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update: Zanabrutinib vs Obenven (O&V)
We are praying for Gods wisdom (James1:5), and we’re leaning toward the Zanabrutinib. The infusions and time and distance will be impactful to my husbands work and he’s prefer to go the simpler route. We learned he’s still 13Q and TP53 negative and his lymph nodes are reduced (we have used ALT for
We are praying for Gods wisdom (James1:5), and we’re leaning toward the Zanabrutinib. The infusions and time and distance will be impactful to my husbands work and he’s prefer to go the simpler route. We learned he’s still 13Q and TP53 negative and his lymph nodes are reduced (we have used ALT for
Cb1391
in
CLL Support
7 months ago
CLL leukemia
What does it mean when your white blood count increases from 27 to 30.6 10^9/L 4.0-10.0 10^9/L
What does it mean when your white blood count increases from 27 to 30.6 10^9/L 4.0-10.0 10^9/L
Bobby13
in
CLL Support
7 months ago
FDA Investigating 'Serious Risk' of Malignancy After CAR-T Therapy - Applies to all approved therapies, but benefits still outweigh risks
From MedPage Today, by Charles Bankhead, Senior Editor, MedPage Today November 28, 2023, Last Updated November 29, 2023. Posted FYI without comment: [i]
FDA Investigating 'Serious Risk' of Malignancy After CAR-T Therapy - Applies to all approved therapies, but benefits still outweigh risks, agency
From MedPage Today, by Charles Bankhead, Senior Editor, MedPage Today November 28, 2023, Last Updated November 29, 2023. Posted FYI without comment: [i]
FDA Investigating 'Serious Risk' of Malignancy After CAR-T Therapy - Applies to all approved therapies, but benefits still outweigh risks, agency
cujoe
in
CLL Support
7 months ago
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Loosing weight helped
Just wanted to share my experience having been long time migraine sufferer and tried beta blockers, epilepsy drug topiramate, amyltriptaline and always having to use sumatriptan which does work if i take it in time. I take 40mg amyltrip every eve which did reduce frequencies a bit over sev years. But
Just wanted to share my experience having been long time migraine sufferer and tried beta blockers, epilepsy drug topiramate, amyltriptaline and always having to use sumatriptan which does work if i take it in time. I take 40mg amyltrip every eve which did reduce frequencies a bit over sev years. But
Nbtivic
in
National Migraine Centre
11 months ago
B LARGE CELL DIFFUSE LYMPHOMA AFTER 5 YEAR OF POST KIDNEY TRANSPLANT
I got my kidney transplant in dec 2018 now In nov 2024 suffered from NON hodgkin lymphoma now only on tacrolimus 5mg daily .Any advice regarding this then plz
I got my kidney transplant in dec 2018 now In nov 2024 suffered from NON hodgkin lymphoma now only on tacrolimus 5mg daily .Any advice regarding this then plz
bal_123
in
Kidney Transplant Patient Support
3 months ago
just a quick question
hi lovely friends. Am currently taking pegsy injections 90 mg fortnightly now , I have have not a sore throat but feel like there is something in my throat when I swallow it hurts but not like a sore throat, and also I had my first nose bleed and have been getting headaches an migraine x any advice please
hi lovely friends. Am currently taking pegsy injections 90 mg fortnightly now , I have have not a sore throat but feel like there is something in my throat when I swallow it hurts but not like a sore throat, and also I had my first nose bleed and have been getting headaches an migraine x any advice please
Staroftheday
in
MPN Voice
11 months ago
CLL and now very elevated Monocytes
I am under treatment for CLL using Venetoclax. It has been going well and my lymphocytes are controlled with a minimal dosage of Venetoclax of 50 mg.I just had labs yesterday and in 3 weeks my monocytes shot p from 5% to 15% and absolute count from. 08 to over 1000. I am so concerned I am developing
I am under treatment for CLL using Venetoclax. It has been going well and my lymphocytes are controlled with a minimal dosage of Venetoclax of 50 mg.I just had labs yesterday and in 3 weeks my monocytes shot p from 5% to 15% and absolute count from. 08 to over 1000. I am so concerned I am developing
ralphfelo
in
CLL Support
7 months ago
Amitriptyline
I currently take 100mg of levothyroxine in the morning around 7am. Do you think it safe to take Amitriptyline 10mg for sleep thr night before?
I currently take 100mg of levothyroxine in the morning around 7am. Do you think it safe to take Amitriptyline 10mg for sleep thr night before?
Totoro25
in
Thyroid UK
11 months ago
Frequent bouts with aura
I am having increasing bouts of migraine with aura.seem to be several on a week so probably counts as one intermittent ongoing migraine I have had them on and off most of my adult life but can’t recall having them at all in the last few years until recently Triggers may be stress but there’s always
I am having increasing bouts of migraine with aura.seem to be several on a week so probably counts as one intermittent ongoing migraine I have had them on and off most of my adult life but can’t recall having them at all in the last few years until recently Triggers may be stress but there’s always
Kateeliz
in
National Migraine Centre
11 months ago
Oxygen therapy for migraines?
A friend, who was successfully treated with inhaled oxygen for debilitating cluster headaches, recommended I look into this. I have read that oxygen therapy can be helpful in the event of a migraine attack, but that the best quality, controlled studies demonstrate no benefit compared with placebo.
A friend, who was successfully treated with inhaled oxygen for debilitating cluster headaches, recommended I look into this. I have read that oxygen therapy can be helpful in the event of a migraine attack, but that the best quality, controlled studies demonstrate no benefit compared with placebo.
bennevisplace
in
National Migraine Centre
11 months ago
Sinus pain
I am asking on behalf of my sister she has been suffering with pain in the area under her left eye since 2019. It just started with no reason. It had also gone down that side of her nose. She takes paracetamol regularly to dull the pain. She had previously been to the doctors who couldn't help. So
I am asking on behalf of my sister she has been suffering with pain in the area under her left eye since 2019. It just started with no reason. It had also gone down that side of her nose. She takes paracetamol regularly to dull the pain. She had previously been to the doctors who couldn't help. So
Clouds2023
in
IBS Network
11 months ago
er scare
yesterday I had my worst “episode” ever—after an uneventful start to my day, I suddenly felt like I was going to collapse. Couldn’t breathe, could barely talk, weak, too weak to stand. My husband took me to er where my bp was very high (of course); spent the day. Long story short: not one thing wrong
yesterday I had my worst “episode” ever—after an uneventful start to my day, I suddenly felt like I was going to collapse. Couldn’t breathe, could barely talk, weak, too weak to stand. My husband took me to er where my bp was very high (of course); spent the day. Long story short: not one thing wrong
Twopies
in
PMRGCAuk
11 months ago
My Ckd journey
Hi my name is Dineshwaran.i was diagnosed with kidney failure in year 2003 when I was 19.was on dialysis for two years and did transplant on 2005. Donated by my cousin.it was a perfect match until 2017 where my sugar level was very high. Was on all type of medication and insulin but didn't came down
Hi my name is Dineshwaran.i was diagnosed with kidney failure in year 2003 when I was 19.was on dialysis for two years and did transplant on 2005. Donated by my cousin.it was a perfect match until 2017 where my sugar level was very high. Was on all type of medication and insulin but didn't came down
Dineshwaran
in
Kidney Dialysis
3 months ago
aimovig experiences
Hi Migraines have been dominating my life for ever but so much worse in the last 4-5 years when painkillers have been no use. After trying many preventatives that failed and having short lived success with keto for migraine I am now awaiting my first batch of aimovig injections next week. I'm hopeful
Hi Migraines have been dominating my life for ever but so much worse in the last 4-5 years when painkillers have been no use. After trying many preventatives that failed and having short lived success with keto for migraine I am now awaiting my first batch of aimovig injections next week. I'm hopeful
Discodog
in
National Migraine Centre
11 months ago
Botox
I've recently had Botox for
chronic
migraine
. I had the injections two weeks ago and instead of seeing an improvement it seems to have flared everything up. I have worsening migraine and neck pain. Just wondered if this has happened to anyone else and when things improved or at least settled?
I've recently had Botox for
chronic
migraine
. I had the injections two weeks ago and instead of seeing an improvement it seems to have flared everything up. I have worsening migraine and neck pain. Just wondered if this has happened to anyone else and when things improved or at least settled?
Cara71
in
National Migraine Centre
1 year ago
Zanubrutinib or O&V
The CLL specialist that we are seeing is giving my husband the choice between O&V and Zanubrutinib. We are trying to make the best decision, but struggling. They also said he can do one and switch to the other or vice a versa, but my husband works full-time and we’re a bit concerned about What seems
The CLL specialist that we are seeing is giving my husband the choice between O&V and Zanubrutinib. We are trying to make the best decision, but struggling. They also said he can do one and switch to the other or vice a versa, but my husband works full-time and we’re a bit concerned about What seems
Cb1391
in
CLL Support
7 months ago
looking for a neurologist
Can anyone recommend a neurologist knowledgeable in RLS in the Bristol/ Bath (England) area ? I currently have a neurologist whom I rate quite highly but who cannot prescribe opioids as they are not on the formulary of the hospital where she practises. She has however asked my GP to prescribe Oxycodone
Can anyone recommend a neurologist knowledgeable in RLS in the Bristol/ Bath (England) area ? I currently have a neurologist whom I rate quite highly but who cannot prescribe opioids as they are not on the formulary of the hospital where she practises. She has however asked my GP to prescribe Oxycodone
etchea33
in
Restless Legs Syndrome
4 months ago
Nose question
I know this sounds really stupid but this evening I've developed a tingle / tickle to the outside of my left nostril. Originally I thought it was a hair perhaps attached to my glasses that was tickling, but it wasn't. I do have anxiety but have felt fairly relaxed today. Thank you
I know this sounds really stupid but this evening I've developed a tingle / tickle to the outside of my left nostril. Originally I thought it was a hair perhaps attached to my glasses that was tickling, but it wasn't. I do have anxiety but have felt fairly relaxed today. Thank you
hollyrain
in
Anxiety Support
11 months ago
Asthma and work .
The thing is each asthma attack is getting put on my Bradford score and I get pulled in for a attendance review , think on number 6 now cause it keeps triggering a review , because I had a couple of separate incidence of sickness , I also get
chronic
migraine
under a neurologist and osteoarthritis in
The thing is each asthma attack is getting put on my Bradford score and I get pulled in for a attendance review , think on number 6 now cause it keeps triggering a review , because I had a couple of separate incidence of sickness , I also get
chronic
migraine
under a neurologist and osteoarthritis in
Jazz70
in
Asthma Community Forum
4 months ago
PMR and brachial neuritis
It looks like I have developed a fairly rare condition called Parsonage-Turner syndrome (PTS), also called brachial neuritis. It started with terrible pain in the shoulder, so initially I thought it would appear in the other shoulder and be the beginning of a PMR relapse. But it is taking a different
It looks like I have developed a fairly rare condition called Parsonage-Turner syndrome (PTS), also called brachial neuritis. It started with terrible pain in the shoulder, so initially I thought it would appear in the other shoulder and be the beginning of a PMR relapse. But it is taking a different
dmart7
in
PMRGCAuk
4 months ago
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