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Alan Hyde - QE Hospital Birmingham.
Many people who have received their liver transplant at the QE, will most likely know of Alan Hyde. Alan has been a strong supporter of the QE for over 14-years, visiting patients on the liver transplant ward (726), Alan was also chairman of the “Queen Elizabeth Liver Patients Support Group”, and featured
Many people who have received their liver transplant at the QE, will most likely know of Alan Hyde. Alan has been a strong supporter of the QE for over 14-years, visiting patients on the liver transplant ward (726), Alan was also chairman of the “Queen Elizabeth Liver Patients Support Group”, and featured
Richard-Allen
in
British Liver Trust
4 years ago
CLL with CAD
CLL with Cold Agglutinin Disease New to the group, 72 yr old male, served in Vietnam from 1967 to 1970 Diagnosed in Feb 2020 Would like to hear from anyone CLL and CAD (Cold Agglutinin Disease)
CLL with Cold Agglutinin Disease New to the group, 72 yr old male, served in Vietnam from 1967 to 1970 Diagnosed in Feb 2020 Would like to hear from anyone CLL and CAD (Cold Agglutinin Disease)
Hidden
in
CLL Support
4 years ago
I should have asked questions
Hi everyone, Only me 2nd day on here so please bare with me as I get used to all the abbreviations. I’m on my 1st icsi cycle - transferred on day 5 and started spotting on Saturday on and off but very light - however I feel like today AF has arrived... still not heavy but bright red and all normal
Hi everyone, Only me 2nd day on here so please bare with me as I get used to all the abbreviations. I’m on my 1st icsi cycle - transferred on day 5 and started spotting on Saturday on and off but very light - however I feel like today AF has arrived... still not heavy but bright red and all normal
Hidden
in
Fertility Network UK
4 years ago
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Still bleeding 😢
After my positive test last week I have continued to spot (And worry/panic) since then. Over the weekend it turned heavier just like with my last chemical/miscarriage in Feb. I phoned the clinic This morning and had a blood test where HCG is over 19k so they want to repeat on Wednesday and do a scan
After my positive test last week I have continued to spot (And worry/panic) since then. Over the weekend it turned heavier just like with my last chemical/miscarriage in Feb. I phoned the clinic This morning and had a blood test where HCG is over 19k so they want to repeat on Wednesday and do a scan
Twiglet2
in
Fertility Network UK
4 years ago
Hcg trigger before transfer
Hi guys...am out for my transfer on 27th..ya only 2 dats left!!.. doctor hav suggested a hcg trigger before transfer..for more successful implantation...has anyone on dis platform took dis injection before transfer?? ...please share ur experience
Hi guys...am out for my transfer on 27th..ya only 2 dats left!!.. doctor hav suggested a hcg trigger before transfer..for more successful implantation...has anyone on dis platform took dis injection before transfer?? ...please share ur experience
Twobaby
in
Fertility Network UK
4 years ago
NIGHT SWEATS
I would appreciate input from members on Night Sweats. Although I am a little over two years in W&W, and I understand very well the symptoms my Hematologist/Oncologist will look for regarding triggers for treatment (RBC count, Platelet Count, increased infections, and Night Sweats) I am uncertain if
I would appreciate input from members on Night Sweats. Although I am a little over two years in W&W, and I understand very well the symptoms my Hematologist/Oncologist will look for regarding triggers for treatment (RBC count, Platelet Count, increased infections, and Night Sweats) I am uncertain if
wizzard166
in
CLL Support
4 years ago
Aussies, please consider enrolling in this study into the personal impact of CLL and help our world wide CLL/SLL community
Australians diagnosed with chronic lymphocytic leukaemia/small lymphocytic lymphoma (CLL/SLL), whether in watch and wait or in treatment:- [i]- Are you ready to have your say on the support, care & information patients need? - Are you ready for your experience to help others in the future? - Are you
Australians diagnosed with chronic lymphocytic leukaemia/small lymphocytic lymphoma (CLL/SLL), whether in watch and wait or in treatment:- [i]- Are you ready to have your say on the support, care & information patients need? - Are you ready for your experience to help others in the future? - Are you
AussieNeil
Partner
in
CLL Support
4 years ago
Shingles vaccine
Shingles vaccine. Hi am am ETJak2+, I am unable to have the live shingles vaccine with nhs, but I have read that there is an inert vaccine available. Has anyone had this on the nhs and if so how did you achieve it. Thank you in advance.
Shingles vaccine. Hi am am ETJak2+, I am unable to have the live shingles vaccine with nhs, but I have read that there is an inert vaccine available. Has anyone had this on the nhs and if so how did you achieve it. Thank you in advance.
Hydrox
in
MPN Voice
4 years ago
Towards personalised management of CLL? Ibrutinib study reveals new way to gauge patients’ response to treatment
Excerpts from https://www.genengnews.com/topics/omics/cll-drug-study-finds-single-cell-analysis-can-gauge-response-rate/ *** Ibrutinib, a Bruton tyrosine kinase (BTK) inhibitor, has remarkable efficacy in most patients with CLL. It is becoming the standard of care for most patients requiring treatment
Excerpts from https://www.genengnews.com/topics/omics/cll-drug-study-finds-single-cell-analysis-can-gauge-response-rate/ *** Ibrutinib, a Bruton tyrosine kinase (BTK) inhibitor, has remarkable efficacy in most patients with CLL. It is becoming the standard of care for most patients requiring treatment
bennevisplace
in
CLL Support
4 years ago
Pneumonia shot
I’m on mtx r we supposed to stop it two weeks before and after pneumonia shot?
I’m on mtx r we supposed to stop it two weeks before and after pneumonia shot?
Funnygirl64
in
NRAS
4 years ago
UK CLL Forum - updated post lockdown guidance for the management of CLL
During the height of the COVID19 pandemic the UK CLL Forum issued guidance on managing CLL patients. This guidance has now been updated with post lockdown guidance. Many of us will be disappointed to see that the first point is to continue to 'consider telephone or video conference appointments if feasible
During the height of the COVID19 pandemic the UK CLL Forum issued guidance on managing CLL patients. This guidance has now been updated with post lockdown guidance. Many of us will be disappointed to see that the first point is to continue to 'consider telephone or video conference appointments if feasible
Jm954
Administrator
in
CLL Support
4 years ago
How to tell young children
Hi, my husband is in the stages of being confirmed to have CLL. He already has CML which he is in remission with, and was diagnosed with when he 25 (now 38). We have a 3.5yrs son, and I was wondering if anyone has any tips how to approach the subject with him. He knows things are not right at home, and
Hi, my husband is in the stages of being confirmed to have CLL. He already has CML which he is in remission with, and was diagnosed with when he 25 (now 38). We have a 3.5yrs son, and I was wondering if anyone has any tips how to approach the subject with him. He knows things are not right at home, and
Savage27
in
CLL Support
4 years ago
5 weeks pregnant and dark brown/black spotting
5 weeks pregnant with good hcg number but I am having very dark brown spotting for 4 days now on an off. No pink, red, or rust just black/brown with coffee ground consistency. Starting to worry as it has been multiple days but no pain or cramping. Has anyone else experienced this? What was the outcome
5 weeks pregnant with good hcg number but I am having very dark brown spotting for 4 days now on an off. No pink, red, or rust just black/brown with coffee ground consistency. Starting to worry as it has been multiple days but no pain or cramping. Has anyone else experienced this? What was the outcome
jasminelmm
in
Pregnancy and Parenting Support
4 years ago
Can u ever stop dialysis
Hello I am 47 years old I started dialysis March 2020. My question may song strange but do people ever get off dialysis without having a kidney transplant with end stage renal failure
Hello I am 47 years old I started dialysis March 2020. My question may song strange but do people ever get off dialysis without having a kidney transplant with end stage renal failure
Lady1blue
in
Kidney Dialysis
4 years ago
Starting T3 meds for high rT3 soon, help?
I haven't been on the forum long, but have gained so much knowledge in the last few weeks leading up to my physical with my primary and a phone consultation with my TRT doctor. In order to keep this post brief (long story short), I drew routine labs for my physical along with a full thyroid and hormone
I haven't been on the forum long, but have gained so much knowledge in the last few weeks leading up to my physical with my primary and a phone consultation with my TRT doctor. In order to keep this post brief (long story short), I drew routine labs for my physical along with a full thyroid and hormone
dell500
in
Thyroid UK
4 years ago
SF3B1 Mutations
We've had a couple of members mention that they are positive for SF3B1 Mutations so I thought it would be worth a short simplified post about it. SF3B1 are predominantly sub clonal genetic events in CLL and are not unique to CLL as they are also found in other haematological disease such as myelodysplastic
We've had a couple of members mention that they are positive for SF3B1 Mutations so I thought it would be worth a short simplified post about it. SF3B1 are predominantly sub clonal genetic events in CLL and are not unique to CLL as they are also found in other haematological disease such as myelodysplastic
Jm954
Administrator
in
CLL Support
4 years ago
FCR oral versus iv
Hi I have read that cyclophosphamide and fludarabine can be given orally instead of IV. Is oral better tolerated in terms side effects? I guess oral formulation avoids need to attend hospital more frequently for infusions too. Is there anything else I should consider if needing tx with FCR? Thanks
Hi I have read that cyclophosphamide and fludarabine can be given orally instead of IV. Is oral better tolerated in terms side effects? I guess oral formulation avoids need to attend hospital more frequently for infusions too. Is there anything else I should consider if needing tx with FCR? Thanks
CarpeDiem03
in
CLL Support
4 years ago
Worried About Your CLL? A CLL EXPERT PHYSICIAN CAN GIVE YOU A 2nd OPINION ONLINE AT NO COST TO YOU! (Applies to USA Residents only)
https://cllsociety.org/cll-society-expert-access/ CLL Society Expert Access™ Program ( Unfortunately this is available to USA Residents only - Sorry) - We believe that access to CLL expert care is critical for every patient to receive his or her best possible care. Access to a CLL expert provides proven
https://cllsociety.org/cll-society-expert-access/ CLL Society Expert Access™ Program ( Unfortunately this is available to USA Residents only - Sorry) - We believe that access to CLL expert care is critical for every patient to receive his or her best possible care. Access to a CLL expert provides proven
lankisterguy
Volunteer
in
CLL Support
4 years ago
Beta HCG of 75 at 10dp5dt FET
Hi ladies, so I got my BFP from this round (FET) but my HCG levels are really low at 75 😔. Clinic seem pleased with them as above 25, I’m retesting on Monday to check for doubling 🤞🏻But I’m just so disappointed with the number. I’ve also been experiencing a lot of cramping since about 5dp5dt which
Hi ladies, so I got my BFP from this round (FET) but my HCG levels are really low at 75 😔. Clinic seem pleased with them as above 25, I’m retesting on Monday to check for doubling 🤞🏻But I’m just so disappointed with the number. I’ve also been experiencing a lot of cramping since about 5dp5dt which
Chloettc2020
in
Fertility Network UK
4 years ago
5w1d loss of symptoms
Through some miracle of science we got pregnant this round (4th IVF) I attribute it to no PGS. My HCG levels doubled every 48 hours (last level yesterday) and starting last night I lost all my symptoms. No nausea, no twinging, breasts feel less full and tender. AM I GOING CRAZY? Has this happened to
Through some miracle of science we got pregnant this round (4th IVF) I attribute it to no PGS. My HCG levels doubled every 48 hours (last level yesterday) and starting last night I lost all my symptoms. No nausea, no twinging, breasts feel less full and tender. AM I GOING CRAZY? Has this happened to
Abcdefghijklmnopqq
in
Fertility Network UK
4 years ago
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