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Cinchocaine / Prednisolone hexanoate
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New diagnosis
Hi all, it has been a while since my last post. I was diagnosed in December in the end, with SLE and started on hydroxychloroquine and methyl prednisone. The last few months have been a bit all over the place. On the one hand, I’m so grateful not to be crazy. On the other hand, I’m angry that for so
Hi all, it has been a while since my last post. I was diagnosed in December in the end, with SLE and started on hydroxychloroquine and methyl prednisone. The last few months have been a bit all over the place. On the one hand, I’m so grateful not to be crazy. On the other hand, I’m angry that for so
Rocinante_89
in
LUPUS UK
3 months ago
Does it sound like PMR?
I have been to several specialists, but no one understands what is happening to me, their eyes always ends up swimming in their faces. After countless hours googling, I found this forum a could finally recognise things you have described here. I woke up with excruciating pain after a parathyroidectomy
I have been to several specialists, but no one understands what is happening to me, their eyes always ends up swimming in their faces. After countless hours googling, I found this forum a could finally recognise things you have described here. I woke up with excruciating pain after a parathyroidectomy
Liljeblad
in
PMRGCAuk
3 months ago
The pain of PMR before being prescribed prednisone
I want to ask you how you dealt with the pain of PMR before being prescribed prednisone as when I look back at those incredibly painful and debilitating symptoms I had I wonder how I manged to carry on. My story was I was off on my holidays to Turkey and my knees were beginning to feel so stiff and
I want to ask you how you dealt with the pain of PMR before being prescribed prednisone as when I look back at those incredibly painful and debilitating symptoms I had I wonder how I manged to carry on. My story was I was off on my holidays to Turkey and my knees were beginning to feel so stiff and
Markandevie
in
PMRGCAuk
3 months ago
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4 days in
Good morning everyone, Ive just taken my fourth dose of prednisone (20mg). Definitely feeling a bit better but still bit achey & stiff. Should I be feeling completely better already or does it take much longer? I have taken Prednisone before for PMR and it worked wonders but I can't remember how quickly
Good morning everyone, Ive just taken my fourth dose of prednisone (20mg). Definitely feeling a bit better but still bit achey & stiff. Should I be feeling completely better already or does it take much longer? I have taken Prednisone before for PMR and it worked wonders but I can't remember how quickly
scooby96
in
PMRGCAuk
3 months ago
2Nd Biopsy in 3+ years of Bone Met
Greetings All, A question about biopsies: Upon PC-stage 4 diagnosis per discovery of pc lesions causing spinal compression in 2020, my husband had a biopsy taken during his back surgery-which showed his already metastatic pc not to be an inherited condition. He went on to radiation of the spinal
Greetings All, A question about biopsies: Upon PC-stage 4 diagnosis per discovery of pc lesions causing spinal compression in 2020, my husband had a biopsy taken during his back surgery-which showed his already metastatic pc not to be an inherited condition. He went on to radiation of the spinal
Lavender22
in
Advanced Prostate Cancer
3 months ago
Classification Criteria vs. Diagnosis Criteria
I learned something new while reading this article on PMR: https://www.cmaj.ca/content/193/46/E1770 It says "The European League Against Rheumatism (EULAR) and American College of Rheumatology (ACR) criteria can distinguish polymyalgia rheumatica from mimicking conditions." However, I then clicked
I learned something new while reading this article on PMR: https://www.cmaj.ca/content/193/46/E1770 It says "The European League Against Rheumatism (EULAR) and American College of Rheumatology (ACR) criteria can distinguish polymyalgia rheumatica from mimicking conditions." However, I then clicked
AtopicGuy
in
PMRGCAuk
3 months ago
GCA cortisol levels
I’m on 8 mg prednisone yesterday I tested my cortisol today. The result was 2.2 at 8:30 in the morning. Should I be concerned?
I’m on 8 mg prednisone yesterday I tested my cortisol today. The result was 2.2 at 8:30 in the morning. Should I be concerned?
Maddie2018
in
PMRGCAuk
3 months ago
Pain in Left Eye
Hi Kind Friends, I am currently on 12.5 mg prednisone (tapering from 60 in Oct.) and weekly Actemra injections (about 4 months) Double vision from high prednisone has resolved as I have tapered. Occasionally I feel pain in my left eye, in the outer lower corner. It will hurt when I move my eye,
Hi Kind Friends, I am currently on 12.5 mg prednisone (tapering from 60 in Oct.) and weekly Actemra injections (about 4 months) Double vision from high prednisone has resolved as I have tapered. Occasionally I feel pain in my left eye, in the outer lower corner. It will hurt when I move my eye,
Lenore58
in
PMRGCAuk
3 months ago
Where should I go from here? Reduced by doc from 6 Pred to 2 and now suffering
Having been told by 3 doctors to try to get off Prednisolone so I could be assessed by specialist at hospital (as no doctor felt able to confirm I really had PMR although on steroids for 2 years!) I reduced from 6 to 2 Pred in 8 weeks. Result: much itching when reducing down from 4 to 3 and now, at 2
Having been told by 3 doctors to try to get off Prednisolone so I could be assessed by specialist at hospital (as no doctor felt able to confirm I really had PMR although on steroids for 2 years!) I reduced from 6 to 2 Pred in 8 weeks. Result: much itching when reducing down from 4 to 3 and now, at 2
CupcakeGalore
in
PMRGCAuk
7 months ago
Blood Tests
Hi, I have weird asthma, am on maximum therapy and wondered what effect high dose antihistamines and prednisolone have on your blood test results. Every time I ask my consultant I'm told it's irrelevant, also is our medication taken into account when we complete breathing tests? The technician who
Hi, I have weird asthma, am on maximum therapy and wondered what effect high dose antihistamines and prednisolone have on your blood test results. Every time I ask my consultant I'm told it's irrelevant, also is our medication taken into account when we complete breathing tests? The technician who
LottieB36
in
Asthma Community Forum
7 months ago
Flare up
Over the last year I was in hospital for 6 months Arterial leg ulcer treated with angio to clear artery, then maggots and dressing. Ulcer still there with "satellites ". On diabetic yearly follow up sound ro be Via B12 deficient, have just completed 6 injections. Last February had a fall out of our
Over the last year I was in hospital for 6 months Arterial leg ulcer treated with angio to clear artery, then maggots and dressing. Ulcer still there with "satellites ". On diabetic yearly follow up sound ro be Via B12 deficient, have just completed 6 injections. Last February had a fall out of our
Jocelyn344
in
PMRGCAuk
7 months ago
Lanzaprozole and magnesium deficiency
Hi all, I was diagnosed with GCA in 2018. With the help and support of this group I came through some tough times, and will always be grateful for that. After a very gradual taper, I have now completed 13 months without prednisolone, and, fingers crossed, the GCA is still quiet. I am still having sub-cutaneous
Hi all, I was diagnosed with GCA in 2018. With the help and support of this group I came through some tough times, and will always be grateful for that. After a very gradual taper, I have now completed 13 months without prednisolone, and, fingers crossed, the GCA is still quiet. I am still having sub-cutaneous
Dontwannabesick
in
PMRGCAuk
7 months ago
Adrenals
Morning everyone. This is my first post on here. I was diagnosed with GCA in August 2022 and have been tapering down the Prednisolone to 5mg. I also take Tocilizumab and Methotrexate as I’ve had a difficult time with the Prednisolone so many side effects. How do I know if my adrenal glands are working
Morning everyone. This is my first post on here. I was diagnosed with GCA in August 2022 and have been tapering down the Prednisolone to 5mg. I also take Tocilizumab and Methotrexate as I’ve had a difficult time with the Prednisolone so many side effects. How do I know if my adrenal glands are working
Noni71
in
PMRGCAuk
7 months ago
Continuing Story of CLL Journey
Greetings Everyone, I recently posted on here that I had Cll/AIHA nearly 4 years ago. It was pretty serious before I got treatment of Prednisone and Rituxan by infusion. Now my CL it appears has come out of remission. I visited my Oncologist (who is not a CLL Specialist—more a Generalist and at the
Greetings Everyone, I recently posted on here that I had Cll/AIHA nearly 4 years ago. It was pretty serious before I got treatment of Prednisone and Rituxan by infusion. Now my CL it appears has come out of remission. I visited my Oncologist (who is not a CLL Specialist—more a Generalist and at the
Dodger47
in
CLL Support
3 months ago
After 25 days back on prednisone...
Thank you to all who advised on my previous post. I have almost completed the first month back on 20mg day of prednisone. The effect was immediate, pain gone, stiffness gone, fatigue better, am motivated and catching up with chores I had neglected for months. I feel more positive now, even started
Thank you to all who advised on my previous post. I have almost completed the first month back on 20mg day of prednisone. The effect was immediate, pain gone, stiffness gone, fatigue better, am motivated and catching up with chores I had neglected for months. I feel more positive now, even started
Biba5
in
PMRGCAuk
3 months ago
EGPA and Cancer
Hi Every one I was diagnosed with EGPA about 5 years ago. I have been on Methotrexate since then and on and off low doses of Prednisolone. I have hardly had any symptoms . However in February this year I was diagnosed with womb cancer, I had a hysterectomy which be re moved the cancer and chemo and
Hi Every one I was diagnosed with EGPA about 5 years ago. I have been on Methotrexate since then and on and off low doses of Prednisolone. I have hardly had any symptoms . However in February this year I was diagnosed with womb cancer, I had a hysterectomy which be re moved the cancer and chemo and
Farnorth
in
Vasculitis UK
7 months ago
Fir a Friend: Tongue is red and Tender
Hi, I have a friend with GCA from another site. She was diagnosed in October 2023. Currently onn10 mg. Prednisone. She called this morning saying that the side of her tongue has a red spot that is sensitive to the touch. I don’t know much about when GCA hits the tongue. Does she need to go straight
Hi, I have a friend with GCA from another site. She was diagnosed in October 2023. Currently onn10 mg. Prednisone. She called this morning saying that the side of her tongue has a red spot that is sensitive to the touch. I don’t know much about when GCA hits the tongue. Does she need to go straight
Lenore58
in
PMRGCAuk
3 months ago
Insufficiency Fracture - likely cause - Prednisilone
I saw an orthopaedic Fracture surgeon last week following an MRI on my right knee to investigate knee pain. She reported a small meniscus tear and a small piece of detached cartilage. However she also reported an Insufficiency Fracture in the femur which she thinks may have been caused by Prednisolone
I saw an orthopaedic Fracture surgeon last week following an MRI on my right knee to investigate knee pain. She reported a small meniscus tear and a small piece of detached cartilage. However she also reported an Insufficiency Fracture in the femur which she thinks may have been caused by Prednisolone
Greengarth
in
PMRGCAuk
7 months ago
progress with tapering
Hi All, I am currently at 2.25mg prednisone and am noticing that I have a bit more energy these days. I thought it would be interesting to review for myself my prednisone dosing since I started in 2021. I have been keeping a record in Excell. Perhaps this will be encouraging to others, although I realize
Hi All, I am currently at 2.25mg prednisone and am noticing that I have a bit more energy these days. I thought it would be interesting to review for myself my prednisone dosing since I started in 2021. I have been keeping a record in Excell. Perhaps this will be encouraging to others, although I realize
spacevoyager
in
PMRGCAuk
3 months ago
Remission
I want to thank members of this forum for your insight and support over the past 2 1/2 years I have been dealing with GCA and everything that goes along with this disease. I have been off prednisone since last July, and Actemra since last October. I have not had any further GCA symptoms. I had an
I want to thank members of this forum for your insight and support over the past 2 1/2 years I have been dealing with GCA and everything that goes along with this disease. I have been off prednisone since last July, and Actemra since last October. I have not had any further GCA symptoms. I had an
Preacherball
in
PMRGCAuk
3 months ago
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