Greetings all,
2014 September finished six rounds of FCR good result
2015 intermittent infections, reaction from flu injection Knoched me off my feet for 36 hours
2016 January chest infection 4 weeks multiple antibiotics
February/March sciatica five weeks multiple variety of pills
April just had a shingles outbreak confirmed same pills and doseage as for sciatica
Other than that I'm looking forward to the rest of 2016
Regards,
John
Hi John,
Sorry to hear of the problems since FCR.
Focus on the good result from the FCR and the knowledge that summer and nice weather is just round the corner. Hopefully the good weather will see you on the up.
Best wishes, rob
Hi John,
I'm not surprised you're feeling a bit beleaguered with one thing after another at the moment. At the point when your FCR treatment finished, I can imagine that psychologically you'd hoped to be in remission and able to get off the illness roller-coaster. And then it set off again!
So I'm happily sending you a wee bit of sympathy though I suspect you're strong and will weather the ailments that have be-set you since. A possibility you'd have suffered them regardless of course.
Wishing you tremendous perseverance, determination and strength to maintain a fighting spirit in the face of so many challenges. But the main thing is you've come through the major CLL battle and achieved good results.
Best wishes...onwards and upwards! Like the song says, 'things can only get better!' 
(I keep telling myself that anyway!)
Newdawn
Hi john ,hope your bearing up an awful 3 months to start 2016, like the others are saying hang in there , summer is on the way and it can take the immune system a good while to get back into shape after FCR ....
Take care
stewie
After 6 months of FCR I think you can handle most anything. Ouch! Shingles on top of that! I'm surely impressed. I've had shingles twice and it was miserable. Surely your luck is about to change for the positive. Best of luck for some good health and good times. You are one strong man to have endured so much in such a short time.
Kind regards,
Sally
Sending you a big hug John .This is just a little blip to remind you even if you have had sush good results you still have to look after yourself .Keep going summer will be here very soon now and that will make a big direrence to how you are feeling .
Brenda
sending much sympathy to you. Keep telling us how it is...
Sympathy going out to you! You are among people who understand. If I were close by I would bring you goodies! Consider yourself given a batch of warm baked goods, whatever your favorite kind. 😊
A sympathetic word, a hand on your shoulder, an unexpected kindness - are very comforting.
More special still when sympathy is expressed from those who can really empathise with your struggles.
May you 'feel' our arms around you as you continue on your journey to better health.
We are good for LOTS of sympathy! No expiration date...
Such encouragement. I only had to ask and out of the ether came a flood of good wishes and understanding.
To each and every one of you -Thank you.
John
Just wanted to send you best wishes for 2016! With summer on it's way wishing you brighter days ahead,hang in there John,Pumpkin
sending loads of sympathy and also encouragement. there's lots more to 2016 than those first few months. take good care of yourself!
John- sending you lots of sympathy and support and prayers for a full recovery. It certainly puts my issues in perspective...you deserve a break. may April find you peace and health,
Hugs,
Kate
Hi John, I haven't posted on this page in ages it seems. For awhile, every few months I would get some sort of infection that would put me in hospital. Three times in a row last year, my hematologist/oncologist put me in the hospital across the street from his office. Each time we were lucky enough to get a room with short notice even on the 3rd floor, which was the cancer floor. What was funny was that I had some of the same nurses and techs all three times. And I actually remembered some of their names. That made for some cute banter. My husband would say, "Yeah, she has been in the hospital so many times, the cleaning lady even knows her name." So, what can I say? It was true.
Kidding aside, I can totally empathize, and I have made it my mantra to stay out of the hospital in 2016. CLL numbers good, off of Imbruvica for 5 months, but my immunoglobulins are low, So trying to tackle the infections with monthly IVIg infusions.
Wishing you the best and sending you a big virtual hug,
Dottie
Hi Dottie,
Good to hear from you but sorry you've been on the hospital merry-go-round with infections.
I know how you feel...between me and my mum I'm beginning to think we've bought a timeshare at the local hospital!
Take care and keep free of the lergy!
Best wishes,
Newdawn
Short course of Prednisone
Been told tiredness isn’t a symptom of cll
Obinutuzumab and a bit of worry. 
Loss of a great man
Double dose of imbruvica... I’m a idiot!!!
