Search
Search
About
Log in
Join
Experiences with
Chronic migraine
Posts
Communities
7,078 public posts
Filter results
Oncology Learning Network CME- Emerging Treatments for CLL / SLL included in NCCN and ESMO guidelines
This video and most on the Oncology Learning Network CME are intended for trained medical professionals, but those comfortable with MedSpeak can sign up for an account to view this excellent presentation by Dr. Nicole Lamanna of Columbia NY Presbyterian here: https://hmpeducation.com/content/access-webcast
This video and most on the Oncology Learning Network CME are intended for trained medical professionals, but those comfortable with MedSpeak can sign up for an account to view this excellent presentation by Dr. Nicole Lamanna of Columbia NY Presbyterian here: https://hmpeducation.com/content/access-webcast
lankisterguy
Volunteer
in
CLL Support
2 years ago
Patient Power CLL & Fatigue 2022-10-19.
Fatigue is a side effect shared by just about every patient with chronic lymphocytic leukemia (CLL). In this replay of a recent CLL Answers Now program, CLL patient and host Brad Adams and Carmelita Escalante, MD, from the Cancer-Related Fatigue Clinic at the University of Texas MD Anderson Cancer Center
Fatigue is a side effect shared by just about every patient with chronic lymphocytic leukemia (CLL). In this replay of a recent CLL Answers Now program, CLL patient and host Brad Adams and Carmelita Escalante, MD, from the Cancer-Related Fatigue Clinic at the University of Texas MD Anderson Cancer Center
lankisterguy
Volunteer
in
CLL Support
2 years ago
CLL testing
hi relatively new in here. I cannot see a pinned post on this subject but apologies if i missed it. i am on watch and wait and next check up isnt till December. I have read posts about deletions and mutations and how it influences long term prognosis re future treatment, aggressiveness and mutations
hi relatively new in here. I cannot see a pinned post on this subject but apologies if i missed it. i am on watch and wait and next check up isnt till December. I have read posts about deletions and mutations and how it influences long term prognosis re future treatment, aggressiveness and mutations
Saju21
in
CLL Support
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
scared š
hello warriors I posted a week ago as my hcg was on low Side, unfortunately it rose slowly Today got confirmed ectopic - took 2 consultants to find it Iām now waiting for surgery I donāt know what the point of this post is really Just feel so sad and scared š xx
hello warriors I posted a week ago as my hcg was on low Side, unfortunately it rose slowly Today got confirmed ectopic - took 2 consultants to find it Iām now waiting for surgery I donāt know what the point of this post is really Just feel so sad and scared š xx
DG2022
in
Fertility Network UK
2 years ago
Feeling deflated after failed FET!! š¢
Sadly yesterdays after Beta HCG blood test confirmed that our transfer was unsuccessful. Feeling sad and just deflated, I did everything I possibly could, eating an amazing diet, stopped all alcohol, exercising, acupuncture, keeping my feet warm, vitamin supplements, pruns, pineapple, meditation and
Sadly yesterdays after Beta HCG blood test confirmed that our transfer was unsuccessful. Feeling sad and just deflated, I did everything I possibly could, eating an amazing diet, stopped all alcohol, exercising, acupuncture, keeping my feet warm, vitamin supplements, pruns, pineapple, meditation and
Bunny29
in
Fertility Network UK
2 years ago
Suggestions on questions for next steps šš»
Hey everyone, and a happy new year! I havenāt been active in ages as I had such a bad couple of months following my last transfer in august. I ended up getting pregnant but got late onset OHSS and also had an infection which could not be found initially, ended up in hospital for a week and my HCG
Hey everyone, and a happy new year! I havenāt been active in ages as I had such a bad couple of months following my last transfer in august. I ended up getting pregnant but got late onset OHSS and also had an infection which could not be found initially, ended up in hospital for a week and my HCG
Booda21
in
Fertility Network UK
2 years ago
ļ»æFlare or not?
ļ»æI have been reducing pred by 1mg per month. Reduced to 7mg on 1st August and 6mg on 1st Sept. I had a nasty virus a few weeks ago and have felt really bad since i.e.usual pain and stiffness at onset of PMR. To top it all last week was told I am not able to drive again because my eyesight has declined
ļ»æI have been reducing pred by 1mg per month. Reduced to 7mg on 1st August and 6mg on 1st Sept. I had a nasty virus a few weeks ago and have felt really bad since i.e.usual pain and stiffness at onset of PMR. To top it all last week was told I am not able to drive again because my eyesight has declined
Esmeruth7
in
PMRGCAuk
2 years ago
Fred Hutchinson Cancer Center receives $710.5 million gift to accelerate cancer and infectious disease research.Ā
This gift will enable Fred Hutch to recruit about 36 new researchers from a variety of scientific areas, including early- and mid-career researchers and senior scientists. The funding includes resources for lab space, equipment, and technology for Fred Hutchās collaborative research environment.Ā https
This gift will enable Fred Hutch to recruit about 36 new researchers from a variety of scientific areas, including early- and mid-career researchers and senior scientists. The funding includes resources for lab space, equipment, and technology for Fred Hutchās collaborative research environment.Ā https
gardening-girl
in
CLL Support
2 years ago
Psych evaluation
Hi! This is for those of you who are either on the liver transplant list or who have had a transplant. What I'd like to know is whether you were given a psychological evaluation or a one-to-one conversion with a trained therapist as to how to deal with serious organ rejection should it occur.
Hi! This is for those of you who are either on the liver transplant list or who have had a transplant. What I'd like to know is whether you were given a psychological evaluation or a one-to-one conversion with a trained therapist as to how to deal with serious organ rejection should it occur.
Bikafella
in
British Liver Trust
2 years ago
Living with dialysis
My name is Vicki and I myself have had 2 years of dialysis before I got a kidney transplant . I was very young just 32 with two boys ages 2 and 3 at that time . I received a perfect matching kidney in 1996 and it lasted for 27 years . I am and have been back on hemo-dialysis for another 3 years . I am
My name is Vicki and I myself have had 2 years of dialysis before I got a kidney transplant . I was very young just 32 with two boys ages 2 and 3 at that time . I received a perfect matching kidney in 1996 and it lasted for 27 years . I am and have been back on hemo-dialysis for another 3 years . I am
bubbaboo2
in
Kidney Dialysis
2 years ago
RISK OF DYING OF COVID DURING THIS OMICRON PHASE
Hi, Covid Mortality Rates, I am wondering about the reality. I've read everything from 33% - 89% until Omicron. I've read 2% in a recent publication from Denmark during their Omicron phase, and most of those deaths were in age > than 71, with many other serious morbidities. Half of those dying
Hi, Covid Mortality Rates, I am wondering about the reality. I've read everything from 33% - 89% until Omicron. I've read 2% in a recent publication from Denmark during their Omicron phase, and most of those deaths were in age > than 71, with many other serious morbidities. Half of those dying
skipro
in
CLL Support
2 years ago
low hcg?
I went to have bloods today. Iām nearly 6 weeks pregnantā¦not ivf pregnancy but my last period was 9 December and had sex once 22nd December. Hcg 860. thatās seriously low isnāt it? having bloods repeated on Saturday They wouldnāt scan me cos my bleeding has stopped since Sunday
I went to have bloods today. Iām nearly 6 weeks pregnantā¦not ivf pregnancy but my last period was 9 December and had sex once 22nd December. Hcg 860. thatās seriously low isnāt it? having bloods repeated on Saturday They wouldnāt scan me cos my bleeding has stopped since Sunday
DG2022
in
Fertility Network UK
2 years ago
supplements for teenage migraine
Hello, Can anyone advise which supplements are worth trying for migraines and how much? I saw on the Clevelandās clinic site the mention of riboflavin, magnesium and coenzyme q10 but it didnāt say how much and if suitable for a 14 year old. My daughter has suffered migraines since the age of 3
Hello, Can anyone advise which supplements are worth trying for migraines and how much? I saw on the Clevelandās clinic site the mention of riboflavin, magnesium and coenzyme q10 but it didnāt say how much and if suitable for a 14 year old. My daughter has suffered migraines since the age of 3
Sparklyjenson
in
National Migraine Centre
2 years ago
Imbruvica
I was on Imbruvica for a few years with very little side effects, fatigue and headaches. I had them and they were hardly noticed. I have been off the Imbruvica over a year and now my headaches are back and they are painful. Is there anything that help relieve the headaches??
I was on Imbruvica for a few years with very little side effects, fatigue and headaches. I had them and they were hardly noticed. I have been off the Imbruvica over a year and now my headaches are back and they are painful. Is there anything that help relieve the headaches??
suncity18
in
CLL Support
2 years ago
Acalabrutinib + Ruxolitinib interactions
Hello I have CLL (taking Acalabrutinib ) I also have Myelofibrosis and my Dr might put me on Ruxolitinib..... I am Looking for interactions between both drugs. I have checked drugs.com and Epocrates Looking for someone with more info or someone taking this combination Thank you
Hello I have CLL (taking Acalabrutinib ) I also have Myelofibrosis and my Dr might put me on Ruxolitinib..... I am Looking for interactions between both drugs. I have checked drugs.com and Epocrates Looking for someone with more info or someone taking this combination Thank you
antonb
in
CLL Support
2 years ago
Short sharp migraines
Hi, had migraines since school days, now 71, and they were long, vicious and kept me debilitated for hours. Only had them once or twice a year and many years without them. For the last month or so I've been getting ones lasting 20 minutes with aura and minor headache which is pretty unusual for me
Hi, had migraines since school days, now 71, and they were long, vicious and kept me debilitated for hours. Only had them once or twice a year and many years without them. For the last month or so I've been getting ones lasting 20 minutes with aura and minor headache which is pretty unusual for me
KCRoyals
in
National Migraine Centre
2 years ago
*UPDATE - OTD - Negative š.* How is it possible to want to know something soo bad, but then be too scared for the official test date!?
*UPDATE 20.01.2022.* Sorry its a bit of a long one! Thought it would be easier to update the post. Firstly thank you to everyone who sent well wishes and was thinking of me yesterday. Sorry for not updating sooner, I'm still feeling numb šš Deep down I think I knew, on test day my pain was really
*UPDATE 20.01.2022.* Sorry its a bit of a long one! Thought it would be easier to update the post. Firstly thank you to everyone who sent well wishes and was thinking of me yesterday. Sorry for not updating sooner, I'm still feeling numb šš Deep down I think I knew, on test day my pain was really
JadeH92
in
Fertility Network UK
2 years ago
Blasts - are they a total blast or a blasted nuisance?
Hi everyone, I've been experiencing more tiredness since January this year, with less stamina and energy. My hemiplegic migraines have also become more easily triggered and the episodes are becoming more severe. One of my doctors recently mentioned blast counts and this is what I'm seeking your advice
Hi everyone, I've been experiencing more tiredness since January this year, with less stamina and energy. My hemiplegic migraines have also become more easily triggered and the episodes are becoming more severe. One of my doctors recently mentioned blast counts and this is what I'm seeking your advice
LucyGeering
in
MPN Voice
2 years ago
Hemiplegic migraines, anyone?
Does anyone else on here have hemiplegic migraines? Eight years ago I started my migraine career with the more usual kind of migraine - aura, toothpick pain in my left temple -, and after three years these then shifted into hemiplegic migraines. These give me aura with nausea, dizziness, skin sensitivity
Does anyone else on here have hemiplegic migraines? Eight years ago I started my migraine career with the more usual kind of migraine - aura, toothpick pain in my left temple -, and after three years these then shifted into hemiplegic migraines. These give me aura with nausea, dizziness, skin sensitivity
LucyGeering
in
National Migraine Centre
2 years ago
Navigating the Hidden Costs of Clinical Trials on Patient Power
Navigating the Hidden Costs of Clinical Trials https://www.patientpower.info/navigating-the-hidden-costs-of-clinical-trials Nearly two years ago, Brad Adamsā doctor presented him with a few options to treat his chronic lymphocytic leukemia after it returned. Adams could continue taking an oral treatment
Navigating the Hidden Costs of Clinical Trials https://www.patientpower.info/navigating-the-hidden-costs-of-clinical-trials Nearly two years ago, Brad Adamsā doctor presented him with a few options to treat his chronic lymphocytic leukemia after it returned. Adams could continue taking an oral treatment
lankisterguy
Volunteer
in
CLL Support
2 years ago
1
...
41
42
43
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Fertility Network UK
1553 results
CLL Support
1461 results
National Migraine Centre
1042 results
View top 10 communities
Sort by
Most Relevant
Newest