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Pregnancy And ITP
Any body Taken Eltrombopag or Rituximab during Pregnancy any stage, please share any experiance. My wife having Plt count 10K 20week pregnancy with chronic ITP. Any side effect to mother or child ????
Any body Taken Eltrombopag or Rituximab during Pregnancy any stage, please share any experiance. My wife having Plt count 10K 20week pregnancy with chronic ITP. Any side effect to mother or child ????
jangirdinesh
in
ITP Support Association
6 years ago
Pregnancy And ITP
Any body Taken Eltrombopag or Rituximab during Pregnancy any stage, please share any experiance. My wife having Plt count 10K 20week pregnancy with chronic ITP. Any side effect to mother or child ????
Any body Taken Eltrombopag or Rituximab during Pregnancy any stage, please share any experiance. My wife having Plt count 10K 20week pregnancy with chronic ITP. Any side effect to mother or child ????
jangirdinesh
in
ITP Support Association
6 years ago
Rigor after 2 x Rituximab infusions
I thought that the drug had been a miraculous cure as I’d not had an episode since the first treatment on 1st December then again on 15th December I went to see my GP about the bad bloating and even told him maybe boastfully, that I think the Rituximab has worked and very quickly. How wrong I was/am
I thought that the drug had been a miraculous cure as I’d not had an episode since the first treatment on 1st December then again on 15th December I went to see my GP about the bad bloating and even told him maybe boastfully, that I think the Rituximab has worked and very quickly. How wrong I was/am
Balderick
in
Vasculitis UK
7 years ago
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First Cycle of Rituximab
Please bear with me as this is a long post! Finally got my 1st infusion on the 4th December after 2 previous dates being cancelled because of shingles (my husband) and a tooth infection (mine). I need not have worried so much beforehand because everything went well, apart from my temperature which went
Please bear with me as this is a long post! Finally got my 1st infusion on the 4th December after 2 previous dates being cancelled because of shingles (my husband) and a tooth infection (mine). I need not have worried so much beforehand because everything went well, apart from my temperature which went
Bakbre
in
LUPUS UK
7 years ago
Round 4 FCR complete
I finished round 4 of my FCR infusions just 2 weeks ago so should be at my lowest blood point, but am having absolutely 000000 side effects. If anything, I am not as tired as I was after rounds 2 and 3. and the feelings of incessant coldness have gone away. Swollen lymph glands that I could feel under
I finished round 4 of my FCR infusions just 2 weeks ago so should be at my lowest blood point, but am having absolutely 000000 side effects. If anything, I am not as tired as I was after rounds 2 and 3. and the feelings of incessant coldness have gone away. Swollen lymph glands that I could feel under
Marie-54
in
CLL Support
6 years ago
If Rituximab Does Not Work
Dear friend, I would like to ask you for your advice again. My boyfriend has lupus and since mycofenolat did not work, he got Rituximab in last September. Today, we found out that also Rituximab does not work properly and his doctor is adding mycofenolat again. But it was just one session (4 weeks)
Dear friend, I would like to ask you for your advice again. My boyfriend has lupus and since mycofenolat did not work, he got Rituximab in last September. Today, we found out that also Rituximab does not work properly and his doctor is adding mycofenolat again. But it was just one session (4 weeks)
DankaCi
in
LUPUS UK
7 years ago
First Rituximab Infusion
Happy new year to everyone! On the 28th December, I had my first Rituximab infusion. My consultant began by telling me my lumbar puncture came back clear and my flexible sigmoidoscopy showed mild Colitis, which he hopes the Rituximab will also treat. First I was given 100mg Methylprednisolone, followed
Happy new year to everyone! On the 28th December, I had my first Rituximab infusion. My consultant began by telling me my lumbar puncture came back clear and my flexible sigmoidoscopy showed mild Colitis, which he hopes the Rituximab will also treat. First I was given 100mg Methylprednisolone, followed
Vo321
in
Vasculitis UK
7 years ago
Methotrexate, good or bad?
Diagnosed with RA over 2 years ago I was put on Methotrexate. It didn't suit and I went onto rituximab infusions which, so far, are working well. A few weeks ago I was hospitalised with severe breathing difficulties and the question was asked as to whether or not the Methotrexate has contributed to
Diagnosed with RA over 2 years ago I was put on Methotrexate. It didn't suit and I went onto rituximab infusions which, so far, are working well. A few weeks ago I was hospitalised with severe breathing difficulties and the question was asked as to whether or not the Methotrexate has contributed to
Brenda1952
in
NRAS
7 years ago
Bloating and Rituximab
Hi all, I trust you all had as good a xmas as possible given the diseases we endure. I have been like an hermit and not even had one drink but it doesn’t bother me. I’ve never been keen on feeling out of control. I have a question for Hidden Since the first infusion of the Rituximab biosimilar
Hi all, I trust you all had as good a xmas as possible given the diseases we endure. I have been like an hermit and not even had one drink but it doesn’t bother me. I’ve never been keen on feeling out of control. I have a question for Hidden Since the first infusion of the Rituximab biosimilar
Balderick
in
Vasculitis UK
7 years ago
Would appreciate your input!
Hi all, I saw my Dr. 8 weeks ago and he was pretty sure I was getting near treatment. I have been W & W since 2011, I'm 57. He was concerned because the Absolute count went from 12,000 to 22,400 in 4 1/2 months. I just received my new results today: Absolute count is down to 18,000 White count is hovering
Hi all, I saw my Dr. 8 weeks ago and he was pretty sure I was getting near treatment. I have been W & W since 2011, I'm 57. He was concerned because the Absolute count went from 12,000 to 22,400 in 4 1/2 months. I just received my new results today: Absolute count is down to 18,000 White count is hovering
lorna222
in
CLL Support
6 years ago
Lost sense of smell and taste
Hi all and merry Christmas. I have had GPA since mid 2015. Gone through all the usual treatments including prednisolone, rituximab, and cyclophosphamide of which I’ve had 16 infusions as my disease has proven very resistant. Somewhere along the way my sense of smell has gone. As taste is mostly reliant
Hi all and merry Christmas. I have had GPA since mid 2015. Gone through all the usual treatments including prednisolone, rituximab, and cyclophosphamide of which I’ve had 16 infusions as my disease has proven very resistant. Somewhere along the way my sense of smell has gone. As taste is mostly reliant
nicholson27
in
Vasculitis UK
7 years ago
Treatment
Is any one havin Benamustine. Chemo and Rituximab? What are the side effects and how long have you had it for ? I’ll be starting this at the end of January, I’ve read up on it all but just wanted to talk to someone.
Is any one havin Benamustine. Chemo and Rituximab? What are the side effects and how long have you had it for ? I’ll be starting this at the end of January, I’ve read up on it all but just wanted to talk to someone.
Esther66
in
Non Hodgkin's Lymphoma Friends
7 years ago
How do changes in diet affect CLL treatment? Are supplements safe to use? CLL experts Dr. Michael Keating and Dr. Jeff Sharman respond
Some wise words on the effects of diet on CLL from the well respected CLL specialists Drs Keating and Sharman. Dr Keating was behind the development of FCR and Dr Sharman has provided some excellent blogs on CLL: http://www.cll-nhl.com
From the transcript
Dr Sharman [i]"I think that we've talked
Some wise words on the effects of diet on CLL from the well respected CLL specialists Drs Keating and Sharman. Dr Keating was behind the development of FCR and Dr Sharman has provided some excellent blogs on CLL: http://www.cll-nhl.com
From the transcript
Dr Sharman [i]"I think that we've talked
AussieNeil
Partner
in
CLL Support
6 years ago
FCR on Flair trial at Christie Hospital
71yr male diagnosed 2yrs ago, CLL (Binet stage B) researched specialists and decided on Dr Bloor at Christie Hospital in Manchester, an excellent choice. W&W for 18 months until he found a mass of raised lymph nodes in my abdomen. Dr Bloor suggested the Flair trial and I was randomised for FCR beginning
71yr male diagnosed 2yrs ago, CLL (Binet stage B) researched specialists and decided on Dr Bloor at Christie Hospital in Manchester, an excellent choice. W&W for 18 months until he found a mass of raised lymph nodes in my abdomen. Dr Bloor suggested the Flair trial and I was randomised for FCR beginning
Anthonymac
in
CLL Support
7 years ago
Possible CNS involvement with ANCA Vasc
Since my last post, I received a call from my consultant on Monday evening. He asked me to come in the next day to discuss the results of my MRI. He explained that I had a blood vessel which has narrowed in my brain but that this vessel is not 'active' and other vessels are supply blood to that area.
Since my last post, I received a call from my consultant on Monday evening. He asked me to come in the next day to discuss the results of my MRI. He explained that I had a blood vessel which has narrowed in my brain but that this vessel is not 'active' and other vessels are supply blood to that area.
Vo321
in
Vasculitis UK
7 years ago
rituximab reaction
Hi Has anyone had a reaction to rituximab? and if you did, did your rheumatologist contact you about it or just wait until your next appointment before talking to you? thanks!
Hi Has anyone had a reaction to rituximab? and if you did, did your rheumatologist contact you about it or just wait until your next appointment before talking to you? thanks!
Emily00
in
LUPUS UK
7 years ago
Worried Rituximab not working
Hi, I am new to this forum. On Nov 20th I stopped taking methotrexate due to starting rituximab. I have had 2 rituximab infusions 2 weeks apart, last one on Dec 5th. My rheumy also lowered my prednisone from 15 mg to 10 mg after my first infusion than to 5mg after my second infusion. I just had bloodwork
Hi, I am new to this forum. On Nov 20th I stopped taking methotrexate due to starting rituximab. I have had 2 rituximab infusions 2 weeks apart, last one on Dec 5th. My rheumy also lowered my prednisone from 15 mg to 10 mg after my first infusion than to 5mg after my second infusion. I just had bloodwork
sweetcandy
in
NRAS
7 years ago
Rituximab Injections
See tomorrow's ( 16 December 2017) very interesting article on development of RTX injections that only need to be administered yearly.
See tomorrow's ( 16 December 2017) very interesting article on development of RTX injections that only need to be administered yearly.
AgedCrone
in
NRAS
7 years ago
Rituximab or Cyclophosphamide
Hi I have PF caused by mixed connective tissue disease. I have been on Mycophenelate Mofetil (Cellcept) for many years but my lung functions continue to decline. My dlco is now 34% predicted. My question is whether anyone on here has experience of Rituximab or Cyclophosphamide?, how did you react to
Hi I have PF caused by mixed connective tissue disease. I have been on Mycophenelate Mofetil (Cellcept) for many years but my lung functions continue to decline. My dlco is now 34% predicted. My question is whether anyone on here has experience of Rituximab or Cyclophosphamide?, how did you react to
Barnesy77
in
Lung Conditions Community Forum
7 years ago
Tongue biting
Ok, this may be crazy, I keep biting the sides of my tongue and mouth since starting FCR. I have bruises and raw spots. This mostly happens at night but also during the day. Anyone else out there ever have this problem? Beth
Ok, this may be crazy, I keep biting the sides of my tongue and mouth since starting FCR. I have bruises and raw spots. This mostly happens at night but also during the day. Anyone else out there ever have this problem? Beth
Mosaicgigi
in
CLL Support
6 years ago
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