My introduction

[Anilbhard]

I was diagnosed with B cell CLL in 2001 and took FCR in 2003 and then had relaps in 2012 , so took BR in 2013 and again in 2016 March took RCV chemo.

Now fr past 3 weeks started Ibnutrib treatment, 2x140 GMs PD. So wanted to gain experience from my bros n Sis , suffering from this diseases

[Cllcanada Top Poster CURE Hero]

Welcome Anilbhard from 🇨🇦

Nice to see you can get Imbruvica (ibrutinib) in India, there are a couple of patients here from your country.

I'm currious why you started on a reduced dose , since the standard protocols are 3x140 mg?

Be certain to keep a high level of hydration, it makes a big difference.

~chris

[Anilbhard in reply to Cllcanada]

Pls give some references of our fellow patients in India. Thanks in advance

[Anilbhard]

My Onco doctor wanted to start and see the effect on my haemoglobin, which was quite below normal. He said he likely increase the dose later

[Bubnojay]

Hi Anilbhard

Sadly you have had more experience of this disease than most of us here.

I think maybe you did not have many replies to your original post as the e-mails to the group in my case did not work that day, and your post is not restricted to the community which inhibits responses.

Click the little down arrow at the bottom of your post and you should be able to restrict to the community.

I have no personal experience to share being treatment naive, but wanted to welcome you to the community.

Best wishes

Bubnjay1

[Anilbhard]

Thanks bro