Back yet again: Morning all. Following on from my... - PMRGCAuk

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Back yet again

SRIXON profile image
4 Replies

Morning all. Following on from my visit to the doctor 22nd March and my bloods identifying my inflammatory marks were raised .As reported Fri afternoon after raising my prednisone from 2 to 7mg sadly have to report the last 2 mornings I feel like I have been hit by a bus, my neck and shoulders particularly stiff and painful, my leg muscles some slight improvement.

I have a follow up appointment in 4 weeks but really don't want to continue in this vain.

My quandary should I give this raised dose of 7mg a bit longer or raise to say 10mg.

Itching palms any relation to this issue!

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SRIXON profile image
SRIXON
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DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Usual flare advice as below is to stay on increased dose for 7-10 days, although it’s fine to take it for14 days if necessary..after thst you will have to come back down to a lower dose a bit more slowly.

healthunlocked.com/pmrgcauk...

Give it a bit more time .. sorry no advice on itchy palms.. 😳

PMRpro profile image
PMRproAmbassador

If this is a flare in disease activity rather than overshooting the dose you need it is difficult to say what dose you require to manage it. GIve it a few more days though.

lovemylife23 profile image
lovemylife23

I too had the itchy palms and feet. Mine were bad about bedtime for some weird reason. I slathered lotion on them at night, I don't know if the lotion or the massaging helped, but I did get some relief!

Alebeau profile image
Alebeau

In my experience pain means not enough prednisone.

I recently had a huge setback going from 5.5 to 15 due to stopping leflunomide after 1 year.

In the earlier years I often could not pass 10 mg without the return of pain.

My experience may be unique due to ongoing stress from being a caregiver for my wife who sadly suffered dementia.

My rheumatologist is the one who had me increase the pred when I told her I was in pain - I was reluctant to do so but relented and was pain free almost immediately.

I am now at 11 and my wife is in a Long Term Care facility so I may make more progress 🤞over the next year.

Good luck to you - it seems once we are on pred it is a viscous cycle of ups and downs.

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