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Passing it on.
I was wondering if leukaemia can be hereditary. I was diagnosed with CLL 3 years ago, my wife died from AML and the thought of my children being susceptible crossed my mind. I did ask Doctor Google the question but it seems the jury is out on that subject.
I was wondering if leukaemia can be hereditary. I was diagnosed with CLL 3 years ago, my wife died from AML and the thought of my children being susceptible crossed my mind. I did ask Doctor Google the question but it seems the jury is out on that subject.
Bigglesworth
in
CLL Support
2 years ago
Brown discharge at 5weeks 4days
Hi all I had a positive test 9dp5dt and a good beta hcg of 954 at 13dp5dt but today for the first time this morning I’ve had a bit of brown/red spotting which has terrified me! I keep going to the loo to check and it doesn’t seem to be getting heavier but looking for some advice on here if people have
Hi all I had a positive test 9dp5dt and a good beta hcg of 954 at 13dp5dt but today for the first time this morning I’ve had a bit of brown/red spotting which has terrified me! I keep going to the loo to check and it doesn’t seem to be getting heavier but looking for some advice on here if people have
purplepanda4
in
Fertility Network UK
2 years ago
Update on low & slow rising HCG pregnancy
APOLOGIES FOR LONG POST:Thought I would post an update despite it being negative, i know someone might be following my post.I posted a few weeks ago that after my BFP i had low HCG levels which were not doubling either. At 6 weeks ultrasound showed gestational sac without fetal pole. 2 weeks later
APOLOGIES FOR LONG POST:Thought I would post an update despite it being negative, i know someone might be following my post.I posted a few weeks ago that after my BFP i had low HCG levels which were not doubling either. At 6 weeks ultrasound showed gestational sac without fetal pole. 2 weeks later
Stacia
in
Fertility Network UK
2 years ago
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test interpretation
I have a rather long summary page from my flow cytrometry test and I understand none of it. Can someone here please help? translate to common language I can understand? I apologize if this is not the right thing to post. I had to push to get the test done as within this past year my lymphocytes and white
I have a rather long summary page from my flow cytrometry test and I understand none of it. Can someone here please help? translate to common language I can understand? I apologize if this is not the right thing to post. I had to push to get the test done as within this past year my lymphocytes and white
DianeSH
in
CLL Support
2 years ago
covid and migraine
I have
chronic
daily headaches/
migraine
. I'm now wiped out with Covid but the worst part seems to be my migraine pain having gone up another level. Every time I cough the pain behind my eyes from the migraine is awful.
I have
chronic
daily headaches/
migraine
. I'm now wiped out with Covid but the worst part seems to be my migraine pain having gone up another level. Every time I cough the pain behind my eyes from the migraine is awful.
Cara71
in
Migraine Support
2 years ago
sensitive
again me 🙈, right, my beta hcg came back 135 , got the meds that I need but phone my doctor and want to see me for a scan , that is abroad. I should be 5 weeks pregnant and doctor said is the best to have a scan to check everything is ok . I am very concerned about the long travel situation and flight
again me 🙈, right, my beta hcg came back 135 , got the meds that I need but phone my doctor and want to see me for a scan , that is abroad. I should be 5 weeks pregnant and doctor said is the best to have a scan to check everything is ok . I am very concerned about the long travel situation and flight
MariannaB
in
Fertility Network UK
2 years ago
blighted ovum
I had a miscarriage in September 2022. I had a blighted ovum miscarriage (empty sac, no fetal pole). I found out I was pregnant again in January, supposed to be due September 2023. Due to previously having a miscarriage, they asked me to come in for a vaginal ultrasound at 6 weeks. They told me that
I had a miscarriage in September 2022. I had a blighted ovum miscarriage (empty sac, no fetal pole). I found out I was pregnant again in January, supposed to be due September 2023. Due to previously having a miscarriage, they asked me to come in for a vaginal ultrasound at 6 weeks. They told me that
ABVAN28
in
Fertility Network UK
2 years ago
A diet for CLL
Dear friends, I hope you are staying well. Last week I ate fruit with vitamine C, I exagerated with quantity and felt really bad. My lymph nodes were swallen and I felt very big fatigue. I m still on watch and wait (I was diagnosed with Cll in January 2018) and I wish to stay on it as long
Dear friends, I hope you are staying well. Last week I ate fruit with vitamine C, I exagerated with quantity and felt really bad. My lymph nodes were swallen and I felt very big fatigue. I m still on watch and wait (I was diagnosed with Cll in January 2018) and I wish to stay on it as long
Lela1212
in
CLL Support
2 years ago
6 week ultrasound no pregnancy identified Hcg 4100
Hi guys. Me again! I know how naive this sounds and need to come to terms with the inevitable but has anyone else found themselves in the position of having a 6 week scan and no baby found but Hcg of over 4100 and it wasn’t ectopic? Having bloods again in 2 days and they’ve told me to continue with the
Hi guys. Me again! I know how naive this sounds and need to come to terms with the inevitable but has anyone else found themselves in the position of having a 6 week scan and no baby found but Hcg of over 4100 and it wasn’t ectopic? Having bloods again in 2 days and they’ve told me to continue with the
Rainbowretrieval
in
Fertility Network UK
2 years ago
Results from Phase 2 study of nivolumab plus ibrutinib in patients with diffuse large b-cell Richter Transformation of CLL
A research article that reports on "[i]A Phase 2 Study of Nivolumab Combined with Ibrutinib in Patients with Diffuse Large B-cell Richter Transformation of CLL[/i]" was published in the journal Blood Advances this week and provides some encouraging data for a population that is very challenging to treat
A research article that reports on "[i]A Phase 2 Study of Nivolumab Combined with Ibrutinib in Patients with Diffuse Large B-cell Richter Transformation of CLL[/i]" was published in the journal Blood Advances this week and provides some encouraging data for a population that is very challenging to treat
CLLerinOz
Administrator
in
CLL Support
2 years ago
Headache?
Some mornings I wake with a headache. Some mornings I don't. So I add two tylenol to the morning medications. If two hours pass and no relief I take two ibuprofen. If two more hours pass with no relief I try acupuncture. Sometimes that works but sometimes not. I can't find a commonality to
Some mornings I wake with a headache. Some mornings I don't. So I add two tylenol to the morning medications. If two hours pass and no relief I take two ibuprofen. If two more hours pass with no relief I try acupuncture. Sometimes that works but sometimes not. I can't find a commonality to
kaypeeoh
in
Cure Parkinson's
2 years ago
IBS & Migraine Aura
I'm starting to wonder if my recent IBS-D flare-ups have been connected with concurrent (mild) attacks of Migraine Aura. Migraine Aura is a series of visual disturbances and may or may not be accompanied by headaches. I don't get the headache, thankfully. Has anyone else seen this connection or am
I'm starting to wonder if my recent IBS-D flare-ups have been connected with concurrent (mild) attacks of Migraine Aura. Migraine Aura is a series of visual disturbances and may or may not be accompanied by headaches. I don't get the headache, thankfully. Has anyone else seen this connection or am
Hetchins1946
in
IBS Network
2 years ago
Is Trimbow causing me health problems
So, I have had 3 full blood counts over the last 4 months, seems for some reason my platelet count is very low, had the usual lifestyle questions asked by my doctor and after the latest blood count was told by my doctor that it's all a red herring, my platelet count must be my normal level, sounds plausible
So, I have had 3 full blood counts over the last 4 months, seems for some reason my platelet count is very low, had the usual lifestyle questions asked by my doctor and after the latest blood count was told by my doctor that it's all a red herring, my platelet count must be my normal level, sounds plausible
Hidden
in
Lung Conditions Community Forum
2 years ago
Do you think ivf treatment abroad is better and why?
Hi everyone, I would like to get some advice regarding treatments abroad, please. We are with a great private clinic in London, but our last attempt was disastrous. Would you please be able to share your treatment plan or protocol and how it was different from the one received here in Uk? According
Hi everyone, I would like to get some advice regarding treatments abroad, please. We are with a great private clinic in London, but our last attempt was disastrous. Would you please be able to share your treatment plan or protocol and how it was different from the one received here in Uk? According
ourbundleofjoy
in
Fertility Network UK
2 years ago
Ajovy constipation
Hi all, Been taking Ajovy since July and definitely having a positive effect on my migraines, but have started to have issues with constipation :-(. Any advice? Think I remember some people recommend magnesium oxide or citrate? When is a good time to take this and what dose? Thanks!
Hi all, Been taking Ajovy since July and definitely having a positive effect on my migraines, but have started to have issues with constipation :-(. Any advice? Think I remember some people recommend magnesium oxide or citrate? When is a good time to take this and what dose? Thanks!
Jeffner
in
National Migraine Centre
2 years ago
Trimbow eligibility??
ok so I’ll reply to you all on my other post shortly, thank you all for your support!! I was thinking of asking my GP to step down my Seretide from 125/25 to 50/25 because the steroid is definitely doing less for me than the long acting reliever. I was also going to ask to switch back from Atrovent
ok so I’ll reply to you all on my other post shortly, thank you all for your support!! I was thinking of asking my GP to step down my Seretide from 125/25 to 50/25 because the steroid is definitely doing less for me than the long acting reliever. I was also going to ask to switch back from Atrovent
saltyskies
in
Lung Conditions Community Forum
2 years ago
Five-year results for the iFCG regimen: first-line treatment of CLL patients with mutated IGHV and without del(17p)/TP53 mutation
Published 4 months ago, https://journals.lww.com/hemasphere/Fulltext/2022/06003/S149__LONG_TERM_OUTCOMES_OF_IFCG_REGIMEN_FOR.50.aspx is an update of the Phase 2 study S149, initiated in 2017 and previously reported here in "Novel Combos Are Shaking Up the CLL Landscape but FCR still has its place" https
Published 4 months ago, https://journals.lww.com/hemasphere/Fulltext/2022/06003/S149__LONG_TERM_OUTCOMES_OF_IFCG_REGIMEN_FOR.50.aspx is an update of the Phase 2 study S149, initiated in 2017 and previously reported here in "Novel Combos Are Shaking Up the CLL Landscape but FCR still has its place" https
bennevisplace
in
CLL Support
2 years ago
Hair texture changes? Hyper or hypo?
What condition(s) makes hair go: a) from wavy/curly to straight? b) darker at the back of your neck? c) grey/blonde -> brazzy/orange? Hyperthyroidism or hypothyroidism? Possibly other conditions?
What condition(s) makes hair go: a) from wavy/curly to straight? b) darker at the back of your neck? c) grey/blonde -> brazzy/orange? Hyperthyroidism or hypothyroidism? Possibly other conditions?
Tomchr
in
Thyroid UK
2 years ago
Tested 10dpt of 5 day blastocyst-negative result
Hi all I’ve just done x2 at home urine tests (clear blue and FR). I’m on day 10 of 2WW. The result on both tests was negative. I’ll continue to test up to OTD (Wednesday) and take meds…just wondering if this is too early and if there is still hope. I’ve researched outcomes to death this morning
Hi all I’ve just done x2 at home urine tests (clear blue and FR). I’m on day 10 of 2WW. The result on both tests was negative. I’ll continue to test up to OTD (Wednesday) and take meds…just wondering if this is too early and if there is still hope. I’ve researched outcomes to death this morning
Vivkim
in
Fertility Network UK
2 years ago
green tea
I was told to drink lots of green tea when I was first diagnosed with CLL 9 months ago.But it seems like my spleen hurts more when I drink a cup of green tea or take a green tea capsule. Am I missing something?
I was told to drink lots of green tea when I was first diagnosed with CLL 9 months ago.But it seems like my spleen hurts more when I drink a cup of green tea or take a green tea capsule. Am I missing something?
Nugent666
in
CLL Support
2 years ago
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