoms. Using the slow taper, I’m to go to 4 tomorrow. In the last 3 days I’ve had a little niggle in the right side of my jaw. No headaches. The niggles go away within an hour of taking my prednisone. If it is GCA, do I need to up the
Spartans1
in
PMRGCAuk
5 months ago
Can PMR without Prednisone lead to GCA?
I understand that taking Prednisone for PMR reduces the inflammation but does not change the trajectory or the PMR process. So is it not the case that the same applies to GCA? PMR without Prednisone doesn't "cause" GCA, but if GCA is present the Prednisone will reduce the inflammation thus reducing
I understand that taking Prednisone for PMR reduces the inflammation but does not change the trajectory or the PMR process. So is it not the case that the same applies to GCA? PMR without Prednisone doesn't "cause" GCA, but if GCA is present the Prednisone will reduce the inflammation thus reducing
kp60
in
PMRGCAuk
5 months ago
covid 19 antiviral meds
just tested positive Covid 19, not sure whether to take antiviral meds this time. Last covid infection I did take and shortly after recovery from Infection was diagnosed with PMR. I’m currently on 19mg prednisolone.
just tested positive Covid 19, not sure whether to take antiviral meds this time. Last covid infection I did take and shortly after recovery from Infection was diagnosed with PMR. I’m currently on 19mg prednisolone.
Scarysit
in
PMRGCAuk
9 months ago
Struggling
Hi everyone, I am struggling to find out what is wrong still. Its been about 4 weeks since the dogs attacked mine and ever since my health has gone downhill. I was doing so well before. Suddenly started getting really debilitating pains in my right side so had an xray yesterday and waiting for results
Hi everyone, I am struggling to find out what is wrong still. Its been about 4 weeks since the dogs attacked mine and ever since my health has gone downhill. I was doing so well before. Suddenly started getting really debilitating pains in my right side so had an xray yesterday and waiting for results
Mellywelly
in
Lung Conditions Community Forum
5 months ago
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