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Cinchocaine / Prednisolone hexanoate
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Where should I go from here? Reduced by doc from 6 Pred to 2 and now suffering
Having been told by 3 doctors to try to get off Prednisolone so I could be assessed by specialist at hospital (as no doctor felt able to confirm I really had PMR although on steroids for 2 years!) I reduced from 6 to 2 Pred in 8 weeks. Result: much itching when reducing down from 4 to 3 and now, at 2
Having been told by 3 doctors to try to get off Prednisolone so I could be assessed by specialist at hospital (as no doctor felt able to confirm I really had PMR although on steroids for 2 years!) I reduced from 6 to 2 Pred in 8 weeks. Result: much itching when reducing down from 4 to 3 and now, at 2
CupcakeGalore
in
PMRGCAuk
9 months ago
Blood Tests
Hi, I have weird asthma, am on maximum therapy and wondered what effect high dose antihistamines and prednisolone have on your blood test results. Every time I ask my consultant I'm told it's irrelevant, also is our medication taken into account when we complete breathing tests? The technician who
Hi, I have weird asthma, am on maximum therapy and wondered what effect high dose antihistamines and prednisolone have on your blood test results. Every time I ask my consultant I'm told it's irrelevant, also is our medication taken into account when we complete breathing tests? The technician who
LottieB36
in
Asthma Community Forum
9 months ago
Flare up
Over the last year I was in hospital for 6 months Arterial leg ulcer treated with angio to clear artery, then maggots and dressing. Ulcer still there with "satellites ". On diabetic yearly follow up sound ro be Via B12 deficient, have just completed 6 injections. Last February had a fall out of our
Over the last year I was in hospital for 6 months Arterial leg ulcer treated with angio to clear artery, then maggots and dressing. Ulcer still there with "satellites ". On diabetic yearly follow up sound ro be Via B12 deficient, have just completed 6 injections. Last February had a fall out of our
Jocelyn344
in
PMRGCAuk
9 months ago
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Lanzaprozole and magnesium deficiency
Hi all, I was diagnosed with GCA in 2018. With the help and support of this group I came through some tough times, and will always be grateful for that. After a very gradual taper, I have now completed 13 months without prednisolone, and, fingers crossed, the GCA is still quiet. I am still having sub-cutaneous
Hi all, I was diagnosed with GCA in 2018. With the help and support of this group I came through some tough times, and will always be grateful for that. After a very gradual taper, I have now completed 13 months without prednisolone, and, fingers crossed, the GCA is still quiet. I am still having sub-cutaneous
Dontwannabesick
in
PMRGCAuk
9 months ago
Adrenals
Morning everyone. This is my first post on here. I was diagnosed with GCA in August 2022 and have been tapering down the Prednisolone to 5mg. I also take Tocilizumab and Methotrexate as I’ve had a difficult time with the Prednisolone so many side effects. How do I know if my adrenal glands are working
Morning everyone. This is my first post on here. I was diagnosed with GCA in August 2022 and have been tapering down the Prednisolone to 5mg. I also take Tocilizumab and Methotrexate as I’ve had a difficult time with the Prednisolone so many side effects. How do I know if my adrenal glands are working
Noni71
in
PMRGCAuk
9 months ago
EGPA and Cancer
Hi Every one I was diagnosed with EGPA about 5 years ago. I have been on Methotrexate since then and on and off low doses of Prednisolone. I have hardly had any symptoms . However in February this year I was diagnosed with womb cancer, I had a hysterectomy which be re moved the cancer and chemo and
Hi Every one I was diagnosed with EGPA about 5 years ago. I have been on Methotrexate since then and on and off low doses of Prednisolone. I have hardly had any symptoms . However in February this year I was diagnosed with womb cancer, I had a hysterectomy which be re moved the cancer and chemo and
Farnorth
in
Vasculitis UK
10 months ago
Increase dosage and taper
I have been managing my PMR for seven years, and on prednisone for five of those years after thinking I could manage it withou meds. Dumb idea. I can taper down to 4mg or 5mg, but have to then increase to a higher dosage to address a reoccurring pain and numbness in arms. Is there a magical formula
I have been managing my PMR for seven years, and on prednisone for five of those years after thinking I could manage it withou meds. Dumb idea. I can taper down to 4mg or 5mg, but have to then increase to a higher dosage to address a reoccurring pain and numbness in arms. Is there a magical formula
outdoornut
in
PMRGCAuk
7 months ago
Insufficiency Fracture - likely cause - Prednisilone
I saw an orthopaedic Fracture surgeon last week following an MRI on my right knee to investigate knee pain. She reported a small meniscus tear and a small piece of detached cartilage. However she also reported an Insufficiency Fracture in the femur which she thinks may have been caused by Prednisolone
I saw an orthopaedic Fracture surgeon last week following an MRI on my right knee to investigate knee pain. She reported a small meniscus tear and a small piece of detached cartilage. However she also reported an Insufficiency Fracture in the femur which she thinks may have been caused by Prednisolone
Greengarth
in
PMRGCAuk
10 months ago
"Castration resistant"
What is the relevance of this term and how does one know if it applies to them? I am stage 4, three mets in the back for which I have already received radiation treatment along with same on prostate. I have had 2 Eligard shots and been on 500 mgs of Abiraterone plus 5mgs of prednisone daily. Can I
What is the relevance of this term and how does one know if it applies to them? I am stage 4, three mets in the back for which I have already received radiation treatment along with same on prostate. I have had 2 Eligard shots and been on 500 mgs of Abiraterone plus 5mgs of prednisone daily. Can I
GrantB47
in
Advanced Prostate Cancer
7 months ago
Nasty fall and Lupus
hi all, I haven’t been writing on here for some time. On 6/7/23 I fell out of my disability stair lift from the top of our steep stairs at home! I flipped over, landed on my back and fell down the stairs and landed on the hallway floor on my head. I knocked myself out, fractured my skull, had a brain
hi all, I haven’t been writing on here for some time. On 6/7/23 I fell out of my disability stair lift from the top of our steep stairs at home! I flipped over, landed on my back and fell down the stairs and landed on the hallway floor on my head. I knocked myself out, fractured my skull, had a brain
Bowenlady
in
LUPUS UK
10 months ago
Abiraterone, Prednisone, Apalutamide combo Improves Prostate Cancer Outcomes, Leaves HRQoL Unaffected
Oncological outcomes improved with the addition of abiraterone acetate (Zytiga) plus prednisone (AAP) and apalutamide (Erleada) after radical prostatectomy and did not significantly affect health-related quality of life. https://www.targetedonc.com/view/abiraterone-prednisone-apalutamide-improves-prostate-cancer-outcomes-leaves-hrqol-unaffected
Oncological outcomes improved with the addition of abiraterone acetate (Zytiga) plus prednisone (AAP) and apalutamide (Erleada) after radical prostatectomy and did not significantly affect health-related quality of life. https://www.targetedonc.com/view/abiraterone-prednisone-apalutamide-improves-prostate-cancer-outcomes-leaves-hrqol-unaffected
Maxone73
in
Advanced Prostate Cancer
7 months ago
To walk or not to walk?
I've recently been diagnosed with PMR and started on 15mg of Prednisolone which has now been reduced to 12mg. The meds are defiitely working but the stiffness has come back over the last few days. Do people 'work through it' and move and exercise or rest? I've tried both, and the pain and stiffness seem
I've recently been diagnosed with PMR and started on 15mg of Prednisolone which has now been reduced to 12mg. The meds are defiitely working but the stiffness has come back over the last few days. Do people 'work through it' and move and exercise or rest? I've tried both, and the pain and stiffness seem
CupOfEarlGrey
in
PMRGCAuk
10 months ago
PET scan
I was diagnosed with PMR in October last year started on 60 mgs prednisol which relieved my symptoms in 3 or 4 days.Started reducing by 10 mgs every 4 weeks in December. Saw the medicina interna (I live in Spain) in July this year who suggested GCA and increased my pred to 60 again reducing by 10 mgs
I was diagnosed with PMR in October last year started on 60 mgs prednisol which relieved my symptoms in 3 or 4 days.Started reducing by 10 mgs every 4 weeks in December. Saw the medicina interna (I live in Spain) in July this year who suggested GCA and increased my pred to 60 again reducing by 10 mgs
NormaB
in
PMRGCAuk
10 months ago
Pain in neck, shoulders and arms
I have been experiencing pain in my neck shoulders and arms for almost 2 years. At one point well over a year ago, I upped my Prednisone from 10 mg to 20 mg on my doctor’s advice. It helped a little but not enough. I might have been wrong but I did not want to take any more Prednisone than the 20. I
I have been experiencing pain in my neck shoulders and arms for almost 2 years. At one point well over a year ago, I upped my Prednisone from 10 mg to 20 mg on my doctor’s advice. It helped a little but not enough. I might have been wrong but I did not want to take any more Prednisone than the 20. I
Miacaro45
in
PMRGCAuk
7 months ago
Getting to the End of the Road...
Hi - I'm currently on .5 mg, and on Monday I will reduce down to .25 mg of prednisone for 2 weeks, AND THEN THAT'S IT (fingers crossed). Yes, I'm apprehensive about "the end", wondering if the inflammation will just come back or if it will finally be over. I have plenty of prednisone in case I need
Hi - I'm currently on .5 mg, and on Monday I will reduce down to .25 mg of prednisone for 2 weeks, AND THEN THAT'S IT (fingers crossed). Yes, I'm apprehensive about "the end", wondering if the inflammation will just come back or if it will finally be over. I have plenty of prednisone in case I need
canadacando
in
PMRGCAuk
7 months ago
Normal cortisol levels
Hello, I'm 52, lost my job and my way as a human. I was diagnosed with PMR in Sept 2022. I have been prescribed higher mg of prednisolone however 10mg/7.5mg alternate days for the last year until a PET scan in Sept this year. I was advised to drop to 4mg immediately for the scan. The scan showed no
Hello, I'm 52, lost my job and my way as a human. I was diagnosed with PMR in Sept 2022. I have been prescribed higher mg of prednisolone however 10mg/7.5mg alternate days for the last year until a PET scan in Sept this year. I was advised to drop to 4mg immediately for the scan. The scan showed no
Bargin_ninja
in
PMRGCAuk
10 months ago
PMR diagnosis
I am a 68 year old female who was diagnosed with PMR in December. I began on Prednisone 20 mg, and responded well, so my Prednisone was reduced to 15 mg for one week, followed by 10 mg currently. CRP 41.8, ESR 45.During that time my headaches continued, and possibly worsened. They are mostly constant
I am a 68 year old female who was diagnosed with PMR in December. I began on Prednisone 20 mg, and responded well, so my Prednisone was reduced to 15 mg for one week, followed by 10 mg currently. CRP 41.8, ESR 45.During that time my headaches continued, and possibly worsened. They are mostly constant
Bummed24
in
PMRGCAuk
7 months ago
Slow healing.
Have been on Prednisolone for 5years , have currently tried dropping to 7mg. I had a bad leg wound on August 15th .It is taking a long time to heal . My wound clinic girl 's say it is my age and because I am on steriods .I will try to keep dropping steadily Will it be better to have painkillers and
Have been on Prednisolone for 5years , have currently tried dropping to 7mg. I had a bad leg wound on August 15th .It is taking a long time to heal . My wound clinic girl 's say it is my age and because I am on steriods .I will try to keep dropping steadily Will it be better to have painkillers and
Barbaracole
in
PMRGCAuk
10 months ago
infections
I’m in 20mg mtx.. had bad chest infection so was on antibiotics. They didn’t clear it so was on prednisone and it got better, two weeks later it was back .. no sleep, wheezing.. now on steroid inhaler.. also ears popping and stuffy feeling!!! Feeling so low but had X-ray and waiting for results!!! Stopped
I’m in 20mg mtx.. had bad chest infection so was on antibiotics. They didn’t clear it so was on prednisone and it got better, two weeks later it was back .. no sleep, wheezing.. now on steroid inhaler.. also ears popping and stuffy feeling!!! Feeling so low but had X-ray and waiting for results!!! Stopped
Jakey2020
in
NRAS
7 months ago
Prednisone Taper
This is the second time that I have jumped up from 3mg to 8mg because of severe leg and knee pain, shoulder etc and a lot of fatigue. This was recommended and works beautifully. After two weeks I am suppose to drop back to 3mg but I feel so good, I don’t want to. What do my experts think? Thank
This is the second time that I have jumped up from 3mg to 8mg because of severe leg and knee pain, shoulder etc and a lot of fatigue. This was recommended and works beautifully. After two weeks I am suppose to drop back to 3mg but I feel so good, I don’t want to. What do my experts think? Thank
RaisinBran
in
PMRGCAuk
7 months ago
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