Experiences with

Chronic leukaemia

I had a first DE transfer on the 15th October. Had a vomiting bug the following week and 7 days after transfer I had light spotting which lasted about 6 hours on the 22nd October. Test was BFP at 12 and 13dp5dt on 28th October. No more spotting and at 5 weeks I had a doubling HCG 1035 - 3694 taken

I keep thinking of additional questions to ask here in addition to my previous posts about Jakafi.When my oncologist suggested that I start this drug after trying to take HU, I suggested Besremi? He said he can't get it although he's tried several places? I'm confused? Is it not offered in

I'm to start on Jakafi soon, after not being able to tolerate HU. Are some of you on this site currently on Jakafi and what side effects have you experienced? Weight gain, fatigue, hair loss, high cholesterol? How long before you began noticing side effects after starting the RX? What were your

Hi everyone I was supposed to start on IFN but my heamatologist is asking other consultants if Ruxolitinib and hydrea can be combined. Was on hydrea for Sixteen years but stopped controlling my platelets. Now on Ruxolitinib but can’t tolerate a high dose. She thinking lower dose both. Has anyone tried

When you are newly diagnosed with CLL , is it normal to be placed on W&W and not be given the following test, FISH , TP53 , AND IGHV ? My GP did have me see the oncologist , who order the Leukemia/Lymphoma Eval. and a Flow Cytometry test. It sounds like some Doctors only order the test when

Hi ladies, I guess just looking for some reassurance really. I got a positive a few weeks ago after 3 years of IVF, this was my third transfer with donor eggs. My HCG was in the late 500’s. They said they wouldn’t test it again as it was good, the day after test day. Since then I have had very sore

Recently diagnosed, first with ET. And put on 500mg hydroxyurea daily with platelets at 617. After bone marrow aspiration and biopsy, diagnosis changed to prefibrotic myelofibrosis. HU had brought platelets down to 270 but I suffered from very bad side effects. Dr didn’t want to change med or dosage.

Recently diagnosed first with ET. put on 500mg hydroxyurea daily with platelets at 617. After bone marrow aspiration and biopsy, diagnosis changed to prefibrotic myelofibrosis. HU had brought platelets down to 270 but I suffered from very bad side effects. Dr didn’t want to change med or dosage. I resisted

Can anyone provide reassurance things will be OK if any ladies have had or know of anyone who has had very low beta hcg results? It was 6.34 today @ 3 weeks. But that's very bad. 😔they will retest Friday, feeling sad, o\s.

Tested home 8dp5dt Tues BFN Tested home 10dp5dt Thurs vv faint line Blood test 11dp5dt Fri Tested home 12dp5dt Sat BFN - stopped meds Started bleeding last night Doctors called today to say HCG was 49 on Fri test 😰😰 Clinic said probably a chemical but I can’t stop thinking it’s my fault for stopping

Good Morning, Read this forum regularly... thank you for sharing ... Looking to learn more about RLS and Parkinson's, especially from persons with these two conditions particularly their medication management. My husband has both conditions, RLS since mid 2000s, Parkinson's since 2018. And we are

After 4th failed transfer with optimum lining and progesterone levels. The only thing different my clinic want to do is add HCG a couple of days before the next transfer. To mimic the signals your body would naturally send when an egg is released (using DE). Anyone heard of/experienced this? They are

I checked again for hcg level and it showed negative. Cycle failed. I don't know what and where went wrong. Mine was a fresh embryo transfer of 5AB quality. Thickness was good. Did showed some symptoms of implantation in the beging. But after 10days resulted in negative. Its really painful seeing the

Manouche posted the very new Majic-PV trial. Some thoughts (sorry it's not better organized, I'm not top of my game these days): Rux is looking similar to IFN for allele reductions (My Dr sort of said "I told you so") This like most other Rux studies have been handicapped by selecting for HU intolerant

«  Patients with PV often have high JAK2 V 617F VAF (>50%) because of the emergence of a dominant clone with concurrent loss of wild-type JAK2, which in turn is associated with increased risk of vascular events and transformation to myelofibrosis. In MPN, unlike other hematologic malignancies, for example

is HCG 735 at 18 days post ovulation normal?

Another interesting post from MPN Hub. Discussion of the three driver mutations and the importance of using the more sensitive tests to diagnose patients with low allele burden. Also discussion regarding prognosis. https://www.youtube.com/watch?v=jb9dJILZWGQ

many of you know my last story and post on here. I last miscarried on the 22 nd July. I was 13 weeks. I gave birth to her on the floor in a cold hospital room as she just gushed out. I had a d&c after I fainted not that there was anything to come out .. or was there? I remember when I did hcg back

Hi I wonder if someone could please advise me x I’ve recently been started on I tablet 500mgs of Hydroxycarbamide a day x I’m in a new relationship and I wondered is it okay for intimate relations or should I be using some sort of protection for my partner? ie condoms? we are both early 60’s x

Clinically significant improvements in myelofibrosis-associated symptoms, anemia, and spleen response were achieved with momelotinib, compared with danazol, in patients with myelofibrosis. These findings were published in The Lancet. Danazol has often been used to treat patients with myelofibrosis,