No response to Rituximab: I had 2 infusions the... - LUPUS UK

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No response to Rituximab

DaleDiva profile image
2 Replies

I had 2 infusions the last one on Mar 3rd and apart from a couple of days feeling well after the 2nd dose (which could have been a response to the prednisolone cover I had) I appear to have had no response. Is there still time for it to work as I am feeling fairly despondent :(

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DaleDiva
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lfu2 profile image
lfu2

Male 70 years old with Wegener's

Hi DaleDiva, I had my first course of Rituximab about 4 years ago. I felt the same as you.... nothing is happening... but it did. It took over 4 months for it to kick in, but when it did it was brilliant.... it made me feel normal again. So persevere, it will happen. Many people had commented on the length of time it takes to begin working but the common time interval seems to be about 2 - 4 months.

I have the same despondency after every cycle of Rituximab although now the interval is lessening.... down to about 2 months now.

Good luck

DaleDiva profile image
DaleDiva in reply to lfu2

Thank you for replying and giving me hope. I will just have to be more patient

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