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Reaction to Rituximab
Hey guys After crying and begin my Rheumy for two years! A few months ago I had quite a severe flare and was put forward for a Rituximab infusion. The first infusion went perfectly fine however two weeks later was a different story. There I was ready with my blanket, pillow ipad snacks for a long
Hey guys After crying and begin my Rheumy for two years! A few months ago I had quite a severe flare and was put forward for a Rituximab infusion. The first infusion went perfectly fine however two weeks later was a different story. There I was ready with my blanket, pillow ipad snacks for a long
wotshernameagain
in
LUPUS UK
7 years ago
2nd bout with Lymphoma - starting Bendeka, a new Bendamustine formulation
Starting Bendeka + rituximab + allopurinol tomorrow morning. Today is Sunday and I forgot to ask my oncologist if I should start the allopurinol the day before, or the day starting chemo. Does anyone have any experience with this? Thanks! [i] [/i] [i]Changed title to help others interested in Bendeka
Starting Bendeka + rituximab + allopurinol tomorrow morning. Today is Sunday and I forgot to ask my oncologist if I should start the allopurinol the day before, or the day starting chemo. Does anyone have any experience with this? Thanks! [i] [/i] [i]Changed title to help others interested in Bendeka
Howie40
in
CLL Support
7 years ago
Rituximab causing gluten intolerance?
Hi there , just a query! I get the second half of rituximab infusion tomorrow and ive found that bread is have an instant effect , that is bloating and slight nausea . I have not experienced this before, i have been tested for this in the past because of anemia and was negative. Has anyone else found
Hi there , just a query! I get the second half of rituximab infusion tomorrow and ive found that bread is have an instant effect , that is bloating and slight nausea . I have not experienced this before, i have been tested for this in the past because of anemia and was negative. Has anyone else found
weathervane
in
LUPUS UK
7 years ago
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Rituximab
Hi all Our 13 year old daughter starts with Rituximab on Tuesday. For the regular contributors to the forum you may recall that she had an incredible response to Prednisolone with a jump from 19 to 208 in the first week then to crash back down and remain low again. A top up of Azathioprine made her feel
Hi all Our 13 year old daughter starts with Rituximab on Tuesday. For the regular contributors to the forum you may recall that she had an incredible response to Prednisolone with a jump from 19 to 208 in the first week then to crash back down and remain low again. A top up of Azathioprine made her feel
Bellazac1971
in
ITP Support Association
7 years ago
Zydelig (idelalisib) first line... NO!
I have had a few emails and PMs asking about the use of Zydelig (idelalisib) for first line, since patients know I'm on this combined with rituxan. I direct you to the newly revised drug label, which states...
[i]1 INDICATIONS AND USAGE[/i]
[i]1.1 Relapsed Chronic Lymphocytic Leukemia[/i
I have had a few emails and PMs asking about the use of Zydelig (idelalisib) for first line, since patients know I'm on this combined with rituxan. I direct you to the newly revised drug label, which states...
[i]1 INDICATIONS AND USAGE[/i]
[i]1.1 Relapsed Chronic Lymphocytic Leukemia[/i
Cllcanada
Top Poster CURE Hero
in
CLL Support
7 years ago
My introduction
I was diagnosed with B cell CLL in 2001 and took FCR in 2003 and then had relaps in 2012 , so took BR in 2013 and again in 2016 March took RCV chemo. Now fr past 3 weeks started Ibnutrib treatment, 2x140 GMs PD. So wanted to gain experience from my bros n Sis , suffering from this diseases
I was diagnosed with B cell CLL in 2001 and took FCR in 2003 and then had relaps in 2012 , so took BR in 2013 and again in 2016 March took RCV chemo. Now fr past 3 weeks started Ibnutrib treatment, 2x140 GMs PD. So wanted to gain experience from my bros n Sis , suffering from this diseases
Anilbhard
in
CLL Support
7 years ago
Muscle Ache
I have muscle ache from shoulder to elbow in both arms but worse in my right. I have given infusions of Rituximab recently but had these aches before that. Just wondered if the infusion will help settle this down. I have been told the infusion takes 12-16 weeks to take effect so it is still early days
I have muscle ache from shoulder to elbow in both arms but worse in my right. I have given infusions of Rituximab recently but had these aches before that. Just wondered if the infusion will help settle this down. I have been told the infusion takes 12-16 weeks to take effect so it is still early days
Ellieellie
in
NRAS
7 years ago
ITP
Hi I was diagnosed 9 years ago with lupus after a long drawn out journey of tests consultants etc, I have like most of you may have to the extras fibro, raynaurds, sjorgens, in 2014 I was also diagnosed with thrombocytopenia or Itp, does anyone have this, and if so how are you getting on with treatment
Hi I was diagnosed 9 years ago with lupus after a long drawn out journey of tests consultants etc, I have like most of you may have to the extras fibro, raynaurds, sjorgens, in 2014 I was also diagnosed with thrombocytopenia or Itp, does anyone have this, and if so how are you getting on with treatment
Manclady61
in
LUPUS UK
7 years ago
Wondering
Hello all. Well I had my second infusion of Rituximab on Thursday. Took six attempts to get the cannula in so am a bit bruised. I know they said it can take up to 12 weeks to see a difference. What they haven't said is what sort of difference. At the moment I can't close my bra because I don't seem
Hello all. Well I had my second infusion of Rituximab on Thursday. Took six attempts to get the cannula in so am a bit bruised. I know they said it can take up to 12 weeks to see a difference. What they haven't said is what sort of difference. At the moment I can't close my bra because I don't seem
Ellieellie
in
NRAS
7 years ago
3 Years past FCR
After a FCR ride from 10/13 -4/14, with more or less no side effects, I went in CR and MRD -! Since then, blood counts were always in normal range. I have been doing well since end of treatment, enjoying a normal life with quarterly or all six months checking in hospital After one year past treatment
After a FCR ride from 10/13 -4/14, with more or less no side effects, I went in CR and MRD -! Since then, blood counts were always in normal range. I have been doing well since end of treatment, enjoying a normal life with quarterly or all six months checking in hospital After one year past treatment
seoul
in
CLL Support
7 years ago
Immunoglobulin Replacement
Is anyone on here having infusions/injections to replace low immunoglobulins? I've been advised by immunology at derriford hospital that I'm at risk of severe infections and need to start replacement treatment but I've been at the same igg level since 2013 with no problems. I'd like to hear of people's
Is anyone on here having infusions/injections to replace low immunoglobulins? I've been advised by immunology at derriford hospital that I'm at risk of severe infections and need to start replacement treatment but I've been at the same igg level since 2013 with no problems. I'd like to hear of people's
DevonLottie
in
Vasculitis UK
7 years ago
Arthroscopy of the knee?
Just back from my GP where we discussed the knee X-ray that I had just before Christmas. There is a piece of loose bone or cartilage floating around that is causing pain and swelling, as well as some arthritis. I've been referred to an orthopaedic surgeon for a possible arthroscopy. Has anyone had this
Just back from my GP where we discussed the knee X-ray that I had just before Christmas. There is a piece of loose bone or cartilage floating around that is causing pain and swelling, as well as some arthritis. I've been referred to an orthopaedic surgeon for a possible arthroscopy. Has anyone had this
BronteM
in
Vasculitis UK
7 years ago
Bendamustine vs FCR
My consultant is discussing treatment options with me. Been in W and W for almost 6 years but now my ALC is over145 and my haemaglobin is drifting down below 120. He is suggesting that Bendamustine with Rituximab will be a better option for me than FCR because of some particular presentation of my condition
My consultant is discussing treatment options with me. Been in W and W for almost 6 years but now my ALC is over145 and my haemaglobin is drifting down below 120. He is suggesting that Bendamustine with Rituximab will be a better option for me than FCR because of some particular presentation of my condition
Clovelly
in
CLL Support
7 years ago
Dealing with malaria and mosquito's on holiday
Hi Everyone. My husband has CLL and finished FCR treatment 21/2 years ago. So far all is good - bloods normal WBC in normal range and stable. We are now considering a holiday in India (Goa) and I have maybe unwisely chosen a hotel with no aircon so I am worried about the risk of mosquito borne disease
Hi Everyone. My husband has CLL and finished FCR treatment 21/2 years ago. So far all is good - bloods normal WBC in normal range and stable. We are now considering a holiday in India (Goa) and I have maybe unwisely chosen a hotel with no aircon so I am worried about the risk of mosquito borne disease
Hidden
in
CLL Support
7 years ago
Infusion hurrah!
In the day unit connected up to rituximab!! I wasn't sure if it would be happening today but came prepared with kindle, warm cardigan , eydrops and lipsil . I hope i it has a good effect again. The staff are all lovely here , the worse thing at the moment is going to the loo as the drip has to go with
In the day unit connected up to rituximab!! I wasn't sure if it would be happening today but came prepared with kindle, warm cardigan , eydrops and lipsil . I hope i it has a good effect again. The staff are all lovely here , the worse thing at the moment is going to the loo as the drip has to go with
weathervane
in
LUPUS UK
7 years ago
Update for followers
I note I have 11 followers and I'm surprised I have not provided an update for quite a while. I started Obinutuzumab and venetoclax in march 2016 with 75 percent CLL in my bone marrow aged 47. I had some early challenges but by August I had only 0.08 percent! Mrd positive. Next bone marrow biopsy
I note I have 11 followers and I'm surprised I have not provided an update for quite a while. I started Obinutuzumab and venetoclax in march 2016 with 75 percent CLL in my bone marrow aged 47. I had some early challenges but by August I had only 0.08 percent! Mrd positive. Next bone marrow biopsy
Corin850
in
CLL Support
7 years ago
B-Cell Depletion
As further trials are carried out on M.E treatment using Rituximab by Fluge and Mella it is of some interest how the same treatment is providing useful options within a similar autoimmune neurological condition MS http://www.nejm.org/doi/full/10.1056/NEJMe1614717?rss=searchAndBrowse&
As further trials are carried out on M.E treatment using Rituximab by Fluge and Mella it is of some interest how the same treatment is providing useful options within a similar autoimmune neurological condition MS http://www.nejm.org/doi/full/10.1056/NEJMe1614717?rss=searchAndBrowse&
readerlist
in
Ramsays Disease
7 years ago
Reducing lyrica?
Happy new year! I am with the rheumy on Friday and I hope to get 2nd rituximab infusion. Should i also ask about stopping/reducing my lyrica? I take 100mg twice a day and it has really helped muscle pain from sjogrens. I haven't noticed any side effects so should i stick with what is working?? I have
Happy new year! I am with the rheumy on Friday and I hope to get 2nd rituximab infusion. Should i also ask about stopping/reducing my lyrica? I take 100mg twice a day and it has really helped muscle pain from sjogrens. I haven't noticed any side effects so should i stick with what is working?? I have
weathervane
in
LUPUS UK
7 years ago
Rituximab how long before it starts to work?
My husband had his last (4th) treatment on the 23rd December but still no change in his platelets. We've read it can take up to 12 weeks to hopefully work but is that from the 1st or the 4th treatment? Any advice gratefully received. Thank you.
My husband had his last (4th) treatment on the 23rd December but still no change in his platelets. We've read it can take up to 12 weeks to hopefully work but is that from the 1st or the 4th treatment? Any advice gratefully received. Thank you.
Thewakey31
in
ITP Support Association
7 years ago
Problems with RA
Hi, my name is Brenda and I am experiencing difficulties with RA flare ups affecting mainly my hands. As I live on my own daily tasks are proving difficult. Has anyone any advice on how to relieve the pain around knuckles without taking other medications. I am on methotrexate and rituximab infusions
Hi, my name is Brenda and I am experiencing difficulties with RA flare ups affecting mainly my hands. As I live on my own daily tasks are proving difficult. Has anyone any advice on how to relieve the pain around knuckles without taking other medications. I am on methotrexate and rituximab infusions
Brenda1952
in
NRAS
7 years ago
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