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Ceftazidime intravenous infusion
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Living with Behcet's Syndrome for 22yrs
Hello every one, I live in the U.S.A. I have a great doctor. I was diagnosed @ 18 yrs old in November 1995. Nobody knew what I had or what to do until I found a new Dr. just being hired by my insurance. His name Dr. Andrew Nguyen. The first thing he did was start me on Remicade infusions on February
Hello every one, I live in the U.S.A. I have a great doctor. I was diagnosed @ 18 yrs old in November 1995. Nobody knew what I had or what to do until I found a new Dr. just being hired by my insurance. His name Dr. Andrew Nguyen. The first thing he did was start me on Remicade infusions on February
FRNSCGRL27
in
Behçet's UK
7 years ago
Leukeran (Chlorambucil) Rash?
In May of this year, I was diagnosed with Stage III CLL, and then a CLL specialist bumped that to Stage IV. In August, I started a course of monthly treatments with Gazyva and IVIg, and then 70mg of Leukeran at 15-day intervals. In November I began itching with each round of Leukeran, and then the itch
In May of this year, I was diagnosed with Stage III CLL, and then a CLL specialist bumped that to Stage IV. In August, I started a course of monthly treatments with Gazyva and IVIg, and then 70mg of Leukeran at 15-day intervals. In November I began itching with each round of Leukeran, and then the itch
Smedley54
in
CLL Support
7 years ago
IVIG
Hi all I recently had my second of 3 ivig infusions as I have had sinusitis and bronchitis for almost 3 months. Currently I'm finally feeling better and no side effects. My main issue is and has been for years is shortness of breath which I'm thinking is due to enlarged lymph nodes in my lungs and
Hi all I recently had my second of 3 ivig infusions as I have had sinusitis and bronchitis for almost 3 months. Currently I'm finally feeling better and no side effects. My main issue is and has been for years is shortness of breath which I'm thinking is due to enlarged lymph nodes in my lungs and
Ladydi49
in
CLL Support
7 years ago
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11 year old son ITP
I am seeking some insight. Brief history of my son. He had a bone marrow transplant in 2013..a side effect from it is that he developed ITP and had his spleen removed in 2013 and is currently being treated with 25mg Promacta. His platelets range from 10,000 - 65,000. When he has episodes of bleeding
I am seeking some insight. Brief history of my son. He had a bone marrow transplant in 2013..a side effect from it is that he developed ITP and had his spleen removed in 2013 and is currently being treated with 25mg Promacta. His platelets range from 10,000 - 65,000. When he has episodes of bleeding
Bishoprena
in
ITP Support Association
7 years ago
GRand daughter
She's 10 and and it's been 1 year now and every month sometime twice a month she drops to 1000 and 4000 nothing is working and IVIG isn't holding he count high enough we are lost on answers
She's 10 and and it's been 1 year now and every month sometime twice a month she drops to 1000 and 4000 nothing is working and IVIG isn't holding he count high enough we are lost on answers
Kayla2007
in
ITP Support Association
7 years ago
My son
My son had a kidney transplant when he was 3 in 2005, now at age 16 the Nephi wants to try again for the 4th time to get a biopsy. Kidney is hidden so all attempts have been a failure. Had to pay of course for them but no answers. Okay so I have to say this he has kidney stones in that transplanted
My son had a kidney transplant when he was 3 in 2005, now at age 16 the Nephi wants to try again for the 4th time to get a biopsy. Kidney is hidden so all attempts have been a failure. Had to pay of course for them but no answers. Okay so I have to say this he has kidney stones in that transplanted
ScoobyDoo910
in
Early CKD Support
7 years ago
Can I get IVIG?
Due to normal CK levels I’m not on steroids and don’t want to go on them either. But consultants are saying there’s no obvious signs of muscle weakness despite what I say. I’ve noticed a weird shape around my muscle bicep on my left arm this past 4 weeks and can’t carry anything. I had my first physio
Due to normal CK levels I’m not on steroids and don’t want to go on them either. But consultants are saying there’s no obvious signs of muscle weakness despite what I say. I’ve noticed a weird shape around my muscle bicep on my left arm this past 4 weeks and can’t carry anything. I had my first physio
MissFG
in
Myositis UK
7 years ago
Coverage for revolade
I’ve had ITP now for 6 months and so far fails on ivig and prednesone. I go to see a hematologist finally but only one time because the only one my doctor could get to see me is far to get to. So I was going to ask him if I could try revolade but there are two problems. One I have an enlarged heart
I’ve had ITP now for 6 months and so far fails on ivig and prednesone. I go to see a hematologist finally but only one time because the only one my doctor could get to see me is far to get to. So I was going to ask him if I could try revolade but there are two problems. One I have an enlarged heart
wjoyful
in
ITP Support Association
7 years ago
Is it safe to just take Promacta 50mg every other day since my platelets are high and I don't have a lower dose.
Hi All, I am at 311,000 platelets on 50mg promacta since 11/23 before that on 75mg Promacta. I am tapering slowly off prednisone. I am down to 4.5mg today Prednisone :). My hematologist said stop the Prednisone cold turkey as he has suggested I do before because he is confused what is keeping the platelets
Hi All, I am at 311,000 platelets on 50mg promacta since 11/23 before that on 75mg Promacta. I am tapering slowly off prednisone. I am down to 4.5mg today Prednisone :). My hematologist said stop the Prednisone cold turkey as he has suggested I do before because he is confused what is keeping the platelets
CDmom
in
ITP Support Association
7 years ago
Apparently time for treatment
Two years ago I was so angry and confused. I had no ideal there were so many others experiencing CLL. I started to read all the post and would wake during the night when it would wake me up to read lol the new post. I responded to a few post but realized I was very fortunate to be in the watch and wait
Two years ago I was so angry and confused. I had no ideal there were so many others experiencing CLL. I started to read all the post and would wake during the night when it would wake me up to read lol the new post. I responded to a few post but realized I was very fortunate to be in the watch and wait
Sallyurnotal
in
CLL Support
7 years ago
Introductions
Hi all, I was dx with dermatomyositis sine myositis due to my Chronic Lymphocytic Leukemia (CLL). It took just over 6 months of biopsies, blood tests, the other dermatologists coming in and looking at me. Once dx I chose to start on the CLL treatment. After 6 months of that (12 months on steroids) I
Hi all, I was dx with dermatomyositis sine myositis due to my Chronic Lymphocytic Leukemia (CLL). It took just over 6 months of biopsies, blood tests, the other dermatologists coming in and looking at me. Once dx I chose to start on the CLL treatment. After 6 months of that (12 months on steroids) I
Eliotf
in
Myositis UK
7 years ago
CD38 POSITIVE AND ZAP -70 POSITIVE
New to this forum but not new to CLL as I was diagnosed in Sept of '07 and so far no treatment but rather watch and wait. I was recently reviewing my flow cytometry from Sept of '07 and saw that I'm CD38 POSITIVE AND ZAP-70 POSITIVE so, I Googled it and it scares me! The article was suggesting that
New to this forum but not new to CLL as I was diagnosed in Sept of '07 and so far no treatment but rather watch and wait. I was recently reviewing my flow cytometry from Sept of '07 and saw that I'm CD38 POSITIVE AND ZAP-70 POSITIVE so, I Googled it and it scares me! The article was suggesting that
Ladydi49
in
CLL Support
7 years ago
Myasthenia Gravis
Hello Friends, I have MG, been two years. Underwent IVIG and 13 months of Plasma Pherfesses(sp). I have been on Cellcept for 22 months. I started a prednisone taper after 18 months at 60mg. In four months I was completely off. The pred caused severe osteoporosis, Glaucoma & cataracts as well as a long
Hello Friends, I have MG, been two years. Underwent IVIG and 13 months of Plasma Pherfesses(sp). I have been on Cellcept for 22 months. I started a prednisone taper after 18 months at 60mg. In four months I was completely off. The pred caused severe osteoporosis, Glaucoma & cataracts as well as a long
Mgsucks
in
PMRGCAuk
7 years ago
Future triple arthrodesis
Greetings, It was suggested to me by my foot and ankle orthopedic doctor that I undergo a triple arthodesis to my Rt foot. I have a severe flatfoot that greatly overpronates (turns in) and my foot is off to the side. I do have difficulty walking and get numbness, burning and tingling with weight bearing
Greetings, It was suggested to me by my foot and ankle orthopedic doctor that I undergo a triple arthodesis to my Rt foot. I have a severe flatfoot that greatly overpronates (turns in) and my foot is off to the side. I do have difficulty walking and get numbness, burning and tingling with weight bearing
123foot
in
NRAS
7 years ago
No need to afraid from ITP
My son,13 now was diagnosed with ITP in 2016, since then lots of steroids,so many IVIG and lots of costly medication, ...... A long period of trauma, physically, psychologically, mentally. Spent so much but of no use. Then we shifted to ayurvedic medicine, it's been 9 months my son got admitted to any
My son,13 now was diagnosed with ITP in 2016, since then lots of steroids,so many IVIG and lots of costly medication, ...... A long period of trauma, physically, psychologically, mentally. Spent so much but of no use. Then we shifted to ayurvedic medicine, it's been 9 months my son got admitted to any
Deepayada
in
ITP Support Association
7 years ago
i am new here.
Hi everyone, my name is fatah, i have low platelets since 2012 and i get IVIG every month 750 ml ,and it goes as low as 19 i was told , if i remove the spleen it will helpful any suggestion thank you.
Hi everyone, my name is fatah, i have low platelets since 2012 and i get IVIG every month 750 ml ,and it goes as low as 19 i was told , if i remove the spleen it will helpful any suggestion thank you.
Fatah
in
ITP Support Association
7 years ago
Decreased WBC's
My husband started Imbruvica 5weeks ago , along with Allopurinol and an Infusion once a month of IVIG. The concern I have is that when he started his WBC's were 265, they are now down to 65, which is great , has anyone else had this experience, to be honest I didn't think it would go down that quickly
My husband started Imbruvica 5weeks ago , along with Allopurinol and an Infusion once a month of IVIG. The concern I have is that when he started his WBC's were 265, they are now down to 65, which is great , has anyone else had this experience, to be honest I didn't think it would go down that quickly
Chintzy
in
CLL Support
7 years ago
48 year old male just diagnosed with ITP 4 weeks ago
Hi everyone. Thought I would register myself with the ITP Support Association and tell my story here. I am a 48 year old male who was up until the 4th October this year a fit healthy person with no idea that ITP was even possible. I finished work at 11pm on the 3rd October and then went to bed. At 2am
Hi everyone. Thought I would register myself with the ITP Support Association and tell my story here. I am a 48 year old male who was up until the 4th October this year a fit healthy person with no idea that ITP was even possible. I finished work at 11pm on the 3rd October and then went to bed. At 2am
Steve5563
in
ITP Support Association
7 years ago
New ITP Patient Coming to the UK :) Help Please
Hi all, I'm pretty new to ITP (2 stormy months since diagnosis with 1000 platelets). High dose prednisone, IVIG did nothing good (just bad). On Revolade now, thankfully . so far seems to be having an affect! Now the thing is - I was just starting a new job when this broke out! I need to move to the
Hi all, I'm pretty new to ITP (2 stormy months since diagnosis with 1000 platelets). High dose prednisone, IVIG did nothing good (just bad). On Revolade now, thankfully . so far seems to be having an affect! Now the thing is - I was just starting a new job when this broke out! I need to move to the
BellaMo
in
ITP Support Association
7 years ago
Igg infusions
Diagnosed CLL. Had (2) Ivig treatments. Exactly 4-5 hours after rapid heartbeat. One week later massive headache, leg aches, lower back (which has been there since that day) kidney ache. Went to oncologist. Dr. tend to brush stuff off like you would have had symptoms right after. Then they tell
Diagnosed CLL. Had (2) Ivig treatments. Exactly 4-5 hours after rapid heartbeat. One week later massive headache, leg aches, lower back (which has been there since that day) kidney ache. Went to oncologist. Dr. tend to brush stuff off like you would have had symptoms right after. Then they tell
kathmich
in
CLL Support
7 years ago
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