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Pottery workshop.?
I have been invited to a pottery workshop to make a couple of pots. At end of cycle 1 of FCR. Feeling great, but.... I suspect too much of a risk, even with gloves and mask... thoughts?
I have been invited to a pottery workshop to make a couple of pots. At end of cycle 1 of FCR. Feeling great, but.... I suspect too much of a risk, even with gloves and mask... thoughts?
abikaasa
in
CLL Support
7 years ago
Ask the expert Ohio state talk. Slide 46. PFS for treatment naïve patients on imbruvica Vs TN FCR patients.
There were only 31 patience on the imbruvica group in blue. This group had mutated and unmutated patients combined. Two were 17 P deleted as well. Unfortunately one of the 17p patients progressed after 4 months but the other I think has not progressed. A few people came off the trial for other
There were only 31 patience on the imbruvica group in blue. This group had mutated and unmutated patients combined. Two were 17 P deleted as well. Unfortunately one of the 17p patients progressed after 4 months but the other I think has not progressed. A few people came off the trial for other
Hoffy
in
CLL Support
7 years ago
too short of w & w
I will try and keep this short but need some advice on talking to our doctor. My husband Brett finished FCR 15 months ago, 6 months ago his BMB showed all clear now ending the happy story. About 5 months ago he had a swollen lymph node in his neck. Dr confirmed that yes he thought the CLL was active
I will try and keep this short but need some advice on talking to our doctor. My husband Brett finished FCR 15 months ago, 6 months ago his BMB showed all clear now ending the happy story. About 5 months ago he had a swollen lymph node in his neck. Dr confirmed that yes he thought the CLL was active
jules_c
in
CLL Support
7 years ago
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High Altitude and CLL: Risk?
I have monitored your support group for a while now and appreciate all the shared information that can be found here. It has been very helpful over the last couple of years. First time writing. My husband is 61 years of age, diagnosed with CLL officially Oct. 2014, but high white counts as far back as
I have monitored your support group for a while now and appreciate all the shared information that can be found here. It has been very helpful over the last couple of years. First time writing. My husband is 61 years of age, diagnosed with CLL officially Oct. 2014, but high white counts as far back as
AGreenwoods
in
CLL Support
7 years ago
1st week on venetoclax - WOW, not what we expected...
After reviewing jtaeross's post from 3 months ago I wanted to share our experience on venetoclax. My husband just stared venetoclax 20mg we are on day 6 after failing on Ibrutinib after 18months and he is 17p, 52 years old - diagnosed at 45 It has been a hell of a week with threats of TML - he had to
After reviewing jtaeross's post from 3 months ago I wanted to share our experience on venetoclax. My husband just stared venetoclax 20mg we are on day 6 after failing on Ibrutinib after 18months and he is 17p, 52 years old - diagnosed at 45 It has been a hell of a week with threats of TML - he had to
NMMP
in
CLL Support
7 years ago
How should I feel.
I've had two infusions of Rituximab the second being on the 12th January this year. I know it takes up to 16 weeks to notice a difference but I am just wondering how I know it is working? I still have aches and my arms, shoulders and hands are still sore. Knees ache as well as being stiff. I still
I've had two infusions of Rituximab the second being on the 12th January this year. I know it takes up to 16 weeks to notice a difference but I am just wondering how I know it is working? I still have aches and my arms, shoulders and hands are still sore. Knees ache as well as being stiff. I still
Ellieellie
in
NRAS
7 years ago
Chemotherapy vs Ibrutinib for CLL Frontline Treatment - Dr Susan O'Brien. 12 to 24% of FCR patients effectively cured 6 years after FCR
Anyone interested in the pros and cons of chemotherapy vs non-chemotherapy treatment should watch this 10 minute video by Dr Susan O’Brien, MD, University of California Irvine Medical Center, where [i]'she discusses frontline treatment options for patients with newly diagnosed chronic lymphocytic leukemia
Anyone interested in the pros and cons of chemotherapy vs non-chemotherapy treatment should watch this 10 minute video by Dr Susan O’Brien, MD, University of California Irvine Medical Center, where [i]'she discusses frontline treatment options for patients with newly diagnosed chronic lymphocytic leukemia
AussieNeil
Partner
in
CLL Support
7 years ago
Secondary BR Treatment
After being diagnosed in Jan 2013 went through immediate FCR which lasted eight months. This led to a three year remission after which the disease was again detected. Disease progression has been gradual but my Oncologist says further treatment with Retuxin/Bendamustine is very likely soon (he has been
After being diagnosed in Jan 2013 went through immediate FCR which lasted eight months. This led to a three year remission after which the disease was again detected. Disease progression has been gradual but my Oncologist says further treatment with Retuxin/Bendamustine is very likely soon (he has been
plett1234
in
CLL Support
7 years ago
Bilimumab infusions
Starting bilimumab infusions soon for my SLE.Was having rituximab infusions but kept getting neutropenic after it.Anyone else having bilimumab?
Starting bilimumab infusions soon for my SLE.Was having rituximab infusions but kept getting neutropenic after it.Anyone else having bilimumab?
englishrose67
in
LUPUS UK
7 years ago
Platelet count going down
I have CLL Received chemo first time, 2 treatment 1st. 9/14 & 9/15, 2015. The next treatment was 10/27 & 10/28. All was good until 7/2016 when my platelet started to drop. When the count reached 48 I had 4 Rituximab infusions in November 2016. After the 2nd infusion the count was back to 130. They
I have CLL Received chemo first time, 2 treatment 1st. 9/14 & 9/15, 2015. The next treatment was 10/27 & 10/28. All was good until 7/2016 when my platelet started to drop. When the count reached 48 I had 4 Rituximab infusions in November 2016. After the 2nd infusion the count was back to 130. They
budm
in
CLL Support
7 years ago
Oxford update
Hi All I was at Oxford on Thursday it was nice to catch up with Dr Anna Schuh My Bloods were ok but I am now early stage B still all that means is more fundraising and still a way to go, Dr Schuh mentioned when I asked about the new treatments that in the next 2-3 years the will look to move away
Hi All I was at Oxford on Thursday it was nice to catch up with Dr Anna Schuh My Bloods were ok but I am now early stage B still all that means is more fundraising and still a way to go, Dr Schuh mentioned when I asked about the new treatments that in the next 2-3 years the will look to move away
TheFlyer
in
CLL Support
7 years ago
Risk from shingles ??
Hi there , im probably being silly -- i was chatting to lady on the till in the shop and she told me she had been off work with shingles . She said they were all scabbed over so she was back at work. I had dose of rituximab last week could i still be at risk as its one of the things to be careful off
Hi there , im probably being silly -- i was chatting to lady on the till in the shop and she told me she had been off work with shingles . She said they were all scabbed over so she was back at work. I had dose of rituximab last week could i still be at risk as its one of the things to be careful off
weathervane
in
LUPUS UK
7 years ago
3 weeks in flair trial ......
Received my first infusion rituximab and ibrutinib tablets 3 weeks ago ....my bloods just before treatment was ...WBC....287,000 PLTS....165 AND HB ...139 .....JUST HAD BLOODS TAKEN TODAY ....WBC ...was 226,000 down by 61,000 , PLTS 106 AND HB 140 .....Happy with the WBC going down I know this can
Received my first infusion rituximab and ibrutinib tablets 3 weeks ago ....my bloods just before treatment was ...WBC....287,000 PLTS....165 AND HB ...139 .....JUST HAD BLOODS TAKEN TODAY ....WBC ...was 226,000 down by 61,000 , PLTS 106 AND HB 140 .....Happy with the WBC going down I know this can
stewie
in
CLL Support
7 years ago
Key questions to ask your consultant
Hi everyone, sorry if you thought from the title of this message that I am providing the answers - instead, I would like your views. If you want the main point of this post skip to end, but it might help give better answers if you read through] [
aside:
For anyone with the stamina, here is my
Hi everyone, sorry if you thought from the title of this message that I am providing the answers - instead, I would like your views. If you want the main point of this post skip to end, but it might help give better answers if you read through] [
aside:
For anyone with the stamina, here is my
Davdow
in
CLL Support
7 years ago
Yippee! Just had confirmed 2 more health related talking points; with which, I can bore the pants off everyone I meet. How lucky is that?
First off, be assured that although I post rarely, I do regularly read and digest the all the posts here. I have benefited from the wealth of knowledge found within the threads. Much as I would like to indulge in relating the nitty gritty of my new talking points. I will restrain myself and try to stick
First off, be assured that although I post rarely, I do regularly read and digest the all the posts here. I have benefited from the wealth of knowledge found within the threads. Much as I would like to indulge in relating the nitty gritty of my new talking points. I will restrain myself and try to stick
Bribin
in
CLL Support
7 years ago
Vaccination
I would be really grateful for opinions on vaccination here. I must do one unfortunately. Would be great to know if anyone had vaccinations and whether it was ok. I am in remission and have to do a vaccination but worried about relapse. The only time I did vaccinations was before rituximab and I was
I would be really grateful for opinions on vaccination here. I must do one unfortunately. Would be great to know if anyone had vaccinations and whether it was ok. I am in remission and have to do a vaccination but worried about relapse. The only time I did vaccinations was before rituximab and I was
lc12345
in
ITP Support Association
7 years ago
Wegener flare ups
I am 25 years old. I was diagnosed with WG in 2013 (affecting only my lungs). I have taken rituximab and prednisone and methotrexate. ( I hate them all but has saved my life... according the doctors) I have been on remission for about 2 years now. I had a normal pregnancy and gave birth to a healthy
I am 25 years old. I was diagnosed with WG in 2013 (affecting only my lungs). I have taken rituximab and prednisone and methotrexate. ( I hate them all but has saved my life... according the doctors) I have been on remission for about 2 years now. I had a normal pregnancy and gave birth to a healthy
Natalia_91
in
Vasculitis UK
7 years ago
Sugars up following steroid infusions and Christmas
I'm trying to get on top of my blood sugars after two steroid infusions in December (connected to rituximab for my RA) and carelessness over Christmas. I'm sticking to my normal meds, but trying to radically control my diet following online advice from Diabetes UK. I'm not long on this but want to know
I'm trying to get on top of my blood sugars after two steroid infusions in December (connected to rituximab for my RA) and carelessness over Christmas. I'm sticking to my normal meds, but trying to radically control my diet following online advice from Diabetes UK. I'm not long on this but want to know
cathie
in
Diabetes & Hypertension Help Society
7 years ago
Reaction to Rituximab
Hey guys After crying and begin my Rheumy for two years! A few months ago I had quite a severe flare and was put forward for a Rituximab infusion. The first infusion went perfectly fine however two weeks later was a different story. There I was ready with my blanket, pillow ipad snacks for a long
Hey guys After crying and begin my Rheumy for two years! A few months ago I had quite a severe flare and was put forward for a Rituximab infusion. The first infusion went perfectly fine however two weeks later was a different story. There I was ready with my blanket, pillow ipad snacks for a long
wotshernameagain
in
LUPUS UK
7 years ago
2nd bout with Lymphoma - starting Bendeka, a new Bendamustine formulation
Starting Bendeka + rituximab + allopurinol tomorrow morning. Today is Sunday and I forgot to ask my oncologist if I should start the allopurinol the day before, or the day starting chemo. Does anyone have any experience with this? Thanks! [i] [/i] [i]Changed title to help others interested in Bendeka
Starting Bendeka + rituximab + allopurinol tomorrow morning. Today is Sunday and I forgot to ask my oncologist if I should start the allopurinol the day before, or the day starting chemo. Does anyone have any experience with this? Thanks! [i] [/i] [i]Changed title to help others interested in Bendeka
Howie40
in
CLL Support
7 years ago
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