Can u ever stop dialysis : Hello I am 4... - Kidney Dialysis

Kidney Dialysis

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Can u ever stop dialysis

Lady1blue profile image
14 Replies

Hello I am 47 years old I started dialysis March 2020. My question may song strange but do people ever get off dialysis without having a kidney transplant with end stage renal failure

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Lady1blue
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14 Replies
Jayhawker profile image
Jayhawker

According to the patient education I’ve received from my nephrologist's office, if I choose to discontinue dialysis without a successful transplant, I will not live long.

You didn’t provide much information so I’m not sure why you posed the question. I hope that you have or will talk with your nephrologist about discontinuing dialysis. Of course, it is ultimately your decision as to whether to continue dialysis or not. But there may be modifications that can be made to your dialysis treatment plan to address any difficulties you may be experiencing, e.g., shifting from in center HD dialysis to home PD dialysis.

Also, have you been through transplant evaluation? If not, I’d strongly suggest that you do that.

Jayhawker

Lady1blue profile image
Lady1blue in reply toJayhawker

Yes I wasn't saying if I just discontinued I was saying can your kidneys ever go back to normal function but I understand he replied thank you

Bassetmommer profile image
Bassetmommer

I found this article

Kidney Function Recovery

Although it is rare, there are cases in the medical literature in which people who have been diagnosed with ESRD have recovered kidney function. Experts estimate that this recovery may occur in up to eight percent of the population. These individuals have been able to stop dialysis without developing uremia, the condition in which toxins build up in the blood and eventually cause death. Patients known to recover in this fashion have typically been on dialysis for about two years, although longer periods of dialysis have been reported.

associatesinnephrologypc.co....

Jayhawker profile image
Jayhawker in reply toBassetmommer

Interesting article; thanks for sharing🐶

Jayhawker

Lady1blue profile image
Lady1blue in reply toBassetmommer

I read the article thank you

OperationKidney profile image
OperationKidney

It depends on the circumstamces as to why you are in ESRD from what I understand. For instance, if a patient has acute renal failure they might be able to get off of dialysis once their kidney condition improves. However most people don't have that opportunity. Dialysis is certainly a lifestyle adjustment, and I highly recommend transplant if you're eligible. If you need help looking for a donor or simply want some emotional support please don't hesitate to reach out. ❤ Sending you all the best wishes!

Lady1blue profile image
Lady1blue in reply toOperationKidney

Thank you for your reply and no I don't have a cute so I guess I'm stuck with this dialysis until transplant comes along thank you

Jayhawker profile image
Jayhawker in reply toLady1blue

I’m waiting for a transplant too. We’re the lucky ones; we qualify for transplants so dialysis will be a temporary situation. Stay 💪

Your donor kidney will come! I’m viewing my wait time as though I’m in training for a marathon, my own personal Olympics. I’m doing everything I can to remain transplant ready. Then I’m hoping for the best as I carry on with my life.

Jayhawker

Darlenia profile image
Darlenia

It's difficult, isn't it...living with the constant reminder and hassle that you're on dialysis. My husband began dialysis in June 2020. As people in the thread have mentioned, it all depends on the underlying condition. (I understand a fair number of Covid patients go on dialysis and later manage to go off.) But my husband has Diabetes Type II which ultimately destroys all those tiny blood vessels inside your body, including those inside the kidneys. So there's no turning back the hands of time for him. He has been on hemodialysis but has transitioned to peritoneal dialysis this past week. Since the later is done in your home while asleep, it's great for those who want to free up their days to hold down jobs, etc. It may enhance your life too. Even though my husband is 70 years old, he has also been going through the process to qualify for a transplant with the encouragement of his doctors. So far, so good. Like Jayhawker, I strongly urge you to do the same. I've had a middle-aged business associate who had a transplant as a young girl...and was the nation's longest surviving person on her transplant back in the day. You're young and have a lot of living to do! Go for it all.

Lady1blue profile image
Lady1blue in reply toDarlenia

Thank you I am going through the process of getting on the transplant list I was just wondering is it ever possible for a person to reverse end-stage kidney renal failure I have type 2 diabetes as well and high blood pressure so is looking like that's a no-go but thank you for your reply

Oceanviewed profile image
Oceanviewed

If you are young seriously think about getting a transplant. I have a friend who has had two transplants so far and lives a normal life. Me I am too old to qualify for one

cs65 profile image
cs65NKF Ambassador

I haven't heard of any dialysis patients being able to get off dialysis unless they had acute kidney failure (short-term, not chronic or long-term). There have been people who have stopped dialysis intentionally, but they died within a week or two on hospice care to deal with the pain. A transplant is a much better idea, if you can qualify for one. Also, think of dialysis as going to your part-time job, with the reward of saving your life!

Lady1blue profile image
Lady1blue

Yeah that is a good way of looking at it I just happened to say that today at dialysis I said it's a nice day well until I had to come in here to save my life 🤷🏾‍♀️

Puplove45 profile image
Puplove45

I’ve been on HD for a little more than 2 years. I turned 54 in August ‘24 and am planning on stopping dialysis before my 55th birthday to avoid MERP in Indiana. I don’t qualify for a transplant due to severe vascular problems. I’m just posting this to warn everyone who doesn’t already know about MERP to look into it if you’re on Medicaid in your state. My house is my only asset for my kids to inherit so that’s why I want to protect it from Medicaid seizing it. Any comments or suggestions are welcome! God bless!

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