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FCR Rounds 5-6
Hi All, Having completed 4 rounds of FCR on the FLAIR trial I unfortunately been hospitalised on the last 2 occasions(rounds 3+4) with some some form of unspecified infection, temperature 38.2 on admission and subsequent blood results showing neutrophils at 0.2-0.4 on both admissions. I had round 4
Hi All, Having completed 4 rounds of FCR on the FLAIR trial I unfortunately been hospitalised on the last 2 occasions(rounds 3+4) with some some form of unspecified infection, temperature 38.2 on admission and subsequent blood results showing neutrophils at 0.2-0.4 on both admissions. I had round 4
jackhammer
in
CLL Support
8 years ago
No response to Rituximab
I had 2 infusions the last one on Mar 3rd and apart from a couple of days feeling well after the 2nd dose (which could have been a response to the prednisolone cover I had) I appear to have had no response. Is there still time for it to work as I am feeling fairly despondent :(
I had 2 infusions the last one on Mar 3rd and apart from a couple of days feeling well after the 2nd dose (which could have been a response to the prednisolone cover I had) I appear to have had no response. Is there still time for it to work as I am feeling fairly despondent :(
DaleDiva
in
LUPUS UK
8 years ago
End of FLAIR trail- question of dosage of Ibrutinib
I have now completed the 6 month combination of Ibrutinib and Rituximab on FLAIR trial. Main problem was severe joint and muscle pain, finally stopped Ib for a week- see previous post) After that 1 week on 1/3 dose, then a month on 2/3 and all well. Bloods looking good this week. It certainly works!
I have now completed the 6 month combination of Ibrutinib and Rituximab on FLAIR trial. Main problem was severe joint and muscle pain, finally stopped Ib for a week- see previous post) After that 1 week on 1/3 dose, then a month on 2/3 and all well. Bloods looking good this week. It certainly works!
romarin
in
CLL Support
8 years ago
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Second knee 8 days on or something
I'm recovering away here. Last time the physio was keen to get me going but yesterday she was quite impressed by the bruising so encouraged me to stick with the rest and exercises which suits me. She says I can start more walking in a week. But my bends are going quite well and I'm waggling my feet
I'm recovering away here. Last time the physio was keen to get me going but yesterday she was quite impressed by the bruising so encouraged me to stick with the rest and exercises which suits me. She says I can start more walking in a week. But my bends are going quite well and I'm waggling my feet
cathie
in
NRAS
8 years ago
Mycophenolate
Had an appointment with my rheumatologist this morning. Some of you already know I had to stop taking mtx approx. 6 weeks ago due to a stubborn UTI. Can't go back on it either because it can cause complications with interstitial lung disease that I've recently been diagnosed with. As most RA meds can
Had an appointment with my rheumatologist this morning. Some of you already know I had to stop taking mtx approx. 6 weeks ago due to a stubborn UTI. Can't go back on it either because it can cause complications with interstitial lung disease that I've recently been diagnosed with. As most RA meds can
wishbone
in
NRAS
8 years ago
itp
I had itp since I was 6 year old they try everything from bone marrow to removing my spleen to steroids one thing that I found out that helps me is rituximab then I get it it last for about 9 months
I had itp since I was 6 year old they try everything from bone marrow to removing my spleen to steroids one thing that I found out that helps me is rituximab then I get it it last for about 9 months
falanw
in
ITP Support Association
8 years ago
Rituximab Side effects....or not?!
Hello I had my first Rituximab infusion (second cycle) last Friday 8/4, for the first couple of days I felt exhausted but that was probably due to the extra anti-histamine. Sunday evening I just could not get to sleep and this has been the case all week now...my heart felt like it was racing and I felt
Hello I had my first Rituximab infusion (second cycle) last Friday 8/4, for the first couple of days I felt exhausted but that was probably due to the extra anti-histamine. Sunday evening I just could not get to sleep and this has been the case all week now...my heart felt like it was racing and I felt
3LittleBirds2
in
NRAS
8 years ago
Hip Replacement
Just a note of warning. My husband has GPA (Wegener's) since Oct 10, diagnosed Nov 11. He's been on Pred starting at 70mg per day, now down to 5mg per day. He's had the Cyclo, Aza, Meth, & Myco, now on Rituximab which seems to be tackling it after 5 years. He's had a triple heart bypass, squamous cell
Just a note of warning. My husband has GPA (Wegener's) since Oct 10, diagnosed Nov 11. He's been on Pred starting at 70mg per day, now down to 5mg per day. He's had the Cyclo, Aza, Meth, & Myco, now on Rituximab which seems to be tackling it after 5 years. He's had a triple heart bypass, squamous cell
Nadine99
in
Vasculitis UK
8 years ago
Under 50 and had FCR?
I am 44 11q and unmuted. I had 18 nodes enlarged and started treatment shortly after diagnosis. I start my last treatment soon. I would like to hear from others who might be similar to me on how long it was until the CLL returned and you needed treatment again. Thanks!
I am 44 11q and unmuted. I had 18 nodes enlarged and started treatment shortly after diagnosis. I start my last treatment soon. I would like to hear from others who might be similar to me on how long it was until the CLL returned and you needed treatment again. Thanks!
Mnance
in
CLL Support
8 years ago
5 vs 6 rounds of FCR
Shortly after my 5th treatment I became sick. Despite 4 rounds of antibiotics I could not shake it and my last treatment was delayed until I was well. Unfortunately I ended up in the hospital with pneumonia where I am now. It has now been 7 weeks since my last treatment. My recent PET/CT scan shows
Shortly after my 5th treatment I became sick. Despite 4 rounds of antibiotics I could not shake it and my last treatment was delayed until I was well. Unfortunately I ended up in the hospital with pneumonia where I am now. It has now been 7 weeks since my last treatment. My recent PET/CT scan shows
Mnance
in
CLL Support
8 years ago
Weight gain -is there any stopping it?
I have lupus nephritis and am on 5mgs prednisolone, 50 mgs hydroxychloroquine and 100mgs losartan a day . I recently had my first two infusions of rituximab. It seems the disease itself and all those medications predispose one to weight gain and I've proved that, putting on about 3 stone in the last
I have lupus nephritis and am on 5mgs prednisolone, 50 mgs hydroxychloroquine and 100mgs losartan a day . I recently had my first two infusions of rituximab. It seems the disease itself and all those medications predispose one to weight gain and I've proved that, putting on about 3 stone in the last
Neriah
in
NRAS
8 years ago
Shingles
Due to have the second of my 2 rituximab infusions for RA last Thursday but started with shingles, yet again! So infusion cancelled and am on antiviral treatment for seven days. Has anyone else had a problem with cancelled treatments? How long can be left between infusions for it still to work? Will
Due to have the second of my 2 rituximab infusions for RA last Thursday but started with shingles, yet again! So infusion cancelled and am on antiviral treatment for seven days. Has anyone else had a problem with cancelled treatments? How long can be left between infusions for it still to work? Will
Scorer
in
NRAS
8 years ago
My success with Imbruvica (ibrutinib
I've posted before that for almost all of 2015 I was treated for ITB. My platelet counts ranged up and down from 2 to 50 all year. In December I switched to another doctor and he did a bone marrow biopsy and told me on Christmas Eve that I have CLL. He immediately started me on FCR, but after two
I've posted before that for almost all of 2015 I was treated for ITB. My platelet counts ranged up and down from 2 to 50 all year. In December I switched to another doctor and he did a bone marrow biopsy and told me on Christmas Eve that I have CLL. He immediately started me on FCR, but after two
ohiojim
in
CLL Support
8 years ago
I'm short of a wee bit of sympathy, just a little.
Greetings all, 2014 September finished six rounds of FCR good result 2015 intermittent infections, reaction from flu injection Knoched me off my feet for 36 hours 2016 January chest infection 4 weeks multiple antibiotics February/March sciatica five weeks multiple variety of pills April just had
Greetings all, 2014 September finished six rounds of FCR good result 2015 intermittent infections, reaction from flu injection Knoched me off my feet for 36 hours 2016 January chest infection 4 weeks multiple antibiotics February/March sciatica five weeks multiple variety of pills April just had
Bribin
in
CLL Support
8 years ago
'Rituximab cough '
Can I ask has anyone experienced a persistent cough, shortness of breath and fatigue after long term use of Rituximab ? I have just read about 'Rituximab cough' and wondered if this is what I'm experiencing ? I have had a persistent cough for 5 months after receiving 6 monthly infusions for the past
Can I ask has anyone experienced a persistent cough, shortness of breath and fatigue after long term use of Rituximab ? I have just read about 'Rituximab cough' and wondered if this is what I'm experiencing ? I have had a persistent cough for 5 months after receiving 6 monthly infusions for the past
Essex-jill
in
Vasculitis UK
8 years ago
Thoughts / experiences of Mycophenolate ?
Just looking for any thoughts and experiences other ITP folk have had please . Unfortunately I've relapsed after having 2 and 1/2 years remission from Rituximab. I had remission of 2 and a half years from 2010 to 2013?then had Rituximab again and got 2 and a half years remission again from 2013 till
Just looking for any thoughts and experiences other ITP folk have had please . Unfortunately I've relapsed after having 2 and 1/2 years remission from Rituximab. I had remission of 2 and a half years from 2010 to 2013?then had Rituximab again and got 2 and a half years remission again from 2013 till
AnthonyHeard
ITP Support Association
in
ITP Support Association
8 years ago
Follicular Lymphoma Patients and Caregivers Survey
Lymphoma Canada is preparing a submission to the panCanadian Oncology Drug Review (pCODR) for: Idelalisib (Zydelig) for the treatment of patients with follicular lymphoma who have received at least two prior systemic regimens and are refractory to both rituximab and an alkylating agent. You can help
Lymphoma Canada is preparing a submission to the panCanadian Oncology Drug Review (pCODR) for: Idelalisib (Zydelig) for the treatment of patients with follicular lymphoma who have received at least two prior systemic regimens and are refractory to both rituximab and an alkylating agent. You can help
LCAdmin
Lymphoma Canada
in
Lymphoma Canada
8 years ago
RITUXIMAB
After recent setbacks on Tocilizumab/ MTX the rheumatology team would like to try me on RITUXIMAB . Having read some of the posts here and visited many Rituximab web sites, I have reached the conclusion this is not a drug to be taken lightly. My biggest concern is PML after JC Virus re-activation, a
After recent setbacks on Tocilizumab/ MTX the rheumatology team would like to try me on RITUXIMAB . Having read some of the posts here and visited many Rituximab web sites, I have reached the conclusion this is not a drug to be taken lightly. My biggest concern is PML after JC Virus re-activation, a
harryhunt43
in
NRAS
8 years ago
To Toc or not to Toc? That is the question
On 15th Aug 2013 I had my first Tocilizumab infusion as part of a blind trial to taper methotrexate with this drug. Previous to this since my RA diagnosis starting May 09 I had been on Methotrexate, HCL, NSAIDS and occasional corticosteroid treatments by tablets or injections, For 16 months my CRP and
On 15th Aug 2013 I had my first Tocilizumab infusion as part of a blind trial to taper methotrexate with this drug. Previous to this since my RA diagnosis starting May 09 I had been on Methotrexate, HCL, NSAIDS and occasional corticosteroid treatments by tablets or injections, For 16 months my CRP and
harryhunt43
in
NRAS
8 years ago
Curious_Patient with ITP
I was discovered to have ITP last Nov. 2015 when upon visit to my Hematologist, my platelet was only 2500. Then and there, numerous medications/operation were given to me (ie I underwent BMA (bone marrow assessment and the doctors said "my bone marrow is fine and healthy". After discharged from hospital
I was discovered to have ITP last Nov. 2015 when upon visit to my Hematologist, my platelet was only 2500. Then and there, numerous medications/operation were given to me (ie I underwent BMA (bone marrow assessment and the doctors said "my bone marrow is fine and healthy". After discharged from hospital
Alex_MC
in
ITP Support Association
8 years ago
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