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UK Webinar this Friday - 3.30pm GMT 17th December - Making the best of your CLL medical appointments
Hi friends a reminder - You may find this Leukaemia Care webinar of interest. The webinar will focus on how CLL patients can get the most out of their medical appointments, regardless of purpose, format and at whatever stage of your pathway. You can join us and the discussion by registering here:
Hi friends a reminder - You may find this Leukaemia Care webinar of interest. The webinar will focus on how CLL patients can get the most out of their medical appointments, regardless of purpose, format and at whatever stage of your pathway. You can join us and the discussion by registering here:
HAIRBEAR_UK
Founder Admin
in
CLL Support
3 years ago
EPGA and chicken pox
Hi all! The person we share a house with plans to spend christmas with her family. Her grandson now has chicken pox! How long does that stay infectious and can she bring it back to me in the form of shingles, which, I imagine, would not be good! She is about to cancel her plans which I don't want her
Hi all! The person we share a house with plans to spend christmas with her family. Her grandson now has chicken pox! How long does that stay infectious and can she bring it back to me in the form of shingles, which, I imagine, would not be good! She is about to cancel her plans which I don't want her
sarahdollygirl
in
Vasculitis UK
3 years ago
CLL Society ASH 2021 Highlights from Day 2 of ASH 2021! Dr. Brian Koffman gives up updates
ASH 2021 Highlights from Day 2 of ASH 2021! Dr. Brian Koffman gives up updates on the reversible non-covalently binding BTKi (Bruton’s tyrosine kinase inhibitor) pirtobrutinib (formerly LOXO-305), another reversable BTKi known as MK-1026 (formerly ARQ-531), 3-year follow-up data from the Ascend Trial
ASH 2021 Highlights from Day 2 of ASH 2021! Dr. Brian Koffman gives up updates on the reversible non-covalently binding BTKi (Bruton’s tyrosine kinase inhibitor) pirtobrutinib (formerly LOXO-305), another reversable BTKi known as MK-1026 (formerly ARQ-531), 3-year follow-up data from the Ascend Trial
bkoffman
CLL CURE Hero
in
CLL Support
3 years ago
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***UPDATE***confirmed miscarriage at 21dpo
Today I had my Hcg done. It came back at a "wonderful" number of 3,4 iu/l from 130iu/l which was exactly 7 days ago. I found out it didn't had a chance in the first place. It failed to implant further, so my Hcg levels didn't even doubled in the first 48 hours. I'm still bleeding after about 36 hours
Today I had my Hcg done. It came back at a "wonderful" number of 3,4 iu/l from 130iu/l which was exactly 7 days ago. I found out it didn't had a chance in the first place. It failed to implant further, so my Hcg levels didn't even doubled in the first 48 hours. I'm still bleeding after about 36 hours
Hidden
in
Fertility Network UK
3 years ago
Inhixa pregnant 5 weeks 4 days and bleeding
First time posting on here.. looking for some sort of miracle …. 4 ivf cycles, 5 th transfer 24/11/21 BFP… so so strong in fact ( where the control line is faint)… yesterday 19 days post transfer I had a sudden painless gush of fresh red bleeding which soaked through all my clothes (sorry TMI) which
First time posting on here.. looking for some sort of miracle …. 4 ivf cycles, 5 th transfer 24/11/21 BFP… so so strong in fact ( where the control line is faint)… yesterday 19 days post transfer I had a sudden painless gush of fresh red bleeding which soaked through all my clothes (sorry TMI) which
Hopeful2021
in
Fertility Network UK
3 years ago
***Sensitive*** BFP that ended in miscarriage
After 2 IVF rounds. One failed and one that ended in 2 frozen embryos. We found out on Tuesday through a beta Hcg that I'm pregnant. Results coming with a hcg of 130 iu/l. My clinic wanted to see anything above 50iu/l. On Wednesday did a digital test that showed 2-3 meaning 4-5 weeks. Just on track,
After 2 IVF rounds. One failed and one that ended in 2 frozen embryos. We found out on Tuesday through a beta Hcg that I'm pregnant. Results coming with a hcg of 130 iu/l. My clinic wanted to see anything above 50iu/l. On Wednesday did a digital test that showed 2-3 meaning 4-5 weeks. Just on track,
Hidden
in
Fertility Network UK
3 years ago
Pregnancy updates
me and my husband planning for a baby for a year. i had last month miscarriage that was a chemical pregnancy. i missed my periods this month from 11 Dec i went for HCG Beta level the result is <2* now my body is doing discharge with watery and brownish color. can anyone tell me if it's a miscarriage
me and my husband planning for a baby for a year. i had last month miscarriage that was a chemical pregnancy. i missed my periods this month from 11 Dec i went for HCG Beta level the result is <2* now my body is doing discharge with watery and brownish color. can anyone tell me if it's a miscarriage
AnuBari
in
Pregnancy and Parenting Support
3 years ago
Pregnancy updates
me and my husband planning for a baby for a year. i had last month miscarriage that was a chemical pregnancy. i missed my periods this month from 11 Dec i went for HCG Beta level the result is <2* now my body is doing discharge with watery and brownish color. can anyone tell me if it's a miscarriage
me and my husband planning for a baby for a year. i had last month miscarriage that was a chemical pregnancy. i missed my periods this month from 11 Dec i went for HCG Beta level the result is <2* now my body is doing discharge with watery and brownish color. can anyone tell me if it's a miscarriage
AnuBari
in
Pregnancy and Parenting Support
3 years ago
Can I come to UK for transplant?
I am 23 and I am on dialysis from two years. I have been recommended kidney & liver transplant. Unfortunately from where i am doctors are not doing the transplant from out family donor. My younger has the same gene mutation so he is rejected for donating but my friends want to donate. I have seen UK's
I am 23 and I am on dialysis from two years. I have been recommended kidney & liver transplant. Unfortunately from where i am doctors are not doing the transplant from out family donor. My younger has the same gene mutation so he is rejected for donating but my friends want to donate. I have seen UK's
Devumair
in
Dialysis Support
3 years ago
Bleeding 5 weeks 3 days pregnant - help.
Last week we got our BFP and my wife’s hcg had a strong number, second hcg check also great number, and yesterday had another one (also great) and we had our 5 week scan where the doctor said he saw the yolk sack and the gestational sack and everything looked great. Today my wife started spotting some
Last week we got our BFP and my wife’s hcg had a strong number, second hcg check also great number, and yesterday had another one (also great) and we had our 5 week scan where the doctor said he saw the yolk sack and the gestational sack and everything looked great. Today my wife started spotting some
GBB87
in
Fertility Network UK
3 years ago
HCG levels
Hi everyone! My HCG levels are 196 U/l on 9dp5dt. Is this a good number? I have been reading your posts for few years now but never posted myself. I started my fertility journey in 2018. I am single so it was with a donor sperm. It is only after the first IUI that I learned my uterine lining is
Hi everyone! My HCG levels are 196 U/l on 9dp5dt. Is this a good number? I have been reading your posts for few years now but never posted myself. I started my fertility journey in 2018. I am single so it was with a donor sperm. It is only after the first IUI that I learned my uterine lining is
Shireen1
in
Fertility Network UK
3 years ago
GCA and shingles
I have GCA PMR vasculitis and now have painful facial shingles. Taking ante viral tablets but I cannot get my booster jab or flu jab until I am clear. Unfortunately the shingles keep reappearing. What would be the dangers of me having my booster jab while my shingles are still active
I have GCA PMR vasculitis and now have painful facial shingles. Taking ante viral tablets but I cannot get my booster jab or flu jab until I am clear. Unfortunately the shingles keep reappearing. What would be the dangers of me having my booster jab while my shingles are still active
camerashy
in
PMRGCAuk
3 years ago
Cold and Severe Cough in Early Pregnancy
Hi guys, so we are very happy, albeit still very cautious, that last week after our 4th IVF cycle we got a BFP and 4 days later the HCG was multiplying appropriately. We have a scan scheduled for this Friday, hoping and praying everything is ok and continues to progress. However, my wife has caught
Hi guys, so we are very happy, albeit still very cautious, that last week after our 4th IVF cycle we got a BFP and 4 days later the HCG was multiplying appropriately. We have a scan scheduled for this Friday, hoping and praying everything is ok and continues to progress. However, my wife has caught
GBB87
in
Fertility Network UK
3 years ago
And just like that it's over
:( statement says it all. This is the furthest I've gotten with all my 8 pregnancies I got to see a scan on Friday and a gestational Sak was there our 5dt was Doing amazing hcg doubling nicely hcg on Sunday was 4975. And just as you start to let your guard down, and enjoy the morning sickness boom you
:( statement says it all. This is the furthest I've gotten with all my 8 pregnancies I got to see a scan on Friday and a gestational Sak was there our 5dt was Doing amazing hcg doubling nicely hcg on Sunday was 4975. And just as you start to let your guard down, and enjoy the morning sickness boom you
Kieneyl
in
Fertility Network UK
3 years ago
Sensitive- BFP confirm, still cannot believe it
I've been thinking if I should write or not, but then I remember all the stories that have brought me hope, and maybe mine will help someone else. So today I've got the confirmation of the blood test, and my HCG levels are 1206, which means positive (between 2-3 weeks pregnant). I couldn't help myself
I've been thinking if I should write or not, but then I remember all the stories that have brought me hope, and maybe mine will help someone else. So today I've got the confirmation of the blood test, and my HCG levels are 1206, which means positive (between 2-3 weeks pregnant). I couldn't help myself
MammaMia86
in
Fertility Network UK
3 years ago
Chronic fatigue
Hi There. Just a random question. Before I was diagnosed with endometriosis one of the symptoms I suffered with chronic fatigue. In November 2021 I had my laparoscopic surgery, all went well. After two months I am still suffering with chronic fatigue, no energy whatsoever. Can you still suffer with chronic
Hi There. Just a random question. Before I was diagnosed with endometriosis one of the symptoms I suffered with chronic fatigue. In November 2021 I had my laparoscopic surgery, all went well. After two months I am still suffering with chronic fatigue, no energy whatsoever. Can you still suffer with chronic
Cockapoo-2016
in
Endometriosis UK
2 years ago
Heart broken
Had a hcg at 62 on 9DP5DT... all happy since it’s our 3rd transfer and the only time we made it this far. This time with all the additional meds and tests done... ERA, Immune Panel, PGT, Weekly Humeria, Prenisolone, Meformin, Blood Thinner, Claxene...... n then redid a pee test this morning (13DP5DT)
Had a hcg at 62 on 9DP5DT... all happy since it’s our 3rd transfer and the only time we made it this far. This time with all the additional meds and tests done... ERA, Immune Panel, PGT, Weekly Humeria, Prenisolone, Meformin, Blood Thinner, Claxene...... n then redid a pee test this morning (13DP5DT)
islwyn
in
Fertility Network UK
3 years ago
Sudden loss of symptoms
Hi, I have very recently found out that I am pregnant (5 weeks) and was having bloating, stomach pains and breast tenderness. Almost overnight this all seems to have cleared up. I previously had a missed miscarriage when the baby stopped growing at 5.5 weeks. I am terrified it has happened again. I rang
Hi, I have very recently found out that I am pregnant (5 weeks) and was having bloating, stomach pains and breast tenderness. Almost overnight this all seems to have cleared up. I previously had a missed miscarriage when the baby stopped growing at 5.5 weeks. I am terrified it has happened again. I rang
Zozoeee123
in
Fertility Network UK
3 years ago
Treating autoimmune hemolytic anemia (AIHA)
Does anyone have autoimmune hemolytic anemia (AIHA) along with your chronic lymphocytic leukemia (CLL). I believe it occurs for around 10% of CLL patients. Any experience or knowledge about it would help. My Haptoglobin has gone from 39 in September to 14 this past week. As I understand it, when it
Does anyone have autoimmune hemolytic anemia (AIHA) along with your chronic lymphocytic leukemia (CLL). I believe it occurs for around 10% of CLL patients. Any experience or knowledge about it would help. My Haptoglobin has gone from 39 in September to 14 this past week. As I understand it, when it
SantaZia
in
CLL Support
3 years ago
Two things. White blood count creeping up. And waiting for results from spike protein test.
I just went for my regular hematologist appointment. My white blood count hovered between 18 and 20. Today it was 23. My doctor isn't worried but is having me come back in 3 months instead of 4. She said not to worry but I see a slight upward trend. Any advice? Also I'm waiting for my results from
I just went for my regular hematologist appointment. My white blood count hovered between 18 and 20. Today it was 23. My doctor isn't worried but is having me come back in 3 months instead of 4. She said not to worry but I see a slight upward trend. Any advice? Also I'm waiting for my results from
elm1
in
CLL Support
3 years ago
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