Toleration of colds: Hello all my... - My MSAA Community

My MSAA Community

9,019 members20,711 posts

Toleration of colds

AriSmyelin profile image
20 Replies

Hello all my wonderful friends. It's been awhile. Went to visit my mom and thankfully I did when I did because she busted her ear drum while I was there and that was horrific!!! But much better. My question for you today is, While I was gone my son got a bit of congestion. Which my husband got. When I came back for the most part they seemed fine but my husband being the angel he is refused to kiss me knowing that Ocrevus kills my immunity. Or more specifically the B cells. (fighting cells) I wake up in the midst of the night a few days later. With sinus, and chest congestion and a nasty cough. Which is getting worse and worse. Does anyone else get what should have been a simple cold have it become a nasty flu or whatever? and their 99 fever is my 100. Any fever and life is hell because of the heat.

We basically summed it up to: Their cold is my flu, their flu is my covid, their covid is my death.... Anyone else notice the same thing?

Written by
AriSmyelin profile image
AriSmyelin
To view profiles and participate in discussions please or .
Read more about...
20 Replies
Kenu profile image
Kenu

I got Covid 7 weeks ago and not sure from where? Being cautious about grocery store and doctors. My main exposure are these places and AA meetings. Have had all shots and booster and avid masks 😷 and sanitizer. Anyway was six weeks of recovery and still not 💯 percent yet. After first week it set off my MS and was terrible 😢 I do have cancer ♋️ also it it really kicked my butt. I have survived but now church ⛪️ and hospital 🏥 are taking mask 😷 mandatory down. I guess we will see, still wearing mine but boy do I get weird looks. All I can say is protect your self 🙏👍🏼😉🐾🐾😷

kdali profile image
kdali

No, I don't always do poorly or worse than everyone else while sick on Ocrevus. I hope you get some rest and your fever resolves soon 🙏

AriSmyelin profile image
AriSmyelin in reply to kdali

I don't have a fever luckily. I think where I mostly luck out with MS is that my body generally runs a bit cool. But flushing sucks!!!

NorasMom profile image
NorasMom

I gave up on Ocrevus because I was sick all the time while on it, but I'm also far enough along that the neuro didn't think it would help me much in the first place. I didn't get seriously ill, but I had never-ending colds and sinus infections. I couldn't lay down without coughing my lungs out, and I kept ripping my CPAP off while I slept. My ears would clog for weeks on end, and my nose was constantly stuffy.

AriSmyelin profile image
AriSmyelin in reply to NorasMom

Oh yuck!!!! Yeah laying down sucks. And the constant nose blow. But mostly the hack that results in a burning chest.

Birdymom3 profile image
Birdymom3 in reply to AriSmyelin

Try sleeping with your head slightly elevated and try gargling with warm salt water , Take Vitamin DE I take 5000 iu everyday

bxrmom profile image
bxrmom

My dr's office said that a sinus infection/symptoms mimic covid, so if your family and you are not feeling better soon, I would get tested to make sure.

AriSmyelin profile image
AriSmyelin in reply to bxrmom

My son is totally fine and so is my husband. They pretty much were by the time I came back. I just have no immunity to fight off simple colds.

bxrmom profile image
bxrmom in reply to AriSmyelin

Hope you recover quickly.

Sandydemop profile image
Sandydemop

hoping you get well soon!

BettysMom profile image
BettysMom

All three of you need to be tested for Covid. And you need to see a doctor.

MarkUpnorth profile image
MarkUpnorth

I was on the original DMT's for 20+ years, Avonex, Betserom, copaxone, and Rebif. Besides having flue-like symptoms for the last almost 3 years corresponding to each of the injections. I never had so much as a sniffle all those years. And for almost a decade later. Sneezes in the face at night from my wife with the flue. Nothing. Bulletproof. One evening during one of the house full of sickies. Felt something maybe coming on. Went to bed. Woke up perfect. So, if you can tolerate regular self injections, till you get to the flue-like symptoms...never a sniffle. The flue-like symptoms had no sneezing...only fever with shakes, achiness, and feeling miserable till about noon the day of your next injection, to start it all over again.

AriSmyelin profile image
AriSmyelin

I have had Copaxone, Rebif, Tecfidera, Tysabri and Ocrevus. It was the Last one that made it way worse for me.

Tazmanian profile image
Tazmanian

Please get tested for covid

wolfmom21fl profile image
wolfmom21fl

Yes. It doesnt seem to matter which DMT I am on. I have always had issues with simple minor bugs that everyone else gets past in a couple or 3 days.. me? I am still fighting that same bug 2 weeks later. The worst one tho was Mayzent. That drug made me sick with everything, it seemed like. I stayed isolated the entire time I was on it and still got sick every time I turned around. It was horrible. After 15 months I couldn't deal with it anymore and stopped taking it. An abscessed tooth and a hang nail infection did me in.

AriSmyelin profile image
AriSmyelin in reply to wolfmom21fl

Damn drugs...Blessed curse.

Neworleanslady profile image
Neworleanslady

When i catch what others in my family have, it’s not always worse symptoms, but illnesses do seem to take me longer to recover. I’m on Ocrevus

Birdymom3 profile image
Birdymom3 in reply to Neworleanslady

Unfortunately that is how MS works , I have had MS for 20 years I take Tecfidera 120mg twice a day ,make sure you eat when taking your meds it makes a difference at least for me ,most of the labels usually suggest taking with food.

AriSmyelin profile image
AriSmyelin in reply to Birdymom3

TRUTH!!!!!!

AriSmyelin profile image
AriSmyelin in reply to Neworleanslady

Oh blessed Ocrevus. How you partly kill us just to save us!

You may also like...

Weird cold, wet sensations!

whole butt is wet! I even asked my husband to make sure, because it feels so real! Nope, dry as a...

ms + cold + Ocrevus = not a good combination

November and came back with a nasty cold that flattened me for the whole Thanksgiving week. - not...

Heat and Cold Intolerance.

Does anyone experience heat/cold intolerance? What are your symptoms? I'm not sure if this is...

It’s so cold outside!

play tag while cycling. Crazy! But fun... however this cold has me so uncomfortable. It’s too cold...

Baby it's COLD OUT SIDE

like -1*F I have a question for any one when it’s cold how do your legs work? My legs have been...