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Experiences with
Cinchocaine / Prednisolone hexanoate
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Frequent Eye Prescription Changes and Cataract Surgery
Hi all, I am a GCA patient since AUG 22. I started on 60 MG Prednisone and have tapered to 5.5 mg since then using DSNS. I have had vision problems almost from the start -- blurry vision mostly, but now I have significant cataracts -- AND I've had to change my prescription 4 times since AUG 22. My
Hi all, I am a GCA patient since AUG 22. I started on 60 MG Prednisone and have tapered to 5.5 mg since then using DSNS. I have had vision problems almost from the start -- blurry vision mostly, but now I have significant cataracts -- AND I've had to change my prescription 4 times since AUG 22. My
montebello
in
PMRGCAuk
6 months ago
1.5 mgs now blood tests all over the place
So I am into my third year with pmr. I have been at 1.5 mg prednisone for 2 weeks and had my quarterly bloodwork done. Ana is now positive. It was negative last quarter. I am positive for Sjogrens but I don't have any symptoms. Is this because of my lower dosage? I am a little stiff and slow , but
So I am into my third year with pmr. I have been at 1.5 mg prednisone for 2 weeks and had my quarterly bloodwork done. Ana is now positive. It was negative last quarter. I am positive for Sjogrens but I don't have any symptoms. Is this because of my lower dosage? I am a little stiff and slow , but
paleolady
in
PMRGCAuk
6 months ago
Quick question about blood tests
Diagnosed in early November; struggling with flares so I am presently alternating between 17 and 16mg prednisone. Blood tests this week (Sed rate and C-reactive) came back normal. Is that odd? I have a first appointment with rheumatologist on Monday next week. Thanks for advice.
Diagnosed in early November; struggling with flares so I am presently alternating between 17 and 16mg prednisone. Blood tests this week (Sed rate and C-reactive) came back normal. Is that odd? I have a first appointment with rheumatologist on Monday next week. Thanks for advice.
Trinka13
in
PMRGCAuk
6 months ago
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Tapering..What am I battling?
Hello, I have been told my PMR is gone. I am on 7 mg Prednisone. and trying to taper to 0. I am taking one 5mg. and two 1mg to make 7mg. Yesterday, I took off an extremely tiny corner of a 1 mg away with my fingernail. So, I took 6 7/8mg of Prednisone yesterday instead of 7mg. Today I have
Hello, I have been told my PMR is gone. I am on 7 mg Prednisone. and trying to taper to 0. I am taking one 5mg. and two 1mg to make 7mg. Yesterday, I took off an extremely tiny corner of a 1 mg away with my fingernail. So, I took 6 7/8mg of Prednisone yesterday instead of 7mg. Today I have
lisbonportugal
in
PMRGCAuk
6 months ago
PMR or PsA or both
My Rheumatologist left the practice and I meet with a new one last week. He says that he is not sure I have PsA but maybe only PMR. Wants me to stop methotrexate immediately and try reducing prednisone my 1 mg a month. Currently are 12.0 mg. Happy about this nut scared too. If he is wrong, when and
My Rheumatologist left the practice and I meet with a new one last week. He says that he is not sure I have PsA but maybe only PMR. Wants me to stop methotrexate immediately and try reducing prednisone my 1 mg a month. Currently are 12.0 mg. Happy about this nut scared too. If he is wrong, when and
Seal49
in
Beyond Psoriasis
6 months ago
Trying to figure this out.
I was placed on a medication ( diltiazem) for atrial fibrillation) . It turns out it inhibits steroid clearance from the body. I am also on Breo ( fluticasone (steroid ) for asthma. I was off Breo for awhile and restarted( we thought it may have triggered AF) but it didn’t. Since I am in the Breo I feel
I was placed on a medication ( diltiazem) for atrial fibrillation) . It turns out it inhibits steroid clearance from the body. I am also on Breo ( fluticasone (steroid ) for asthma. I was off Breo for awhile and restarted( we thought it may have triggered AF) but it didn’t. Since I am in the Breo I feel
Karenjaninaz
in
PMRGCAuk
6 months ago
switching to a carnivore diet has put my PMR into total remission
I know the subject may be viewed as sensational or just plain wrong, but that is what I have concluded. At the time I was diagnosed with PMR, I already had diagnoses of psoriatic arthritis and fibromyalgia. My PMR started in 2019, about 8 months prior to covid. I was put on prednisone and experienced
I know the subject may be viewed as sensational or just plain wrong, but that is what I have concluded. At the time I was diagnosed with PMR, I already had diagnoses of psoriatic arthritis and fibromyalgia. My PMR started in 2019, about 8 months prior to covid. I was put on prednisone and experienced
benhemp
in
PMRGCAuk
6 months ago
PMR dealing with vision problems
Hi all just joined this site as I am having vision problems due to my PMR and my medication which is prednisolone I am currently taking 15mg and experiencing blurred vision any help would be appreciated thanks bluey58
Hi all just joined this site as I am having vision problems due to my PMR and my medication which is prednisolone I am currently taking 15mg and experiencing blurred vision any help would be appreciated thanks bluey58
bluey58
in
PMRGCAuk
9 months ago
Should I sell and retire with PSA at 0.1 following 9 months undetectable?
Diagnosed early 2022, Gleason 4+4. Metastasis to multiple sites on the pelvis, no other detectable spread. Triplet therapy with ongoing goserelin and abiraterone with prednisone. Abiraterone is once per day with a low fat meal. Following nine months of undetectable PSA results, I recently received
Diagnosed early 2022, Gleason 4+4. Metastasis to multiple sites on the pelvis, no other detectable spread. Triplet therapy with ongoing goserelin and abiraterone with prednisone. Abiraterone is once per day with a low fat meal. Following nine months of undetectable PSA results, I recently received
LakeT
in
Advanced Prostate Cancer
6 months ago
3rd attempt at tapering down from 5mg prednisolone.
Diagnosed May 2022, started with 30mg tapering down until I was on 7mg when symptoms began to appear again. I continued down to 2mg hoping the body would adjust but could not move much so doctors increase dose and i start tapering down again, back to 4 and symptoms return, back to 6 and awaiting a call
Diagnosed May 2022, started with 30mg tapering down until I was on 7mg when symptoms began to appear again. I continued down to 2mg hoping the body would adjust but could not move much so doctors increase dose and i start tapering down again, back to 4 and symptoms return, back to 6 and awaiting a call
camshall
in
PMRGCAuk
9 months ago
odd question
5 years with PMR and GCA Mostly a pretty easy ride .Second flare right now .. waiting to talk to Rheumy about next steps.But…. My question is this…for the past month I have experienced burning and itching but mostly burning in my shoulders …no rash…very very irritating . Taking usual Benadryl and applying
5 years with PMR and GCA Mostly a pretty easy ride .Second flare right now .. waiting to talk to Rheumy about next steps.But…. My question is this…for the past month I have experienced burning and itching but mostly burning in my shoulders …no rash…very very irritating . Taking usual Benadryl and applying
Darcy2000
in
PMRGCAuk
6 months ago
Prednisone and kidneys
I was diagnosed with PMR in July 2023 and have been on prednisone ever since, although I have tapered down from 15 mg a day to 13 mg, and will be tapering further down to 12 in the next week or so. My last bloodwork showed higher than normal creatinine levels (104), and a glomerular filtration rate of
I was diagnosed with PMR in July 2023 and have been on prednisone ever since, although I have tapered down from 15 mg a day to 13 mg, and will be tapering further down to 12 in the next week or so. My last bloodwork showed higher than normal creatinine levels (104), and a glomerular filtration rate of
Charlotteab
in
PMRGCAuk
6 months ago
Dentistry.
I have PMR and have also been treated for Acoustic Neuroma by Gamma Knife surgery.The Acoustic Neuroma is no longer active but damage remains. I presently take 10mgm Prednisone daily in one dose. I need several dental extractions on the same side (upper jaw). Should I expect my dentist to refer me to
I have PMR and have also been treated for Acoustic Neuroma by Gamma Knife surgery.The Acoustic Neuroma is no longer active but damage remains. I presently take 10mgm Prednisone daily in one dose. I need several dental extractions on the same side (upper jaw). Should I expect my dentist to refer me to
Busyrobyn
in
PMRGCAuk
6 months ago
steroids and diuretics
we may need to discuss some diuretics with the GP. Mum is currently receiving some respite care and her legs are becoming swollen….they’re not as good as insisting on the elevation as I do at home. I notice there’s a bit of a flag with prednisolone and furosemide due to potassium issues. Has anyone
we may need to discuss some diuretics with the GP. Mum is currently receiving some respite care and her legs are becoming swollen….they’re not as good as insisting on the elevation as I do at home. I notice there’s a bit of a flag with prednisolone and furosemide due to potassium issues. Has anyone
RT18
in
PMRGCAuk
9 months ago
?Prednisolone causing Stomach problems
I have been on Prednisolone for nearly 3 years and about 6 weeks ago I had managed to taper down to 4.5mg when I felt pain returning in my arms and shoulders. After a few days I decided to increase my dosage up to 9.5 and a few days after that had stomach pains and diarrhea. I took Immodium and the symptoms
I have been on Prednisolone for nearly 3 years and about 6 weeks ago I had managed to taper down to 4.5mg when I felt pain returning in my arms and shoulders. After a few days I decided to increase my dosage up to 9.5 and a few days after that had stomach pains and diarrhea. I took Immodium and the symptoms
Jomaur
in
PMRGCAuk
9 months ago
New research??
I’m not thinking of trying this as I’m happy with how my tapering is going and I’m feeling pretty ok. But I read this on another site and the person who posted was a PMR sufferer and had switched their prednisolone taking to 20mg once a week and feel that’s working for them. So am curious to know if
I’m not thinking of trying this as I’m happy with how my tapering is going and I’m feeling pretty ok. But I read this on another site and the person who posted was a PMR sufferer and had switched their prednisolone taking to 20mg once a week and feel that’s working for them. So am curious to know if
Bluemoonbrummie
in
PMRGCAuk
9 months ago
Down to half a mg of Prednisolone daily, but what is this?
I am down to half a mg of Prednisolone daily, with hopes of being steroid free by the new year, but have been having shooting pains in fingers for the last couple if weeks. In the last few days has escalated to painful wrists and was hoping it was only arthritis! Started taking paracetamol, which helped
I am down to half a mg of Prednisolone daily, with hopes of being steroid free by the new year, but have been having shooting pains in fingers for the last couple if weeks. In the last few days has escalated to painful wrists and was hoping it was only arthritis! Started taking paracetamol, which helped
Allum
in
PMRGCAuk
9 months ago
Zytiga , prednesone , Options ?
Hello All , I just hit the 2 yr. mark of Eligard , Zytiga and pred. Im Stage 4 N1 , Had SBRT to prostate 2015 , then 7 yrs later PSMA-Pet saw 1 tumor in my pelvic lymph node Had SBRT on that . I have a heart doctor for heart murmur . The question is according to a study , per Tall Allen , Stampede
Hello All , I just hit the 2 yr. mark of Eligard , Zytiga and pred. Im Stage 4 N1 , Had SBRT to prostate 2015 , then 7 yrs later PSMA-Pet saw 1 tumor in my pelvic lymph node Had SBRT on that . I have a heart doctor for heart murmur . The question is according to a study , per Tall Allen , Stampede
reconjj
in
Advanced Prostate Cancer
6 months ago
Sudden anxiety attacks and mood swing on first Prednisone taper
Hi there I’m 44 and was put on Prednisone, 20mg, 3.5 weeks ago for suspected PMR. My mum also had PMR at a young age of 42. I’m still waiting for my rheumatology appointment, but meanwhile the GP prescribed steroids that are working well, where all other pain medication was not. So the joint pain
Hi there I’m 44 and was put on Prednisone, 20mg, 3.5 weeks ago for suspected PMR. My mum also had PMR at a young age of 42. I’m still waiting for my rheumatology appointment, but meanwhile the GP prescribed steroids that are working well, where all other pain medication was not. So the joint pain
Jaybird22
in
PMRGCAuk
7 months ago
New member.
Hi, I am Mark, I am newly diagnosed with RA (July 2023). I am also lucky to have Trigeminal nerve pain and Angioedema, so I must have upset someone in a previous life. I am learning a lot about this illness, and I am now in the hands of the NHS. I take Methotrexate, Prednisolone and Hydroxychloroquine
Hi, I am Mark, I am newly diagnosed with RA (July 2023). I am also lucky to have Trigeminal nerve pain and Angioedema, so I must have upset someone in a previous life. I am learning a lot about this illness, and I am now in the hands of the NHS. I take Methotrexate, Prednisolone and Hydroxychloroquine
StateOfPlay
in
NRAS
9 months ago
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