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ITP Support Association

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itp

falanw profile image
8 Replies

I had itp since I was 6 year old they try everything from bone marrow to removing my spleen to steroids one thing that I found out that helps me  is rituximab then I get it it last for about 9 months 

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falanw profile image
falanw
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8 Replies
Pzena profile image
Pzena

Thank you for your reply.  I have to try someth

shanty242 profile image
shanty242

am abt to remove mine but am scared 

nazmeen profile image
nazmeen

Hello yes I had itp 20 years ago with no treatment. Then it came back 3 years ago. December 2015 I had ritaxamub and to date my platelets have been 370. My consultant very pleased with results so we will wait and see.

falanw profile image
falanw in reply tonazmeen

well I'm glad to hear that your doing good :) 

falanw profile image
falanw

here a question for anyone is ithe safe to have a baby cause I really want one but I don't want the  bay or I to dor 

Milane profile image
Milane in reply tofalanw

I have itp during pregnancy. although doc says it safe, I didn't take the steroids for maintenance. I was afraid that it might affect the baby regardless what they say. my protective instinct took over to protect the baby & didn't care if my life is in danger.  when I gave birth, I was low on my platelets so I gave birth with no pain killer or epidural... endure the pain for the sake of baby but they will drug you with the steroids right after giving birth from losing a lot of blood for several days. I lost consciousness one night but the baby cried enough to call the nurse to our room & saved me. probably, it's my determination to get through it that also made a difference. make sure you eat well, with itp... you need a lot of very green leafy vegetables to help clot & avoid blood thinners during your pregnancy. 

Pzena profile image
Pzena

thank you for your information, I really appreciate it

falanw profile image
falanw

Thank you for you information I really appreciate it

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