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Bendamustine & Rituximab
I started round 1 of BR last Tuesday and had a severe reaction to the rituximab on day 1 where I suddenly felt extremely ill and faint following by a bout of vomiting for several minutes. The symptoms were overwhelming and terrifying and I thought I was going to die. I was told it was because the speed
I started round 1 of BR last Tuesday and had a severe reaction to the rituximab on day 1 where I suddenly felt extremely ill and faint following by a bout of vomiting for several minutes. The symptoms were overwhelming and terrifying and I thought I was going to die. I was told it was because the speed
elizdonohoe
in
CLL Support
6 years ago
7 months post FCR and I’m back at A&E
Great. Raging temperature sees me back at A&E this morning. Lengthy wait ahead in all likelihood.... wish me luck
Great. Raging temperature sees me back at A&E this morning. Lengthy wait ahead in all likelihood.... wish me luck
MattGGibson
in
CLL Support
6 years ago
Rituximab
Just wondering peoples experiences- not of the actual infusion - (I’ve already had mine 1and 3 weeks ago) but when it actually started working. I know it is a 2 week to 3 month wait to see if it works average 8-10 weeks so it’s not about when it started working but the HOW it started working for people
Just wondering peoples experiences- not of the actual infusion - (I’ve already had mine 1and 3 weeks ago) but when it actually started working. I know it is a 2 week to 3 month wait to see if it works average 8-10 weeks so it’s not about when it started working but the HOW it started working for people
TTCC
in
NRAS
6 years ago
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Relapse or something else?
I was diagnosed with nhl in 2011, low grade follicular with evidence of high grade found in bone marrow. Following 6 round of R chop chemo and 1 high dose methotrexate chemo lumber punctures and 2 years rituximab maintenance I have lived well until now. I am now experiencing regular night sweats and
I was diagnosed with nhl in 2011, low grade follicular with evidence of high grade found in bone marrow. Following 6 round of R chop chemo and 1 high dose methotrexate chemo lumber punctures and 2 years rituximab maintenance I have lived well until now. I am now experiencing regular night sweats and
pmurdo
in
Non Hodgkin's Lymphoma Friends
6 years ago
Has my daughter got cerebral vasculitis? Google 'Girl with mystery illness' photos & illness description were in newspapers Nov 2016
Originally thought to have suspected seronegative autoimmune encephalitis, has my daughter got cerebral vasculitis? Vicky had a mosquito bite in Menorca that didn't disappear for months, a week after the holiday she couldn't sleep, she has a recurring all over body rash like HSP which travels from head
Originally thought to have suspected seronegative autoimmune encephalitis, has my daughter got cerebral vasculitis? Vicky had a mosquito bite in Menorca that didn't disappear for months, a week after the holiday she couldn't sleep, she has a recurring all over body rash like HSP which travels from head
Vickysmum
in
Vasculitis UK
6 years ago
Venetoclax plus Rituximab
Greatly improves progression free survival. http://www.cancernetwork.com/chronic-lymphocytic-leukemia/venetoclax-rituximab-improves-survival-relapsedrefractory-cll —Dennis, 71, Ibrutinib
Greatly improves progression free survival. http://www.cancernetwork.com/chronic-lymphocytic-leukemia/venetoclax-rituximab-improves-survival-relapsedrefractory-cll —Dennis, 71, Ibrutinib
Fant1924
in
CLL Support
6 years ago
Biosimilars compared with rituximab
I have MPA. My next infusion will be Truxima, a biosimilar for Rituximab. Has anyone noticed any difference when changed to Truxima?
I have MPA. My next infusion will be Truxima, a biosimilar for Rituximab. Has anyone noticed any difference when changed to Truxima?
amms43
in
Vasculitis UK
6 years ago
Fever post chemo
I have developed a fever. Round 5 of FCR infusions was Monday, Tuesday and Wednesday. My normal temp is 36.6 and Thursday evening it went up to 37.5 for the first time. Then on Friday it rose all day until it reached 38.12 (Anything over 38C (100.4 for USA) means you have to call it in, so I called
I have developed a fever. Round 5 of FCR infusions was Monday, Tuesday and Wednesday. My normal temp is 36.6 and Thursday evening it went up to 37.5 for the first time. Then on Friday it rose all day until it reached 38.12 (Anything over 38C (100.4 for USA) means you have to call it in, so I called
Marie-54
in
CLL Support
6 years ago
Ongoing post re Rituximab infusions
Hi everyone Just a quick update following my first cycle of Rituximab infusions in December. As I said on my last post the 2 infusions went pretty well and I had no side affects apart from extreme tiredness on the days I had the infusions. Well it is now 3 weeks since the last one and I am still
Hi everyone Just a quick update following my first cycle of Rituximab infusions in December. As I said on my last post the 2 infusions went pretty well and I had no side affects apart from extreme tiredness on the days I had the infusions. Well it is now 3 weeks since the last one and I am still
Bakbre
in
LUPUS UK
6 years ago
What is your real ‘biological age’, and what does this mean for your health?
When it comes time for treatment, our options are strongly influenced by our age - or perhaps our relative level of fitness compared to others our age, rather than how many years we've lived, as this has a strong determining influence on whether we would do better on BR rather than FCR, for example.
When it comes time for treatment, our options are strongly influenced by our age - or perhaps our relative level of fitness compared to others our age, rather than how many years we've lived, as this has a strong determining influence on whether we would do better on BR rather than FCR, for example.
AussieNeil
Partner
in
CLL Support
6 years ago
Revolade is going ineffective in ITP
My sister has been on Revolade for 2 months approx, my count goes up and down so much. The highest I had was 3025 15 days ago but now its 75000 with * sign , * sign means not confirmed due to hypochromia.I am trying to figure out what it is reason of ineffectiveness of revolade. she is taking folic
My sister has been on Revolade for 2 months approx, my count goes up and down so much. The highest I had was 3025 15 days ago but now its 75000 with * sign , * sign means not confirmed due to hypochromia.I am trying to figure out what it is reason of ineffectiveness of revolade. she is taking folic
salman2030
in
ITP Support Association
6 years ago
Help with drug choice please - rituximab or methotrexate?
Hi, I’ve been told to think about next treatment which my (lovely!) rheumy says I need to start now. I think his preference is rituximab (but he’s very clever and has learnt with me that I need to feel it’s my choice!) but has also said methotrexate. I have ‘failed’ on MMF and azathoprine. Had a big
Hi, I’ve been told to think about next treatment which my (lovely!) rheumy says I need to start now. I think his preference is rituximab (but he’s very clever and has learnt with me that I need to feel it’s my choice!) but has also said methotrexate. I have ‘failed’ on MMF and azathoprine. Had a big
Melba1
in
LUPUS UK
6 years ago
Loss of a great man
It is with a heavy heart I write this post. My father passed away on Thursday, Feb 8th. I brought him to the hospital on Monday as he had horrible pains in his ear and throat and was growing weak. His condition deteriorated with slight signs of pneumonia, ear infections and a loss of appetite, speech
It is with a heavy heart I write this post. My father passed away on Thursday, Feb 8th. I brought him to the hospital on Monday as he had horrible pains in his ear and throat and was growing weak. His condition deteriorated with slight signs of pneumonia, ear infections and a loss of appetite, speech
Stevediam
in
CLL Support
6 years ago
Second Rituximab Infusion
Hi, after my last post I was seen by my consultant last Thursday and the second MRI results were pretty much identical to the first MRI. So it was decided I have a neck ultrasound to have a closer look at my carotid artery. I had the ultrasound done yesterday morning and the sonologist said there was
Hi, after my last post I was seen by my consultant last Thursday and the second MRI results were pretty much identical to the first MRI. So it was decided I have a neck ultrasound to have a closer look at my carotid artery. I had the ultrasound done yesterday morning and the sonologist said there was
Vo321
in
Vasculitis UK
6 years ago
18months after FLAIR trial and hip arthritis looms....
18 months since abandoning FLAIR trial of Ibrutinib and Rituximab have been pretty well but the blood results are worsening and more treatment suggested soon- though I see two consultants and one wants to "nip it in the bud" (I thought it didn't make any difference) and the other thinks I am fine for
18 months since abandoning FLAIR trial of Ibrutinib and Rituximab have been pretty well but the blood results are worsening and more treatment suggested soon- though I see two consultants and one wants to "nip it in the bud" (I thought it didn't make any difference) and the other thinks I am fine for
romarin
in
CLL Support
6 years ago
EMA Accepts Conditional Application for ANCA Treatment Avacopan
I suffer from MPA and am currently on my third year of 6 monthly infusions of Rituximab + Prednisolone after an unsuccessful year of Cyclophosphamide. This keeps the worst of my symptoms largely at bay though they still grumble away in the background. Does anyone know if Avacopan, when/if approved,
I suffer from MPA and am currently on my third year of 6 monthly infusions of Rituximab + Prednisolone after an unsuccessful year of Cyclophosphamide. This keeps the worst of my symptoms largely at bay though they still grumble away in the background. Does anyone know if Avacopan, when/if approved,
amms43
in
Vasculitis UK
6 years ago
Rituximab
I just came across this study. May be a good conversation to have with one's doctor....http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0190425&utm_content=buffer1327d&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer
I just came across this study. May be a good conversation to have with one's doctor....http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0190425&utm_content=buffer1327d&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer
arcr
in
PMRGCAuk
6 years ago
Concern
I have ANCA Vasculitis but in remission at the moment and having Rituximab every 6 months.I also have Stage3/4 CKD but this last day am now passing blood and wondered if anybody has experienced the same.
I have ANCA Vasculitis but in remission at the moment and having Rituximab every 6 months.I also have Stage3/4 CKD but this last day am now passing blood and wondered if anybody has experienced the same.
Keithtim10
in
Vasculitis UK
6 years ago
First-Line Rituximab Bests Other MS Drugs in Sweden
First-Line Rituximab Bests Other MS Drugs in Sweden Click https://www.medpagetoday.com/neurology/multiplesclerosis/70393 for the full story:
First-Line Rituximab Bests Other MS Drugs in Sweden Click https://www.medpagetoday.com/neurology/multiplesclerosis/70393 for the full story:
erash
in
My MSAA Community
6 years ago
Did anyone else see this on the BBC today?
Hello everyone BBC has this piece on their website today . Very interesting for all of us I think you will agree. https://www.bbc.co.uk/news/amp/stories-42920045 5 months since my FCR and my bloods were back to being poor last week - neutropenia again which has set me back and I think may lead to a
Hello everyone BBC has this piece on their website today . Very interesting for all of us I think you will agree. https://www.bbc.co.uk/news/amp/stories-42920045 5 months since my FCR and my bloods were back to being poor last week - neutropenia again which has set me back and I think may lead to a
MattGGibson
in
CLL Support
6 years ago
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